New York 2025-2026 Regular Session

New York Assembly Bill A01476

Introduced
1/9/25  
Refer
1/9/25  
Report Pass
1/14/25  
Refer
1/14/25  
Report Pass
1/14/25  
Engrossed
1/27/25  
Refer
1/27/25  
Engrossed
2/5/25  
Enrolled
2/12/25  
Chaptered
2/14/25  

Caption

Defines medically fragile young adults as individuals who meet the definition of children with medical fragility, but for the fact such individuals are aged between twenty-one and thirty-five years old.

Summary

A01476 expands New York’s definition of “medically fragile young adults” to include individuals who meet the definition of children with medical fragility but are between ages 21 and 35. The bill is tied to the state’s existing framework for pediatric specialized nursing facilities and is intended to allow these young adults to remain in those facilities after turning 21, rather than aging out of care. The bill also directs the Department of Health to adopt rules and regulations to implement this policy and preserve the current reimbursement structure for this population. Unless the department authorizes a higher rate, facilities would continue to receive the same reimbursement methodology that applied before the individual turned 21, including a daily per diem and coverage for bed holds. Medicaid reimbursement for reserved beds during hospitalization and for therapeutic or hospice leaves of absence must remain at 100% of the Medicaid rate for medically fragile children, without a daily limit, so long as federal financial participation is available.

Impact

The bill amends Public Health Law section 2831 and modifies the effective-date provisions of a 2024 chapter law addressing medically fragile young adults and pediatric specialized nursing facilities. It extends eligibility for continued residence in pediatric specialized nursing facilities from age 21 up to age 35, and it preserves Medicaid reimbursement rules for bed holds, hospitalization, therapeutic leave, and hospice leave for this population. The measure affects the Department of Health, Medicaid reimbursement policy, pediatric specialized nursing facilities, and medically fragile young adults and their families.

Sentiment

The available voting history shows strong bipartisan support and little opposition. The Assembly Health Committee advanced the bill unanimously, the Assembly passed it 145-0, and the Senate passed it 61-1. That pattern suggests broad agreement that the bill addresses a needed continuity-of-care issue for a medically vulnerable population.

Contention

There is little evidence of substantive controversy in the available record. The main policy issue appears to be the scope of the age extension and the associated Medicaid reimbursement obligations, including whether the state should continue paying at pediatric rates and cover bed holds without a daily limit. The bill also conditions effectiveness on federal financial participation, which reflects a practical fiscal and federal-medicaid compliance concern rather than a partisan dispute.

Companion Bills

NY S00776

Same As Defines medically fragile young adults as individuals who meet the definition of children with medical fragility, but for the fact such individuals are aged between twenty-one and thirty-five years old.

Previously Filed As

NY S00776

Defines medically fragile young adults as individuals who meet the definition of children with medical fragility, but for the fact such individuals are aged between twenty-one and thirty-five years old.

NY H1529

Home Health Aide for Medically Fragile Children Program

NY S866

To protect medically fragile children

NY H1366

To protect medically fragile children

NY HB1529

Home Health Aide for Medically Fragile Children Program :

NY HB4068

Relating to residential treatment homes for transition aged youth; and declaring an emergency.

NY S1156

Home Health Aide for Medically Fragile Children Program

NY S09507

Provides additional support to medically fragile children who rely on community-based or home health services.

NY A08604

Provides additional support to medically fragile children who rely on community-based or home health services.

NY HB2513

Creates provisions relating to individualized care plans for children with rare or medically complex conditions

Similar Bills

No similar bills found.