Video & Transcript Research : 'pediatric hospice'

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NM

New Mexico 2026 Regular Session

Senate - Rules Jan 26th, 2026 at 09:05 am

Senate Rules

Transcript Highlights:
  • While hospice care exists in our state, pediatric access is extremely limited.
  • At last count, only one hospice, UNM in New Mexico, currently offers a pediatric program despite more
  • I am a rural pediatric hospice nurse working for Envoy Hospice in northern New Mexico.
  • I am the only pediatric hospice nurse up there in the whole state.
  • is from an agency that just started providing pediatric hospice care in the last year or so.
Bills: SJR1, SM2
HI
Transcript Highlights:
  • I am a doctoral researcher studying fetal alcohol spectrum disorder in Hawaii pediatric and primary care
Summary: The committee heard testimony on SCR 21 SD1, which asks Hawaii Health Systems Corporation’s East Hawaii Regional Health Care System to study the feasibility of a rural health clinic or similar access point for the Volcano community. Testimony in strong support came from HHSC representatives, Volcano residents, the Volcano Health Collaborative, the Rotary Club of Volcano, and others, who said the area has a clear need and that local primary and urgent care would align with regional plans. HHSC said it had already looked at the area, found no suitable temporary buildings, and would need a longer-term, capital-intensive solution, but that the study could help accelerate next steps. The committee then took up SCR 50 SD1, proposing a Hawaii Health Plan Working Group to design a basic affordable health plan for residents. Dr. Jack Lewin of SHIPTA said the state faces a growing uninsured population and argued for a short-term, lower-cost plan focused on preventive and primary care, drawing on the old State Health Insurance Plan as a possible model. Members asked about whether that prior program still exists and whether the working group should include the Hawaii Medical Association and Hawaii Primary Care Association; Dr. Lewin said the statute still exists but is unfunded, and that the group should be inclusive. The Department of Labor and other organizations also provided comments. For SCR 75 SD1, which urges a coordinated interdepartmental effort to reduce fetal alcohol spectrum disorder, Dr. Lewin and others said prevention, prenatal screening, and early intervention are needed because FASD is often hidden until later problems appear. Amanda from Hawaii FASD Action Group said current implementation under Act 192 is still largely a landscape analysis and that Hawaii lacks the infrastructure and specialists for a full system. Darlene Chance Govor urged adding the judiciary as a partner so juvenile justice and probation staff can be trained and referral pathways improved, while the Department of Health said it supports prevention but prefers a broader, systems-based approach focused on child needs and upstream care. The Disability Rights Center supported the resolution and asked for an earlier reporting date. The committee also heard SCR 149 SD1, which seeks an informal working group to address complex patients with multiple diagnoses involving substance use, mental health, or chronic physical illness. The Hawaii Substance Abuse Coalition and Ke Nui Malo strongly supported the measure, saying current siloed systems leave people bouncing between medical, mental health, and substance use providers without coordinated care, often ending up in crisis, emergency rooms, or the justice system. They said integrated residential care and a coordinated working group could improve outcomes and align with federal funding opportunities. The transcript ended before any final vote or action on the measures was announced, and SCR 109 was noted as withdrawn from the agenda.
MN

Minnesota 2025-2026 Regular Session

Child Committee Meeting - 2026-04-14

Children and Families Finance and Policy

Bills: HF4407, HF4382
Summary: The Children and Families Committee adopted the April 8 minutes and then took up House File 4407, as amended by the A1 amendment. The amendment, explained by nonpartisan staff, incorporated much of the Senate version of related legislation and made a series of changes: it revised the definition of “disproportionately represented child,” shifted that determination to the Commissioner of Children, Youth, and Families, made technical cross-reference and terminology updates, adjusted training requirements, set the working group to expire December 31, 2027, and added an appropriation for statewide implementation. The committee adopted the A1 amendment and then referred the bill to Ways and Means. Representative Gilman said the bill is intended to preserve the goals of the Minnesota African American Family Preservation Act while addressing operational, legal, and fiscal problems before statewide implementation. He argued for delaying the effective date by one year, shifting case review responsibilities to the state, and providing funding so counties are not left with an unfunded mandate. He also said the bill adds safety measures related to synthetic opioids and other imminent-harm concerns, and that the delay would allow the working group to finish its recommendations and give counties time to prepare. County officials Steve Schmidt of Meeker County/Minnesota Rural Counties and Jenny Mojo of Clay County testified in support of the bill as amended, emphasizing that counties need clearer responsibilities, staffing, training, technology, and dependable funding to implement the law successfully. Rebecca St. George of DCYF said “active efforts” is not absolutely defined and is determined case by case, often with court involvement. Members raised questions about the meaning of active efforts, the bill’s synthetic opioid language, and whether the proposal should apply more broadly rather than within this specific act. A citizen also cautioned that the opioid language should not unintentionally affect families in treatment programs. Representative Hicks warned that the fentanyl provisions could lead to broad removals and create placement problems for teens with substance use disorder, while Representative Gilman responded that the bill includes a rebuttable presumption and is meant to protect children from imminent harm.
OK

Oklahoma 2026 Regular Session

Public Health Apr 8th, 2026 at 09:00 am

Public Health

Transcript Highlights:
  • We have patients that are on hospice with a particular hospice company, and what's happening is we have
  • representatives from other Hospice companies coming in and stealing the patient basically.
  • Calling the patient's family and telling them, 'Hey, your family members are a great candidate for hospice
  • So, this is just clarifying that one hospice cannot come in and Hijack a patient from another hospice
HI

Hawaii 2026 Regular Session

PBS Public Hearing - Wed Feb 18, 2026 @ 10:00 AM HST

Public Safety

Summary: The committee heard House Bill 1997, which would require IEPs for students with disabilities to include individualized emergency accommodations and evacuation supports. The Attorney General’s office supported the intent but recommended amendments to explicitly include students with Section 504 plans and to change references from “department schools” to “public schools” so charter school students are covered. Testimony in support came from disability advocates and several individuals, including Peter Fritz, who said emergency evacuation planning should be made explicit because it is not clearly required by federal law, and Ka Swan, who emphasized student safety during emergencies. No vote or final action was taken on the bill in the transcript. The committee then took up House Bill 2343, relating to the Maui State Veterans Home. The measure would repeal a deadline for transferring the home to a state agency with a Maui affiliation and instead require the transfer to occur as soon as practicable. The Department of Defense, the Office of Veterans Services, HHSC Oahu Region, and several individuals testified in support. Committee members asked whether a more definite deadline should be used, but the department said the open-ended language was preferable because the Maui entity is not yet ready and Oahu is currently providing oversight. No vote or final action was recorded. House Bill 2566, authorizing special license plates for Hawaii Civil Air Patrol members, was also heard. The City and County of Honolulu Department of Customer Services testified in opposition, while Johnny Perry testified in support. The committee did not take a vote in the transcript. Finally, the committee heard House Bill 2493 on wrongful imprisonment compensation procedures. The Attorney General’s office opposed the bill, arguing it would create an automatic payment mechanism without a sufficient finding of actual innocence, could trigger payments within five days of dismissal, and raised concerns about insufficient time for prosecution review and about funding and appropriation issues. Supporters, including people who said they had been wrongfully convicted and later found actually innocent, argued the bill would reduce delays and help released individuals survive while awaiting compensation. Judiciary staff requested technical amendments and said operational details still needed review. Members questioned the AG about the meaning of “actual innocence,” burden shifting, and whether the bill would better define the standard, but no vote or final action was taken.
OK

Oklahoma 2026 Regular Session

Health and Human Services REVISED Feb 9th, 2026 at 02:00 pm

Health and Human Services

Transcript Highlights:
  • It works is a contractor is typically the physician in charge of the hospice program, mostly in rural
  • But they're using a contractor for the hospice, especially in the rural areas.
  • Although some hospices may contract for their marketing services, this change will hold hospice accountable
  • Focuses on patients who are already on hospice.
  • The bill does not say you cannot leave a hospice for another one.
OK

Oklahoma 2026 Regular Session

Health and Human Services Oversight REVISED: SB1304 - Added Apr 15th, 2026 at 03:00 pm

Health and Human Services Oversight

Transcript Highlights:
  • Chairman, 444 simply aligns state statute to federal regulations by allowing hospice personnel to control
  • are other hospices coming in and hijacking patients that are.
  • Already on hospice with another agency.
  • That's happening in a lot of our hospices. And this bill just seeks to remedy that.
  • That signing a patient up for a hospice is a...
OK

Oklahoma 2026 Regular Session

Senate Legislative Session Feb 16th, 2026 at 01:30 pm

Oklahoma Senate Floor Meeting

Transcript Highlights:
  • This is a request bill from the Oklahoma Hospice and Palliative Care Association.
  • With the introduction of the Medicare Hospice Benefit, hospice moved from the church basements to the
  • And this will help stop a poaching practice that is going on with hospice patients and their families
NM

New Mexico 2025 Regular Session

IC - Legislative Health and Human Services Nov 6th, 2025

Legislative Health & Human Services Committee

Transcript Highlights:
  • All hospice care is palliative, but not all palliative care is hospice care.
  • Now I'm going to shift gears just a little bit to talk about pediatric hospice care, and I'm really grateful
  • Pediatric hospice access. Last year, we were really excited to work with the Healthcare Authority.
  • My understanding from our hospice providers is that most hospice is provided in the home.
  • So our hospices support patients' ability to manage their pain. That's a big part of hospice.
NM

New Mexico 2026 Regular Session

House - Health and Human Services Feb 11th, 2026 at 08:33 am

House Health & Human Services

Transcript Highlights:
  • While hospice care exists in our state, pediatric access is extremely limited.
  • At last count, only one hospice in New Mexico currently offers a pediatric program, despite more than
  • I believe we have a hospice, a pediatric hospice nurse, that is going to be making comments in favor.
  • I am a rural pediatric hospice nurse working for Envoy Hospice in northern New Mexico.
  • And I am currently the only hospice nurse providing pediatric...
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