Transcript Highlights:

• In sickle cell disease, red blood cells are misshaped, typically crescent or sickle-shaped, due to a
• I remember us working on sickle cell, but...
• I live with sickle cell disease.
• he had a family member with sickle cell.
• Sickle cell has also caused dental problems. Sometimes many sickle cell warriors experience them.

Bills: S0036, S0864, S0268, S0844, S0514, S1404, S0914, S1758

Keywords: nursing title, advanced practice registered nurse, advertising, professional standards, disciplinary action, uterine fibroids, public records, health privacy, epidemiology, medical information, emergency department, physicians, privacy, personal information, sickle cell disease, sickle cell anemia, pain management, controlled substances, prescribing education, continuing medical education

Summary: The committee first considered SB 268, a public records exemption for emergency physicians. Senator Rodriguez’s strike-all amendment narrowed and clarified the exemption, and testimony from an emergency physician described threats, harassment, and safety concerns tied to mandatory reporting and patient encounters. The committee adopted the amendment and reported the bill favorably as a committee substitute. Members then heard SB 514, creating the Dula Support for Healthy Births Pilot Program in Broward, Miami-Dade, and Palm Beach counties for pregnant and postpartum women affected by substance use disorder. Senator Osgood explained the pilot would provide non-medical doula support and data collection, and an amendment changed the funding source to specific appropriations in the General Appropriations Act. Supporters said doula care can improve maternal and infant outcomes and complement medical providers. The committee adopted the amendment and reported the bill favorably as a committee substitute. The committee also approved SB 36 on use of professional nursing titles after extensive debate over whether nurses with doctoral degrees should be allowed to use “doctor” in clinical settings, with concerns raised about patient confusion and the need for clearer identification. The bill was amended to align with the House version and then reported favorably as a committee substitute. The committee next approved SB 864, a public records exemption for uterine fibroid research data, after a technical amendment setting a July 1, 2026 effective date; Senator Sharif said the exemption is needed so the Department of Health can collect sensitive data for the related research bill. SB 844, requiring continuing education on sickle cell disease care management for certain licensed physicians and nurses, was also reported favorably after emotional testimony from patients and advocates describing delayed care and bias. Later, the committee approved SB 1404 on memory care, after a strike-all amendment creating a new memory care specialty license for assisted living facilities that advertise or provide specialized memory care services, while allowing optional supportive services without the new license. Supporters from the senior living industry backed the clarification. The committee then passed SB 914, which clarifies that licensed occupational therapists may perform dry needling, after an amendment adjusting supervision and continuing education language. Finally, the committee took up SB 1758, a broad Medicaid and SNAP reform bill that would strengthen fraud enforcement, impose Medicaid work requirements for certain able-bodied adults, expand behavioral health services, modernize drug purchasing and prior authorization, and require SNAP fraud-reduction measures. Several amendments were adopted, and members questioned the work requirement, implementation costs, EBT card photo identification, and due process concerns; debate continued as the transcript ended.

Transcript Highlights:

• Sickle cell is found in every continent.
• It is common for sickle cell patients across the state.
• It is common for sickle cell patients across the state.
• When most people hear sickle cell, they think it's just pain. But sickle cell is not just pain.
• Because of sickle cell, I've had my gallbladder removed.

Bills: S0006, S0036, S0560, S0778, S0844, S0864, S1002, S1016, S1022, S1030, S1630

Keywords: child welfare, negligence, settlement, injury compensation, Department of Children and Families, nursing title, advanced practice registered nurse, advertising, professional standards, disciplinary action, psychotropic medication, community-based care, liability insurance, forensic services, defendants, mental health, judicial system, defense, legal definitions, sickle cell disease

Summary: The Appropriations Committee on Health and Human Services heard and advanced a series of health, child welfare, aging, disability, and public records bills. CS/SB 1002, on child welfare and parental substance abuse, was described as clarifying that acute or chronic parental drug abuse can constitute harm or neglect when it creates an ongoing risk to a child; it passed after limited questions and supportive testimony from Florida Smart Justice Alliance. CS/SB 1630, a broad aging and long-term care modernization bill, would streamline eligibility screenings, allow temporary DOEA services during emergencies or lead agency failures, tighten oversight of area agencies on aging, permanently establish the Florida Alzheimer’s Care Center of Excellence, and expand guardianship training and enforcement tools; it drew support from AARP, area agencies, and the Alzheimer’s Association and was reported favorably. The committee also approved SB 1022 to add Bay County and Pompano to the Florida Children’s Initiatives, and CS/SB 1030, via strike-all amendment, to streamline regulation of substance abuse and behavioral health providers and clarify background screening and privacy rules. Several bills focused on health care practice and patient access. CS/SB 36, with an amendment, allows nurses with doctoral degrees to use appropriate titles while requiring clear identification as nurses and making misuse grounds for discipline; nursing organizations supported it and it passed. CS/SB 844 requires physicians and nurses to complete a one-time, board-approved continuing education course on sickle cell disease care management, with multiple patients and advocates testifying about delayed care, bias, and the need for better provider education; the bill was reported favorably after an amendment aligning it with the House version. CS/SB 560 streamlines procedures for psychotropic medication for children in DCF custody by reducing duplicative reports, clarifying evaluator qualifications, limiting repeated background checks, and simplifying consent documentation; an amendment removed postsecondary education language, and the bill passed. The committee also approved a public records exemption bill for a uterine fibroids research database (CS/SB 864). The committee also advanced measures affecting disability services and forensic care. SB 6, a claims bill, would pay $3.8 million to a trust for a child who suffered severe abuse-related injuries after DCF involvement; it passed without opposition. SB 778 updates the definition of forensic clients so certain individuals with intellectual disabilities or autism found incompetent to proceed can be housed in the same secure forensic setting, reducing duplicative staffing and space needs; it was reported favorably. CS/SB 1016 codifies the Working People with Disabilities Program, allowing eligible developmentally disabled adults to work while retaining Medicaid waiver benefits and requiring notice to enrollees; advocates described the bill as essential to employment and independence, and it passed. Throughout the meeting, most bills received supportive public testimony, few questions, and unanimous or near-unanimous favorable votes.

Transcript Highlights:

• In sickle cell disease, red blood cells are misshaped, typically crescent or sickle-shaped, due to a
• others living with sickle cell disease.
• There are several variants of sickle cell disease. Average. Average. Sickle cell that they have.
• There are several variants of sickle cell disease.
• Sickle cell crisis pain is very... Sickle cell crisis pain is very excruciating.

Bills: S0086, S0554, S0760, S0774, S0778, S0844, S1022, S1230, S1246, S1594, S1630

Keywords: unauthorized aliens, commercial motor vehicles, safety regulations, civil penalties, law enforcement, nonprofit, corporation, Florida Nonprofit Corporation Act, membership, articles of incorporation, governance, pretrial release, bond conditions, violations of release conditions, violent crimes, victim safety, public safety, warrantless arrest, probable cause, pretrial detention

Summary: The Fiscal Policy Committee met and first reported favorably SB 774, which extends enhanced workers’ compensation benefits to 9-1-1 public safety telecommunicators for mental or nervous injuries, after adopting a late-filed amendment declaring an important state interest. The committee also heard supportive testimony from a Palm Beach County dispatcher. SB 770, which updates the definition of forensic clients so certain individuals with intellectual disabilities or autism can be housed with other Chapter 916 residents in secure forensic settings, was reported favorably as well. Members then approved CS/SB 86, which declares unauthorized operation of a commercial vehicle by an unauthorized alien an imminent safety hazard and imposes driver, carrier, and enforcement consequences, despite questions about vehicle impoundment and cargo handling and one appearance in opposition. SB 1594, which protects veterans’ benefits received on behalf of foster youth from being used as reimbursement and instead sets them aside for education and transition services, was reported favorably after supportive testimony. The committee also approved CS/SB 760, creating a new offense for willful violations of no-contact pretrial release conditions in certain violent crime cases, though the Florida Association of Criminal Defense Lawyers raised concerns about expanded warrantless arrest authority in one section. The committee next reported favorably CS/SB 554, a complete rewrite of Chapter 617 governing nonprofit corporations, after a technical delete-all amendment. It also approved CS/SB 844, requiring continuing education on sickle cell disease care for certain health care professionals; the bill drew extensive supportive testimony from advocates and patients describing pain management gaps and health disparities. SB 1022, expanding Florida Children’s Initiatives by adding programs in Bay County and Broward County, and CS/SB 1246, broadening the Linking Industry to Nursing Education Fund to include health science workforce programs and related uses, were both reported favorably. Finally, the committee approved CS/CS/SB 1230, which restricts the use, sale, and distribution of aqueous film-forming foam containing intentionally added PFAS and requires inventory and disposal reporting, after adopting amendments that removed airports from one provision. It also approved CS/CS/SB 128, directing DEP to erect markers for the Andrew Red Harris Spoil Island water body designation. Several senators requested to be recorded as voting in the affirmative on specific bills, and the committee adjourned without objection.

Transcript Highlights:

• We're gonna get you on up real quick on 128, the sunset on Alabama sickle cell oversight.

Bills: SB89, SB54, SB127, SB128, SB77, SB78, SB100, SB101, SB102, SB103, SB113, SB126, SB122, SB136

Keywords: pilotage, commission, statewide laws, maritime regulation, repeal, sunset law, Alabama Surface Mining Commission, environmental regulation, mining, state commission, Alabama Board of Examiners in Counseling, state agency, continuous operation, government efficiency, sickle cell disease, healthcare, regulatory commission, public health, 911 services, 911 Board

Transcript Highlights:

• It deals with sickle cell anemia, and it's something that I know firsthand; it's critical for how we
• Too often, people with sickle cell disease are undiagnosed or don't receive the care that they need because
• By creating a statewide sickle cell disease registry under the Department of State Health Services, it
• We are working to ensure that every Texan, Madam Chair, with sickle cell disease is counted, seen, and
• I've lived with sickle cell anemia all of my life.

Bills: HB107, HB742, HB1639, HB1700, HB2071, HB2187, HB2402, HB2516, HB3211, HB4529, HB5342, HB694, HB923, HB4655, HB107

Keywords: sickle cell disease, registry, health data, confidentiality, healthcare access, human trafficking, first responders, health care, training, reporting, protection, cancer, female firefighters, health study, state health services, fire protection, telemedicine, teledentistry, telehealth, health records

Transcript Highlights:

• It is a sickle cell bill.
• It deals with sickle cell anemia and something that I know firsthand and is critical on how we track
• Sickle cell disease affects about one in 2,000 newborns in Texas. Texas.
• House Bill 107 fixes that by creating a statewide sickle cell disease registry under the Department of
• I've lived with sickle cell anemia all of my life.

Bills: HB 107, HB742, HB1639, HB1700, HB2071, HB2187, HB2402, HB2516, HB3211, HB4529, HB5342, HB694, HB923, HB4655

Keywords: sickle cell disease, registry, health data, confidentiality, healthcare access, human trafficking, first responders, health care, training, reporting, protection, cancer, female firefighters, health study, state health services, fire protection, telemedicine, teledentistry, telehealth, health records

Summary: The committee heard testimony on a series of health and human services bills and left each one pending after public testimony. HB 4655 would expand financial literacy instruction for youth aging out of foster care to include credit scores, predatory lending, scams, banking, budgeting, and related consumer topics; the sponsor and Buckner International described the need to protect foster youth from financial pitfalls. HB 923 would add three public members and one physician to the Texas Medical Disclosure Panel; supporters said it would improve informed consent and patient voice, while a witness raised concerns about a House amendment requiring a physician majority for decisions and senators questioned scope-of-practice limits. HHSC said the panel is an independent body and the bill expressly bars it from changing scope of practice.

Transcript Highlights:

• Two of them—excuse me, three of them—are chicken cell material, one of them is salmon cell material,
• and one is pork fat cell material.
• salmon cell material.
• cell, and they're able to multiply that same stem cell.
• And it's in its perpetual—you know, the stem cells can, they recall the eternal perpetual stem cells

Bills: HB2155, HB2156, HB2162, HB2762, HB2791

Keywords: Arizona Beef Council, agriculture, market development, beef products, terminating council, livestock, compensation, funding, ranching, game and fish commission, wildlife, appointment, commission membership, Arizona Revised Statutes, food labeling, cultivated cells, cell-cultured products, consumer information, food safety, cell-cultured protein

Summary: The House Committee on Land, Agriculture, and Rural Affairs met for its first session, with members and staff introducing themselves before taking up committee-of-reference business and several bills. The committee first heard a presentation from the Arizona Beef Council, which described its checkoff-funded promotion, education, and research work for Arizona beef producers, including classroom materials, nutrition outreach, and ranch tours. After questions about how the program is funded and whether the state would lose its Arizona-retained share if the council were not continued, the committee voted to recommend continuing the council for eight years, until July 1, 2034. The committee then considered HB 2155, which also continued the Arizona Beef Council for eight years, and advanced it on a 7-1 vote. HB 2156, which appropriates money to the livestock compensation fund for wolf depredation losses, was amended to set the appropriation at $250,000 from the general fund in fiscal year 2027 and then passed 5-2, with supporters emphasizing rancher compensation and opponents questioning use of general funds and noting unused prior funding. HB 2162, which would require at least one Arizona Game and Fish Commission member to be a cattleman or rancher, drew testimony for and against but was ultimately held by the chair after discussion about representation, existing appointment structures, and rural interests. The committee also advanced two cell-cultured protein bills. HB 2762 would require a disclaimer on packaging for food derived from cultivated cells; supporters argued for consumer transparency and opponents said federal labeling rules already apply and state-specific requirements could create confusion. It passed 5-3. HB 2791 would prohibit the sale of cell-cultured protein for human consumption and make violations a felony; supporters raised safety, innovation, and agricultural concerns, while opponents argued it would criminalize federally approved products and restrict consumer choice. That bill also passed 5-3. The committee adjourned after completing its agenda.

Transcript Highlights:

• The sickle cell disease bill addresses sickle cell anemia.
• So many people don't get diagnosed or receive the care they need regarding sickle cell anemia.
• House Bill 107, relating to the establishment of the sickle cell disease registry.
• I move final passage of House Bill 107, the sickle cell anemia bill.
• House Bill 107, relating to the establishment of the sickle cell disease registry.

Bills: SJR60, SB203, SB317, SB397, SB511, SB524, SB731, SB781, SB801, SB867, SB1071, SB1232, SB1319, SB1444, SB1483, SB1633, SB1798, SB1944, SB1978, SB2082, SB2233, SB2363, SB2603, SB2607, SB2717, SB2797, SB2841, SB2919, SB2928, SB2969, SB3038, SB3063, HB102, HB107, HB130, HB132, HB148, HB647, HB668, HB677, HB694, HB748, HB754, HB923, HB1193, HB1240, HB1318, HB1397, HB1584, HB1639, HB1875, HB1893, HB1922, HB2071, HB2187, HB2254, HB2350, HB2510, HB2513, HB2516, HB2522, HB2559, HB2712, HB2713, HB2733, HB2775, HB2788, HB2789, HB2894, HB2960, HB3033, HB3126, HB3211, HB3370, HB3376, HB3751, HB3805, HB3810, HB4187, HB4219, HB4238, HB4273, HB4325, HB4344, HB4384, HB4506, HB4529, HB4643, HB4753, HB4783, HB4850, HB4885, HB5342, HB5424, HB5560, HCR90, HCR98, SJR5, SJR34, SB9, SB27, SB40, SB458, SB482, SB493, SB529, SB541, SB693, SB841, SB843, SB912, SB963, SB1173, SB1241, SB1350, SB1383, SB1388, SB1559, SB1646, SB1734, SB1789, SB1833, SB1883, SB1951, SB1968, SB2143, SB2544, SB1, SB17, SB260, SB509, SB1506, SB1637, SB1833, SB2308, HB2525, SJR36, SJR50, SJR63, SJR60, SCR12, SCR39, SB2023, SB511, SB62, SB666, SB847, SB284, SB854, SB810, SB1505, SB583, SB507, SB1434, SB1772, SB2016, SB1122, SB731, SB397, SB508, SB1436, SB287, SB1882, SB393, SB1791, SB209, SB2429, SB1085, SB1975, SB2717, SB1262, SB636, SB2056, SB884, SB1200, SB1845, SB2458, SB801, SB3014, SB3013, SB758, SB2797, SB2076, SB2876, SB1640, SB1449, SB1181, SB1234, SB2926, SB2841, SB1528, SB1854, SB317, SB1250, SB2082, SB1237, SB2819, SB629, SB2608, SB1602, SB2009, SB867, SB640, SB1698, SB2680, SB913, SB1071, SB1086, SB1087, SB1483, SB1444, SB1553, SB1556, SB1703, SB2133, SB2297, SB2298, SB2622, SB2955, SB2334, SB1367, SB2044, SB2363, SB2565, SB1888, SB3036, SB3057, SB3043, SB3063, SB3035, SB203, SB2688, SB2522, SB2459, SB2655, SB2251, SB1884, SB2928, SB2566, SB1749, SB2549, SB2553, SB2919, SB1944, SB1232, SB1798, SB2603, SB2607, SB2233, SB2683, SB1319, SB1978, SB3038, SB3045, SB1633, SB1538, SB719, SB3071, SB3065, HJR34, HB1393, HB26, HB3810, HB388, HB2712, HB1633, HB685, HB4753, HB762, HB2286, HB1606, HB132, HB1458, HB1240, HB2788, HB2791, HB3146, HB1893, HB4850, HB4187, HB1397, HB3751, HB2061, HB647, HB2522, HB4738, HB3033, HB2563, HB128, HB581, HB766, HB2259, HB2358, HB4384, HB748, HB793, HB1734, HB2340, HB2350, HB3104, HB5180, HB1584, HB4219, HB3806, HB3804, HB3803, HB1522, HB3597, HB1612, HB4224, HB1314, HB2254, HB4643, HB1237, HB3126, HB2856, HB3114, HB3505, HB4205, HB5652, HB3687, HB5424, HB4506, HB3370, HB2025, HB4273, HB3395, HB3376, HB2733, HB2495, HB4325, HB2071, HB2510, HB138, HB18, HB107, HB694, HB923, HB1639, HB1700, HB2187, HB3211, HB4529, HB4655, HB5342, HB2516, HB4783, HB1894, HB1965, HB102, HB300, HB1875, HB2513, HB2713, HB39, HB114, HB24, HB3088, HB4163, HB3479, HB2842, HB519, HB609, HB1275, HB1592, HB3348, HB120, HB6, HB247, HB1533, HB2421, HB2273, HB2464, HB2011, HB3575, HB3788, HB4370, HB4809, HB5057, HB5084, HB5534, HB5668, HB3424, HB2715, HB2564, HB2760, HB2765, HB2898, HB3260, HB3800, HB4396, HB5195, HB4341, HB43, HB5686, HCR90, HCR98, SJR60, SB1633, SB2233, HB102, HB107, HB132, HB694, HB923, HB1639, HB1875, HB1893, HB2071, HB2187, HB2510, HB2513, HB2522, HB2733, HB2788, HB3033, HB3211, HB3370, HB3376, HB3751, HB3810, HB4187, HB4219, HB4273, HB4325, HB4506, HB4529, HB4643, HB4753, HB4783, HB4850, HB5342, HB5424, SB511, SB1978, SR533, SR554, HCR90, HCR98, HCR144, SJR34, SB529, SB541, SB693, SB1173, SB1646, SB1734, SB1833, SB3074, HB1233, HB1285, HB1828, HB1876, HB2091, HB2301, HB2725, HB3063, HB3177, HB3483, HB4662, HB5606, HCR9, HCR10, HCR40, HCR76, HCR118, HCR127, HCR135, HCR141, SB3074, HB1233, HB1285, HB1828, HB1876, HB2091, HB2301, HB2725, HB3063, HB3177, HB3483, HB4662, HB5606, HCR9, HCR10, HCR40, HCR76, HCR118, HCR127, HCR135, HCR141

Keywords: SJR 60, Texas constitutional amendment, property tax exemption, ad valorem taxation, rainwater harvesting, graywater system, water conservation, water reuse, residential tax incentive, local government finance, county commissioners court, appraisal value, environmental incentive, November 2025 ballot, Article VIII, tax relief, student privacy, numerical class rank, education policy, academic programs

Transcript Highlights:

• cell anemia, a child with cystic fibrosis is still a child, and they still deserve access, and they
• cell anemia, a child with cystic fibrosis is still a child, and they still deserve access, and they
• cell anemia, a child with cystic fibrosis is still a child, and they still deserve access, and they
• cell anemia, a child with cystic fibrosis is still a child, and they still deserve access, and they
• cell anemia, a child with cystic fibrosis is still a child, and they still deserve access, and they

Bills: HF1247, HF628

Keywords: child care, aides, supervision, child care centers, staffing regulations, childcare, day care, licensed child care center, early childhood education, child care licensing, director qualifications, staff ratios, group size, staff-to-child ratio, substitutes, volunteers, assistant teacher, teacher qualifications, infant care, toddler age

Transcript Highlights:

• cell disease registry and sickle cell trait registry.
• When I was born, it was common practice in the clinics to screen individuals for sickle cell anemia.
• Sickle cell disease, however, has languished as our patients Sickle cell disease, however, has languished
• And do we see that with sickle cell?
• And do we see that with sickle cell?

Keywords: 995, all

Summary: The hearing opened with the Senate and House chairs of the Joint Committee on Financial Services explaining that the day’s agenda would focus on health insurance and other insurance matters, with a large number of witnesses and a request for brief testimony. Legislators were taken out of order to accommodate their schedules, and the committee heard testimony on several bills, including coverage for hair prostheses for alopecia (H. 1223/S. 832), medically necessary oral and dental care for head and neck cancer survivors (H. 1258), modernizing fertility and family-building coverage (H. 715/H. 1190 and related bills), coverage for prosthetic devices to support physical activity for people with limb loss (the “So Everybody Can Move” bill), remediation coverage for home heating oil releases (S. 813/H. 1302), and expanded access to physical therapy for Ehlers-Danlos syndrome (H. 1170). A separate bill on sickle cell care and registry development (S. 788) was also discussed by Senator Liz Miranda. Witnesses largely offered personal stories and expert testimony in support of the bills. Advocates for alopecia coverage described the medical and emotional impact of hair loss, the high cost of quality wigs, and the argument that scalp and facial hair prostheses should be treated like other medically necessary prosthetics. Cancer survivors and supporters of H. 1258 said oral and dental care after head and neck cancer treatment is a quality-of-life issue and often not covered despite major out-of-pocket costs. Fertility specialists, LGBTQ+ advocates, and legislators supporting the modern family-building bills said the current infertility definition is outdated and discriminatory, excluding same-sex couples, people needing donors or gestational carriers, and others with medical barriers to conception. For the limb-loss bill, parents and adults with prosthetic needs stressed that activity-specific prostheses are essential for children and adults to run, swim, play sports, and stay healthy, but are often excluded from coverage. The home heating oil testimony focused on the financial devastation caused by residential oil spills and the need to make spill coverage automatic in homeowners policies. Environmental professionals and homeowners described cleanup costs ranging from tens of thousands to hundreds of thousands of dollars, the strict liability homeowners face, and the fact that many policyholders do not know the rider exists. The insurance industry testified in opposition to the mandatory-coverage approach, arguing for clearer distinctions between first- and third-party coverage, risk-mitigation standards, a delayed effective date, and more emphasis on education and notification rather than mandates. Committee members pressed the industry witness on why agents do not routinely tell customers about the rider and suggested that the issue may require broader disclosure by insurers, agents, and fuel dealers. No votes were taken during the hearing; the committee heard testimony and discussed possible compromise language and future action.

Transcript Highlights:

• They are developing manufacturing solutions for medications for sickle cell anemia in African countries
• They are developing manufacturing solutions for medications for sickle cell anemia in African countries
• They are developing manufacturing solutions for medications for sickle cell anemia in African countries
• They are developing manufacturing solutions for medications for sickle cell anemia in African countries

Keywords: 994, senate, all

Summary: The Senate opened with prayer, the Pledge of Allegiance, journal approval, and numerous guest introductions, including students, community leaders, food bank representatives, and visitors connected to Hunger Free West Virginia Day. A resolution recognizing March 10, 2026, as Hunger Free West Virginia Day was adopted, and Senate Concurrent Resolution 7 on the Southern West Virginia water crisis was referred to the Rules Committee. The chamber also heard remarks highlighting Hunger Free West Virginia’s work and a West Virginia company, Unigen, developing pharmaceutical manufacturing in the state. The Senate concurred with House amendments and passed several measures, including Senate Bill 467 on enforcement of Purple Heart parking spaces, Senate Bill 712 on cattle guards on certain public roads, and Senate Bill 781, a supplemental appropriation measure that was also made effective from passage. The chamber then adopted and passed Senate Bill 844, a large supplemental appropriation to the Department of Human Services, and Senate Bill 87, a supplemental appropriation to the Department of Commerce, both effective from passage. Other third-reading bills passed included the Blue Envelope Program for drivers with autism, dementia, or intellectual and developmental disabilities; coverage for scalp cooling systems during chemotherapy; expansion of sex-offender registration to include solicitation of a minor and non-consensual disclosure of private images; child safety reporting requirements for school personnel; age-verification requirements for websites hosting harmful sexual material; free Gold Star parent vehicle registration; online training and updated standards for sanitarians; sheriff hiring authority; organ donor registration through voter registration; a Cold Case Task Force; abandoned vehicle title procedures; nutrition continuing education for physicians; special plate rules; gift card fraud offenses; protections for athletic officials; in-year school personnel movement; administrative services powers; pharmacy benefit manager regulation; vape shop regulation; reduced parole supervision fees; disability service credit for certain troopers; property valuation reporting changes; and quarterly Hope Scholarship payments. The Senate also advanced a large number of House bills and committee substitutes on second reading, including supplemental appropriations and measures on mental health examinations, dog registration rules, juvenile jurisdiction on military installations, military interpersonal violence, kinship care subsidies, a statewide prevention plan, contraband smuggling into federal prisons, forestry equipment levy treatment, and Commerce Department rules for microgrid districts and high-impact data centers. Several committee amendments were adopted, and many bills were advanced to third reading without objection. No executive communications were reported.

Transcript Highlights:

• Next, we have Maya Thomas with sickle cell anemia. You are recognized, and on deck, Josiah Fierson.
• I am here to advocate for sickle cell disease.
• And I'm also a sickle cell patient.
• Sickle cell disease affects the entire body.
• It is critical for the entire sickle cell community.

Transcript Highlights:

• CDC, are suffering. 601 out of 13 have the sickle cell trait.
• Next, we have my Thomas with sickle cell anemia. You are recognized and on deck. Josiah Ryerson.
• And I'm also a sickle cell patient.
• It is critical for the entire sickle cell community when most people hear there were sickle cell, they
• Because of sickle cell, I've had my gallbladder removed.

Transcript Highlights:

• cell, chronic anemia, beta thalassemia major, or terminal transfusions due to surgery risks or cancer
• So again, those were sickle cell and thalassemia.
• DeSimone mentioned, we transfuse many, many patients who are transfusion-dependent or on... sickle cell
• My daughter has sickle cell disease. She's had multiple blood transfusions.
• I saw only a handful... ...of sickle cell patients.

Keywords: 1184, house, all

Transcript Highlights:

• We've been able to accomplish great things with sickle cell anemia and hemophilia.
• great things been able to accomplish great things with<00:01:43.240> cicle<00:01:43.600> cell
• <00:01:43.880> anemia<00:01:44.320> and with cicle cell anemia and with cicle cell
• anemia and hemophilia<00:01:46.439> um<00:01:47.439> so<00:01:47.560> it's<00:01

Keywords: 919, house, all

Summary: The committee heard House File 1501, which would fund the Minnesota Rare Disease Advisory Council and make the current fiscal year 2025 budget its permanent base. Representative Murphy said the bill would provide about $342,000 in general fund money for the 2026-27 cycle and argued that the council helps shorten diagnosis times, support research, and keep Minnesota a leader in rare disease work. Erica Barnes, the council’s executive director, testified in support and explained that the council was established in 2022 to improve care for the estimated one in 10 Minnesotans living with a rare disease. She said the council needs the full $668,000 level it operated with this year to maintain its statutory duties, noting that the current ongoing base is about $326,000 and that the extra funding was previously one-time money. Barnes described the barriers faced by rare disease patients, including long diagnostic delays, limited provider knowledge, and the fact that only a small share of rare diseases have FDA-approved treatments. She said rare disease care is costly to the health system and that the council has used prior funding to convene the community more regularly and carry out its work. Representative Leing questioned why the budget should be doubled and asked what additional work the council would do with the higher amount; Barnes responded that without the larger ongoing appropriation the council would fall back to 1.8 FTE and would have to stop some programs. Representative Hingson Jger spoke in support, saying the council’s collaboration has been valuable for policy work in the genetic and rare disease space. In closing, Murphy emphasized Minnesota’s leadership in rare disease and shared a personal story about how diagnosis and treatment changed his family’s life. No public testimony was offered. The chair then laid House File 1501 over for possible inclusion in the omnibus bill.

Transcript Highlights:

• We ran a very robust sickle cell and thalassemia program where we perform not only simple transfusions
• So again, those were sickle cell and thalassemia.
• We do this for our sickle cell patients.
• My daughter has sickle cell disease. She's had multiple blood transfusions.
• I saw only a handful of Sickle cell patients.

Transcript Highlights:

• HB 107 seeks to create a state Texas registrar for registry for sickle cell disease and will help the
• red blood cells. to have a rigid, crescent, or sickled shape.
• sickle cell crisis, organ damage, pneumonia, stroke infections, anemia, and complications during pregnancy
• Just don't believe patients with sickle cell.
• We want to make sure we're doing right by folks with sickle cell disease in this state. Well, Ms.

Bills: HB 118, HB388, HB 114, HB205, HB2789, HB2791, HB499, HB2960, HB3163, HB3135, HB2427, HB1618, HB1672, HB1722, HB1338, HB787, HB2618, HB879, HB 1126, HB4134, HB3513, HB718, HB1536, HB1445, HB1640, HB1893, HB1734, HB3229, HB3306, HB 1276, HB3272, HB3276, HB3516, HB4145, HB1585, HB4810, HB2989, HB2558, HB3014, HB2742, HB1695, HB29, HB 125, HB145, HB171, HB255, HB50, HB363, HB 116, HB491, HB1495, HB368, HB 1285, HB1905, HB2002, HB917, HB2723, HB2067, HB 1238, HB745, HB 1188, HB1606, HB2003, HB2147, HB2355, HB2546, HB2495, HB2818, HB2249, HB3228, HB3240, HB1507, HB658, HB1748, HB1851, HB1922, HB2798, HB 107, HB1587, HB3684, HB 118, HB388, HB 114, HB205, HB2789, HB2791, HB499, HB2960, HB3163, HB3135, HB2427, HB1618, HB1672, HB1722, HB1338, HB787, HB2618, HB879, HB 1126, HB4134, HB3513, HB718, HB1536, HB1445, HB1640, HB1893, HB1734, HB3229, HB3306, HB 1276, HB3272, HB3276, HB3516, HB4145, HB1585, HB4810, HB2989, HB2558, HB3014, HB2742, HB1695, HB609, HB630, HB420, HB767, HB1708, HB1404, HB2457, HB140, HB227, HB913, HB2198, HB2763, HB 1261, HB 1135, HB1318, HB2358, HB2765, HB2735, HB3307, HB 1242, HB2842, HB333, HB201, HB694, HB2415, HB155, HB272, HB405, HB519, HB 1136, HB 1275, HB1437, HB1532, HB1675, HB1868, HB1888, HB1990, HB2286, HB2523, HB3129, HB3251, HB3354, HB3479, HB3803, HB3804, HB3805, HB3806, HB3887, HB4163, HB4238, HB 1240, HB1842, HB2029, HB2622, HB3255, HB654, HB4643, HB4945, HB3611, HB3724, HB3623, HB3810, HB4127, HCR78, HCR12, SB767

Keywords: HB 388, HB388, coordination of benefits, COB questionnaire, health benefit plan, health insurance, insurance commissioner, Texas Department of Insurance, uniform form, primary payer, secondary payer, multiple coverage, dual coverage, Medicaid, CHIP, managed care, HMO, small employer health plan, school district health coverage, self-funded plan

Transcript Highlights:

• As a result, you have sickle cell pain, anemia, fatigue, and inflammation.
• with sickle cell disease. 5,000 Alamians with cle cell disease. 5,000 Alamians with cle cell disease
• cell community-based programs and the sickle cell center.
• you don't have sickle cell trait.
• actually interpret those results to sickle cell trait versus sickle cell disease. >> And that's done

Keywords: 1136, house, all

Transcript Highlights:

• Sickle cell anemia affects one in 2,000 newborns in Texas, mostly in African-American communities.
• The federal government has made expanding access to transformative treatment for sickle cell disease
• The Secretary will read the caption: House Bill 107, relating to the establishment of the sickle cell
• President, I move final passage of House Bill 107, the sickle cell anemia bill.
• The Secretary will read the caption: House Bill 107, relating to the establishment of the sickle cell

Summary: The Senate met with a quorum, heard an invocation, dispensed with the previous journal, and received a House message. Members also recognized Dr. Namita Bardwaj as doctor of the day. The chamber then adopted Senate Resolution 554 honoring Christopher “Chris” Jake Stone of Santa Fe for his heroism during the 2018 Santa Fe High School shooting, with several senators and the lieutenant governor offering remarks about his sacrifice and the ongoing impact on his family and community. The Senate also signed a number of bills and resolutions and adopted Senate Resolution 533 recognizing the Texas Legislative Internship Program class, with multiple senators highlighting individual interns and the program’s role in developing future public servants. The floor then took up and passed several bills, often by suspending the regular order and the three-day rule. These included HB 1639 on a study of cancer incidence among female firefighters; HB 102 granting early registration for students in military-related programs; HB 4325 increasing civil penalties for barratry; HB 5342 creating a 988 Suicide and Crisis Lifeline trust fund and related funding study; HB 3370 allowing late timberland appraisal applications after an owner’s death; HB 3376 requiring certain guardians to complete dementia/Alzheimer’s training; HB 132 extending confidentiality protections to information about hostile acts by foreign adversaries; and HB 1978, which sought to restrict ERCOT interconnections, but its motion to pass to engrossment failed on a 20-11 vote. Additional measures passed included HB 511 on unsolicited voter registration mailings, HB 2187 on nurse staffing, retaliation, and overtime protections, HB 2510 creating offenses for unlicensed assisted living operations, HB 694 on DFPS notification timelines, HB 1893 making license plates in law-enforcement video nonconfidential for public information requests, HB 2733 updating barratry and solicitation laws for digital communications, HB 4506 allowing opt-in electronic zoning notices, HB 3751 transferring a TxDOT property to DPS, HB 3033 creating a grant program for nonprofits supporting injured or killed DPS employees, HB 4273 on Medicaid fraud prevention and eligibility verification, HB 3211 on vision care benefits, HB 4529 exempting certain DoD-certified child care facilities from state licensure, HB 2522 easing fingerprinting requirements for certain vehicle dealers, HB 4219 tightening public information request response requirements, and HB 4783 requiring a report on opioid antagonist programs. The Senate also received a House message noting passage of SB 9, and a nominations committee report was announced for future consideration.

Transcript Highlights:

• : THANK YOU, MEMBERS I'D LIKE TO REMIND EVERYONE AND THE MEMBERS OF THE PUBLIC PLEASE SILENCE YOUR CELL
• NOW WE HAVE GENE THERAPY MEDICATIONS SUCH AS SICKLE CELL ANEMIA SO A $1.6 MILLION POT TO CURE SICKLE
• CELL, TO CURE THE DISEASE STATE AND IN THAT $1.6 MILLION POT I'M SURE AMERICA HAD FIRST ACCESS BUT AS
• PROFITS TO INVEST IN INNOVATIVE TECHNOLOGY YOU MAKE THE BEST OF IT SO AS WE HAD ANTIBIOTICS TO GROW AND SICKLE
• CELL TO COME OUT FOR GENE THERAPY AND THOSE THINGS BUT THAT ISN'T THE BIGGEST CONCERN OF MINE OFTEN