Video & Transcript Research : 'rickets'
MA
Massachusetts 2025-2026 Regular Session
Joint Committee on Children, Families and Persons with Disabilities Jul 1st, 2026
Joint Committee on Children, Families and Persons with Disabilities
Keywords:
poverty alleviation, family support, economic mobility, youth transition, financial education, matched savings, community programs, Department of Children and Families, DCF, child abuse investigation, child neglect, pediatrician, advanced practice registered nurse, medical misdiagnosis, rickets, Ehlers-Danlos syndrome, osteogenesis imperfecta, vitamin D deficiency, bone fragility, child welfare
Summary:
The Joint Committee on Children, Families, and Persons with Disabilities held a hybrid hearing on miscellaneous bills, including H. 5286, which would require DCF to consult a medical professional when a parent presents evidence of a pre-existing diagnosis that could explain symptoms mistaken for abuse or neglect. Representative Brian Mario said the bill would give DCF another tool in difficult cases. Jennifer Fernandes testified about her family’s experience with her grandson being removed after doctors initially suspected a skull fracture that later proved unfounded, saying the bill could help prevent similar outcomes. Committee members expressed sympathy and indicated interest in further discussion.
The committee then heard extensive testimony on H. 5085/S. 3095, the omnibus “An Act Significantly Alleviating Poverty.” Supporters described the bill as a comprehensive anti-poverty package built from the Poverty Commission’s work, combining higher cash assistance grants, matched savings, baby bonds, a guaranteed stipend for youth aging out of foster care, expanded tax credits, language access, clean slate record sealing, and worker protections. Senator Eldridge, Senator Miranda, Representative Decker, and many advocates argued that poverty is tied to housing instability, child welfare involvement, health harms, and racial and gender inequities, and that the bill would help families meet basic needs, build wealth, and reduce the benefits cliff.
Witnesses from social service, legal aid, labor, immigrant advocacy, and public health groups strongly supported the bill’s provisions. Several focused on specific sections: child support pass-through and a broader good-cause exception for TAFDC recipients; extending the state EITC to ITIN filers; creating baby bonds and matched savings programs; automating criminal record sealing; improving language access at state agencies; and ending the subminimum wage for farm workers. Former foster youth and service providers said the guaranteed stipend would help young adults avoid homelessness and transition more safely into adulthood. No votes were taken during the hearing, and the chairs repeatedly noted the limited time and encouraged written testimony and follow-up conversations.
MA
Massachusetts 2025-2026 Regular Session
Joint Committee on Children, Families and Persons with Disabilities Jul 1st, 2026
Joint Committee on Children, Families and Persons with Disabilities
Keywords:
poverty alleviation, family support, economic mobility, youth transition, financial education, matched savings, community programs, Department of Children and Families, DCF, child abuse investigation, child neglect, pediatrician, advanced practice registered nurse, medical misdiagnosis, rickets, Ehlers-Danlos syndrome, osteogenesis imperfecta, vitamin D deficiency, bone fragility, child welfare
FL
Florida 2025 Regular Session
Judiciary Mar 25th, 2025
FL
Florida 2026 5th Special Session
Judiciary Mar 25th, 2025
Transcript Highlights:
- In cases across the country and in Florida, children with pre-existing genetic conditions such as Rickets
- Conditions like Ehlers-Danlos syndrome, osteogenesis imperfecta, rickets, and vitamin deficiencies can
Summary:
The committee first took up CS for Senate Bill 304, which would address child protective investigations involving children with certain genetic or medical conditions that can mimic signs of abuse. Senator Sharif and several family members and advocates described cases in which children were removed after injuries were initially misread as abuse, and argued the bill would give parents more opportunity to obtain qualified medical opinions. The committee adopted a substitute amendment that removed language imposing analysis duties on certain medical professionals, then passed the bill favorably after testimony in support from the Florida chapter of the American Academy of Pediatrics and several affected families.
The committee then considered SB 1430 on post-judgment execution proceedings for terrorism victims, SB 96 on relief for Jacob Rogers, SB 382 on affordable housing rent agreements, SB 4 and SB 6 on claims bills for Patricia Armini and Jose Correa, SB 1142 on release of conservation easements, SB 658 on waiver or release of liens, SB 28 and SB 30 on claims involving South Broward Hospital District and the Broward County Sheriff’s Office, SB 24 on relief for Mandy Penny Lemon, SB 72 on campaign funds for child care expenses, and SB 1622 on recreational customary use of beaches. Most of these bills were explained by their sponsors as narrow relief or technical measures, and the committee heard a mix of support and opposition from claimants, local governments, industry groups, and advocacy organizations.
Several bills drew substantive debate. On SB 382, members discussed rent stability and whether the bill should better address lease language and future rent increases; the amendment and bill were both reported favorably. On SB 1142, members raised concerns about environmental and drainage impacts and whether releases of conservation easements should be mandatory or discretionary, but the bill still passed favorably. On SB 72, members questioned the scope of allowable campaign child care expenses and the need for stronger guardrails against abuse; the bill nevertheless passed favorably. On SB 1622, testimony sharply divided between supporters of restoring public beach access and opponents defending private property rights; debate continued when the transcript ended, so no final vote on that bill is reflected here.
FL
Transcript Highlights:
- In cases across the country and in Florida, children with pre-existing genetic conditions such as rickets
- Conditions like Ehlers-Danlos syndrome, osteogenesis imperfecta, rickets, and vitamin deficiencies can
Summary:
The committee first took up CS for Senate Bill 304, which would address child protective investigations involving children with certain pre-existing genetic or medical conditions. Senator Sharif said the bill is intended to prevent children from being wrongly removed from their families when symptoms of conditions such as Ehlers-Danlos syndrome, osteogenesis imperfecta, rickets, or vitamin deficiencies are mistaken for abuse. Several parents and advocates testified in support, describing long dependency cases and removals they said were caused by misdiagnosis. The committee adopted a substitute amendment that removed language requiring certain medical personnel to provide differential-diagnosis analysis, and the bill then passed favorably with unanimous support.
The committee then heard SB 1430 on post-judgment execution proceedings relating to terrorism, sponsored by Senator Collins, who described the long effort by U.S. victims of the FARC to enforce a federal judgment and recover assets. The bill would clarify procedures for terrorism-related judgments, modernize intangible asset law, and help prevent terrorists from hiding assets or blocking wire transfers. After one supportive appearance form and no debate, the bill passed favorably. The committee also approved SB 96, a local claims bill for Jacob Rogers, and SB 382, an affordable housing rent bill that was amended to define base rent and apply to certain shorter-term rental agreements entered after July 1, 2026; SB 382 drew support from housing advocates and some opposition, but passed unanimously.
Several claims bills were also approved: SB 4 for Patricia Armini, SB 6 for Jose Correa, SB 28 for Darlene Engerville and J.R., SB 30 for the estate of M.N., and SB 24 for Mandy Penny Lemon, each involving injuries or damages caused by local government or hospital district negligence and each reported favorably after brief testimony and roll calls. The committee also passed SB 658 on waiver or release of liens after discussion about form language and enforceability. SB 72, which would allow campaign funds to pay certain child care expenses incurred while a candidate is actively campaigning, prompted questions about definitions and safeguards; the sponsor said the bill would require the expense to exist only because of campaign activity, and the bill was reported favorably.
Finally, the committee approved SB 1142 on release of conservation easements, which would create a statewide process for releasing certain small, low-value parcels from conservation easements if mitigation credits are secured elsewhere. The bill drew support from the sponsor and a property representative, but environmental advocates and President Passidomo raised concerns about flood control, wildlife corridors, and whether the bill was too property-specific; the sponsor said he would continue working on the language. The committee also heard extensive testimony on SB 1622, which would repeal the 2018 customary use law and restore local authority over public beach access. Supporters argued the current law has privatized beaches, hurt tourism, and led to harassment and conflict, while opponents defended private property rights and warned against taking away owners’ ability to exclude others. The transcript ends during testimony on SB 1622, before a final vote is shown.
FL
Florida 2026 5th Special Session
Rules Apr 1st, 2025
Transcript Highlights:
- In cases across the country, and in Florida, children with pre-existing genetic conditions such as rickets
- , Ehlers-Danlos, And in Florida, children with pre-existing genetic conditions such as rickets, Ehlers-Danlos
Summary:
The committee took up a long agenda of bills, beginning with CS/SB 678, which would allow pawnbroker transaction forms to be printed or digital; it drew support from a business representative and was reported favorably. Members then heard several bills by Senator Leak, including SB 466 to designate St. Johns County as the site of the Florida Museum of Black History and create a board to work with the museum foundation and Florida Memorial University; the bill drew supportive testimony about preserving accurate Black history and the significance of the site, and it passed favorably. Leak’s CS/SB 578 would let Florida wineries use recyclable inserts and other alternative containers for larger wine sales, and it also passed favorably. SB 582 would increase penalties for unlawful demolition of historic buildings and structures, limiting the higher penalties to certain nationally or internationally recognized historic properties; it was supported by preservation advocates and reported favorably. CS/SB 1168 would create an aggravated offense for installing or using tracking devices or apps in furtherance of crimes such as murder, domestic violence, or robbery, and it passed favorably after a brief discussion about stalking and violent crimes. CS/SB 806 would make the Florida Attorney General the exclusive public official with standing to enforce Florida charitable trusts, limiting out-of-state attorneys general from suing over Florida-administered trusts; members debated whether this would burden out-of-state beneficiaries, but the bill was reported favorably. SB 1228 would advance spring restoration efforts for Ichetucknee Springs and Santa Fe spring flows and allow a utility compliance plan amendment to deliver reclaimed water to replenish the aquifer; it passed favorably. CS/CS/SB 304 would require a qualified medical opinion in child protective investigations involving infants and young children with possible genetic or medical conditions that can mimic abuse, and it drew emotional support from parents and advocates before passing favorably. SB 1286 would clarify that ordinary unsupervised childhood activities like biking or playing outside do not constitute neglect absent reckless endangerment, and it was reported favorably. SB 1318, the hands-free driving bill, generated the most extensive debate: it renames the texting-while-driving law, expands the prohibition to handheld device use, and adds penalties in work zones and school zones; supporters cited fatal crash statistics and personal loss, while opponents raised concerns about enforcement, civil liberties, racial disparities in traffic stops, and the need for broader distracted-driving and insurance reforms. Despite those concerns, the bill was reported favorably after amendments. The committee also approved two claims bills, SB 14 for the estate of Penao-Hanvier against Miami Beach and SB 20 for J.N. against Hillsborough County, both settled claims recommended favorably by the special master. Finally, CS/SB 68 would modernize health facilities authority financing for private not-for-profit health systems, and CS/SB 172 would restrict misuse of health care specialty titles while preserving titles authorized under existing practice acts; both were discussed with questions about doctors, optometrists, and CRNAs, and both were reported favorably after amendment and debate.
FL
Transcript Highlights:
- In cases across the country, and in Florida, children with pre-existing genetic conditions such as rickets
- And in Florida, children with pre-existing genetic conditions such as rickets, Ehlers-Danlos syndrome
Summary:
The Committee on Rules took up a long agenda of bills and reported several measures favorably. Early action included CS for SB 678, allowing pawnbroker transaction forms to be printed or digital, and SB 466, which designates St. Johns County as the site for the Florida Museum of Black History and creates a board to work with the supporting foundation and county officials. Senators and public speakers largely supported the museum bill, though some members asked about feasibility studies and long-term planning. The committee also approved CS for SB 578 on wine containers, SB 582 on penalties for unlawful demolition of historic buildings, CS for SB 1168 creating an aggravated offense for unlawful tracking-device use in furtherance of crimes, CS for SB 806 clarifying that only the Florida Attorney General may represent beneficiaries of Florida charitable trusts as a public official, and SB 1228 to support spring restoration efforts for Ichetucknee and Santa Fe springs.
The committee then heard and favorably reported CS for CS for SB 304, which addresses child protective investigations involving infants and young children with genetic or other pre-existing medical conditions. The bill requires a qualified medical opinion before permanent removal in cases where injuries may be explained by an underlying condition, and it drew strong support from the sponsor and several speakers. Members also approved SB 1286 clarifying that ordinary unsupervised childhood activities, such as biking or playing outside, do not by themselves constitute neglect unless reckless, and SB 1318, a hands-free driving bill that renames the texting-while-driving law, expands the handheld-device prohibition, and adds penalties for handheld use in work and school zones and for certain serious crashes. The hands-free bill prompted the most debate, with supporters citing crash and fatality data and families sharing personal losses, while opponents raised concerns about enforcement, civil liberties, and potential disparate impacts on lower-income and minority drivers; the bill was still reported favorably after amendments.
Additional measures reported favorably included SB 14 and SB 20, two claims bills for injuries and deaths involving local governments, and CS for SB 68, which updates health facilities authority financing rules to reflect modern hospital structures. The committee also approved CS for SB 172 on health care practitioner specialty titles and designations after adopting an amendment protecting CRNA titles; the bill generated questions about whether licensed practitioners with doctoral degrees may still use the title doctor under their practice acts. Throughout the meeting, most bills were adopted without opposition, and the committee repeatedly voted to report them favorably.
FL
Florida 2025 Regular Session
March 25, 2025 - 04:00 PM
Transcript Highlights:
- Medical conditions such as rickets, Ehlers-Danlos syndrome, brittle bone disease, and vitamin D deficiencies
Summary:
The Human Services Subcommittee considered three bills and reported all of them favorably. HB 1013, relating to crisis care coordination, would create a pilot program in Polk and Volusia counties to connect people who have had Baker Act-related crises with follow-up counseling, assessments, and outpatient services through partnerships between law enforcement and community providers. The sponsor said the program has reduced repeat Baker Act commitments in Polk County, and the committee adopted a strike-all amendment moving the pilot to a different statute, formalizing partnerships, and requiring an independent DCF evaluation due in January 2029. The bill drew support from mental health and justice advocates and passed unanimously.
The committee then heard PCS for HB 511, which addresses child protective investigations involving specific medical diagnoses. Sponsors and several parents, attorneys, and advocates described cases in which children were removed after injuries were initially treated as abuse but later linked to conditions such as Ehlers-Danlos syndrome, metabolic bone disease, or other medical fragility. They argued the bill would require notice of the right to a second medical opinion, better consideration of preexisting conditions and medical records, and more coordination before reports are sent to law enforcement, while still preserving protections for abused children. Members expressed sympathy for the families and emphasized the need for fairness and accurate medical review; the bill passed 17-0.
Finally, HB 1439, based on recommendations from the 2025 Commission on Mental Health and Substance Use Disorder, was presented as a broader mental health and substance use disorder measure focused on crisis response, access to care, and workforce development. An amendment aligned the bill more closely with commission recommendations, including assessment tools, trauma-informed practices, school-based behavioral health access, telehealth, discharge planning, and long-acting injectable treatment access. The commission chair testified that the bill reflected a vetted set of recommendations from subject matter experts and commissioners, and the committee adopted the amendment and then reported the bill favorably by unanimous vote. The meeting then adjourned.
FL
Florida 2026 Regular Session
Appropriations Committee on Health and Human Services Feb 18th, 2026
Appropriations Committee on Health and Human Services
Transcript Highlights:
- When a parent reports that a child has one of the four specific conditions—Rickets, Ehlers-Danlos syndrome
Keywords:
child protection, medical records, investigation, abuse, neglect, healthcare, Child Protection Team, diagnosis, uterine fibroids, health database, medical research, personal data protection, women's health, clinical laboratory, licensure, healthcare personnel, technologist, technician, medical marijuana, low-THC cannabis
Summary:
The Appropriations Committee on Health and Human Services met to hear and vote on a series of health, human services, and education-related bills, along with a presentation of the committee’s proposed HHS budget. The budget was described as increasing by more than $2.1 billion over the current base, with major funding highlighted for Medicaid and KidCare, rural health, provider rate increases, child welfare, mental health and substance use, opioid treatment, Alzheimer’s initiatives, cancer research, ADAP, veterans’ services, and IT modernization. Public testimony on the budget focused heavily on AIDS Drug Assistance Program funding and concerns about Department of Health changes affecting access, premium assistance, notice, and continuity of care for people living with HIV/AIDS.
Among the bills reported favorably were measures on podiatric medicine and tissue-based products (SB 1092), background screening and clearinghouse procedures (SB 1168), child protective investigations involving specific medical diagnoses and second opinions (SB 42), clinical laboratory personnel licensure standards (SB 878), uterine fibroid data tracking and research (SB 196), medical marijuana treatment center oversight and related health provisions (SB 902), dyslexia and dyscalculia screening and intervention in schools (SB 1340), memory care licensure for assisted living facilities (SB 1404), congenital CMV education materials (SB 1414), Parkinson’s disease registry and related public records exemption bills (SB 1684 and SB 1686), and occupational therapy dry needling licensure standards (SB 914). Several bills were amended before passage, including SB 1092, SB 42, SB 902, SB 1684, and SB 1404.
Testimony generally came from professional associations, advocacy groups, and affected stakeholders, with support voiced for most measures. The committee adopted amendments on the floor, heard no opposition during debate on the bills described, and then voted to report each measure favorably. At the end of the meeting, senators requested to be recorded in the affirmative on selected bills, and the committee adjourned.
FL
Florida 2026 4th Special Session
February 10, 2026 - 01:30 PM
Transcript Highlights:
- Medical conditions such as Rickets, Ehlers-Danlos syndrome, brittle bone disease, and vitamin D deficiency
Summary:
The Health and Human Services Committee considered eight bills and reported all of them favorably, several as amended. HB 1347 on clinical laboratory personnel was presented as a response to staffing shortages in Florida labs; the sponsor and Quest Diagnostics supported aligning state licensure with CLIA standards to improve hiring and turnaround times. The bill passed 24-0. CS/HB 47, dealing with specific medical diagnoses in child protective investigations, drew extensive emotional testimony from parents and advocates who said children had been wrongly removed after misdiagnoses; the bill was amended to tighten timelines and record-sharing requirements, then passed 26-0. CS/HB 287 created a public records exemption for applicants, owners, operators, and references of family foster homes and passed unanimously.
The committee also approved CS/HB 439, allowing chiropractors to inject vitamins and nutrients under training and safety limits, after an amendment clarified they may not prescribe prescription drugs; it passed 26-0. CS/HB 1021 would allow pharmacists to administer medications in trauma centers under physician direction, and an amendment added pediatric trauma centers; it passed 26-0. HB 867 would let occupational therapists perform dry needling after specified training and supervision, and it passed 25-0.
HB 1309, which shortens deadlines for patients to access their medical records and aligns nursing home access rules with federal law, drew opposition from health information management groups over privacy and portal/data-security concerns, but supporters argued it simply speeds access to records; it passed 21-5. CS/HB 915 codifies and expands Medicaid eligibility protections for working people with disabilities so they can keep coverage while employed, with strong support from disability advocates and emotional testimony from the sponsor about her son’s benefits concerns; it passed 26-0. After these votes, the committee adjourned.
FL
Florida 2025 Regular Session
Children, Families, and Elder Affairs Mar 12th, 2025
FL
Florida 2026 Regular Session
Children, Families, and Elder Affairs Mar 12th, 2025
Children, Families, and Elder Affairs
Transcript Highlights:
- In cases across this country, including Florida, children with genetic conditions such as Rickets, Ehlers-Danlos
Summary:
The Committee on Children, Families, and Elder Affairs met with a quorum and considered five bills. SB 1174, by Senator Jones, would simplify the process for transferring a family foster home license when a foster parent moves within Florida. A friendly amendment clarified that the transfer applies to the same licensed person, not a different individual, and directs DCF to prioritize amended licenses. The committee adopted the amendment and reported the bill favorably.
SB 558, by Chair Grall, created a framework for voluntary post-adoption contact agreements between adoptive and biological parents, including contact with siblings, with court filing and enforcement procedures. A strike-all amendment changed the child’s party status age from 14 to 12, required court filing in the adoption case, set a preponderance standard, and moved the effective date to January 1, 2026. The committee adopted the amendment and reported the bill favorably. SB 1626, also by Chair Grall, was substantially revised by a strike-all addressing unaccompanied alien children reporting and custody procedures, military family child protective investigations, domestic violence shelter certification, children’s services councils, criminal-background exemptions, group home rates, subcontractor indemnification, child care licensing extensions, small residential group home fire suppression rules, and missing-child jurisdiction issues. After testimony both supporting and opposing parts of the bill, the committee adopted the amendment and reported the bill favorably.
SB 738, by Senator Burton, updated child care and early learning licensing rules, including expedited licensing for compliant providers, faster background screening and provisional licensure, online training/testing, exemptions for certain military and employer-provided child care, and removal of a residential insurance provision from the bill. The committee adopted the amendment and reported the bill favorably. SB 304, by Senator Sharief, known as Patterson’s Law, addressed child abuse investigations involving rare genetic or metabolic conditions that can mimic abuse. The strike-all required more detailed medical analysis in reports, allowed second opinions, and set procedures for experienced physician review and judicial resolution. After extensive testimony from affected families, advocates, and DCF, the committee adopted the amendment and reported the bill favorably. At the end, Senators Harrell and Rouson asked to be recorded as voting favorably on additional bills, and the committee adjourned.
FL
Florida 2025 Regular Session
Rules Apr 1st, 2025
FL
Transcript Highlights:
- In cases across the country and in Florida, children with pre-existing genetic conditions such as rickets
Summary:
The Senate opened with prayer, the Pledge of Allegiance, doctor and guest introductions, and then took up Committee Substitute for Senate Bill 168, the Tristan Murphy Act, on mental health. Senator Bradley described the bill as a major criminal justice and behavioral health reform measure that would expand pretrial mental health diversion, strengthen treatment-based probation conditions, broaden grant uses for mental health and substance abuse programs, add Hillsborough County to a forensic hospital diversion pilot, require certain DOC mental health evaluations, and create a Florida Behavioral Health Data Repository. Senators from both parties spoke in strong support, emphasizing treatment over incarceration, public safety, data collection, and the Murphy family’s role in advancing the bill. The Senate passed the bill 37-0 and then approved 37 co-sponsors.
The chamber then received the Senate’s 2025-26 General Appropriations Bill, SB 2500, with Chair Hooper outlining a $117.4 billion budget that he said reduces spending, preserves reserves, and includes major investments in water quality, transportation, education infrastructure, and reporting requirements. Committee chairs summarized their portions: K-12 funding at $34.7 billion with increases for FEFP, scholarships, VPK, school hardening, and school safety; higher education at $11.5 billion with workforce, nursing, reading, autism, and student aid investments; health and human services with a $1.8 billion increase for Medicaid, mental health, opioid response, disability services, and veterans programs; criminal and civil justice at $7.6 billion for corrections, juvenile justice, law enforcement, courts, and judgeships; transportation/tourism/economic development at about $18 billion including roads, housing, Visit Florida, and cultural grants; and agriculture/environment/general government with major Everglades, water quality, citrus, food bank, and agency IT funding.
Members then questioned several budget items, especially education funding formulas, the shift of scholarship dollars below the line, the impact on public school districts, AP/IB and other accelerated program funding, the APD wait list, opioid settlement spending, arts grants, and the My Safe Florida Home and condo pilot programs. Chairs generally said scholarship and accelerated-program dollars were being restructured for transparency and flexibility rather than cut, that school districts would still receive funding based on enrollment, and that APD and other human services issues would continue to be worked out in conference. The budget discussion concluded with remarks praising staff and noting a 4% across-the-board pay raise for state employees and targeted increases for law enforcement and firefighters, followed by a recognition for FAMU Day at the Capitol.