Video & Transcript : 'Down syndrome' :

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Transcript Highlights:
  • These guys went down to the state of Texas and beat all the teams down there to win the Texas state championship
  • I Think it's great we got some Oklahoma kids to go down there and show the Texans how it's done.
  • Way to make us proud and beat all those guys down south. Mr. Floor Leader, thank you, Mr. Speaker.
  • I have some great leaders from my district down in Seminole. Go ahead and stand up.
  • There is an infinite need for judges down there.
LA

Louisiana 2026 Regular Session

House of Representatives Mar 23rd, 2026

Louisiana House Floor Meeting

Transcript Highlights:
  • Senate Concurrent Resolution 13, by Senator Wiley, designates Saturday, March 21, as World Down Syndrome
  • Members, can you please hold the conversations down? Hold on, Madam Clerk. Mr.
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Transcript Highlights:
  • You walk down the hall and you get exercise. You get nutrition.
  • As I sat at my desk this morning in my office at home, watching the clock tick down to about 2 a.m.,
  • And we were up on the fourth floor getting married, and she was down on the second floor vetoing our
  • I went off down a rabbit hole about how it's great because everybody has their favorite meteorologist
  • How I could possibly support something like this when we were able to get it shut down two years ago.
LA

Louisiana 2026 Regular Session

Senate May 29th, 2026

Louisiana Senate Floor Meeting

Transcript Highlights:
  • because we're in 2026 going into a map that we know is flawed, that we know is going to get struck down
  • that the Department of Wildlife and Fisheries work with the United States Forest Service. ...took down
  • Senator Reese, is it true that if you're a better shot, you don't need the dogs to track down the deer
MA

Massachusetts 2025-2026 Regular Session

Joint Committee on State Administration and Regulatory Oversight Jun 21st, 2026 at 01:00 pm

Joint Committee on State Administration and Regulatory Oversight

Transcript Highlights:
  • So the first one is an act designating June 7th as Tourette Syndrome Awareness Day.
  • At first, she genuinely had no idea Owen had Tourette syndrome.
  • June 7th as Massachusetts Tourette Syndrome Awareness Day.
  • I'm 13 years old, and I have Tourette syndrome.
  • And I'm not going to go into the details of trying to go down that issue.
Summary: The committee on State Administration and Regulatory Oversight held a hybrid hearing covering public construction, business regulations, and honorary designations, with most of the discussion focused on two matters: a five-year moratorium on new jail and prison construction (S. 2114/H. 3422) and a bill designating June 7 as Tourette Syndrome Awareness Day (S. 2152/H. 3305). The chair emphasized that the hearing was public, testimony would be recorded, and speakers should generally keep remarks to three minutes. Senator Comerford introduced the prison moratorium bill, saying it would pause new construction while allowing renovations, and Senator Friedman introduced the Tourette awareness bill and a separate Tuskegee Airmen commemoration measure, asking for favorable action on both honorary designations. A large portion of the hearing featured remote testimony from incarcerated people at MCI Framingham and MCI Shirley in support of the prison moratorium. Witnesses repeatedly argued that Massachusetts does not need a new women’s prison, that the incarcerated population is declining, and that funds would be better spent on mental health care, addiction treatment, vocational training, pre-release programming, housing, and repairs to existing facilities. Several speakers described poor conditions, limited programming, and the need to address trauma, domestic violence, and substance use as root causes of incarceration. One committee member responded to testimony by noting that incarceration numbers are going down, that the state is working on housing and workforce opportunities for people returning home, and that the committee wants to expand pathways to employment and reentry. The Tourette Syndrome Awareness Day bill drew testimony from the bill’s young sponsor, Owen Rosenthal, his parents, medical professionals, and advocates. They described Tourette syndrome as a misunderstood neurodevelopmental condition, said awareness would reduce stigma and improve diagnosis and support, and cited the need for education in schools, workplaces, and the medical community. The Tourette Association of America supported the bill, noting underdiagnosis, co-occurring conditions, pain, and mental health risks associated with Tourette syndrome. Committee members praised the youth advocates and asked that written testimony be submitted electronically. The hearing ended without any recorded votes or final committee action in the transcript provided.
CA

California 2025-2026 Regular Session

Senate Floor Session Mar 19th, 2026

California Senate Floor Meeting

Transcript Highlights:
  • syndrome awareness month and California Down syndrome awareness day.
  • and California Down syndrome Awareness Day.
  • triplication of the 21st chromosome that causes Down syndrome.
  • Down syndrome occurs in one out of every 700 to 1,000 births.
  • It is my sister Sherry who lives with Down syndrome.
Summary: The Senate met with a quorum, welcomed former legislative leaders and members to the floor, and opened with a prayer and the Pledge of Allegiance. The session then focused on several ceremonial resolutions and a lengthy adjourn-in-memory tribute to former Senate President Pro Tem John Burton. Members repeatedly described Burton as a forceful, unvarnished advocate for foster youth, the poor, and other vulnerable Californians, while also sharing personal stories about his humor, bluntness, and bipartisan relationships. The Senate also announced upcoming committee hearings and birthday recognitions for several members and former Speaker Willie Brown. Three resolutions were taken up and adopted unanimously or near-unanimously. SCR 133, by Senator Grayson, recognized California Down Syndrome Awareness Month and Day; Grayson spoke about the dignity, autonomy, and contributions of people with Down syndrome, and introduced guests from the Down Syndrome Connection of the Bay Area and several families. SCR 134, by Senator Wahab, recognized Nowruz and the Afghan American community; Wahab and Senator Caballero highlighted the holiday’s themes of renewal and the contributions of Persian and Afghan Americans, and members received baklava gift boxes. SCR 139, also by Senator Wahab, recognized Afghan American Heritage Month; Wahab and Senator Grove emphasized Afghan Americans’ history, resilience, and service, and Wahab introduced leaders from the Afghan Coalition and other community advocates. Each resolution was adopted by roll call vote. The remainder of the session was devoted to memorial remarks for John Burton, with speeches from the President Pro Tem, minority leader, and many senators recalling his work on foster youth, public service, and California politics. Members also suspended and later reinstated Mason’s Manual rules to allow direct quotations during the tribute. The Senate concluded by expressing condolences to Burton’s family and colleagues, inviting members to a reception, and announcing that the chamber would reconvene later in the week for the formal adjourn-in-memory motion.
CA

California 2025-2026 Regular Session

Assembly Floor Session Mar 19th, 2026

California House Floor Meeting

Transcript Highlights:
  • Assembly Concurrent Resolution 154 by Assembly Member Patterson relative to California Down syndrome
  • Down syndrome is the most commonly occurring chromosomal condition.
  • About 5,000 people are born with Down syndrome every year, or about one in every 775 babies.
  • Approximately 220,000 people in the United States have Down syndrome.
  • And my sister, my older sister, has Down syndrome.
MO

Missouri 2026 Regular Session

Children and Families Mar 31st, 2026 at 08:00 am

Children and Families

Transcript Highlights:
  • Or they fell down the stairs or they're just clumsy, those kinds of things. Exactly.
  • The battered spouse syndrome law was passed, I believe, in 1987.
  • Battered women's syndrome, again, defense doesn't work for everybody.
  • Battered women's syndrome, again, the defense doesn't work for everybody.
  • The battered spouse syndrome, 563.033, was updated in 2014.
CA

California 2025-2026 Regular Session

Senate Floor Session Mar 19th, 2026

California Senate Floor Meeting

Transcript Highlights:
  • Syndrome Awareness Month and California Down Syndrome Awareness Day.
  • Down Syndrome Awareness Day is observed on March 21st every year.
  • The triplication of the 21st chromosome that causes Down syndrome.
  • Down syndrome occurs in one out of every 700 to 1,000 births.
  • It is my sister Sherry, who lives with Down syndrome.
Summary: The Senate convened with a quorum, opened with prayer and the Pledge of Allegiance, and welcomed numerous former legislators to the floor. The body then moved through the daily file, including several resolutions recognizing cultural observances and a memorial tribute to former President Pro Tem John Burton. Senator Padilla also moved file item 24 to the enacted file, and the Senate announced upcoming committee and budget subcommittee meetings later in the day. The chamber adopted Senate Concurrent Resolution 133, recognizing California Down Syndrome Awareness Month and Day, after remarks from Senator Grayson about the contributions and dignity of people with Down syndrome and the importance of support systems for individuals and families. The Senate also adopted SCR 134 recognizing Nowruz and the Afghan American community, with remarks from Senator Wahab and support from Senator Kaverya, and adopted SCR 139 recognizing Afghan American Heritage Month. Each resolution passed by roll call vote with no opposition. A major portion of the session was devoted to an adjourned-in-memory tribute to former Senate President Pro Tem John Burton. Senators from both parties and several former members offered personal recollections emphasizing Burton’s advocacy for foster youth, working people, and marginalized Californians, as well as his blunt style and political influence. Members highlighted his legislative legacy, his later work through the John Burton Advocates for Youth, and his role in shaping California politics and San Francisco. The Senate concluded the tribute, invited members to a reception, and announced that it would remain in recess before reconvening later in the week.
CA

California 2025-2026 Regular Session

Assembly Floor Session Mar 19th, 2026

California House Floor Meeting

Transcript Highlights:
  • Assembly Concurrent Resolution 154 by Assembly Member Patterson relative to California Down syndrome
  • Down syndrome is the most commonly occurring chromosomal condition.
  • About 5,000 people are born with Down syndrome every year, or about one in every 775 babies.
  • Approximately 220,000 people in the United States have Down syndrome.
  • And my sister, my older sister, has Down syndrome.
Summary: The Assembly convened after a quorum call, heard a prayer and Pledge of Allegiance, and then moved through a largely ceremonial and procedural floor session. Speaker Revis delivered remarks condemning the sexual abuse allegations involving Cesar Chavez and said he would work with Senate leadership on legislation to rename Cesar Chavez Day as Farm Worker Day. The body also handled several procedural motions, including re-referrals of bills to committees and guest introductions for visiting students, advocacy groups, and university representatives. The main substantive actions were on a series of resolutions. H.R. 83, recognizing Developmental Disabilities Awareness Month, drew extensive personal testimony from Assemblymembers about family members and constituents with disabilities, the need for inclusion, and the importance of state funding and direct support services; it was adopted by voice vote after 70 co-authors were added. ACR 154, recognizing California Down Syndrome Awareness Week and Day, was similarly supported with personal stories about family members with Down syndrome and the need for continued awareness and services; it was adopted after 67 co-authors were added. ACR 148, designating Family Physician Week, highlighted the shortage of primary care doctors and the importance of investment in family medicine; it was adopted after 60 co-authors were added. ACR 156, recognizing National Day of Play, emphasized social connection, reduced screen time, and community engagement; it also passed with 60 co-authors added. The Assembly also adopted the consent calendar, which included Senate Concurrent Resolution 125 related to Ramadan, by a 60-0 vote. Later, members gave an adjournment in memory for Raymond Martin Melgoza, a union laborer and community member from the Central Valley. The session ended with announcements about the schedule, including no floor session on March 20 and a mandatory joint convention on March 23 for the State of the Judiciary address, followed by adjournment until March 23 at 1 p.m.
CA

California 2025-2026 Regular Session

Senate Floor Session Mar 19th, 2026

California Senate Floor Meeting

Transcript Highlights:
  • and California Down syndrome Awareness Day.
  • Down syndrome Awareness Day is observed on March 21st every year.
  • Down syndrome occurs in one out of every 700 to 1,000 births.
  • It is my sister Sherry who lives with Down syndrome.
  • Cincy, the executive director of the Down Syndrome Connection of the Bay Area.
MO

Missouri 2026 Regular Session

Children and Families Mar 31st, 2026

Children and Families

Transcript Highlights:
  • But yeah, it's the process. ...down the line. I understand that.
  • The battered spouse syndrome law was passed, I believe, in 1987.
  • Battered spouse syndrome, again, defense doesn't work for everybody.
  • The battered spouse syndrome, 563.033, was updated.
  • The battered spouse syndrome, 563.033, was updated in 2014.
Summary: The Committee on Children and Families heard public testimony on three bills. House Bill 3470, sponsored by Rep. Schmidt, would create a Missouri partner network linking state agencies, nonprofits, faith-based groups, and private partners through a website and case-management system to connect adults 18 and over who opt in with resources for employment, housing, education, and self-sufficiency. Supporters described the model as already working in 36 counties through the Care Portal and emphasized efficiency, reduced duplication, and stronger family outcomes. Committee members generally supported the concept and asked about opt-in participation, navigators, and how nonprofits would be included as true partners; no opposition testimony was offered. House Bill 3322, sponsored by Rep. Hausman, would extend foster-care school stability timelines from 10 days to 30 days, or 60 days in summer, and increase the mileage limit for remaining in a school of origin from 10-15 miles to 30 miles. The sponsor and witnesses from the Foster and Adoptive Care Coalition and Foster Adopt Connect said the current limits can force unnecessary school changes and are especially difficult in rural areas, while the bill would better preserve continuity for children in foster care. Committee members asked about edge cases, transportation, and whether the child’s best interests would still control; there was no opposition testimony. House Bill 1872, presented by Rep. Reuter, would allow survivors of domestic violence to seek resentencing if the abuse was related to the offense, so that the abuse can be considered as mitigating evidence after conviction or plea. Supporters, including a survivor, Missouri Appleseed, Forward.US, and Empower Missouri, said the bill would address cases where abuse was not fully considered at the original sentencing and would provide a second look for people serving long sentences. Several members raised procedural concerns about how the bill would interact with trial strategy, existing battered spouse syndrome law, evidentiary requirements, and appeals; the sponsor said he was open to revisions. No opposition testimony was presented, and the committee adjourned after the hearing.
CA

California 2025-2026 Regular Session

Assembly Floor Session Mar 20th, 2025

California House Floor Meeting

Transcript Highlights:
  • Assembly Concurrent Resolution 41 by Assembly Member Patterson relative to Down syndrome awareness.
  • I'm honored to present ACR 41 to recognize once again this year Down Syndrome Awareness Day and Week.
  • The CDC reports that Down syndrome occurs in one out of 640 babies.
  • March 21, 2025 is California Down Syndrome Day.
  • Syndrome community and brought in Gigi's Playhouse with us at the open house. ...from the Down Syndrome
Summary: The Assembly met on March 6, 2025, established a quorum, and opened with prayer, the Pledge of Allegiance, and routine procedural motions, including unanimous consent requests and a re-referral of AB 506. The chamber then moved through a series of guest introductions and second-reading items before taking up several resolutions recognizing awareness days and cultural observances. Members adopted ACR 41 on Down Syndrome Awareness Week/Day and HR 24 on Developmental Disabilities Awareness Month after extensive bipartisan remarks focused on family experiences, inclusion, bullying, funding for services, and support for people with disabilities. The Assembly also adopted ACR 48 recognizing Women in STEM Day, ACR 49 recognizing California STEM Robotics Day, HR 18 celebrating Nauruze, and ACR 2 marking the International Day for the Elimination of Racial Discrimination. Each resolution drew co-authors and supportive comments from members across the aisle. The body then debated and passed AB 248, which would remove the state wage cap on county jail inmate labor and allow counties more discretion; supporters framed it as local control and rehabilitation, while opponents argued it would raise costs and conflict with voter sentiment. The Assembly also passed AB 100, a budget-process measure moving a large package of bills to the Senate, and used a substituted roll call for the remaining related bills. Consent calendar items were approved, and the chamber concluded with multiple adjournments in memory, including tributes to Eric Lopez, Johnny D. Giles, and Roger Diamond, before adjourning until March 24, 2025.
CA

California 2025-2026 Regular Session

Assembly Floor Session Mar 20th, 2025

California House Floor Meeting

Transcript Highlights:
  • One by Assemblymember Patterson relative to Down Syndrome Awareness.
  • I'm honored to present ACR 41 to recognize once again this year Down Syndrome Awareness Day and Week.
  • The CDC reports that Down syndrome occurs in one out of 640 babies.
  • Enhanced awareness has already increased opportunities for people with Down syndrome.
  • As Down Syndrome Awareness Week and March 21st, 2025 is California Down Syndrome Day.
MO
Transcript Highlights:
  • Alpha-gal syndrome is real. It really affects people.
  • But it was forced down by the federal government, pushed down by the state, without any evidence that
  • So I really would love to sit down and show you the data.
  • down, House Bill 262, which was admittedly only stricken down in a Cole County court, and it is currently
  • down, House Bill 262, which was admittedly only stricken down in a Cole County court, and it is currently
Summary: The House first established a quorum after introductions of the Freedom of the Road Riders and Warsaw High School students. Members then took up House Bill 1855, a reporting bill on alpha-gal syndrome. The sponsor described the bill as a public health surveillance measure to add alpha-gal to Missouri’s reportable conditions, require lab reporting to the Department of Health and Senior Services, and send aggregated data to the CDC. Supporters said the bill would help identify hotspots, guide education and funding, and address a serious tick-borne condition affecting rural and urban Missourians alike. Opponents raised concerns about cost, false positives/negatives, and privacy, but the sponsor and others said the system would be HIPAA-compliant and de-identified at the federal level. Two amendments to HB 1855 were debated. An amendment changing the department’s follow-up authority from “may” to “shall” was adopted, with supporters arguing that if the legislature funds follow-up, the department should be required to do it. A second amendment creating an opt-in/opt-out consent process for reporting was rejected 41-10 after extensive debate over privacy, data collection, and whether consent would undermine disease surveillance. The House then adopted the House committee substitute for HB 1855 as amended and ordered it perfected and printed. The chamber next considered House Bills 2230 and 2978, a revised education measure aimed at reducing screen time in K-5 classrooms and encouraging handwriting and cursive instruction. The sponsor said the bill was based on research linking heavy screen use to poorer educational and behavioral outcomes, and supporters emphasized local control, parent access to screen-time policies, and the need to bring experts together through a state-level focus group. An amendment to exclude virtual school programs was adopted. The House then adopted the committee substitute for HB 2230 and 2978 as amended and ordered it perfected and printed. Finally, the House began debate on House Bill 2355, the Food Is Medicine Initiative. The sponsor said the bill would let Missouri use federal funds through 1115 waivers to pilot medically tailored meals, produce prescriptions, nutrition counseling, and related interventions to improve health and lower Medicaid costs. Members generally supported the concept, citing food deserts and the benefits of better nutrition, but an amendment adding vitamin therapies and cleanup language prompted concern from one member about supplement quality and regulation; the transcript ends during that amendment discussion.
MO
Transcript Highlights:
  • Alpha-Gal is a real syndrome. It really affects people.
  • But it was forced down by the federal government, pushed down by the state without any evidence that
  • So I really would love to sit down and show you the data.
  • down.
  • down.
Summary: The House first established a quorum after a quorum call and welcomed special guests, including the Freedom of the Road motorcycle riders and students from Warsaw High School. It then took up House Committee Substitute for House Bill 1855, a reporting bill on Alpha-Gal syndrome. The bill sponsor described the condition as a serious tick-borne allergy that has affected his family and many Missourians, arguing that Missouri needs mandatory reporting and surveillance data to identify hotspots, guide public health outreach, and support research and funding. Supporters from both parties said the bill would improve awareness and data collection, while one member raised concerns about the fiscal note and whether the state would get useful information for the cost. The chamber adopted Amendment 1 to HB 1855, changing the follow-up language from “may” to “shall,” but rejected Amendment 2, which would have required patient consent before lab results were reported into the surveillance system. Opponents of the consent amendment said it would undermine disease surveillance and set a bad precedent for other reportable conditions; supporters argued for privacy and individual choice. After debate, the House adopted the committee substitute as amended and ordered it perfected and printed. The House then considered House Committee Substitute for House Bills 2230 and 2978, a K-5 education measure addressing screen time, cursive, and handwriting. The sponsor said the bill responds to research and parent/teacher concerns about excessive screen use, poor literacy outcomes, and mental health effects, and would create a state focus group to review evidence and make recommendations while leaving districts flexibility. Members discussed carve-outs for special education, English language learners, and virtual school, and adopted an amendment excluding the virtual school program. The House then adopted the substitute as amended and ordered it perfected and printed. Finally, the House took up House Bill 2355, the “Food is Medicine” initiative, which would allow Missouri to use federal funds through 1115 waivers for pilot programs such as medically tailored meals, produce prescriptions, nutrition education, and related supports. Supporters said the program could improve health outcomes, reduce Medicaid spending, and help address food deserts. An amendment adding vitamin therapies and updating a date drew discussion over supplement safety and regulation, but the transcript cuts off before a final vote on that amendment or the bill itself.
TX

Texas 89th Regular

89th Legislative Session Mar 19th, 2025

Texas House Floor Meeting

Transcript Highlights:
  • I'm very, very proud to be standing here for World Down Syndrome Day at the Capitol.
  • About 1 in 700 babies born in the United States have Down syndrome.
  • The Down Syndrome Association of Houston. The Down Syndrome Association of South Texas.
  • The Down Syndrome Guild of Dallas. Thank you. Texas.
  • There were several siblings, but he was the youngest brother and he had down syndrome.