Video & Transcript Research : 'ALS'

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MN

Minnesota 2025-2026 Regular Session

Hied Committee Meeting - 2025-04-21

Higher Education Finance and Policy

Transcript Highlights:
  • a change on line 52 in column N for FY 25, which is a cancellation, resulting in a reduction of the ALS
  • canceled in FY 25 and is now reappropriated in FY 26 for the same purpose, but now appropriated for ALS
  • paragraph J is the language that dedicates $15.262 million in new one-time funding to the University for ALS
  • Savory mentioned for the ALS research that was previously appropriated to the Office of Higher Education
Bills: HF2312
MN

Minnesota 2025 1st Special Session

House Higher Education Finance and Policy Committee 4/21/25

Higher Education Finance and Policy

Transcript Highlights:
  • <00:09:57.760> research<00:09:58.080> program reduction of the ALS research program
  • So it's the same purpose, but now is appropriated for ALS research at the U of M. and they have several
  • research in partnership with the ALS research in partnership with the Mayo Clinic.<00:29:23.200>
  • Savory mentioned for<00:29:57.679> the<00:29:57.919> ALS<00:29:58.559> research<
  • that was previously for the ALS research that was previously appropriated<00:30:00.320> to<00
Bills: HF2312
MN

Minnesota 2025 1st Special Session

House Higher Education Finance and Policy Committee 4/10/25

Higher Education Finance and Policy

Transcript Highlights:
  • So, the DE2 is a bill that is actually a Representative Hills bill about ALS, and it is a zero-target
  • c> actually a Representative Hills bill actually a Representative Hills bill about<00:01:31.680> ALS
  • 33.040> a<00:01:33.200> zero<00:01:33.680> target<00:01:34.079> bill about ALS
  • and it is a zero target bill about ALS and it is a zero target bill that<00:01:34.720> matches
Bills: HF2431
OK

Oklahoma 2026 Regular Session

Joint Committee on Appropriations and Budget 2nd Revised Apr 20th, 2026 at 04:30 pm

Joint Committee on Appropriations and Budget

Transcript Highlights:
  • Senator Brooks, Dossett, al, a, h, har, Goodwin, Green, Hicks, Howardyak.
  • Call the rope, Senator Brooks, Dossett, Al, A, H, Er, Goodwin, Green Stanley, Stuart, Woods, Haste, Senator
MN

Minnesota 2025-2026 Regular Session

House Ways and Means Committee 4/23/25

Ways and Means

Transcript Highlights:
  • It pertains to the ALS research grants in honor of Thomas, and it was said that the language included
  • It pertains to the ALS<00:02:25.680> research<00:02:26.239> grants<00:02:26.640> in<
  • /c><00:02:26.879> honor<00:02:27.040> of<00:02:27.640> Thomas ALS research grants
  • in honor of Thomas ALS research grants in honor of Thomas and<00:02:29.280> uh<00:02:29.440><
  • co-chair Raric mentioned, the ALS co-chair Raric mentioned, the ALS funding<00:05:09.600> money
TX

Texas 89th Regular

Senate Session Feb 3rd, 2025

Texas Senate Floor Meeting

Transcript Highlights:
  • Senate Bill 147 by Menendez et al. Senate Bill 147 by Menendez et al.
  • Senate Bill 148 by Menendez et al.
  • Senate Bill 161 by Menendez et al.
  • Senate Bill 256 by Alvarado et al.
  • Senate Bill 350 by Eckhart et al. Senate Bill 350 by Eckhart et al.
Bills: SJR36, SB2, SJR6, SJR7, SJR8, SJR9, SJR10, SJR11, SJR12, SJR13, SJR14, SJR15, SJR16, SJR17, SJR18, SJR19, SJR20, SJR21, SJR22, SJR23, SJR24, SJR25, SJR26, SJR27, SJR28, SJR29, SJR30, SJR31, SJR32, SJR49, SCR1, SCR2, SCR3, SCR4, SCR5, SCR6, SCR8, SCR9, SB9, SB41, SB42, SB43, SB44, SB45, SB46, SB47, SB48, SB49, SB50, SB51, SB52, SB53, SB54, SB55, SB56, SB57, SB58, SB59, SB60, SB61, SB62, SB63, SB64, SB65, SB66, SB67, SB68, SB69, SB70, SB71, SB72, SB73, SB74, SB75, SB76, SB77, SB78, SB79, SB80, SB81, SB82, SB83, SB84, SB85, SB86, SB87, SB88, SB89, SB90, SB91, SB92, SB93, SB94, SB95, SB96, SB97, SB98, SB99, SB100, SB101, SB102, SB103, SB104, SB105, SB106, SB107, SB108, SB109, SB110, SB111, SB112, SB113, SB114, SB115, SB116, SB117, SB118, SB119, SB120, SB121, SB122, SB123, SB124, SB125, SB126, SB127, SB128, SB129, SB130, SB131, SB132, SB133, SB134, SB135, SB136, SB137, SB138, SB139, SB140, SB141, SB142, SB143, SB144, SB145, SB146, SB147, SB148, SB149, SB150, SB151, SB152, SB153, SB154, SB155, SB156, SB157, SB158, SB159, SB160, SB161, SB162, SB163, SB164, SB165, SB166, SB167, SB168, SB169, SB170, SB171, SB172, SB173, SB174, SB175, SB176, SB177, SB178, SB179, SB180, SB181, SB182, SB183, SB184, SB185, SB186, SB187, SB188, SB189, SB190, SB191, SB192, SB193, SB194, SB195, SB196, SB197, SB198, SB199, SB200, SB201, SB202, SB203, SB204, SB205, SB206, SB207, SB208, SB209, SB210, SB211, SB212, SB213, SB214, SB215, SB216, SB217, SB218, SB219, SB220, SB221, SB222, SB223, SB224, SB225, SB226, SB227, SB228, SB229, SB230, SB231, SB232, SB233, SB234, SB235, SB236, SB237, SB238, SB239, SB240, SB241, SB242, SB243, SB244, SB245, SB246, SB247, SB248, SB249, SB250, SB251, SB252, SB253, SB254, SB255, SB256, SB257, SB258, SB259, SB260, SB261, SB262, SB263, SB264, SB265, SB266, SB267, SB268, SB269, SB270, SB271, SB272, SB273, SB274, SB275, SB276, SB277, SB278, SB279, SB280, SB281, SB282, SB283, SB284, SB285, SB286, SB287, SB288, SB289, SB290, SB291, SB292, SB293, SB294, SB295, SB296, SB297, SB298, SB299, SB300, SB301, SB302, SB303, SB304, SB305, SB306, SB307, SB308, SB309, SB310, SB311, SB312, SB313, SB314, SB315, SB316, SB317, SB318, SB319, SB320, SB321, SB322, SB323, SB324, SB325, SB326, SB327, SB328, SB329, SB330, SB331, SB332, SB333, SB334, SB335, SB336, SB337, SB338, SB339, SB340, SB341, SB342, SB343, SB344, SB345, SB346, SB347, SB348, SB349, SB350, SB351, SB352, SB353, SB354, SB355, SB356, SB357, SB358, SB359, SB360, SB361, SB362, SB363, SB364, SB365, SB366, SB367, SB368, SB369, SB370, SB371, SB372, SB373, SB374, SB375, SB376, SB377, SB378, SB379, SB380, SB381, SB382, SB383, SB384, SB385, SB386, SB387, SB388, SB389, SB390, SB391, SB392, SB393, SB394, SB395, SB396, SB397, SB398, SB399, SB400, SB401, SB402, SB403, SB404, SB405, SB406, SB407, SB408, SB409, SB410, SB411, SB412, SB413, SB414, SB415, SB416, SB417, SB418, SB419, SB420, SB421, SB422, SB423, SB424, SB425, SB426, SB427, SB428, SB429, SB430, SB431, SB432, SB433, SB434, SB435, SB436, SB437, SB438, SB439, SB440, SB441, SB442, SB443, SB444, SB445, SB446, SB447, SB448, SB449, SB450, SB451, SB452, SB453, SB454, SB455, SB456, SB457, SB458, SB459, SB460, SB461, SB462, SB463, SB464, SB465, SB466, SB467, SB468, SB469, SB470, SB471, SB472, SB473, SB474, SB475, SB476, SB477, SB478, SB479, SB480, SB481, SB482, SB483, SB484, SB485, SB486, SB487, SB488, SB489, SB490, SB491, SB492, SB493, SB494, SB495, SB496, SB497, SB498, SB499, SB500, SB501, SB502, SB503, SB504, SB505, SB506, SB507, SB508, SB509, SB510, SB511, SB512, SB513, SB514, SB515, SB516, SB517, SB518, SB519, SB520, SB521, SB522, SB523, SB524, SB525, SB526, SB527, SB528, SB529, SB530, SB531, SB532, SB533, SB534, SB535, SB536, SB537, SB538, SB539, SB540, SB541, SB542, SB543, SB544, SB545, SB546, SB547, SB548, SB549, SB550, SB551, SB552, SB553, SB554, SB555, SB556, SB557, SB558, SB559, SB560, SB561, SB562, SB563, SB564, SB565, SB566, SB567, SB568, SB569, SB570, SB571, SB572, SB573, SB574, SB575, SB576, SB577, SB578, SB579, SB580, SB581, SB582, SB583, SB584, SB585, SB586, SB587, SB588, SB589, SB590, SB591, SB592, SB593, SB594, SB595, SB596, SB597, SB598, SB599, SB600, SB601, SB602, SB603, SB604, SB605, SB606, SB607, SB608, SB609, SB610, SB611, SB612, SB613, SB614, SB615, SB616, SB617, SB618, SB619, SB620, SB621, SB622, SB623, SB624, SB625, SB626, SB627, SB628, SB629, SB630, SB631, SB632, SB633, SB634, SB635, SB636, SB637, SB638, SB639, SB640, SB641, SB642, SB643, SB644, SB645, SB646, SB647, SB648, SB649, SB650, SB651, SB652, SB653, SB654, SB655, SB656, SB657, SB658, SB659, SB660, SB661, SB662, SB663, SB664, SB665, SB666, SB667, SB668, SB669, SB670, SB671, SB672, SB673, SB674, SB675, SB676, SB677, SB678, SB679, SB680, SB681, SB682, SB683, SB684, SB685, SB686, SB687, SB688, SB689, SB690, SB691, SB692, SB693, SB694, SB695, SB696, SB697, SB699, SB700, SB1047, SB1048, SJR6, SJR7, SJR8, SJR9, SJR10, SJR11, SJR12, SJR13, SJR14, SJR15, SJR16, SJR17, SJR18, SJR19, SJR20, SJR21, SJR22, SJR23, SJR24, SJR25, SJR26, SJR27, SJR28, SJR29, SJR30, SJR31, SJR32, SJR49, SCR1, SCR2, SCR3, SCR4, SCR5, SCR6, SCR8, SCR9, SB9, SB41, SB42, SB43, SB44, SB45, SB46, SB47, SB48, SB49, SB50, SB51, SB52, SB53, SB54, SB55, SB56, SB57, SB58, SB59, SB60, SB61, SB62, SB63, SB64, SB65, SB66, SB67, SB68, SB69, SB70, SB71, SB72, SB73, SB74, SB75, SB76, SB77, SB78, SB79, SB80, SB81, SB82, SB83, SB84, SB85, SB86, SB87, SB88, SB89, SB90, SB91, SB92, SB93, SB94, SB95, SB96, SB97, SB98, SB99, SB100, SB101, SB102, SB103, SB104, SB105, SB106, SB107, SB108, SB109, SB110, SB111, SB112, SB113, SB114, SB115, SB116, SB117, SB118, SB119, SB120, SB121, SB122, SB123, SB124, SB125, SB126, SB127, SB128, SB129, SB130, SB131, SB132, SB133, SB134, SB135, SB136, SB137, SB138, SB139, SB140, SB141, SB142, SB143, SB144, SB145, SB146, SB147, SB148, SB149, SB150, SB151, SB152, SB153, SB154, SB155, SB156, SB157, SB158, SB159, SB160, SB161, SB162, SB163, SB164, SB165, SB166, SB167, SB168, SB169, SB170, SB171, SB172, SB173, SB174, SB175, SB176, SB177, SB178, SB179, SB180, SB181, SB182, SB183, SB184, SB185, SB186, SB187, SB188, SB189, SB190, SB191, SB192, SB193, SB194, SB195, SB196, SB197, SB198, SB199, SB200, SB201, SB202, SB203, SB204, SB205, SB206, SB207, SB208, SB209, SB210, SB211, SB212, SB213, SB214, SB215, SB216, SB217, SB218, SB219, SB220, SB221, SB222, SB223, SB224, SB225, SB226, SB227, SB228, SB229, SB230, SB231, SB232, SB233, SB234, SB235, SB236, SB237, SB238, SB239, SB240, SB241, SB242, SB243, SB244, SB245, SB246, SB247, SB248, SB249, SB250, SB251, SB252, SB253, SB254, SB255, SB256, SB257, SB258, SB259, SB260, SB261, SB262, SB263, SB264, SB265, SB266, SB267, SB268, SB269, SB270, SB271, SB272, SB273, SB274, SB275, SB276, SB277, SB278, SB279, SB280, SB281, SB282, SB283, SB284, SB285, SB286, SB287, SB288, SB289, SB290, SB291, SB292, SB293, SB294, SB295, SB296, SB297, SB298, SB299, SB300, SB301, SB302, SB303, SB304, SB305, SB306, SB307, SB308, SB309, SB310, SB311, SB312, SB313, SB314, SB315, SB316, SB317, SB318, SB319, SB320, SB321, SB322, SB323, SB324, SB325, SB326, SB327, SB328, SB329, SB330, SB331, SB332, SB333, SB334, SB335, SB336, SB337, SB338, SB339, SB340, SB341, SB342, SB343, SB344, SB345, SB346, SB347, SB348, SB349, SB350, SB351, SB352, SB353, SB354, SB355, SB356, SB357, SB358, SB359, SB360, SB361, SB362, SB363, SB364, SB365, SB366, SB367, SB368, SB369, SB370, SB371, SB372, SB373, SB374, SB375, SB376, SB377, SB378, SB379, SB380, SB381, SB382, SB383, SB384, SB385, SB386, SB387, SB388, SB389, SB390, SB391, SB392, SB393, SB394, SB395, SB396, SB397, SB398, SB399, SB400, SB401, SB402, SB403, SB404, SB405, SB406, SB407, SB408, SB409, SB410, SB411, SB412, SB413, SB414, SB415, SB416, SB417, SB418, SB419, SB420, SB421, SB422, SB423, SB424, SB425, SB426, SB427, SB428, SB429, SB430, SB431, SB432, SB433, SB434, SB435, SB436, SB437, SB438, SB439, SB440, SB441, SB442, SB443, SB444, SB445, SB446, SB447, SB448, SB449, SB450, SB451, SB452, SB453, SB454, SB455, SB456, SB457, SB458, SB459, SB460, SB461, SB462, SB463, SB464, SB465, SB466, SB467, SB468, SB469, SB470, SB471, SB472, SB473, SB474, SB475, SB476, SB477, SB478, SB479, SB480, SB481, SB482, SB483, SB484, SB485, SB486, SB487, SB488, SB489, SB490, SB491, SB492, SB493, SB494, SB495, SB496, SB497, SB498, SB499, SB500, SB501, SB502, SB503, SB504, SB505, SB506, SB507, SB508, SB509, SB510, SB511, SB512, SB513, SB514, SB515, SB516, SB517, SB518, SB519, SB520, SB521, SB522, SB523, SB524, SB525, SB526, SB527, SB528, SB529, SB530, SB531, SB532, SB533, SB534, SB535, SB536, SB537, SB538, SB539, SB540, SB541, SB542, SB543, SB544, SB545, SB546, SB547, SB548, SB549, SB550, SB551, SB552, SB553, SB554, SB555, SB556, SB557, SB558, SB559, SB560, SB561, SB562, SB563, SB564, SB565, SB566, SB567, SB568, SB569, SB570, SB571, SB572, SB573, SB574, SB575, SB576, SB577, SB578, SB579, SB580, SB581, SB582, SB583, SB584, SB585, SB586, SB587, SB588, SB589, SB590, SB591, SB592, SB593, SB594, SB595, SB596, SB597, SB598, SB599, SB600, SB601, SB602, SB603, SB604, SB605, SB606, SB607, SB608, SB609, SB610, SB611, SB612, SB613, SB614, SB615, SB616, SB617, SB618, SB619, SB620, SB621, SB622, SB623, SB624, SB625, SB626, SB627, SB628, SB629, SB630, SB631, SB632, SB633, SB634, SB635, SB636, SB637, SB638, SB639, SB640, SB641, SB642, SB643, SB644, SB645, SB646, SB647, SB648, SB649, SB650, SB651, SB652, SB653, SB654, SB655, SB656, SB657, SB658, SB659, SB660, SB661, SB662, SB663, SB664, SB665, SB666, SB667, SB668, SB669, SB670, SB671, SB672, SB673, SB674, SB675, SB676, SB677, SB678, SB679, SB680, SB681, SB682, SB683, SB684, SB685, SB686, SB687, SB688, SB689, SB690, SB691, SB692, SB693, SB694, SB695, SB696, SB697, SB699, SB700, SB1047, SB1048
AZ

Arizona 2026 Regular Session

03/19/2026 - House Floor Session

Arizona House Floor Meeting

Transcript Highlights:
  • A proclamation sponsored by Representative Selina Bliss: ALS Awareness Day.
  • A proclamation sponsored by Representative Selina Bliss, ALS Awareness Day.
  • She was diagnosed in 2003 with ALS at the age of 55.
  • He was diagnosed with ALS at 64 and attends the HonorHealth multidisciplinary ALS clinic.
  • He is very involved in the ALS Society and is a member of the ALS Arizona Board of Directors.
Keywords: 1182, all
Summary: The Arizona House opened with prayer, the Pledge of Allegiance, approval of the March 18, 2026 journal, and recognition of Doctor of the Day Dr. Bradley Butler, an Arizona emergency physician and Navy Reserve captain. Members also introduced visiting carpenters, local officials from Show Low, World Down Syndrome Day advocates, and Giffords Courage Fellows. The House read and adopted a proclamation designating March 19, 2026 as ALS Awareness Day, with remarks from Representative Selina Bliss and testimony from ALS patients and advocates about the disease’s impact and the need for research, care, and support. The House then adopted House Resolution 2007 honoring Sheila “Ginger” Mattox, with family and friends present and members speaking about her community service and problem-solving work in Phoenix’s FQ Story neighborhood. The resolution was adopted unanimously, followed by a moment of silence. The chamber also announced committee assignments and received Senate messages listing several bills on first and second reading. The House resolved into Committee of the Whole to consider HB 2680, which received a Commerce Committee amendment and a floor amendment before being recommended do pass as amended. The House adopted the Committee of the Whole report and referred HB 2680 to engrossing. Later, HB 1004 was withdrawn from the Education Committee and additionally referred to Judiciary. The House recessed, made several announcements, and then adjourned until 1:30 p.m. on Monday, March 23, 2026.
WA
Transcript Highlights:
  • ALE is a course-level designation.
  • about including a student data when they have one ALE course, or maybe they have all ALE courses but
  • We have been an ALE program since 2006.
  • We are a full ALE program.
  • For selective ALE.
Summary: The committee met to hear an overview of Washington’s alternative learning experience (ALE) programs and then an update on artificial intelligence in schools. OSPI’s Anissa Sherritt explained that ALE is a course-level funding designation for instruction that occurs partly or wholly away from the traditional seat-time model, with online, site-based, and remote course types. She emphasized that ALE is still basic education, subject to the same public school requirements, and that OSPI provides technical assistance, annual reporting review, and program reviews. Representatives from several programs described different models: Washington Virtual Academy (a large online ALE operated through Omak School District and partnered with for-profit Stride), Columbia Virtual Academy in Valley School District (a district-run, nonprofit online/remote program), Pearl in Quilcene (a K-8 remote parent partnership program), and River Home Link in Battleground (a site-based hybrid program). They discussed student supports, special education, enrichment, family choice, transportation, and how they measure outcomes. Members asked for follow-up information on funding, demographics, racial and ethnic data, multilingual learners, and post-graduation outcomes, and OSPI agreed to provide additional data where available. The committee then heard from OSPI and several districts about AI guidance and implementation. OSPI’s Holly Ryan Calloway described the agency’s human-centered AI framework, three guidance documents for schools, statewide professional learning, an AI innovation summit, and new AI literacy and informatics course frameworks and CIP codes. Quincy School District described a multi-year effort to integrate AI by centering student needs, creating district policy and classroom guidance, and training teachers to use AI responsibly while building an AI readiness plan from elementary through high school. Peninsula School District described its AI action research team, teacher professional learning, and classroom uses of generative AI to support science instruction, communication, and prompt engineering, while stressing that AI should enhance rather than replace learning. Members raised questions about privacy, energy and water use, prompt engineering, workforce and university connections, and the need for clear standards and ongoing educator training. No votes were taken.
NV

Nevada 2025 Regular Session

Assembly Floor Session May 31st, 2025 at 10:00 am

Nevada Assembly Floor Meeting

Transcript Highlights:
  • Senate Bill 260, introduced by Senator Flores et al., and Assemblymembers Moore et al., revises provisions
  • Assembly Bill No. 304, introduced by Assemblymembers Karras et al. and Senators Hanson et al., creates
  • Assembly Bill No. 304, introduced by Assemblymembers Karas et al. and Senators Hanson et al., Assembly
  • Bill No. 304, introduced by Assemblymembers Karas et al. and Senators Hanson et al., creates a pilot
  • Senate Bill No. 277, introduced by Senators Cruz-Crawford et al. and Assemblymembers Jackson et al.,
Keywords: 909, all
MN

Minnesota 2025-2026 Regular Session

House Floor Session - part 1 May 12th, 2025

Minnesota House Floor Meeting

Transcript Highlights:
  • is diagnosed with ALS. since someone passes away from ALS.
  • And whereas the exact cause of ALS is unknown and there is no known cure.
  • Whereas the ALS Association is the largest philanthropic funder of ALS research globally and has committed
  • one day ALS will be a livable disease for everyone, everywhere, until a cure can be found.
  • Awareness Month and calls upon all Americans to join in supporting ALS research.
MN

Minnesota 2025 1st Special Session

House Floor Session 5/12/25 - Part 1

Minnesota House Floor Meeting

Transcript Highlights:
  • is diagnosed with ALS and someone passes away from ALS.
  • And someone passes away from ALS.
  • And whereas the exact cause of ALS are unknown and there is no known cure.
  • Whereas the ALS Association is the largest philanthropic funder of ALS research globally and has committed
  • May 2025 as ALS awareness month and May 2025 as ALS awareness month and calls<00:16:58.480> upon
Keywords: 1183, house
TX

Texas 89th Regular

Senate Session Aug 15th, 2025

Texas Senate Floor Meeting

Transcript Highlights:
  • Senate Bill 2 by Perry et al., relating to disaster preparedness, response, and recovery.
  • To finance, Senate Bill 3 by Bettencourt et al.
  • To finance, Senate Bill 6 by Perry et al., relating to the regulation of certain products.
  • Senate Bill 7 by Hughes et al. relating to abortion to State Affairs.
  • Senate Bill 12 by Hughes et al. relating to an affirmative defense to prosecution for certain victims
NV

Nevada 2025 Regular Session

Assembly Floor Session May 30th, 2025 at 11:30 am

Nevada Assembly Floor Meeting

Transcript Highlights:
  • Senate Bill 318, introduced by Senators Daly et al., revises provisions relating to charter schools.
  • Senate Bill 435, introduced by Senators Cannizzaro et al. and Assembly Members Yeager et al., revises
  • Senate Bill 263, introduced by Senators Cannizzaro et al. and Assemblymembers Dalia et al., revises provisions
  • Senate Bill 323, introduced by Senator Scheible et al., revises provisions relating to offenders.
  • Senate Bill 277, introduced by Senators Cruz-Crawford et al. and Assemblymembers Jackson et al., revises
Keywords: 909, all