Video & Transcript Research : 'FASD'

HI
Transcript Highlights:
  • That's uh nationally FASD.
  • describe FASD as a hidden disability. describe FASD as a hidden disability.
  • When FASD goes currently going with us.
  • currently in Seattle attending the FASD currently in Seattle attending the FASD International<00
  • have FASD that are undiagnosed?
Summary: The committee heard testimony on SCR 21 SD1, which asks Hawaii Health Systems Corporation’s East Hawaii Regional Health Care System to study the feasibility of a rural health clinic or similar access point for the Volcano community. Testimony in strong support came from HHSC representatives, Volcano residents, the Volcano Health Collaborative, the Rotary Club of Volcano, and others, who said the area has a clear need and that local primary and urgent care would align with regional plans. HHSC said it had already looked at the area, found no suitable temporary buildings, and would need a longer-term, capital-intensive solution, but that the study could help accelerate next steps. The committee then took up SCR 50 SD1, proposing a Hawaii Health Plan Working Group to design a basic affordable health plan for residents. Dr. Jack Lewin of SHIPTA said the state faces a growing uninsured population and argued for a short-term, lower-cost plan focused on preventive and primary care, drawing on the old State Health Insurance Plan as a possible model. Members asked about whether that prior program still exists and whether the working group should include the Hawaii Medical Association and Hawaii Primary Care Association; Dr. Lewin said the statute still exists but is unfunded, and that the group should be inclusive. The Department of Labor and other organizations also provided comments. For SCR 75 SD1, which urges a coordinated interdepartmental effort to reduce fetal alcohol spectrum disorder, Dr. Lewin and others said prevention, prenatal screening, and early intervention are needed because FASD is often hidden until later problems appear. Amanda from Hawaii FASD Action Group said current implementation under Act 192 is still largely a landscape analysis and that Hawaii lacks the infrastructure and specialists for a full system. Darlene Chance Govor urged adding the judiciary as a partner so juvenile justice and probation staff can be trained and referral pathways improved, while the Department of Health said it supports prevention but prefers a broader, systems-based approach focused on child needs and upstream care. The Disability Rights Center supported the resolution and asked for an earlier reporting date. The committee also heard SCR 149 SD1, which seeks an informal working group to address complex patients with multiple diagnoses involving substance use, mental health, or chronic physical illness. The Hawaii Substance Abuse Coalition and Ke Nui Malo strongly supported the measure, saying current siloed systems leave people bouncing between medical, mental health, and substance use providers without coordinated care, often ending up in crisis, emergency rooms, or the justice system. They said integrated residential care and a coordinated working group could improve outcomes and align with federal funding opportunities. The transcript ended before any final vote or action on the measures was announced, and SCR 109 was noted as withdrawn from the agenda.
KY
Transcript Highlights:
  • Um, what is FASDs? Uh, it's fetal alcohol spectrum disorder.
  • Um<01:29:59.080> what<01:29:59.240> is<01:29:59.640> FASDs?
  • Um, the FASD Respect Act, that is federal legislation that has just passed.
  • Anyway, what we are doing, we're the Papillon Center of Paducah for FASD.
  • Papillon Center of Paducah for FASD. Papillon Center of Paducah for FASD.
Keywords: 958, all
Summary: The committee first approved the minutes from its September 24 meeting after a motion and second. It then heard a presentation from New Mexico Early Childhood Education and Care Secretary Elizabeth Gragensky on that state’s early childhood system and planned universal child care rollout. She described how New Mexico consolidated multiple prenatal-to-age-five programs into a cabinet-level department, expanded pre-K to a longer day, and uses a cost model to set reimbursement rates intended to cover true provider costs, including wages, benefits, occupancy, food, and reserves. She also said the state created an Early Childhood Trust Fund and secured a constitutional amendment to dedicate 0.60% of the land grant permanent fund to early care and education, with the department’s budget growing from about $400 million in 2021 to just under $1 billion this year. Gragensky said families can begin applying for universal child care on November 1, with participation voluntary for both families and providers. She reported that New Mexico is aiming to expand capacity by adding 1,000 registered home providers, 120 group homes, and about 55 more centers, supported in part by a $13 million low-interest loan fund and a request for an additional $20 million. She said the state has seen growth in early childhood professionals, including a 64% increase over the last three to four years, and pointed to reported outcomes such as a 21% increase in literacy and a 75% kindergarten readiness rate, while noting that some measures are new and baseline comparisons are still being developed. Members asked about the funding sources, provider profitability, workforce development, and measurable outcomes. Gragensky said the program is designed to support provider sustainability through rates tied to true cost and includes allowances for sick leave, vacation, benefits, and reserves. She also said maternal labor force participation is 10% higher than the national rate and attributed that in part to child care access. The committee then moved to a separate presentation by Department for Community Based Services Commissioner Lisa Dennis and Division of Family Support Director Roger McCann on anticipated cuts to TANF and SNAP, beginning with an overview of TANF as a federal block grant with a fixed annual Kentucky allocation of about $180.7 million.
MA

Massachusetts 2025-2026 Regular Session

Joint Committee on Children, Families and Persons with Disabilities Jun 21st, 2026 at 01:00 pm

Joint Committee on Children, Families and Persons with Disabilities

Transcript Highlights:
  • current law, many groups of individuals, including those with fetal alcohol spectrum disorder, or FASD
  • And it is estimated that one in every 20 children in the U.S. may have FASD, another very alarming number
  • Children with FASD can suffer from many health consequences, including malformed organs, issues, and
  • hope that by updating the definition of developmental disability to be more inclusive, to include FASD
Keywords: 995, all
Summary: The Joint Committee on Children, Families and Persons with Disabilities held a hearing on a broad slate of disability-related bills. Topics included creating a permanent Acquired Brain Injury Advisory Board (H. 231/S. 134), establishing a system for compensating guardians who serve incapacitated, unbefriended individuals through MassHealth (H. 253/S. 154), expanding Nikki’s Law to require MassHealth day habilitation programs to use the abuse registry (S. 165 and related bills), modernizing and streamlining the Disabled Persons Protection Commission’s statute and procedures (H. 243/S. 139), updating the definition of developmental disability to align more closely with federal law and include people such as those with fetal alcohol spectrum disorder (H. 276/S. 150), removing outdated and offensive terminology from the General Laws (H. 232/S. 137), and an autism education reform bill (H. 286). Several bills had no sign-ups, and the committee also noted related measures on cueing and prompting in PCA programs (H. 277/S. 157).
NV
Transcript Highlights:
  • enable Aging and Disability Services to provide and coordinate services for children diagnosed with FASD
  • by the Autism Treatment Assistance Program. for individuals with FASD, administered by the Autism Treatment
  • AB 6 aligns with Families Moving Forward program eligibility, targeting children 3 through 13 with FASD
  • Currently, individuals with FASD can apply for services through the regional centers but must demonstrate
  • forward in building provider capacity and providing structured evidence-based support for children with FASD
HI
Transcript Highlights:
  • Prevention doesn't always work, and in the meantime, kids are being born with their FASD.
  • So, in the wake of Act 192, the FASD Action Group has done a really good job with what they have.
  • We have Hawaii FASD Action Group in support.
  • One in 20 children have FASD, 840 infants are born every day in the state of Hawaii with FASD.
  • I ask them, how come we have no data with FASD in the State of Hawaii?
Bills: HCR93, HCR14, HR85
HI

Hawaii 2025 Regular Session

HHS Informational Briefing 01-10-2025

Hawaii Senate Floor Meeting

Transcript Highlights:
  • 36.720> up<00:45:37.079> we<00:45:37.240> have<00:45:37.559> fasty Hawaii FASD
  • What we really hope in our efforts, in saying that FASD is a co-occurring thing, is acknowledging that
  • important that we have a really really important that we have a multidisiplinary Amanda Lunen, Hawaii FASD
  • Basically, we have funded a pilot project because we have found that FASD is far more implicated in a
Keywords: 912, senate, all
Summary: The Committee on Health and Human Services held an informational briefing on the Developmental Disabilities Council and related agencies. The Hawaii State Council on Developmental Disabilities outlined its 2025 legislative priorities, including a pilot project for guardian ad litem and capacity evaluations in guardianship/conservatorship cases, a supported decision-making bill, a health disparities study for people with disabilities, an ABLE savings outreach/staffing measure, a Medicaid buy-in proposal, an adult changing tables equity bill, and a resolution on fetal alcohol spectrum disorder. Council representatives emphasized that supported decision-making would complement tools like powers of attorney and medical releases, and that the health disparities study would help identify unmet needs by ZIP code and improve state data on the intellectual and developmental disability population. The Center on Disability Studies at the University of Hawaii described its role as the research and training arm within the DD system, working with the DD Council and the Hawaii Disability Rights Center. It reported activities such as interdisciplinary training, community education, technical assistance, research collaborations, the Pacific Rim International Conference on Disability and Diversity, publications, telehealth, ECHO Autism, and counseling for Maui fire survivors. The center said it leveraged about $16 million in outside funding last year and highlighted goals focused on workforce development, community capacity, research with direct participation from people with disabilities, and accessible dissemination of information. The Hawaii Disability Rights Center, the state’s protection and advocacy agency, supported the Council’s priorities, especially supported decision-making, which it said could help some people avoid guardianship while preserving liberty and reducing state resource use. The center also raised concerns about the DD system budget and urged legislators to review whether the Developmental Disabilities Division is requesting enough funding, noting possible backsliding in services and eligibility. The Developmental Disabilities Division of the Department of Health then outlined its statewide waiver program serving just over 3,500 people, its service array, and its budget request for increased waiver funding, a federal initiatives coordinator, and IT upgrades to comply with the new HCBS access rule; no votes or formal actions were taken during the briefing.
MA

Massachusetts 2025-2026 Regular Session

Joint Committee on Public Health Jun 21st, 2026 at 01:00 pm

Joint Committee on Public Health

Transcript Highlights:
  • Fetal alcohol spectrum disorder, or FASD, is a group of mental, physical, and developmental effects that
  • sufficiently equipped with the training materials needed to diagnose and support patients who may have FASD
  • This bill would also establish a FASD advisory committee.
Keywords: 995, all
Summary: The Joint Committee on Public Health heard testimony on a wide range of bills focused on children’s health, tobacco control, newborn screening, pediatric cancer, palliative care, and professional licensure. Early testimony highlighted Senate bills to expand newborn screening for pyruvate dehydrogenase complex deficiency, lysosomal storage disorders, and congenital CMV, with families and clinicians describing severe diagnostic delays, missed treatment windows, and the benefits of early detection. Speakers also supported a bill to improve pediatric cancer research through a dedicated trust fund, and a bill to extend pediatric palliative care services to age 22, with parents and providers emphasizing continuity of care for seriously ill young people. Several witnesses gave personal accounts in support of the newborn screening measures. Families described children who endured years of misdiagnosis before receiving diagnoses such as Gaucher disease, Fabry disease, Pompe disease, Niemann-Pick disease, and CMV, often after irreversible damage had already occurred. Medical and advocacy witnesses said Massachusetts already collects some of the relevant screening data and argued that results should be reported to families, while others urged the committee to add conditions to the state panel because effective treatments already exist. The committee also heard support for a bill to establish a fetal alcohol spectrum disorder program and training for providers. On tobacco and youth health, testimony supported bills to ban internet tobacco sales, strengthen youth protections, and reduce lung cancer deaths through point-of-sale information and quit-line access. A student testified about easily purchasing flavored nicotine products online without meaningful age verification, and public health advocates backed measures to keep tobacco out of children’s environments. The committee also heard testimony on a bill to ensure parents have access to their children’s medical records through age 16, with exceptions for sensitive services already protected by law. The committee additionally took testimony on an optometry licensure bill, where ophthalmologists opposed language they said could broaden scope of practice and allow optometrists to use the title “optometric physician,” while optometry educators and students supported the bill as a modernization measure with no scope expansion. No votes were taken during the hearing; the chair repeatedly reminded speakers of time limits and noted that written testimony could be submitted for additional comments.
HI
Transcript Highlights:
  • We have the Hawaii FASD Action Group offering testimony and support. Hi, folks.
  • issues with the professionals involved in this is very heartening to the work that we're doing because FASD
  • 31:13.840> because to the work that we're doing because to the work that we're doing because fasd
  • <01:31:15.159> is<01:31:15.280> so fasd is so fasd is so underdiagnosed<01:31:17.199>
Keywords: 910, house, all
Summary: The committee heard testimony on HB 627, which concerns Department of Education school safety funding and staffing. DOE said the bill would restore two positions and related funding that had been removed from the governor’s budget: a targeted violence prevention and threat assessment program manager and a security technology manager. DOE described ongoing work on school vulnerability assessments, fire suppression measures, security camera research, panic buttons, and active shooter prevention training. Testifiers from DOE, the Department of Law Enforcement, fire services, HSTA, and an individual witness all supported the bill, with the individual citing a past school shooting experience as a reason to increase school resource officers and safety measures. Members asked about the positions’ duties, how the request differed from existing security funding, and the status of active shooter training; DOE said it would provide more information on training statistics. The committee then took up HB 249, relating to Executive Office on Early Learning family child interaction learning programs. The Early Learning Board, EOEL, Commit to Kids, Early Childhood Action Strategies, Partners in Development Foundation, and others testified in support. EOEL said it currently spends about $800,000 annually on FCI program contracts and supports expanding state funding for FCIL programs, including infant and early childhood mental health, if the appropriation covers the broader scope. Testifiers emphasized that FCIL programs are trauma-informed, evidence-based, and help families and children, with one provider sharing a long-term example of a parent and child benefiting from the program. Members asked how many programs are supported, whether FCIL exists on all islands, and whether the request was in the governor’s budget; EOEL said the expansion was requested by the office but not included in the governor’s budget. HB 429, concerning pre-K expansion, drew broad support from the Lieutenant Governor, EOEL, HSTA, and community groups. Supporters said the Ready Keiki initiative has already opened more than 50 classrooms and would add another 50 over the next two years, including Hawaiian immersion classrooms. EOEL said it currently administers 72 public pre-K classrooms across 74 campuses and that the bill’s funding was included in the governor’s budget request. Testimony stressed kindergarten readiness, affordability for working families, equity across islands, and inclusion classrooms. Members asked about national quality benchmarks, with EOEL stating Hawaii meets 10 of 10 benchmarks and that only five states had done so at the time referenced. The Lieutenant Governor also described construction and delivery efforts, including refurbishing existing classrooms, modular options, possible use of state buildings, and even collaboration with libraries to expand child care access. Finally, the committee heard HB 439 on J-1 teacher licensure. DOE supported the bill, while the Hawaii Teacher Standards Board opposed it, arguing licensure standards are not place-based and should remain rigorous and uniform for all educators. The Attorney General’s office offered technical comments, including replacing “educators” with “teacher” and clarifying the bill’s language on issuance and renewal conditions. Several organizations and individuals testified in support, including school, cultural, business, and educator groups. One witness, a teacher from the Philippines, said J-1 educators are highly qualified and described the rigor of teacher preparation in the Philippines. No votes were taken in the portion of the meeting provided.
MN

Minnesota 2025-2026 Regular Session

House Children and Families Finance and Policy Committee 4/2/25

Children and Families Finance and Policy

Transcript Highlights:
  • continued: sections 3 to 6 create flexibility for training requirements for relative caregivers in FASD
  • :12.920> in requirements for relative caregivers in requirements for relative caregivers in fasd
  • <01:36:15.400> up<01:36:15.560> to<01:36:15.719> 30<01:36:16.119> days fasd
  • training and allowing up to 30 days fasd training and allowing up to 30 days following<01:36:16.840>
HI

Hawaii 2026 Regular Session

Senate Floor Session 04-10-2026 11:30am

Hawaii Senate Floor Meeting

Bills: SB1432, SB2024, SB2043, SB2060, SB2069, SB2153, SB2259, SB2319, SB2321, SB2338, SB2360, SB2396, SB2405, SB2407, SB2544, SB2550, SB2552, SB2578, SB2580, SB2607, SB2614, SB2671, SB2800, SB2805, SB2816, SB2835, SB2877, SB2892, SB2928, SB2934, SB3063, SB3199, SB3233, SB3325, HCR8, HCR10, HCR11, HCR13, HCR14, HCR18, HCR19, HCR22, HCR24, HCR31, HCR32, HCR33, HCR35, HCR54, HCR62, HCR63, HCR66, HCR67, HCR82, HCR83, HCR85, HCR91, HCR93, HCR94, HCR96, HCR98, HCR102, HCR104, HCR105, HCR106, HCR110, HCR111, HCR116, HCR117, HCR118, HCR121, HCR122, HCR123, HCR124, HCR125, HCR127, HCR128, HCR137, HCR139, HCR140, HCR141, HCR144, HCR146, HCR162, HCR165, HCR166, HCR173, HCR178, HCR179, HCR180, HCR181, HCR182, HCR185, HCR189, HCR191, HCR192, HCR193, HCR194, HCR200, HCR202, HCR6, HCR36, HCR42, HCR43, HCR44, HCR53, HCR57, HCR61, HCR64, HCR69, HCR84, HCR101, HCR103, HCR107, HCR112, HCR126, HCR136, HCR154, HCR161, HCR175, HCR186, HCR187, HCR188, HCR197, HCR203, HCR204, HCR206, HB1870, HB1588, HB2429, HB2386, HB2583, HB2361, HB2270, HB2137, HB1643, HB1682, HB1692, HB2078, HB1553, HB1667, HB1700, HB1728, HB2293, HB2096, HB1959, HB1511, HB1961, HB1858, HB1897, HB2088, HB2093, HB2279, HB2314, HB2505, HB2433, HB963, HB1705, HB1550, HB469, HB1334, HB1710, HB1737, HB1753, HB1881, HB2309, HB1713, HB1741, HB2062, HB463, HB1839, HB1664, HB2455, HB2417, HB1898, HB1573, HB1768, HB1962, HB2101, HB1782, HB2033, HB1518, HB1642, HB1752, HB2097, HB2282, HB1696, HB1823, HB1886, HB2152, HB2413, HB2503, HB1875, HB1519, HB1509, HB1628, HB1810, HB1990, HB2023, HB2540, HB1679, HB1888, HB2576, HB2592
HI

Hawaii 2026 Regular Session

Senate Floor Session 04-09-2026 11:30am

Hawaii Senate Floor Meeting

Bills: SB1432, SB2024, SB2043, SB2060, SB2069, SB2153, SB2259, SB2319, SB2321, SB2338, SB2360, SB2396, SB2405, SB2407, SB2544, SB2550, SB2552, SB2578, SB2580, SB2607, SB2614, SB2671, SB2800, SB2805, SB2816, SB2835, SB2877, SB2892, SB2928, SB2934, SB3063, SB3199, SB3233, SB3325, HCR8, HCR10, HCR11, HCR13, HCR14, HCR18, HCR19, HCR22, HCR24, HCR31, HCR32, HCR33, HCR35, HCR54, HCR62, HCR63, HCR66, HCR67, HCR82, HCR83, HCR85, HCR91, HCR93, HCR94, HCR96, HCR98, HCR102, HCR104, HCR105, HCR106, HCR110, HCR111, HCR116, HCR117, HCR118, HCR121, HCR122, HCR123, HCR124, HCR125, HCR127, HCR128, HCR137, HCR139, HCR140, HCR141, HCR144, HCR146, HCR162, HCR165, HCR166, HCR173, HCR178, HCR179, HCR180, HCR181, HCR182, HCR185, HCR189, HCR191, HCR192, HCR193, HCR194, HCR200, HCR202, HCR6, HCR36, HCR42, HCR43, HCR44, HCR53, HCR57, HCR61, HCR64, HCR69, HCR84, HCR101, HCR103, HCR107, HCR112, HCR126, HCR136, HCR154, HCR161, HCR175, HCR186, HCR187, HCR188, HCR197, HCR203, HCR204, HCR206, HB1870, HB1588, HB2429, HB2386, HB2583, HB2361, HB2270, HB2137, HB1643, HB1682, HB1692, HB2078, HB1553, HB1667, HB1700, HB1728, HB2293, HB2096, HB1959, HB1511, HB1961, HB1858, HB1897, HB2088, HB2093, HB2279, HB2314, HB2505, HB2433, HB963, HB1705, HB1550, HB469, HB1334, HB1710, HB1737, HB1753, HB1881, HB2309, HB1713, HB1741, HB2062, HB463, HB1839, HB1664, HB2455, HB2417, HB1898, HB1573, HB1768, HB1962, HB2101, HB1782, HB2033, HB1518, HB1642, HB1752, HB2097, HB2282, HB1696, HB1823, HB1886, HB2152, HB2413, HB2503, HB1875, HB1519, HB1509, HB1628, HB1810, HB1990, HB2023, HB2540, HB1679, HB1888, HB2576, HB2592