Illinois 2025-2026 Regular Session

Illinois Senate Bill SR0757

Introduced
5/5/26  

Caption

FSGS AWARENESS DAY

Summary

SR0757 is a Senate resolution declaring June 9, 2026 as FSGS Awareness Day in Illinois. The resolution focuses on focal segmental glomerulosclerosis (FSGS), a rare kidney disease that causes scarring in the kidneys and can progress to kidney failure, dialysis, or transplant. It presents FSGS as a serious public health issue affecting patients, families, and the broader healthcare system, and it highlights the need for earlier diagnosis, better access to nephrology care, and continued development of treatments. The resolution also emphasizes the disproportionate impact of FSGS on Black communities and notes the role of APOL1 gene variants in increasing risk among people of African ancestry. It references the burden of chronic kidney disease, the costs to Medicaid, Medicare, and private insurers, and ongoing clinical trials and research efforts, including advocacy work by patient organizations such as NephCure. The stated purpose is to raise awareness, support patients and families, and encourage progress toward improved diagnosis and future therapies.

Impact

As a Senate resolution, SR0757 does not amend the Illinois Compiled Statutes or create enforceable legal obligations. Its practical effect is symbolic and commemorative: it designates June 9, 2026 as FSGS Awareness Day in Illinois and uses the state’s platform to promote public awareness of a rare kidney disease. The resolution may help elevate attention among healthcare providers, advocates, researchers, and policymakers, but it does not directly change coverage rules, treatment standards, or eligibility for benefits.

Sentiment

The overall sentiment of the resolution is strongly supportive and commemorative. The bill’s findings frame FSGS as a severe, costly, and under-recognized disease, and the resolution expresses sympathy for affected patients and families while praising advocacy, research, and clinical progress. Because there are no recorded committee transcripts or votes in the provided material, there is no evidence of formal opposition or debate in the available record.

Contention

No specific points of contention are documented in the provided materials. The resolution’s emphasis on rare disease awareness, healthcare costs, and racial disparities suggests that any substantive debate would likely center on public health priorities, access to nephrology care, and the recognition of inequities affecting Black patients. However, the available record contains no recorded objections, amendments, or divided votes.

Companion Bills

No companion bills found.

Previously Filed As

IL HR0326

FSGS AWARENESS DAY

IL SR0273

FSGS AWARENESS DAY

IL HR0659

IGAN AWARENESS DAY

IL HR0796

M.E. AWARENESS DAY

IL SR0667

ME AWARENESS DAY

IL HR0444

MBC AWARENESS DAY

IL SR0402

MBC AWARENESS DAY

IL SR0696

NEC AWARENESS MONTH/DAY

IL HR0468

PBC AWARENESS MONTH

IL HR0614

LYME DISEASE AWARENESS MONTH

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