Video & Transcript Research : 'reading interventions'

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MN

Minnesota 2025-2026 Regular Session

Committee on Health and Human Services - 03/10/26

Health and Human Services

Transcript Highlights:
  • This leads to unnecessary delays and denials and needed interventions.
  • denials and needed interventions. denials and needed interventions.
  • Um, so I think like that piece, just like you're not bad enough yet, reads so true and is just like a
  • Um, so I think like that piece, just like you're not bad enough yet, reads so true and is just like a
  • Um, so I think like that piece, just like you're not bad enough yet, reads so true and is just like a
Keywords: 1187, senate, all
US

US Federal 2025-2026 Regular Session

US House Floor Proceedings (Wednesday, April 15, 2026)

US Federal House Floor Meeting

Transcript Highlights:
  • Dispensed with the reading. Without objection, the reading is dispensed with.
  • reading of the bill.
  • Third reading.
  • Third reading. >> The eyes have it. Third reading.
  • <05:44:37.040> The resolution is considered read. The resolution is considered read.
FL

Florida 2026 Regular Session

Appropriations Jun 1st, 2026

Appropriations

Transcript Highlights:
  • My understanding, and I've actually read those.
  • If we did not have that intervention, that need, I'm not sure where we would be.
  • The mission of all CSCs is to ensure prevention and early intervention services are available.
  • You had to read that? That statement you just gave me? And happy to talk about this later.
  • You had to read that?
Summary: The Committee on Appropriations took up SJR 2-F, the proposed constitutional amendment on property tax relief, which would reduce assessment growth on non-homestead property, expand homestead exemptions, create a new exemption for new homesteaders, and direct counties, cities, and school districts to use property tax revenues for specified core services. Senator Avila presented the measure as the governor’s plan to provide historic relief and argued that local governments should tighten budgets and prioritize core functions. Senators raised concerns about the lack of fiscal scoring, the breadth and ambiguity of the permitted uses, the effect on special districts and local services, and whether the proposal would shift costs to fees or other taxes. The committee adopted several amendments, including Avila’s amendment clarifying that ad valorem revenues could be used for county and municipal operations and administration and other expenditures not prohibited by law, and Trumbull’s amendment removing school board ad valorem taxes from the proposal. Other amendments failed, including proposals to allow user fees and non-ad valorem assessments, add a sunset, redirect tourism development taxes, narrow the small-business provision, and change the ballot title to reference local service reductions. Grall’s amendment removing the constitutional trust fund requirement was adopted, while the committee also rejected Berman’s title-change amendment and Smith’s sunset and tourism-tax amendments. The committee then returned to the bill as amended for questions, including extended debate over whether the proposal would affect noncitizen residents, the impact on local government finances, and whether local governments would respond with higher fees or special assessments. The meeting ended with the bill still under discussion after the final round of questions, with Avila saying he would continue working with the governor’s office on the language before the next vote.
HI

Hawaii 2025 Regular Session

WAM-HHS Informational Briefing 01-08-2025

Hawaii Senate Floor Meeting

Transcript Highlights:
  • Early intervention data system—that's another one.
  • <01:20:20.440> uh<01:20:20.639> data to manage uh early intervention uh data to manage
  • uh early intervention uh data system<01:20:21.800> uh<01:20:21.960> that's<01:20:22.159
  • So this helps inform us for where we need to go next in developing appropriate interventions.
  • So this helps inform us for where we need to go next in developing appropriate interventions.
Keywords: 912, senate, all
Summary: The joint Ways and Means and Health and Human Services committees heard Hawaii Health Systems Corporation’s biennium budget request, with testimony from HHSC leadership on the Hilo/Big Island region (HTH 212) and the Oahu region (HTH 215), plus discussion of capital improvement projects and systemwide partnerships. HHSC described its role as the rural healthcare safety net, serving a high share of Medicare, Medicaid/Quest, and uninsured patients, and said its costs are elevated by state employee fringe benefits, which it said are about 64% compared with roughly 30% in the private sector. HHSC also said pandemic-era federal aid, including relief funds and PPP loans totaling about $100 million, reduced the need for general fund support in prior years. For HTH 212, HHSC said its general fund request for fiscal years 2026 and 2027 was higher than the governor’s recommendation because of rising insurance, pharmaceutical, and contractor labor costs, and because it includes $13.2 million in FY 2026 and $2.3 million in FY 2027 for Epic electronic medical record implementation in East Hawaii. For HTH 215, HHSC said the requested general funds were aligned with the governor’s recommendation, in part because of increased Medicaid reimbursement rates for long-term care facilities under prior legislation. HHSC also said it was restoring a special fund ceiling so the region could spend its cash collections on operations. Members asked about the 64% fringe rate, and HHSC explained the difference was mainly due to defined-benefit pension and retiree health insurance costs, which private hospitals generally do not bear at the same level. Members also asked about the Daniel K. Akaka State Veterans Home, and HHSC said operations would be funded through the general fund corporation for the home when it opens, with management by Ohana Pacific, but no additional legislative operating funds were being requested at that time. Other questions focused on staffing and vacancies, including an abolished procurement position and an ongoing IT help desk recruitment need. HHSC highlighted several capital and partnership projects, including a $25 million state CIP request matched by $25 million from the Benioff family for the Benioff Health Center, an ER expansion and reconfiguration at Corner Community Hospital, and $7.5 million in each fiscal year for Kauai EMR capital funds to join the Epic platform. Testimony also described collaborations with Queen’s, the University of California San Francisco, Hawaii Pacific Health, the Hawaii Cancer Consortium, the Department of Health, and the state hospital to improve specialty access, clinical trials, behavioral health, and patient placement across the system.
TX
Transcript Highlights:
  • The chair lays out on second reading SB8. The clerk will read the bill.
  • Chair lays out on second reading House Bill 15. Clerk, read the bill.
  • The Chair lays that on second reading, HCR 13. Clerk, read the bill.
  • Chair lays out in third reading SB8. Clerk, read the bill.
  • She lays out on third reading HB 7. Clerk, read the bill.
AL

Alabama 2025 Regular Session

Alabama House Apr 1st, 2025

Alabama House Floor Meeting

Transcript Highlights:
  • Speaker, I move that the reading of the journal at that the reading of the journal at that the reading
  • Do I read that correctly? Uh no way? Do I read that correctly? Uh no way? Do I read that correctly?
  • and like to read. of us that do read and like to read. of us that do read and like to read.
  • . accuse us of not reading. accuse us of not reading.
  • Mr. read. Mr. read. Mr.
MN

Minnesota 2025-2026 Regular Session

House Commerce Finance and Policy Committee 3/26/25

Commerce Finance and Policy

Transcript Highlights:
  • So House File 2228 could help Minnesota identify the needed interventions and ensure that we're on a
  • So House File 2228 could help Minnesota identify the needed interventions and ensure that we're on a
  • So House File 2228 could help Minnesota identify the needed interventions and ensure that we're on a
  • He noted that some testifiers will be in opposition, but he hopes they have read the DE and understand
  • the bylaws but offers nothing says read the bylaws but offers nothing to<00:37:49.240> explain
NH
Transcript Highlights:
  • <00:15:21.040> So >> So you're just reading a statement.
  • So >> So you're just reading a statement.
  • intervention space.
  • intervention classrooms and our reading intervention space.<00:22:46.559> I<00:22:46.799>
  • <00:57:01.599> this the SAU and saying am I reading this the SAU and saying am I reading this
Keywords: 928, house, all
Summary: The committee met to hear from the New Hampshire Association of School Principals as part of its review of a proposal involving statewide administrative consolidation and changes to school governance. Members first discussed how school board witnesses would be selected, with the chair saying the committee would seek a mix of district sizes and structures and would also accept emailed input. The principals’ association said it represents more than 550 principals and assistant principals and urged caution about any mandatory consolidation, arguing that successful consolidations are gradual and voluntary. Association leaders and principals testified that principals already handle a wide range of responsibilities, including instructional leadership, student discipline, safety, staff supervision and evaluation, family and community engagement, and day-to-day crisis response. They argued that shifting more legal, budgetary, and administrative duties onto principals would reduce time for coaching teachers and supporting students, increase burnout and turnover, and create legal and training risks, especially in areas such as special education, privacy, and labor issues. They also said the roles of superintendents, principals, and school board members are distinct and require different training and expertise. Members asked detailed questions about how responsibilities are divided between principals and SAUs, whether principals recruit and evaluate staff, and how much time principals work. One principal said she works about 60 to 70 hours a week and that additional duties would be difficult to absorb. Another principal described his school’s structure, the importance of community building, and the need to preserve district-wide alignment if consolidation moves forward. No votes were taken during this portion of the meeting.
MN

Minnesota 2025-2026 Regular Session

Committee on Judiciary and Public Safety - Part 1 - 04/17/26

Judiciary and Public Safety

Transcript Highlights:
  • I read through this bill, and for the purpose of getting feedback and having this discussion, a couple
  • <00:14:04.040> and I read through this bill and I read through this bill and uh uh uh for<
  • <00:19:02.280> that accountability, those interventions that accountability, those interventions
  • So, the way I would read all these provisions together is that paragraph D would supersede the other
  • Well, I'm just reading it.
Keywords: 1187, senate, all
CA

California 2025-2026 Regular Session

Assembly Human Services Committee Mar 11th, 2025

Transcript Highlights:
  • youth who have experienced severe trauma, ensuring they receive the most effective therapeutic interventions
Summary: The Assembly Committee on Human Services met, adopted its committee rules, and then considered four items, including two consent bills. The chair opened with remarks about protecting California’s safety net and set limits on testimony. The committee rules were adopted by roll call, and the consent calendar later passed 5-0, with the remaining member’s vote added afterward for a 6-0 final tally on the rules and consent items. AB 276 by Assemblymember Bennett addressed delays in out-of-state child abuse registry background checks for children’s residential agency staff. Supporters, including the California Alliance of Child and Family Services and Casa Pacifica, said long clearance times were worsening staffing shortages and causing qualified applicants to leave, while the bill would allow provisional hiring only after DOJ, FBI, and California Child Abuse Central Index clearance and without unsupervised contact with children. There was no opposition, and the committee approved the bill 5-0, sending it to the Assembly Public Safety Committee. AB 319 by Assemblymember Jackson sought to improve services for foster youth with severe trauma by requiring counties to submit and update detailed plans to the Joint Interagency Resolution Team for providing effective therapeutic interventions in the least restrictive settings. A former foster youth testified in support, and a committee member noted the ongoing shortage of therapists serving foster youth. The bill was approved 5-0 as amended and sent to the Assembly Appropriations Committee. After the consent calendar and remaining votes were completed, the hearing adjourned.
MA

Massachusetts 2025-2026 Regular Session

Joint Committee on Housing Jun 21st, 2026 at 09:00 am

Joint Committee on Housing

Transcript Highlights:
  • We were only re-read all of the reasons for this special assessment.
  • We were only re-read all of the reasons for this special assessment.
  • The root problem is the lack of effective intervention by the housing provider.
  • These are the silly rules that she posted, if you want to read them after.
  • These are the silly rules that she posted, if you want to read them after.
Keywords: 995, all
Summary: The Joint Committee on Housing held a hearing on a wide range of housing bills focused on manufactured housing, condominiums, public housing, tiny homes, and protections for elderly and disabled residents. Chairs Haggerty and Cyr opened by emphasizing the importance of these housing types and the need to hear from many speakers. Testimony on manufactured housing was especially extensive and sharply divided. Supporters of bills such as H. 1475, S. 990, and H. 1513 argued that out-of-state corporate owners are buying communities, raising rents and fees, reducing services, and exploiting legal gray areas. Residents and lawmakers from affected communities like Taunton, Middleborough, Attleboro, and Oak Point described steep rent disparities, fear of displacement, and the need for stronger protections, while Representative Hawkins urged an omnibus approach and said the bill would create a local board to ensure compliance with existing law. Opponents, including the Massachusetts Manufactured Housing Association and Hometown America’s counsel, argued that current law already provides protections, that the bills would create uncertainty or unfairly restrict owners, and that H. 1475 was intended to clarify the post-Blake legal landscape. The committee also heard testimony on condominium reform through S. 980, with owners describing lack of transparency, surprise assessments, and limited accountability, and urging updates to Chapter 183A and more owner rights. Public housing bills also drew support from housing authority advocates. MassNAHRO backed S. 955, H. 1517, H. 1512, H. 1550, and H. 1551, saying housing authorities need more flexibility to preserve and expand affordable housing. Witnesses supported tax relief for replacement public housing units and streamlined procurement rules, arguing these changes would help projects move faster and make better use of capital funds. Committee members asked questions about PILOT agreements, tax treatment of new developments, and whether state and federal public housing would be treated similarly. The committee also heard from Senator Lovely and advocates for S. 1007/H. 1525, which would prevent and respond to bullying of elderly and disabled residents in housing. Supporters described the bills as a long-needed response to harassment in senior and public housing, calling for building-level plans, staff training, and AG oversight; Jerry Halberstadt said the measure should be strengthened with enforcement and tenant advocacy support. Pamela and other witnesses described severe personal impacts from bullying and management retaliation. Another major topic was S. 1474/H. 1474 on movable tiny houses as permanent dwellings and accessory dwelling units. Supporters, including Representative DeCoste, Vera Struck, Kaylee DeCrease, and Abundant Housing Massachusetts, said tiny homes are a safe, affordable, sustainable option for seniors, workers, and others facing the housing shortage, and urged the committee to legalize them and align state rules with emerging standards. They also discussed tax classification and the need for a clear building code and DMV category. Finally, H. 1476 on pet-friendly elderly housing drew support from animal welfare groups, who said the bill would restore and modernize a prior pet program, expand access across state-aided housing, limit pet deposits, and reduce pet surrender caused by housing barriers. No votes were taken during the hearing; the committee primarily received testimony and questions on the bills.
WA

Washington 2025-2026 Regular Session

House Health Care & Wellness Dec 5th, 2025

Transcript Highlights:
  • Some of these, I think, may be obvious from prior conversations, but I'll just read through the list:
  • You can read, kind of, those are the number of hospitals licensed in our state and the type.
  • You can read, kind of, those are the number of hospitals licensed in our state and the types.
  • And when they do show up, they will be more critically ill, needing more costly interventions and care
  • If we don’t, we’ll read what Ed is saying. Let us know what you—” “Okay, should we assume no sound?
Summary: The committee heard a JLARC presentation on the Department of Health’s oversight of hospital inspections, complaints, and reporting. JLARC said DOH was late on 72% of acute care hospital inspections as of December 2024, had not verified that third-party accrediting standards were substantially equivalent to state standards, did not consistently require proof of those inspections, did not review adverse health event corrective plans, and could make hospital data more accessible. JLARC also raised a possible language-access barrier in the complaint system. Members asked about complaint filing by staff, the meaning of adverse health events, inspection outcomes, and whether the audit compared DOH to other agencies. JLARC said it had not reviewed inspection results or cross-agency comparisons, but noted inspectors were dedicated and working long hours. DOH later said it concurred with the recommendations and outlined a strategic plan with target dates for improving timeliness, verifying accreditation standards, expanding language access, reviewing adverse event laws, and improving public data access, with annual reporting to the Legislature expected. The committee then heard a Department of Health presentation on certificate of need modernization. DOH described the current certificate of need process, which reviews need, financial feasibility, quality, and cost containment for certain facility changes and new services, and said the program has not been modernized since the 1980s. DOH proposed 10 statutory modernization recommendations, including clarifying the program’s purpose, creating a planning entity, adding flexibility, reducing legal costs, updating access-to-care standards, expanding oversight to freestanding emergency departments and urgent care, addressing equity, improving cost control coordination, strengthening long-term funding, and using better data systems. Members asked about oversight of freestanding urgent care and EDs, funding sources, and whether the process could be streamlined or made more responsive to complaints or other triggers. A third panel discussed artificial intelligence in health care. Lucy O’Rourke of the Coalition for Health AI described CHAI’s work on responsible AI principles, technical standards, model cards or “nutrition labels,” testing and governance tools, and educational resources for providers. She said the group is focused on trust, transparency, fairness, safety, security, and privacy, and noted Washington’s AI-related policy work as among the more progressive in the country. No questions were asked. The final portion focused on the financial impact of federal and state health care policy changes. The Washington State Hospital Association said hospitals are facing low or negative operating margins, service reductions, layoffs, and closures, and that state cuts and taxes enacted in 2025, combined with federal HR1 changes, will significantly worsen finances. Providence Swedish leaders described staffing reductions, service cuts, delayed capital investments, and pressure from denials, tariffs, and reimbursement changes, while emphasizing that frontline staffing cuts are tied to service reductions rather than nurse-to-patient ratio changes. The Washington Health Benefit Exchange then began a presentation on expiring federal ACA premium tax credits, state Cascade Care Savings assistance, and eligibility changes affecting lawfully present non-citizens, with examples showing large premium increases for customers if federal subsidies expire.
HI

Hawaii 2025 Regular Session

JHA Public Hearing - Thu Mar 27, 2025 @ 2:00 PM HST

Judiciary & Hawaiian Affairs

Transcript Highlights:
  • <00:11:42.240> your didn't get a chance to read your didn't get a chance to read your testimony
  • <00:55:27.319> it online for anyone who wants to read it online for anyone who wants to read
  • I hope you have all read it, but I want to depart a little bit from my testimony.
  • There's just one paragraph that I would like to read from the testimony.
  • <02:15:37.119> judge concerns however if you read judge concerns however if you read judge
Keywords: 910, house, all
Summary: The committee heard several measures, beginning with SB 946 on wastewater management, which would clarify that the ban on discharging wastewater or raw sewage into state waters after 12/31/26 applies to treatment plants. Testimony was in support from the Department of Health, Maui County Council, Mayor Bisson, and individuals, and no one testified in opposition. SB 849 on wildlife conservation would prohibit intentional taking, harming, or killing of the Hawaiian hawk (ʻio) and increase penalties for taking native aquatic life, wildlife, and land plants; DLNR supported the bill, noting the ʻio was delisted federally in 2020 and that the measure also updates penalties and adds a rehabilitation/community service option. No questions were raised, and the bill drew support testimony only. For SB 330 on invasive species prevention, the Attorney General raised a supremacy clause concern with language requiring state enforcement of federal quarantines and recommended reverting to a prior version with a catchall for federal regulation. The Coordinating Group on Alien Pest Species supported the bill as a way to close a biosecurity gap, while the Department of Agriculture said it supported the intent but wanted to avoid acting without a cooperative agreement with USDA and suggested deleting the portion allowing action without such an agreement. The committee also heard SB 1393 on public land use, which would require the School Facilities Authority to consult with DOE and other agencies before land conveyances or leases and repeal a requirement that DOE transfer title upon request; both SFA and DOE supported the measure, with DOE emphasizing the need for early communication and consultation, and members asked about possible disagreements or stalemates. The committee then heard SB 321 on private roads and ways, which would deem certain privately owned roads and similar ways transferred to adjacent owners or community associations if conditions are met. The Hawaii Land Title Association said the bill as drafted would create uncertainty and proposed a court process to clarify ownership and create a recordable order; written support came from the Mortgage Bankers Association of Hawaii, Hawaii Financial Services Association, and one individual. SB 66 on housing permitting would require permit decisions within 60 days for certain housing projects and deem permits approved in some circumstances; DLNR’s historic preservation office supported the intent but noted county historic preservation roles, OHA suggested amendments to clarify county duties, and DPP opposed the time limits as risky for health and safety reviews, warning about back-and-forth review cycles and possible mismatches between approved plans and field work. Realtors, NAIOP, Hawaii Food Industry Association, Hawaii YIMBY, and the Maui Chamber supported the measure, while Lahaina Strong, Hawaii Good Neighbor, and two individuals opposed it. Finally, the committee heard SB 1170 on expeditious redevelopment of affordable rental housing, which would speed permits for rebuilding permanently affordable multifamily rental housing damaged by natural disasters and exempt certain projects from EIS requirements. HHFDC supported the bill, citing the Front Street Apartments rebuild and the long SMA permit timeline on Maui, and the Office of Planning and Sustainable Development supported the intent while suggesting technical placement of amendments. Testimony in support also came from the Maui Chamber of Commerce and Joe Blanco, who described difficulties rebuilding a project originally developed under older statutory requirements and said the bill’s added language addressed those issues.
US

US Federal 2025-2026 Regular Session

US House Floor Proceedings (Thursday, December 4, 2025)

US Federal House Floor Meeting

Transcript Highlights:
  • on Education and Workforce, printed in the bill, is adopted, and the bill as amended is considered read
  • The question is on engrossment and third reading of the bill.
  • Third reading.
  • <02:50:18.399> than more effective safety intervention than more effective safety intervention
  • One of the great issues of our time is before us now, and I'd like to read the words of Vice President
VT

Vermont 2025-2026 Regular Session

House Session - 2026-05-19 - 10:00AM

Vermont House Floor Meeting

Transcript Highlights:
  • the reading of the resolution. the reading of the resolution.
  • second reading of the bill. second reading of the bill.
  • The question is, shall the bill be read a third time?
  • to read from her email? to read from her email? >> You<00:27:39.960> may.
  • >> The question is, shall the bill be read >> The question is, shall the bill be read
Keywords: 926, house, all
Summary: The House opened with routine proceedings, including a moment of silence and the Pledge of Allegiance, then referred three bills to money committees under House Rule 35A: S.197 to Ways and Means, and S.193 and S.278 to Appropriations. The chamber also read and celebrated HCR 304, honoring the display of Julian Scott’s Civil War painting, The Fourth Vermont Forming Under Fire, in the State House and recognizing the people who helped locate and acquire it for Vermont. HCR 303 was also read, extending best wishes for a speedy recovery to Rep. Ann Donahue; members then offered warm remarks welcoming her back to the chamber. Several members introduced guests in the gallery, and caucus announcements were made before the body moved to the calendar. On transportation, the House took up H.944, the fiscal year 2027 transportation program. The House Transportation Committee reported major differences with the Senate version and, by straw poll, recommended a committee of conference. The House refused to concur in the Senate amendment, appointed conferees, and suspended rules to message its action to the Senate forthwith. The House then considered S.214, which would allow the NEK Choice School District to pay tuition for pre-K students to nearby New Hampshire public-school programs, with administration by Essex North Supervisory Union and possible waivers from state agencies. Education, Ways and Means, and Appropriations all recommended concurrence, citing limited fiscal impact and improved access for children in Essex County; the bill was read a third time and ordered to third reading after debate that included support for rural access and concerns about relying on out-of-state capacity. The House also concurred in Senate amendments to H.171, adding “the role of victim advocates” to officer-involved shooting investigation protocols, and to H.577, the Vermont prescription drug discount card program, which added annual reporting requirements and a terminology fix. The House likewise concurred in Senate amendments to H.588, the annual Office of Professional Regulation bill, including changes on rescission authority, substance-use treatment alternatives, CPA language, pharmacy technician authority, fee placement, and background checks. It then concurred in Senate amendments to H.611, a DVHA housekeeping bill, including 340B protections, a one-year delay for the community-based doula certification program, and codification of current HIV-prevention coverage practice. H.921 was postponed for two legislative days. Finally, the House took up S.227 on immigration protocols in Vermont schools, with the member from Williston describing it as a school safety measure that limits collection and sharing of immigration-status information, provides trusted resources to families, and requires a judicial warrant before law enforcement enters non-public school areas for immigration matters.
NH

New Hampshire 2026 Regular Session

Senate Election Law and Municipal Affairs (01/13/2026)

Election Law and Municipal Affairs

Transcript Highlights:
  • So that you have to continue to read and read the two tests that are used to establish whether an unnecessary
  • So that you have to continue to read and read the two tests that are used to establish whether an unnecessary
  • So, I am going to let him continue to read it. You read it as quickly as you can. Absolutely.
  • is<00:51:22.800> because to be read is because to be read is because I<00:51:24.800>
  • read it as quickly as you can. read it as quickly as you can.
Keywords: 1191, senate, all
FL

Florida 2026 4th Special Session

February 16, 2026 - 01:30 PM

Transcript Highlights:
  • what we cannot do, and we are trained to make proper referrals to MDs or DOs for higher-level interventions
FL

Florida 2025 Regular Session

November 5, 2025 - 10:30 AM

Transcript Highlights:
  • goal is to identify potentially serious but treatable conditions early, enabling timely medical intervention
Summary: The Health Professions and Program Subcommittee met with a quorum present and received a briefing from Melissa Jordan, Assistant Deputy Secretary for Health and chair of the Florida Rare Disease Advisory Council (ARDAC). Jordan explained that rare diseases affect fewer than 200,000 people each individually, but together impact an estimated 2.3 million Floridians. She reviewed ARDAC’s structure, its three subcommittees, and its 2025 legislative report recommendations, which focused on expanding Florida-specific data, disaster preparedness, state agency coordination, insurance oversight, provider education, faster diagnostic tools, research collaboration, and establishing centers of excellence. She also highlighted ARDAC’s work with other states and its effort to build an online repository of resources for families and providers. Jordan discussed the Andrew John Anderson Pediatric Rare Disease Grant Program, funded at $500,000 annually, which supported research awards at Florida State University and the University of Miami in 2024 and another University of Miami project in 2025. She also described House Bill 907 and the Sunshine Genetics Act pilot program, which created the Florida Institute for Pediatric Rare Diseases at FSU and a newborn whole-genome sequencing pilot to screen volunteer infants for hundreds of conditions beyond traditional newborn screening. The institute will include research, training, clinical care, a diagnostic lab, genome editing capacity, and a sequencing pilot overseen by a board, consortium, and steering committee. Members asked about interstate collaboration, the scope of data collection beyond Medicaid, how the council reduces family financial burdens, how families and providers can learn about available resources, and how ARDAC measures effectiveness. Jordan said Florida has learned from other states’ survey-based approaches and instead is using administrative data sources such as Medicaid, hospitalizations, emergency department visits, birth and death certificates, with more clinical data to be added over time. She said success is tracked through annual reports, ongoing work plans, and quarterly research reports that measure progress, patient enrollment, treatment outcomes, and potential follow-on funding. The meeting concluded after the presentation and questions, and the subcommittee adjourned without further business.
AZ

Arizona 2026 Regular Session

03/18/2026 - Senate Public Safety

Public Safety

Transcript Highlights:
  • Before I get into the PowerPoint, I'd like to read a brief mission statement, if you will, about our
  • Cooper, you know, when I look at something, I'm very thoughtful and I'm just like really reading through
  • I'm the Crisis Intervention Coordinator for the Phoenix Police Department.
AZ

Arizona 2026 Regular Session

03/11/2026 - Senate Health and Human Services

Health and Human Services

Transcript Highlights:
  • I'm a nurse practitioner working currently as a registered nurse in the Interventional Radiology Department
  • Yes, Madam Chairwoman, Representative Majority Whip Willoughby couldn't be here, so she asked me to read
  • Yes, Madam Chairwoman, Representative Majority Whip Willoughby couldn't be here, so she asked me to read