Promotes increased public awareness about Stargardt's Disease.
Impact
The resolution highlights the critical aspects of Stargardt's Disease, including its genetic transmission and symptoms such as blurry vision and difficulties in adjusting to lighting changes. Given that it affects approximately one in 10,000 children in the U.S., the need for public engagement in understanding such a serious health concern is emphasized. While there are no known cures, ongoing research could provide insights into potential treatment options, making awareness essential for early diagnosis and intervention.
Summary
Assembly Resolution No. 71 (AR71) aims to promote increased public awareness about Stargardt's Disease, which is the most common form of inherited juvenile macular degeneration, causing vision loss primarily in children. The resolution acknowledges the significance of understanding this disease, its genetic basis, and the need for public education regarding its implications. By urging the Governor to take action, the bill seeks to enhance recognition and understanding of the condition, which significantly impacts the lives of those affected by it.
Statement
The resolution further calls upon public officials and citizens to initiate activities and programs that improve awareness and understanding of the disease. Given societal implications, including the ability to maintain independence and carry out daily activities, the underlying message promotes a collective effort to support affected families and individuals in educational contexts and healthcare practices.
Contention
One notable point conveyed through AR71 is the importance of genetic counseling and testing for families with a history of Stargardt's Disease. By subjecting affected families to genetic testing, there can be better personal and familial management of the condition. Additionally, the recognition of devices and services available to aid those impacted by the disease partakes in fostering a supportive environment for individuals and families dealing with vision impairment caused by Stargardt's.
Supporting the designation of March as "Autoimmune Awareness Month" and supporting efforts to increase awareness of autoimmune diseases and increase funding for autoimmune disease research.