Minnesota 2023-2024 Regular Session

Minnesota House Bill HF384

Introduced
1/17/23  

Caption

Unrestricted access to services required for diagnosis, monitoring, and treatment of rare diseases.

Impact

This legislation intends to enhance the care available to patients suffering from rare diseases by providing more flexibility and access to necessary services. The bill requires that any cost-sharing constraints associated with out-of-network services cannot exceed those levied for in-network treatments, effectively shielding patients from higher costs due to insurance policies. Moreover, health plan companies are mandated to provide clear written communication about these provisions and train their customer service personnel accordingly, which is aimed at reducing confusion and improving access to care.

Summary

House File 384 mandates unrestricted access to services required for the diagnosis, monitoring, and treatment of rare diseases in Minnesota. The bill outlines specific definitions of what constitutes a rare disease, primarily focusing on those affecting fewer than 200,000 individuals in the U.S. or those identified on specific medical designations. Notably, it prohibits health plan companies from restricting patient choices regarding where they can receive care for these conditions, ensuring patients have access to licensed providers without facing unnecessary limitations.

Contention

Despite the bill's provisions aimed at protecting patient access, points of contention exist among stakeholders. Critics may argue that such mandates on health plan companies could lead to increased premiums or limit the ability of insurers to manage provider networks effectively. The specific patient requirements for out-of-network services, including prior consultations and testing, may also lead to disputes over coverage, particularly regarding what constitutes adequate documentary evidence. There is also concern that the bill may not adequately address the needs of patients whose conditions do not fit neatly within the defined parameters of 'rare diseases.'

Companion Bills

MN SF1029

Similar To Unrestricted access requirement to services for diagnosis. monitoring, and treatment of rare diseases

Previously Filed As

MN SB461

Providing for patient access to diagnostics and treatments for Lyme disease and related tick-borne illnesses; and requiring health care policies to provide certain coverage.

MN HF4230

Health plans required to cover treatment of inherited metabolic diseases.

MN HF3789

Health plans required to cover pap tests and subsequent diagnostic services, commissioner of commerce required to defray the cost of coverage of pap tests and subsequent diagnostic services, related language modified, and money appropriated.

MN SF3615

Health plans requirement to cover infertility treatment and standard fertility preservation services

MN S1102

Requires health benefits coverage of continuous glucose monitoring system for treatment of glycogen storage disease.

MN A3242

Requires health benefits coverage of continuous glucose monitoring system for treatment of glycogen storage disease.

MN HF4609

Health plans required to cover infertility treatment and standard fertility preservation services, medical assistance and MinnesotaCare required to cover infertility treatment and standard fertility preservation services, and money appropriated.

MN SF3716

Health plans to cover cervical cancer screening tests and subsequent diagnostic services requirement and appropriation

MN A02384

Requires insurers to provide insurance coverage for treatment of rare diseases, life-threatening conditions or diseases, degenerative and disabling conditions, or diagnoses involving medically fragile children, by a provider of the patient's choice.

MN S1552

Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases

Similar Bills

NJ S3008

Requires health insurance and Medicaid coverage for screening, prevention, and treatment services of behavioral health issues affecting children.

NJ A2749

Requires health insurance and Medicaid coverage for screening, prevention, and treatment services of behavioral health issues affecting children.

HI HR138

Urging The Prohibition Of The Use Of "excited Delirium", Or Similar Pseudoscientific Concepts, As A Medical Diagnosis, Cause Of Death, Or Legal Theory In The State Of Hawaii.

HI HCR146

Urging The Prohibition Of The Use Of "excited Delirium", Or Similar Pseudoscientific Concepts, As A Medical Diagnosis, Cause Of Death, Or Legal Theory In The State Of Hawaii.

CA AB360

Menopause.

LA SB42

Provides relative to perinatal behavioral health treatment. (8/1/25) (EN INCREASE GF EX See Note)

RI S0103

Mandates all insurance contracts, plans or policies provide insurance coverage for the expense of diagnosing and treating infertility, for women between the ages of 25 and 42 years including preimplantation genetic diagnosis (PGD) in conjunction with IVF.

MS SB2404

Cancer coverage under First Responders Health and Safety Act; extend eligibility.