Illinois 2023-2024 Regular Session

Illinois Senate Bill SB0068

Introduced
1/20/23  
Refer
1/20/23  
Refer
2/7/23  

Caption

GENETIC INFORMATION PRIVACY

Impact

The amendments made by SB0068 establish a significant precedent in how genetic data is handled by insurance companies, thereby strengthening protections against genetic discrimination in the insurance sector. Insurers can still access an individual's medical records during application reviews; however, they are restricted from using genetic predispositions in their underwriting processes. This change is seen as a landmark in safeguarding individual rights and health privacy, particularly for those concerned about their genetic tests influencing their insurance outcomes.

Summary

SB0068 aims to amend the Genetic Information Privacy Act by removing exemptions for long-term care insurance policies regarding the usage of genetic information. This bill prohibits health insurers, life insurers, and long-term care insurers from utilizing an individual's genetic information to cancel, limit, deny coverage, or establish differing premium rates. Moreover, insurers are not allowed to solicit genetic information or utilize an individual's genetic test results in any context relating to insurance policies, effective from January 1, 2024.

Contention

Debate around this bill may arise particularly concerning the balance between necessary risk assessments for insurers and individual privacy rights. Some stakeholders may argue that while the intentions of the bill promote equity and non-discrimination, insurers require certain information to adequately evaluate risk and affordability, which they believe lawful access to genetic information could provide. Additionally, concerns may also be raised about loopholes in enforcement or any unintended consequences this legislation may bring in terms of market behavior among insurers.

Companion Bills

No companion bills found.

Previously Filed As

IL SB0250

GENETIC INFORMATION PRIVACY

IL SB2799

GENETIC INFORMATION PRIVACY

IL HB4897

GENETIC INFORMATION PRIVACY

IL SB2994

GENETIC PRIVACY-NEUROTECH

IL HB4556

GENETIC INFO PRIVACY-BIOMARKER

IL SB2886

GENETIC INFO PRIVACY-BIOMARKER

IL HB3436

Genetic Privacy Act

IL S0767

Establishes the Genetic Information Privacy Act, which would require a direct-to-consumer genetic testing company, as defined, to provide a consumer with certain information regarding the company’s policies and procedures regarding use of genetic data.

IL HB2534

LIFE INSURANCE-GENETIC INFO

IL SB757

Disability and Life Insurance - Medical Information (Genetic Testing Protection Act)

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