New Jersey 2024-2025 Regular Session

New Jersey Assembly Bill A1878

Introduced
1/9/24  
Refer
1/9/24  

Caption

Makes supplemental appropriation of $500,000 to DOH for Huntington's Disease Grant Program.

Impact

Huntington's disease is a hereditary condition affecting the brain's nerve cells, leading to progressive deterioration of mental and physical capabilities. This bill aims to address the healthcare needs of an estimated 900 to 1,200 residents currently living with Huntington's disease in New Jersey. By increasing the appropriated funds, the bill would raise the total distribution for this vital program to $700,437 for the fiscal year 2023, thereby potentially expanding the reach of services available to those affected.

Summary

Assembly Bill A1878 proposes a supplemental appropriation of $500,000 to the New Jersey Department of Health (DOH) aimed specifically at supporting the Huntington's Disease Grant Program. This funding is intended to enhance resources for institutions of higher education, non-profit organizations, or research organizations in New Jersey that provide essential services related to Huntington's disease. These services include pre-symptomatic testing, neurology and psychiatry services, neurophysiological evaluations, treatment, disease management, and counseling for those affected or at risk for the disease.

Contention

Notable points of contention surrounding this bill may center on the adequacy and prioritization of funding for rare diseases like Huntington's in relation to broader healthcare funding issues. While supporters argue that this supplement is critical for addressing the needs of individuals and families grappling with a devastating condition, there may be discussions about the sufficiency of state resources for various health programs and whether this earmarked funding is sufficient to meet the actual demand for services. The bill reflects an ongoing commitment to addressing healthcare needs in New Jersey but may attract questions regarding fiscal priorities and resource allocation.

Companion Bills

NJ S3243

Same As Makes supplemental appropriation of $500,000 to DOH for Huntington's Disease Grant Program.

NJ S3280

Carry Over Makes supplemental appropriation of $500,000 to DOH for Huntington's Disease Grant Program.

NJ A4915

Carry Over Makes supplemental appropriation of $500,000 to DOH for Huntington's Disease Grant Program.

Previously Filed As

NJ A3365

Makes supplemental appropriation of $500,000 to DOH for Huntington's Disease Grant Program.

NJ S2616

Makes supplemental appropriation of $500,000 to DOH for Huntington's Disease Grant Program.

NJ A1136

Makes supplemental appropriation of $500,000 from General Fund to Rutgers University - New Brunswick for Nurture thru Nature program.

NJ A1874

Makes FY2023 supplemental appropriation of $17 million to DEP for grants for certain lake management activities.

NJ A2161

Makes supplemental appropriation of $615,000 to DHS for grant to NJ 2-1-1 Partnership.

NJ A4697

Makes FY2026 supplemental appropriation of $30 million to DCA for Neighborhood Revitalization Tax Credit program.

NJ A982

Makes FY2025 supplemental appropriation of $400,000 from General Fund for grant to nonprofit organization to support purchase of pet food for pet owners undergoing medical care.

NJ A3841

Makes supplemental appropriation of $500,000 for Main Library Alliance.

NJ A1159

Makes supplemental appropriation of $500,000 to DCA for NJ State Veterans Chamber of Commerce for veteran economic development and outreach and skills development.

NJ A2313

Makes FY2025 supplemental appropriation of $10 million for Unmanned Aircraft Systems Grant Program.

Similar Bills

NJ S2616

Makes supplemental appropriation of $500,000 to DOH for Huntington's Disease Grant Program.

NJ A3365

Makes supplemental appropriation of $500,000 to DOH for Huntington's Disease Grant Program.

MI HB4016

Holidays: other; "Huntington's Disease Awareness Month"; designate as the month of May of each year. Creates new act.

NY K00525

Memorializing Governor Kathy Hochul to proclaim May 2025, as Huntington's Disease Awareness Month in the State of New York

NY J01765

Memorializing Governor Kathy Hochul to proclaim May 2026 as Huntington's Disease Awareness Month in the State of New York

MI HR0319

A resolution to declare May 2026 as Huntington's Disease Awareness Month in the state of Michigan.

NJ AJR114

Designates last day of February of each year as "Rare Disease Awareness Day" in New Jersey.