Video & Transcript Research : 'genetic modification'
Page 13 of 164
AZ
Transcript Highlights:
- Representative Diaz, does the genetic testing, is that required in your amendment?
- Yeah, is it required for the mother to do genetic testing while she's pregnant?
- Thank you. ...for the mother to do genetic testing while she's pregnant? No, only when necessary.
- testing during pregnancy. ...any mother to undergo genetic testing during pregnancy.
- And if she does this genetic testing, then that father is responsible for the child care support.
Summary:
The House convened with prayer, the Pledge of Allegiance, guest introductions, and recognition of the Doctor of the Day. Members also read a proclamation honoring National School Social Work Week, with remarks emphasizing the role of school social workers in supporting students’ mental health, safety, and access to services. The House then handled a long series of first readings and committee/calendar actions before moving into multiple Committee of the Whole sessions.
In the first major round of floor action, the House advanced HB 2123, HB 2140, and HB 2144 after adopting amendments. HB 2123 would affirm gold and silver as legal tender and allow their use through electronic systems; HB 2140 would let the state treasurer invest up to 10% in gold and silver; and HB 2144 would require child support to begin at pregnancy, prompting debate over paternity, genetic testing, rape-related pregnancies, and recourse for mistaken paternity. The House also advanced HB 2492 on urban growth boundaries, HB 2875 with clarifying language, HB 2946 on housing affordability and construction sales tax, and HB 4115/HCR 2051 on ballot initiative petition rules and disclosure. Supporters framed those measures as transparency reforms and protections against out-of-state influence, while opponents argued they would make it harder for citizens to qualify initiatives and local measures for the ballot.
Later Committee of the Whole action advanced HB 2175, HB 2270, HB 2416, HB 2557, HB 2697, HB 2940, and HB 4010, along with HB 2324, HB 2573, HB 2601, HB 2876, and HCR 2004. HB 2175 drew debate over whether political affiliation should be included in hate-crime law; a proposed Garcia amendment to add gender identity and remove political affiliation failed, and a later motion to add it to the report also failed by roll call. HB 2557 clarified a medical-records timeline to business days. HB 2697 created a good-Samaritan style protection for use of expired opioid antagonists such as Narcan. HB 2940 was defended as reducing improper enrollment in Access/SNAP-related programs and opening managed-care bidding, while opponents said it would cut benefits and burden vulnerable residents. HCR 2004, dealing with photo enforcement, was amended to let cities put the issue to local voters; supporters called it a compromise and opponents argued photo radar saves lives and reduces speeding-related crashes.
In third-reading votes, HB 2264 passed overwhelmingly on Arizona Geological Survey matters, HB 2373 passed unanimously on income tax refunds for veterans, HB 2413 failed on sex offender monitoring, and HB 2862 passed on sentencing enhancements for crimes committed while wearing a mask. The House also reconsidered and revived HB 2055, HB 2150, HB 2426, and HB 2755 related to state land and groundwater measures. The transcript ends with the House beginning third-reading consideration of HB 2941 on motorcycles, with members speaking in support of roadway safety and personal experience.
MN
Minnesota 2025-2026 Regular Session
House Floor Session 5/6/26 - Part 1
Minnesota House Floor Meeting
Transcript Highlights:
- And in recognition of this award, he directed a $10,000 donation to support genetic testing for families
- 30.800>
support directed a $10,000 donation to support directed a $10,000 donation to support genetic - 32.200>
testing <00:10:32.920>for <00:10:33.120>families <00:10:33.640>who genetic - testing for families who genetic testing for families who otherwise<00:10:34.760>
can <00:10:35.120
Summary:
The House convened, opened with silent reflection and the Pledge of Allegiance, and the clerk called the roll to establish a quorum. The journal from the previous day was approved without objection, standing committee reports were adopted, and several House Files were given second reading. The House also received first reading on House Files 5119 through 5121.
The Rules and Legislative Administration Committee reported a calendar designation for Thursday, May 7, 2026, placing House Files 3131, 3295, 3298, 3682, 4102, 4591, Senate File 856, and 4612 on the calendar and requiring pre-filing of amendments for those bills. No substantive debate on those measures occurred in this segment.
Representative Perryman then rose on a point of privilege to recognize Dr. David Tilstra, recently named the 2025 recipient of the Kopick Minnesota Medical Association Humanitarian Award, highlighting his work in community health, active transportation, and access to healthy food, as well as a $10,000 donation he directed to genetic testing for families in need. After announcements that both parties would caucus, Representative Niska moved a recess to the call of the Speaker, and the House recessed on a voice vote.
TX
Texas 89th Regular
Senate Committee on Health and Human Services (Part II) May 7th, 2025
Health & Human Services
Transcript Highlights:
- It exists for genetic technologies like mRNA.
- This for anyone treating cancer or genetic disorders, unless I got the wrong bill before me.
- How did y'all arrive at the carve-out for cancers and genetic treatment?
- So modified RNA is when you, in a lab, genetically change the genetic code. You're actually...
- So, yes, if you get a genetics book from 10 years ago, it'll describe messenger RNA, transfer RNA, and
Bills:
HB18, HB37, HB116, HB18, HB37, HB116, HB388, HB879, HB913, HB1151, HB2216, HB2358, HB2809, SB577, SB1590, SB1782, SB1887, SB2744
Keywords:
HB 18, Texas Legislature, quorum break, quorum-busting, legislative walkout, absent legislators, political contributions, campaign finance, political expenditures, legislative caucus, specific-purpose committee, Texas Ethics Commission, civil penalty, show cause order, district court, Fifteenth Court of Appeals, session fundraising, travel lodging food expenses, legislative session, compelled attendance
CA
California 2025-2026 Regular Session
Assembly Budget Subcommittee No. 1 on Health Mar 17th, 2025
Transcript Highlights:
- and a variety of other family health programs that we will speak to in a later agenda item, the Genetically
- $238 million General Fund for the state-only components of the California Children's Services, Genetically
- , 238 million general fund for the state-only components of the California Children's Services, genetically
- Unfortunately, DHCS has rejected those proposed modifications.
Summary:
The committee heard a budget oversight hearing on the Department of Health Care Services, focusing first on the overall Medi-Cal budget and a March General Fund loan to cover a current-year shortfall. DHCS said the 2025-26 budget proposal totals $193.4 billion, with Medi-Cal projected at $188.1 billion total funds and $42.1 billion General Fund, driven by higher enrollment, pharmacy costs, managed care growth, and costs tied to eligibility expansions and the COVID-era redetermination unwinding. The department said the $3.44 billion loan was needed to manage cash flow and ensure timely payments to providers and plans, while the LAO noted Medi-Cal’s cash-basis budgeting creates volatility and that more detailed estimates would come with the May Revision. Members discussed federal Medicaid threats, the need for transparency on cost drivers, and the impact of pharmacy spending, long-term care, and immigration-related coverage expansions.
The second major topic was family health programs, including California Children’s Services, the continuous coverage unwinding, and opioid settlement fund spending. DHCS described CCS funding methodology changes, ongoing county stakeholder work, and a delayed rollout of CCS monitoring and oversight until July 1, 2025, while county representatives and advocates argued the program is underfunded and asked for more technical assistance and a delay in implementation. On the unwinding, the department explained that federal redetermination flexibilities helped maintain coverage after the pandemic, but the Governor’s budget proposes ending them at the end of June 2025; advocates urged making the flexibilities permanent to avoid coverage losses. For opioid settlement funds, DHCS and Finance said the budget increases funding for naloxone distribution while reducing other harm-reduction spending based on updated settlement revenues, prompting criticism from members and public commenters who argued the change would weaken effective harm-reduction programs.
The hearing also included an update on Proposition 35 implementation. DHCS said the voter-approved measure continuously appropriates MCO tax revenues beginning in 2025, with up to $4.6 billion annually available for specified Medi-Cal and provider investments in 2025 and 2026, but implementation depends on consultation with the required stakeholder advisory committee. The department and LAO noted uncertainty about future federal rules affecting the MCO tax after 2026. Public testimony largely supported maintaining Medi-Cal expansions, protecting immigrant coverage, preserving harm-reduction funding, and increasing support for community health workers, pediatric dental care, and CCS county administration. No votes were taken during the portion of the hearing provided.
KY
Kentucky 2025 Regular Session
House Standing Committee on Health Services (2-27-25)
Transcript Highlights:
- The first thing sometimes, especially when you have a genetic anomaly or a complication, is that the
- So if they should want genetic testing, that's one of the services that are offered.
- :14.800>
that <00:14:14.920>occurs <00:14:15.880>or <00:14:16.120>a a genetic - anomaly that occurs or a a genetic anomaly that occurs or a complication<00:14:17.079>
is <00: - testing that's one of the want genetic testing that's one of the services<00:14:24.600>
that <
Keywords:
00:34 Call to Order/Roll Call
02:09 Discussion of 25RS HB 389
04:05 Roll Call Vote on 25RS HB 389
05:16 Discussion of 25RS HB 501
09:31 Roll Call Vote on 25RS HB 501
10:50 Discussion of 25RS HB 414 (Discussion Only)
42:05 Adjournment, 958, all
Summary:
The Health Services Committee met with a quorum and first considered House Bill 389, a cleanup measure related to the CASPER prescription monitoring program. Representative Duval and staff explained that the bill addresses implementation issues the Office of Inspector General encountered and aligns the definition of “practitioner” for in-state and out-of-state providers. The committee took no questions, then approved the bill unanimously and reported it favorably.
The committee then heard House Bill 501, which would allow a pharmacist to fill a prescription for a limited period after the prescribing provider has died, so patients can maintain continuity of care. Sponsors and a pharmacist witness said the bill is intended to reduce uncertainty and liability for pharmacists, excludes controlled substances to comply with federal law, and leaves professional judgment with the pharmacist. Members asked about documentation and verification, and the sponsor said the bill applies when the pharmacist knows of the death and that pharmacies would document the situation as they normally do. The committee discussed the issue briefly and passed the bill unanimously with favorable expression.
Finally, the committee took up House Bill 414 for discussion only. Representative Tate and Adia Wisher described it as “Love Them Both,” a perinatal palliative care proposal meant to provide wraparound support for women and families facing fatal fetal anomalies or other serious pregnancy complications. Testimony emphasized that the bill would encourage referrals to programs offering medical, emotional, spiritual, financial, and bereavement support, with examples such as Footprints at St. Elizabeth. Members discussed access, referrals, counseling, coverage language, and the role of fathers, and supporters stressed that the services would be optional and intended to broaden support rather than impose penalties. No vote was taken on House Bill 414.
MA
Massachusetts 2025-2026 Regular Session
Joint Committee on Financial Services Jun 21st, 2026 at 10:30 am
Joint Committee on Financial Services
Transcript Highlights:
- Children with genetic craniofacial conditions like these often live in constant discomfort, ashamed to
- I urge you to support this legislation and ensure that children and adults with genetic craniofacial
- There must be a genetic component, which is not totally understood but is being researched.
- Yet when those genetic disorders affect teeth, insurers deny coverage.
- It's a lifelong genetic condition that Elena did not choose.
Summary:
The Joint Committee on Financial Services held a lengthy public hearing with more than 70 people signed up to testify, focusing mainly on health insurance and health care access bills. Early testimony centered on H.1257/S.712, which would require insurance coverage for medically necessary treatment of genetic craniofacial conditions. Supporters included legislators, dentists, and medical experts who said these conditions are not cosmetic, can severely affect eating, speech, pain, and social functioning, and often create major financial hardship because insurers deny coverage. A related dental bill, H.1262/S.676, drew technical testimony from the Life Insurance Association of Massachusetts about implementation issues with the 2022 dental loss-ratio law, while the Massachusetts Dental Society supported H.1306/S.696 on transparency in dental network leasing and opposed H.1262. Representative Gentile also testified for H.4013, which would ban for-profit acute care hospitals and for-profit health insurers in Massachusetts, arguing that profit incentives undermine patient care.
A major portion of the hearing was devoted to H.1261/S.799, a bill to protect patients from surprise ambulance bills. Municipal fire chiefs, Boston EMS, nonprofit ambulance providers, and the bill’s Senate sponsor said the measure would require insurers to pay ambulance providers directly and promptly, cap patient out-of-pocket costs, and reduce confusion caused by out-of-network billing. Witnesses described ambulance services as essential public health infrastructure and said current billing practices can discourage people from calling 911 or leave municipalities and nonprofits unable to recover costs. Committee members asked about unpaid debt, municipal billing burdens, and how the bill would affect rates and reimbursement. No votes were taken during the hearing.
The committee also heard extensive testimony on H.1249/S.805, which would require screening for PANS/PANDAS in medical and clinical settings. Legislators, clinicians, parents, a teen with the condition, and educators described PANS/PANDAS as an infection-triggered inflammatory illness that can present as sudden psychiatric symptoms and is often misdiagnosed as a mental health disorder. Supporters said routine screening at well visits, emergency rooms, and other clinical settings would help identify children earlier, reduce unnecessary psychiatric treatment and hospitalizations, and improve outcomes. Testifiers repeatedly urged favorable action, emphasizing the personal and financial toll on families and the potential for early treatment to prevent long-term harm. The hearing concluded with continued testimony on these bills; no committee action or votes were announced.
FL
Florida 2025 Regular Session
March 20, 2025 - 02:00 PM
Transcript Highlights:
- This genetic disease is treatable, although there's not any gene.
- This genetic disease is treatable.
- The early flagging of Duchenne can increase the quality of life through the start of treatments, genetic
- With an FDA-authorized test. genetic counseling, and care.
- Duchenne muscular dystrophy is a severe, progressive, and fatal genetic disorder that affects primarily
Summary:
The subcommittee met with a quorum present and took up five health-related bills. HB 1089, which would add Duchenne muscular dystrophy to Florida’s newborn screening panel, was presented as a way to enable earlier diagnosis and treatment; a pediatric neurologist from Nemours testified in support, noting existing FDA-approved therapies and ongoing clinical trials. After supportive debate, the bill passed 17-0 and was reported favorably.
HB 1083 would standardize patient access to medical records by setting deadlines for providers to produce or allow inspection of records and requiring electronic delivery when available. Supporters said it would reduce delays in care and costs, while two industry groups appeared in opposition. Members from both parties spoke in favor, and the bill passed 17-0 and was reported favorably. HB 1297, which aligns Florida’s electronic prescribing rules more closely with federal law and removes some state exceptions, drew opposition from physicians who argued paper prescriptions are still needed for emergencies, shortages, and price shopping. The sponsor said the bill’s goals were patient safety, fraud prevention, and efficiency; despite concerns, it passed 18-0 and was reported favorably.
The committee then considered PCS for HB 1421, the Emily Adkins Family Protection Act, which would create a statewide blood clot and pulmonary embolism registry, require hospital reporting and risk-assessment policies, and expand training requirements in hospitals, nursing homes, and assisted living facilities. The bill was presented with emotional testimony from Emily Adkins’ parents, who urged support and co-sponsorship in her memory. Members from both parties praised the family’s advocacy, and the PCS passed 18-0 and was reported favorably.
Finally, HB 449 on optometry would expand optometrists’ authority to prescribe certain medications and perform specified laser and non-laser eye procedures after certification. The bill and amendment drew strong opposition from ophthalmologists and their association, who raised patient-safety, training, and delegation concerns, while optometrists argued the bill would improve access, especially in rural areas and counties without ophthalmologists. The amendment was adopted, and the bill as amended passed on a recorded vote and was reported favorably.
PA
Transcript Highlights:
- NF is a group of genetic disorders that cause tumors to grow on nerves throughout the body.
- NF affects approximately one in 3,000 people worldwide, making it one of the most common rare genetic
- NF is a group of genetic disorders that cause tumors to grow on nerves throughout the body.
- NF affects approximately one in 3,000 people worldwide, making it one of the most common, rare genetic
- One of the most common rare genetic disorders.
Summary:
The House convened, approved a prior journal, confirmed a quorum, and received several bill referrals and calendar motions before moving into caucus and committee announcements. Members also welcomed a number of guests and student visitors to the chamber. After recess, the House resumed with committee reports from Appropriations and Rules, agreeing to re-reported bills including House Bills 1006, 106, 2014, 2037, 2460, 2512, 2559, 2644, 733, 2455, 2499, and 2529.
The chamber adopted two resolutions: House Resolution 462 designating May 17, 2026, as World Neurofibromatosis Awareness Day, and House Resolution 553 designating May 19, 2026, as Pontian Greek Genocide Remembrance Day. Both sponsors spoke in support, with the NF resolution emphasizing awareness, diagnosis, and research, and the Pontian Greek resolution focusing on remembrance of historical persecution and ethnic violence. The House also passed several bills on final consideration, including House Bill 2014 on opportunities for minors in emergency service organizations, House Bill 2037 on cryptocurrency-related ethics restrictions, House Bill 2512 on rideshare pricing protections, House Bill 2644 on legislative authorization for capital bridge projects, and House Bill 2559 on state property conveyances.
Amendments were considered on several measures. On House Bill 2359, which prohibits government agencies from entering nondisclosure agreements related to data centers, one amendment requiring hyperscale data centers to pay their own energy costs failed on a 101-101 tie, another amendment making the bill effective immediately was adopted, and a third amendment protecting trade secrets failed. On House Bill 779 regarding abusive towing practices, an agreed-to amendment was adopted. House Bill 733 modernizing marriage ceremony law, Senate Bill 1294 on penalties for unlicensed commercial driving schools, and Senate Bill 1259 clarifying parole record privilege and access were agreed to, and House Bill 2499 concerning the State Workers Insurance Fund and Investment Authority was also advanced. The House then recommitted several bills to Appropriations, removed others from the tabled calendar, and adjourned until June 30, 2026.
FL
Florida 2026 5th Special Session
Appropriations Committee on Health and Human Services Mar 26th, 2025
Transcript Highlights:
- We do this by advancing understanding of rare pediatric diseases, creating and developing advanced genetic
- diagnostic tools, providing comprehensive care, training educators, practitioners in health care, and genetic
- hospitals affiliated with research universities across our state, to have their child screened for a rare genetic
- Senator, this bill has a Sunshine Genetics Pilot Program.
- stated, early screening, and particularly when it comes to rare diseases, which perhaps there's a genetic
Summary:
The Appropriations Committee on Health and Human Services first heard and adopted the proposed fiscal year 2025-26 budget for the committee, which was presented as a $1.8 billion increase over the current base budget. The budget emphasized Medicaid and KidCare funding, IT modernization, workforce reductions tied to unfilled or augmented positions, provider rate increases, mental health and substance use funding, opioid treatment, elder care, veterans’ services, cancer research, and school nurse staffing. The committee approved technical adjustments and then adopted the budget proposal for submission to the full Senate Appropriations Committee.
The committee then considered several bills, most of which were reported favorably. SB 152 on surgical smoke required hospitals and ambulatory surgical centers to adopt smoke evacuation policies; it drew strong support from nurses and other health care workers describing workplace and patient safety risks. CS/SB 958 on early detection of type 1 diabetes required the Department of Health to develop informational materials for schools and, by amendment, early learning coalitions. CS/CS/SB 170 on nursing homes required consumer satisfaction surveys, patient safety culture surveys, reporting to the health information exchange, financial reporting penalties, and Medicaid quality incentive reporting; an amendment exempted state-operated homes, including veterans’ facilities, and directed a study of quality incentive systems. CS/SB 738 updated and streamlined child care regulation, and CS/SB 1356 created the Florida Institute for Pediatric Rare Diseases at Florida State University and a related pediatric rare disease screening pilot.
The committee also passed SB 1370, which reorganized ambulatory surgical centers into their own statutory framework, with testimony emphasizing their lower costs compared with hospitals. Finally, the committee considered CS/CS/SB 1626 on child welfare and related issues. After adopting multiple amendments that removed references to unaccompanied alien children and special immigrant visas, changed language on child abuse definitions, and required DCF to set room-and-board rates by methodology rather than fee schedule, the bill was explained as strengthening child welfare protections, codifying military-family coordination, improving domestic violence shelter certification, adjusting children’s services council appointments, clarifying missing-child procedures, and updating licensing and compliance provisions. The bill drew both support and opposition, particularly over missing-child jurisdiction and immigration-related concerns, and was ultimately reported favorably. A final motion to record a vote on SB 958 was also adopted.
FL
Florida 2026 Regular Session
Appropriations Committee on Health and Human Services Mar 26th, 2025
Appropriations Committee on Health and Human Services
Transcript Highlights:
- We do this by advancing understanding of rare pediatric diseases, creating and developing advanced genetic
- tools, providing comprehensive care, training educators, excuse me, practitioners in health care, and genetic
- hospitals affiliated with research universities across our state, to have their child screened for a rare genetic
- Senator, this bill has a Sunshine Genetics Pilot Program.
- stated, early screening, and particularly when it comes to rare diseases, which perhaps there's a genetic
Summary:
The Health and Human Services Appropriations Committee met to review and advance the Senate’s fiscal year 2025-26 budget proposal for the committee’s portfolio. The presentation highlighted a $1.8 billion increase over the current base budget, including full funding for Medicaid and KidCare, investments in IT modernization, Medicaid provider rate increases, mental health and substance use services, opioid treatment, foster care and guardian assistance, elder care, veterans’ services, cancer research, school nurse staffing, and other public health initiatives. The committee adopted a motion allowing technical adjustments and then approved the budget proposal to be reported to the full Senate Appropriations Committee.
The committee then heard and voted on several bills. SB 152 on surgical smoke protection required hospitals and ambulatory surgical centers to adopt smoke evacuation policies; nurses testified in support, citing workplace and patient safety risks, and the bill was reported favorably. CS/SB 958 on early detection of type 1 diabetes required the Department of Health to provide educational materials to schools and, by amendment, early learning coalitions; it was also reported favorably. CS/CS/SB 170 on nursing home oversight added consumer satisfaction surveys, reporting requirements, quality incentive changes, and financial reporting penalties, with an amendment exempting state-operated homes and directing a study of best practices; it passed after questions about dementia, language access, and retaliation protections. CS/SB 738 modernized child care regulation by streamlining DCF processes and reducing obsolete requirements, and was reported favorably without opposition.
The committee also approved CS/SB 1356 creating the Florida Institute for Pediatric Rare Diseases at FSU and a Sunshine Genetics pilot to expand rare-disease screening and research, with support from members emphasizing early detection and data collection. SB 1370 separated ambulatory surgical centers into their own statute, with testimony that the change would better reflect the industry and help avoid burdensome regulation; it passed favorably. Finally, CS/CS/SB 1626 made a range of child welfare changes, including codifying DCF coordination with military installations, adjusting shelter certification, refining criminal-background exemptions, extending licensing compliance time, addressing room-and-board rate methodology, and clarifying missing-child procedures; after adopting three amendments and hearing both support and concerns, the bill was reported favorably. The committee also recorded a member’s affirmative vote on SB 958 before adjournment.
MN
Minnesota 2025-2026 Regular Session
House public safety panel hears HF435 - Pt. 1 2/25/25
Minnesota House Floor Meeting
Transcript Highlights:
- 1.5 it says, for the purposes of this section, female means a female as biologically determined by genetics
- and defined with determined by genetics and defined with respect<00:04:56.320>
to <00:04:56.479 - actually have a sound foundation of genetics in the conversation.
- actually have a sound foundation of genetics in the conversation.
- actually have a sound foundation of genetics in the conversation.
Summary:
House File 435 was taken up with an author's amendment that added a definition of “female,” “woman,” and “girl” based on biological sex. The committee debated the amendment at length, with supporters saying it was needed for clarity and opponents arguing it was unscientific, dehumanizing, and imported from outside model legislation. The amendment was adopted, and the bill was laid over because no fiscal note had yet been received.
As amended, HF 435 would require the commissioner of Corrections to house only biological females at the Minnesota Correctional Facility in Shakopee and to transfer any nonbiological females out within seven days of enactment. Chair Franson described it as a common-sense women’s rights and human rights bill intended to protect incarcerated women. Alicia Beckman, a former Shakopee GED teacher, testified in support, saying the current policy had allowed biological males with violent histories into the facility and created fear, retraumatization, and safety concerns for staff and inmates.
Several testifiers opposed the bill. Deva Guy, Lucy Ailia G., Reverend Dr. Justin Saia Tannis, and Jess Braverman argued that the bill would endanger transgender women, scapegoat a vulnerable minority, and conflict with research, the Prison Rape Elimination Act, and constitutional protections. They urged the committee to focus instead on broader prison conditions and safety issues. Committee members also questioned Department of Corrections Commissioner Paul Schnell about the placement process; he explained that transgender placements are reviewed through a multi-step process involving behavioral health and medical staff, a gender identity committee, and final review by the deputy commissioner and commissioner. He said 49 people systemwide have identified as transgender. The discussion ended with the bill laid over and the chair noting that a constitutional challenge would likely follow if the bill became law.
CA
California 2025-2026 Regular Session
Senate Budget and Fiscal Review Committee Jun 15th, 2026
Budget and Fiscal Review
Transcript Highlights:
- It also maintains some of the program reductions that were in the May Revision, with some modifications
- It also maintains some of the program reductions that were in the May revision with some modifications
- This includes unsheltered individuals with complex health needs, children with grave genetic disorders
Summary:
The Senate Budget and Fiscal Review Committee heard AB 109, the Budget Act of 2026, and related discussion of the legislative budget agreement. Committee staff and the Department of Finance described a two-year balanced plan with about $253 billion in General Fund spending, roughly $5.5 billion in higher assumed revenues than the May Revision, and about $36.5 billion in combined reserves. They said the package preserves or expands funding for schools and community colleges, child care, IHSS, Medi-Cal-related county administration, housing and homelessness programs, public hospitals, courthouse construction, and some criminal justice and prison-closure savings, while delaying or modifying several prior health care reductions and some Medi-Cal changes.
Much of the member discussion focused on Medi-Cal, H.R. 1, and the impact on low-income and immigrant Californians. Several Democrats argued the budget protects vulnerable residents by delaying some cuts, funding county eligibility work, indigent care, public hospitals, and food banks, and rejecting the Governor’s IHSS cuts and asset-limit proposal. Republicans criticized the budget for assuming future revenues, relying on new taxes, and not doing enough to address the structural deficit or improve accountability. Members also raised concerns and support around homelessness funding, Prop. 36, judgeships and courthouse funding, transit and GGRF allocations, local journalism, Caltrans fleet spending, and a proposed “fair share” revenue measure that was not yet before the committee.
Public testimony was largely supportive of the budget’s health and human services provisions, especially the rejection of IHSS cuts and the asset-limit proposal, and the inclusion of funding for child care, sickle cell centers, domestic violence services, trauma recovery centers, distressed hospitals, county eligibility work, and transit programs. Some witnesses representing hospitals and health plans cautioned about the effects of moving certain Medi-Cal populations to fee-for-service and about proposed tax changes affecting health care providers. The chair said revenue trailer bills were still being finalized and would likely come back later in the week; the committee then moved to public comment, with the chair limiting speakers to about one minute each.
FL
Florida 2026 4th Special Session
February 11, 2026 - 09:30 AM
Transcript Highlights:
- This disease is a genetic condition that causes tumors to grow on the nerves throughout the body, and
- Despite sickle cell being the first documented and most common genetic disorder in the U.S., with Florida
- leading the country with the highest rate, it remains one of the most misunderstood and under-treated genetic
- A genetic condition reduced to a racial stereotype. Science ignored. Humanity dismissed.
- It is genetic. Bias is not. I have walked into Florida emergency rooms in unbearable pain.
Summary:
The Health Professions and Program Subcommittee met with a quorum and considered seven bills, all of which were reported favorably. HB 497 would create a neurofibromatosis research grant program within the Department of Health; an amendment removed automatic recurring funding and made the program subject to annual appropriations. Proponents described the disease burden and the need for Florida-based research support. The bill passed 14-0.
The committee also approved HB 223, which creates a licensing and regulatory framework for naturopathic medicine, including a Board of Naturopathic Medicine under the Department of Health. Supporters argued licensure would improve patient safety, transparency, and access, while the Florida Osteopathic Medical Association and Florida Medical Association waived in opposition. The bill passed 15-0. HB 683 modernizes physician assistant and APRN prescribing rules by removing certain administrative notice and prescription-labeling requirements and allowing a 30-day course of psychotropic medication; an amendment removed language that would have allowed practice without physician supervision during declared emergencies. It passed 15-0.
The committee then approved CS for HB 121, which updates Florida’s seizure action plan law by extending protections to charter school students, requiring schools to accept physician-submitted plans, clarifying training duration, expanding training to regular bus drivers, and requiring seizure-response posters in schools. HB 353 adds sickle cell disease education to existing pain-management continuing education for health professionals, prompted by extensive testimony from patients and advocates about bias, delayed treatment, and lack of provider knowledge; it passed 15-0. HB 1175 directs the Florida Building Commission and State Fire Marshal to develop updated safety design standards for office surgery suites, with an amendment delaying the effective date to January 1, 2027; it passed 14-0. Finally, HB 251 creates a public records exemption for current emergency physicians and their families, narrowed by amendment to current physicians and children up to age 26 and made subject to sunset review; it passed 15-0. The meeting adjourned after all agenda items were completed.
FL
Transcript Highlights:
- Members, the CS for HB 907 is commonly referred to as the Sunshine Genetics Act, and it gives Florida
- Eighty percent of these diseases are genetic in nature.
- Current technology would allow the Sunshine Genetics Program to screen for as many as 600 conditions
- The bill establishes Florida as a leader and creates a national Sunshine Genetics Consortium. uniting
- The Sunshine Genetics Program has the potential to save billions of dollars in healthcare costs.
Bills:
SB 2, HB 2, HB 2000, HB 2196, HB 213, HB 222, HB 645, HB 1458, HB 1022, HB 141, HB 502, HB 643, HB 3093, HB 1700, HB 117, SB 503, SB 2, HB 120, HB 20, HB 150, HB 6, HB 100, HB 210, HB 215, HB 1393, HB 1151, HB 1268, HB 142, HB 451, HB 124, HB 2, HB 2000, HB 2196, HB 213, HB 222, HB 645, HB 1458, HB 1022, HB 141, HB 502, HB 643, HB 3093, HB 1700, HB 117
Keywords:
public education, teacher compensation, certification, funding, school finance, educator rights, education funding, charter schools, staff compensation, state aid, retention allotment, child grooming, sex offender registration, criminal justice, reportable conviction, law enforcement, virtual education, hybrid learning, school funding, average daily attendance
MA
Massachusetts 2025-2026 Regular Session
Joint Committee on Health Care Financing Jun 21st, 2026 at 10:00 am
Joint Committee on Health Care Financing
Transcript Highlights:
- Since over 80% of rare diseases are genetic in origin, I'm focusing on exploring and understanding how
- inform clinical decision-making for patients with rare disorders, especially those with suspected genetic
- We found that about a quarter of these babies and children had confirmed genetic diagnoses, meaning that
- cause, and many have a spectrum of overlapping similar. 80% of these have an underlying genetic cause
- And the neurology team decided to, right away on our first visit, send out her DNA for genetic testing
Summary:
The Joint Committee on Health Care Financing held a public hearing on a large docket of bills focused on MassHealth benefits and reimbursement, health equity, behavioral health, public health, dental access, 340B drug pricing, tobacco cessation, and coverage for children. The chairs emphasized rising health care costs, provider shortages, administrative burdens, and persistent inequities by income, race, geography, and immigration status. Much of the testimony centered on H.1416/S.901, an act to advance health equity, with legislators and members of the Health Equity Compact arguing for statewide benchmarks, stronger health equity leadership, reimbursement for interpreter services, community health workers and patient navigation, Medicaid graduate medical education support, and a health equity zone trust fund. Witnesses described disparities in life expectancy, maternal mortality, access to primary care, and the impact of federal Medicaid and social service cuts, and urged the committee to report the bill favorably.
The committee also heard strong support for H.1368/S.847 on rapid whole genome sequencing for critically ill MassHealth children. Testifiers from industry, academia, hospitals, and families said early sequencing can end long diagnostic odysseys, improve treatment decisions, shorten hospital stays, and save money, while also providing emotional relief and information for families. The hearing then moved to H.1407 on MassHealth rate parity for inpatient behavioral health providers, where Rep. Scanlan and the Massachusetts Association of Behavioral Health Systems said the bill would codify existing administrative parity so managed care plans cannot pay less than the MassHealth fee-for-service rate. On H.1392/S.853 to preserve and protect public health, witnesses supported higher vaccine administration fees to improve provider participation and immunization rates. The committee also heard testimony on H.770/845 to protect 340B providers in MassHealth, and on S.848 to require reporting and transparency around 340B revenues and outside administrative costs.
Additional bills drew testimony on tobacco cessation coverage for MassHealth members, with advocates supporting broader access to counseling and medications through medical, behavioral health, and dental providers. On H.1409, a nursing home operator asked for more flexibility in a MassHealth staffing-related penalty tied to patient days per resident. On H.1401/S.888, supporters of the “Take 10” dental access proposal said adult MassHealth dental coverage is underused because too few dentists accept MassHealth, leading to long travel times and avoidable emergency room visits; they urged incentive payments for dentists serving new adult MassHealth patients. Finally, on H.1403/S.855, “Cover All Kids,” advocates and immigrant community members urged removal of immigration status as a barrier to full MassHealth coverage for children, while also backing a related bill to ensure 12 months of continuous coverage for children. No votes were taken during the hearing; the committee primarily received testimony and asked questions on costs, reimbursement levels, and implementation details.
HI
Hawaii 2026 Regular Session
JHA Public Hearing - Tue Feb 24, 2026 @ 2:00 PM HST
Judiciary & Hawaiian Affairs
Transcript Highlights:
- importantly, extending the reporting window from 3 to 14 days allows time for placental pathology, genetic
- importantly, extending the reporting window from 3 to 14 days allows time for placental pathology, genetic
- importantly, extending the reporting window from 3 to 14 days allows time for placental pathology, genetic
- <03:30:11.279>
that <03:30:11.439>could <03:30:11.600>be moves forward we can modif - that could be moves forward we can modif that could be modified.<03:30:12.880>
But <03:30:13.040
Summary:
The House Committee on Judiciary and Hawaiian Affairs heard testimony on HB 1875, which would expand Hawaii’s existing protections to include gender-affirming health care, clarify permitted disclosures of protected health information, and bar certain adverse actions by malpractice insurers and health carriers against providers of lawful reproductive or gender-affirming care. The Insurance Division of DCCA supported the bill with a technical amendment, suggesting language tied to actuarial analysis rather than the phrase “actuarially sound.” The Office of Information Practices also provided comments.
Most testimony was strongly in support. State agencies and advocacy groups, including the Hawaii State Youth Commission, State Health Planning and Development Agency, Commission on the Status of Women, Hawaii Civil Rights Commission, Hawaii Public Health Institute, Stonewall Caucus, ACLU of Hawaii, PFLAG Oahu, Planned Parenthood Alliance Advocates, the Healthcare Association of Hawaii, and the American College of Obstetricians and Gynecologists, said the bill would protect patient privacy, reduce chilling effects from out-of-state litigation, and help retain providers in a state already facing shortages. Several testifiers said gender-affirming care is medically necessary, evidence-based, and life-saving, and emphasized that Hawaii should protect its own health care decisions from outside political pressure.
A few individuals testified in opposition, arguing the bill was unnecessary or that it protected providers more than opponents of the bill, but these views were not echoed by most of the testimony. The chair repeatedly reminded testifiers to keep comments brief and maintain decorum. The transcript provided does not include a final committee vote or disposition on the bill.
NH
New Hampshire 2026 Regular Session
Senate Health and Human Services (04/01/2026)
Health and Human Services
Transcript Highlights:
- <01:06:03.680>
medicine well-respected genetic medicine well-respected genetic medicine companies - Just to let you know, Florida just passed their Sunshine Genetics Act.
- They're going to be testing 650 to 700 genetic genomes for rare conditions.
- cause debilitating and chronic genetic disease.
- genetic disease.
AL
Transcript Highlights:
- They brought great deer to our state but also introduced their genetics.
- Captive deer were used to... genetics.
- That's... basically what they did was genetically... ...basically what they did was genetically breed
- would basically allow you if when these deer breeders are doing these deer genomically where the genetics
- that Uh, genomically where the genetics that they're breeding in so that they're resistant to CWD.
LA
LA
Transcript Highlights:
- Representative Jordan is an act in Title 22 relative to health insurance to require coverage for genetic
- This bill provides for modifications to the construction management at risk option, and the public bid
Bills:
SR130, SR131, SR132, SR133, SCR74, SCR12, HB582, HB221, HCR74, HCR58, HB71, HB79, HB158, HB160, HB169, HB227, HB251, HB289, HB330, HB394, HB410, HB429, HB769, HB1017, HB1234, HB712, SCR3, SB54, SB72, SB129, SB164, SB232, SB287, SB322, SB374, SB375, SB386, SB409, SB447, SB458, SB78, SB112, SB124, SB125, SB174, SB190, SB201, SB208, SB236, SB273, SB307, SB347, SB357, SB385, SB387, SB393, SB401, SB415, SB426, SB435, SB487, SB488, SB523, SB222, SCR9, SCR58, SB480, SB514, SB35, SB65, SB215, SB246, SB249, SB269, SB282, SB296, SB323, SB363, SB369, SB474, SB490, SB492, SB500, HCR31, HCR47, HB362, HB363, HB368, HB377, HB380, HB382, HB386, HB392, HB406, HB431, HB441, HB466, HB503, HB533, HB559, HB575, HB590, HB593, HB618, HB655, HB664, HB685, HB692, HB707, HB715, HB732, HB738, HB741, HB748, HB776, HB807, HB822, HB856, HB860, HB868, HB887, HB888, HB905, HB908, HB961, HB980, HB990, HB992, HB999, HB1000, HB1010, HB1146, HB1157, HB1233, HB1243, HB54, HB137, HB180, HB192, HB310, HB321, HB396, HB512, HB552, HB578, HB638, HB663, HB708, HB717, HB718, HB1009, HB1082, HB1104, HB1107, HB1198, HB1246, HB27, HB143, HB205, HB259, HB267, HB288, HB308, HB403, HB405, HB414, HB417, HB478, HB546, HB548, HB555, HB557, HB609, HB670, HB672, HB740, HB779, HB786, HB796, HB812, HB848, HB915, HB917, HB921, HB930, HB933, HB1095, HB1096, HB1103, HB1129, HB1154, HB1166, HB1187, HB1195, HB1230, HB316, HB511, HB514, HB799, HB1039, HB17, HB36, HB41, HB47, HB73, HB126, HB133, HB140, HB159, HB166, HB211, HB226, HB271, HB324, HB337, HB351, HB399, HB571, HB723, HB726, HB750, HB759, HB844, HB966, HB1006, HB1018, HB1036, SB29, SB42, SB43, SB217, SB274, SB300, SB379, SB382, SB441, SB449, HB134, HB258, HB359, HB782, SB149
Keywords:
E. Joseph Savoie, Dr. Savoie, University of Louisiana at Lafayette, UL Lafayette, higher education, Louisiana Board of Regents, commissioner of higher education, president emeritus, Carnegie R1, research university, student financial aid, needs-based aid, community and technical college system, teacher education, hurricane Katrina, hurricane Rita, retirement resolution, commendation, senate resolution, public service
Summary:
The Senate convened with 29 members present, opened with prayer by Oren Connor, the Pledge of Allegiance, and a musical performance by the Chuck Wagon Gang. The chamber also recognized several guests and observances, including birthdays for Senators Seabaugh, Fesi, and Price, White Coat Wednesday participants, Tourism Day, the Louisiana Oil Marketers Association, Chenault International Airport’s 40th anniversary, and visiting fair queens from Washington and Tangipahoa parishes. The Senate dispensed with reading the journal and received numerous House and Senate messages, committee reports, and resolutions.
Several Senate resolutions were taken up and adopted, including commendations for Isaac Herzenberg, condolences for Kathleen Sessomson and former Senator Louis Lambert Jr., recognition of White Coat Wednesday and Tourism Day, and a study resolution on transfer-on-death and payable-on-death accounts. The Senate also adopted a conference committee report on House Bill 782, which concerned vapor and alternative nicotine products and was described as giving the state more tools to combat illegal vapes. A number of Senate bills returned from the House with amendments were either concurred in or rejected, including SB 54, SB 72, SB 129, SB 164, SB 232, SB 287, SB 374, SB 375, SB 386, SB 409, SB 112, SB 124, SB 125, SB 174, SB 190, SB 207, SB 236, SB 307, SB 357, SB 385, SB 387, SB 458, SB 477, SB 590, SB 593, SB 618, SB 655, SB 692, SB 707, SB 732, SB 738, SB 748, SB 776, SB 807, SB 860, SB 868, SB 887, SB 888, SB 905, and SB 961, with votes generally passing by wide margins.
The chamber also considered several House bills on final passage. Among those approved were measures on local security districts, budget review authority, school activity access for virtual students, electronic bid forms, brake equipment and trailer safety, construction management at risk contracts, temporary registration plates, the Louisiana Maritime Academy name change, OMV fee and ID issues, ferry operations, group purchasing for local governments, the Green Envelope Program for drivers with disabilities, OMV field office fees, LED fee updates, port development priorities, workforce instructor capacity, and a campus disciplinary process bill tied to hazing prevention. Some House bills were passed after amendments, while others were passed over or rejected for later conference, including bills on virtual school participation, historic preservation, civil service, suicide prevention, local government training, and economic development districts. The Senate also rejected House amendments on SB 78 and SB 208, and rejected amendments on SB 387, sending those matters toward further negotiation.