Massachusetts 2023-2024 Regular Session

Massachusetts House Bill H1039

Introduced
2/16/23  

Caption

Providing insurance coverage for Alfi’s syndrome

Impact

The legislation seeks to eliminate discrimination in health insurance policies for residents related to the coverage of Alfi’s syndrome. It mandates that insurance providers cannot impose annual or lifetime service limitations that are less favorable than those imposed on physical conditions. By broadening insurance coverage for specific medical services without such limitations, the bill aims to enhance access to necessary treatments for affected individuals.

Summary

House Bill 1039 aims to provide insurance coverage for individuals diagnosed with Alfi’s syndrome, which is also known as 9p deletion syndrome or monosomy 9p. The bill directs modifications to several chapters of the Massachusetts General Laws, requiring health insurers to offer coverage for the diagnosis and treatment of this genetic condition. This includes support for applied behavior analysis, medical evaluations, and related therapeutic services, ensuring that patients receive comprehensive care tailored to their needs.

Contention

One of the notable points of contention within House Bill 1039 is the exemption clause that allows insurers, corporations, or health maintenance organizations a three-year reprieve from covering certain habilitative or rehabilitative care if they demonstrate that associated costs exceed 1% of overall premiums. Critics may voice concerns over this provision, arguing it could limit timely access to vital services, thereby undermining the comprehensive intent of the bill to provide non-discriminatory coverage for those with Alfi’s syndrome.

Companion Bills

MA H4096

Similar To To improve outcomes for persons with limb loss and limb difference

MA H4410

Similar To Relative to breast cancer equity and early detection

MA H4691

Replaced by Auto and health insurance

Previously Filed As

MA H1189

Providing insurance coverage for Alfi’s syndrome

MA S2599

Providing insurance coverage for the medically necessary treatment of port-wine stains

MA H1165

Providing for certain health insurance coverage

MA H280

Providing for insurance coverage for vision screening for children

MA H4937

Providing for certain health insurance coverage

MA S832

Providing health insurance coverage for scalp and facial hair prostheses

MA H5048

Health insurance mandated benefit bills

MA H1224

Providing insurance coverage for biennial echocardiograms for persons under the age of 18

MA H4945

Providing insurance coverage for biennial echocardiograms for persons under the age of 18

MA H1170

Relative to access to care for Ehler Danlos syndrome patients

Similar Bills

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RI S0790

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WV HB2175

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MO HB1964

Modifies provisions relating to the practice of applied behavior analysis

MI SB0928

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MI HB5291

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behavioral health services; insurance coverage