New York 2025-2026 Regular Session

New York Assembly Bill A05123

Introduced
2/12/25  
Refer
2/12/25  

Caption

Requires genetic testing results only be received by patients and health care providers providing direct care while health insurance companies only receive a record that the genetic testing was performed; provides insurers cannot require access to genetic testing results and cannot take adverse action against someone for not providing genetic testing results.

Summary

Bill A05123 amends the civil rights law to ensure that the results of genetic testing are kept confidential and only accessible to the patients and healthcare providers directly involved in their care. It prohibits health insurance companies from requiring access to genetic testing results for claims administration, allowing only confirmation that a genetic test was performed. This aims to protect individuals' genetic information from being used by insurers in policy decisions or claims processing.

Impact

The bill significantly impacts state laws regarding genetic privacy and insurance practices. By restricting insurers from accessing genetic test results, it enhances the confidentiality of personal genetic information and prevents discrimination based on genetic predispositions. This change may require insurers to adjust their claims processing protocols and could lead to a broader conversation about genetic privacy rights in the state.

Sentiment

The sentiment surrounding Bill A05123 appears to be generally supportive, particularly among advocates for patient privacy and civil rights. There is an acknowledgment of the importance of protecting sensitive genetic information, although there may be concerns from insurance companies regarding the implications for claims processing and risk assessment.

Contention

Notable points of contention may arise from insurance companies who might argue that access to genetic testing results is necessary for risk assessment and underwriting. Conversely, patient advocacy groups strongly support the bill, emphasizing the need for privacy and protection against discrimination based on genetic information.

Companion Bills

NY S02398

Same As Requires genetic testing results only be received by patients and health care providers providing direct care while health insurance companies only receive a record that the genetic testing was performed; provides insurers cannot require access to genetic testing results and cannot take adverse action against someone for not providing genetic testing results.

Previously Filed As

NY S01208

Requires genetic testing results only be received by patients and health care providers providing direct care while health insurance companies only receive a record that the genetic testing was performed; provides insurers cannot require access to genetic testing results and cannot take adverse action against someone for not providing genetic testing results.

NY S02398

Requires genetic testing results only be received by patients and health care providers providing direct care while health insurance companies only receive a record that the genetic testing was performed; provides insurers cannot require access to genetic testing results and cannot take adverse action against someone for not providing genetic testing results.

IN HB1521

Consumer genetic testing providers.

IN SB0033

Consumer genetic testing providers.

MD HB830

Health Insurance - Genetic Testing and Cancer Imaging - Required Coverage

OK SB109

Health insurance; requiring coverage of certain genetic testing and cancer imaging; providing exclusions. Effective date.

OK SB109

Health insurance; requiring coverage of certain genetic testing and cancer imaging; providing exclusions. Effective date.

CA AB1798

An act to amend Sections 791.06, 791.07, 791.11, 791.12, 10146, 10147, 10148, 10149, and 10149.1 of the Insurance Code, relating to insurance.

PA HB1530

Providing for duties of direct-to-consumer genetic testing companies and for prohibition on disclosure of genetic data of consumers; and imposing civil penalties.

ND SB2040

The ordering of genetic testing by genetic counselors and examinations required for genetic counseling licensure.

Similar Bills

No similar bills found.