New York 2025-2026 Regular Session

New York Assembly Bill A02516

Introduced
1/17/25  
Refer
1/17/25  
Report Pass
4/28/25  
Refer
4/28/25  

Caption

Authorizes the department of health to establish a program for familial dysautonomia, Canavan's and Tay-Sachs disease screening and counseling and to provide grants and to enter into contracts with public and non-profit private entities to assist in such program; provides that participation in such program shall be voluntary and all information shall be confidential.

Summary

Bill A02516 proposes the establishment of a program within the New York Department of Health for screening and counseling related to familial dysautonomia, Canavan's disease, and Tay-Sachs disease. The program aims to provide voluntary screening services primarily to blood relatives of affected individuals and high-risk populations, particularly those entering childbearing years. The Department of Health will have the authority to grant funds and enter contracts with public and nonprofit entities to facilitate the program's implementation. Participation in the program is entirely voluntary, and confidentiality of medical records is emphasized, with strict limitations on the admissibility of such information in legal proceedings.

Impact

If enacted, this bill will amend the public health law to include provisions specifically addressing the screening and counseling for familial dysautonomia, Canavan's disease, and Tay-Sachs disease. It will establish a new framework for public health initiatives targeting these conditions, potentially improving early detection and support for affected families. The bill also mandates the issuance of a report by the commissioner on the program's administration, which could lead to further legislative recommendations based on its findings.

Sentiment

The sentiment surrounding Bill A02516 appears to be positive, as evidenced by the unanimous support in the Assembly Health Committee, where it received 25 votes in favor and none against. This suggests a strong consensus on the importance of addressing these genetic disorders through enhanced screening and counseling services.

Contention

While there are no recorded points of contention in the provided context, potential areas of debate could arise regarding the allocation of funds for the program, the prioritization of certain populations for screening, and the implications of confidentiality provisions. Stakeholders may have differing views on the effectiveness and reach of the proposed program, particularly in underserved communities.

Companion Bills

NY S07857

Same As Authorizes the department of health to establish a program for familial dysautonomia, Canavan's and Tay-Sachs disease screening and counseling and to provide grants and to enter into contracts with public and non-profit private entities to assist in such program; provides that participation in such program shall be voluntary and all information shall be confidential.

Previously Filed As

NY S07857

Authorizes the department of health to establish a program for familial dysautonomia, Canavan's and Tay-Sachs disease screening and counseling and to provide grants and to enter into contracts with public and non-profit private entities to assist in such program; provides that participation in such program shall be voluntary and all information shall be confidential.

NY A01813

Authorizes the department of health to establish a program for familial dysautonomia, Canavan's and Tay-Sachs disease screening and counseling and to provide grants and to enter into contracts with public and non-profit private entities to assist in such program; provides that participation in such program shall be voluntary and all information shall be confidential.

NY A02630

Provides that the results of urine tests conducted pursuant to a judicial diversion program shall be private and confidential.

NY S01819

Provides that the results of urine tests conducted pursuant to a judicial diversion program shall be private and confidential.

NY A09602

Establishes a voluntary veterans' registry for the purpose of providing information on federal, state, and local governmental benefits, programs, and services available to veterans, and to link veterans with resources that can provide assistance.

NY S02627

Establishes the homeowner protection program; provides that the department of law shall establish the homeowner protection program to ensure the availability of free housing counseling and legal services to homeowners for the purposes of mitigating threats to homeownership; provides that the department of law shall provide grants to eligible not-for-profit housing counseling organizations and legal services organizations to provide services under the program.

NY A01625

Establishes the homeowner protection program; provides that the department of law shall establish the homeowner protection program to ensure the availability of free housing counseling and legal services to homeowners for the purposes of mitigating threats to homeownership; provides that the department of law shall provide grants to eligible not-for-profit housing counseling organizations and legal services organizations to provide services under the program.

NY S08290

Relates to establishing an early intervention loan repayment program; provides funding is to be awarded regionally with 50% percent awarded to providers with a principal residence within NYC and the remaining fifty percent awarded to providers outside of NYC; provides that awards shall be given to providers who work in underserved areas for 3 consecutive years; provides loans shall be paid over a 3 year period; provides that a working group shall be established within 90 days to develop plans for the streamlined loan repayment program application process.

NY A10288

Authorizes SUNY and CUNY to provide emergency aid grants to certain students; provides that the state shall reimburse half of all such grants provided; requires the higher education services corporation to provide an annual report on such programs.

NY S09044

Authorizes SUNY and CUNY to provide emergency aid grants to certain students; provides that the state shall reimburse half of all such grants provided; requires the higher education services corporation to provide an annual report on such programs.

Similar Bills

No similar bills found.