Video & Transcript Research : 'genetic privacy'

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MN

Minnesota 2025-2026 Regular Session

House Commerce Finance and Policy Committee 2/26/26

Commerce Finance and Policy

Transcript Highlights:
  • Minnesota Consumer uh data privacy act Minnesota Consumer uh data privacy act uh<01:12:59.760> including
  • general's office, their data privacy general's office, their data privacy team<01:18:10.400>
  • were built into a comprehensive privacy were built into a comprehensive privacy law<01:20:16.080
  • > regulates<01:21:42.640> processing privacy law already regulates processing privacy law
  • about data practices and data privacy. about data practices and data privacy.
Bills: HF3642, HF2700, HF3615
Summary: The Commerce Finance and Policy Committee met on House File 3642, which would prohibit virtual currency kiosks in Minnesota. The bill was laid over, and the committee adopted a DE1 author’s amendment. Chair Kaggel and Representative Perryman described the measure as a response to widespread scams using crypto kiosks, especially against older adults and other vulnerable people, and said they would continue working with the Department of Commerce and other stakeholders. Testimony from law enforcement and advocates strongly supported the ban. A St. Cloud police sergeant and a Woodbury detective described cases in which victims lost large sums, said the current safeguards and refund rules are being bypassed, and argued that the kiosks are difficult to investigate because funds move quickly and often overseas. An AARP Minnesota volunteer also supported the bill, saying kiosks are a preferred tool for scammers and that existing protections have not kept pace with the problem. The Department of Commerce said it strongly supports the bill and reported that it has received 120 complaints over three years involving nearly $1 million in reported losses, with 2025 the worst year so far. The main opposition came from CoinFlip’s general counsel, who argued that the problem is fraud generally, not kiosks themselves, and said Minnesota already has consumer protections, including refunds for eligible victims. He urged stronger regulation rather than a ban, citing blockchain analytics, hold periods, and 24-hour customer service as alternatives. Committee members then asked questions about how long kiosks have operated in Minnesota, how many there are, who owns them, and the scale of losses; Commerce said there are hundreds statewide, operated by a variety of companies, and that reported losses are likely undercounts.
TX

Texas 89th Regular

Trade, Workforce & Economic Development May 14th, 2025

Trade, Workforce & Economic Development

Transcript Highlights:
  • This legislator, in the past, has proposed legislation to address privacy in part because we know that
  • I would like to make clear I am in support of genetic protection of our DNA.
  • ..and protecting our patients' data against foreign adversaries and their attempts to acquire our genetic
AL

Alabama 2025 Regular Session

Alabama Senate Judiciary Committee May 6th, 2025

Judiciary

Transcript Highlights:
  • It creates the crime of genetic theft.
  • If an individual accesses genetic data without permission and then uses that genetic data without permission
  • Your genetic material or genetic data, it's not protected by HIPAA.
  • So what I'm trying to say with this bill is that anything that is genetic data or genetic material is
  • But the problem is when someone has your genetic material or a genetic sample and they obtain that without
TX
Transcript Highlights:
  • material and their genetic information.
  • Second, I would expand the definition of genetic test and genetic care.
  • And third, I would expand the definition of genetic test and genetic care characteristic to cover DNA
  • Non-medical genetic information includes paternity tests and other measures of genetic relatedness. genealogy
  • , DNA ancestry, and forensic genetics.
FL

Florida 2026 Regular Session

Appropriations Committee on Higher Education Feb 25th, 2026

Appropriations Committee on Higher Education

Transcript Highlights:
  • It specifies that graduate-level genetic counseling programs may be accredited, or will be accredited
  • , by the Accreditation Council for Genetic Counseling, and that is the bill.
  • It specifies that graduate level genetic counseling programs may be accredited or will be accredited
  • by the accreditation counsel for genetic counseling, and that is the bill.
  • I have to say something about this one too, because I remember way back when genetic counselors were
Bills: S1570, S1376
Summary: The committee heard and approved two bills before moving to a long confirmation agenda. SB 1570, by Sen. Gates, would restore Project Leo, a previously sunset program that helps locate missing persons with special needs through voluntary tracking devices and coordination between CARD centers and local sheriffs; it was praised as a proven tool for families and first responders and was reported favorably. CS/SB 1376, by Sen. Burgess, would create grants to support genetic counseling education and help address Florida’s shortage of genetic counselors; testimony noted the state’s limited supply of licensed counselors and the need to expand clinical training, and the bill also passed favorably. The committee then considered a block of reappointments to university and college boards of trustees, including institutions such as UWF, Broward College, Chipola College, FIU, Pasco-Hernando, Polk State, St. Petersburg, Valencia, FAMU, FAU, UCF, FSU, New College, UNF, USF, and others. No one requested separate votes on the reappointments, and the block was confirmed unanimously for recommendation to the next committee. A series of new appointees then appeared and largely emphasized workforce training, nursing, military support, and local economic development at their institutions. Witnesses included appointees to Pensacola State, Polk State, St. Petersburg College, UNF, FIU, UWF, Valencia, the College of the Florida Keys, and others; several highlighted strong NCLEX pass rates, dual enrollment, and partnerships with employers or military communities. One nominee, Florida Poly reappointment Ilya Shapiro, faced pointed questioning from Sen. Bracey Davis about past comments regarding race and the Supreme Court; he said his remarks were about hiring criteria, not a specific justice, and reiterated opposition to race- or sex-based selection. The committee also briefly struggled to reach Sherry Young by phone before hearing her testimony for Chipola College, where she said she wanted to give back as an alumna and nurse practitioner. Most new appointees were recommended for confirmation in a block, while Thomas Zachary Smith of UWF was pulled for separate consideration.
FL

Florida 2026 Regular Session

Education Postsecondary Jan 28th, 2026

Education Postsecondary

Transcript Highlights:
  • So SB 1376 is a bill seeking to address the shortage of genetic counselors in our state.
  • So SB 1376 is a bill seeking to address the shortage of genetic counselors in our state.
  • Council for Genetic Counseling.
  • We finally are realizing the importance of genetic counseling.
  • And I think I actually had a genetic counselor down here also with my second child.
Bills: S1376, S1570
Summary: The committee met with a quorum present and first considered SB 1376, which would create an education grant program to help address Florida’s shortage of genetic counselors by supporting students in genetics programs at state universities. Senator Burgess described genetic counselors’ roles in oncology, prenatal care, rare diseases, and other clinical settings, and noted Florida’s limited number of licensed counselors. The committee adopted an amendment requiring graduate programs to be accredited by the Accreditation Council for Genetic Counseling and to show sufficient clinical training capacity. Members spoke in support, and CS/SB 1376 was reported favorably by roll call vote. After a brief recess, the committee took up SB 1570, which would revive Project Leo, a prior Florida program that helped locate missing persons with special needs who are at high risk of wandering or elopement. President Gates explained that the bill would allow participating CARD centers to work with local sheriff’s offices to provide voluntary tracking devices and included $1 million in nonrecurring funding. Senators Berman and Harrell supported the measure, citing the dangers of wandering, especially for individuals with developmental disabilities or autism, and the importance of preventing drownings and other tragedies. The bill was reported favorably by roll call vote. No other business was raised, no senators requested to be recorded on the bills, and the committee adjourned without objection.
MN

Minnesota 2025-2026 Regular Session

Judiciary Committee Meeting - 2026-03-26

Judiciary Finance and Civil Law

Transcript Highlights:
  • I also have a background as a privacy compliance attorney. commitment.
  • I represent the State Privacy Kingman.
  • 00:47:42.600> compliance background as a privacy compliance background as a privacy compliance
  • There is no expectation of privacy in public.
  • <01:02:38.560> in There is no expectation of privacy in There is no expectation of privacy
TX

Texas 89th Regular

Health and Human Services May 20th, 2025

Health & Human Services

Transcript Highlights:
  • Our mission at TFVC is to protect and advance informed consent, medical privacy, and vaccine choice.
  • Our mission at TFVC is to protect and advance informed consent, medical privacy, and vaccine choice.
  • There are times when the Department of Family and Protective Services, DFPS, collects sensitive genetic
  • This bill establishes that DFPS and any contracted laboratories must destroy the genetic material once
  • The bill aims to secure the sensitive patient data and protect privacy from potential foreign threats
Summary: The committee met without a quorum at first, then established a quorum with five members present. Members heard and left pending several House bills, including HB 4743 on allowing hospitals to license mobile stroke units under a hospital license, HB 4129 on earlier DFPS enforcement tools for single-source continuum contractors in community-based foster care, HB 4903 creating a Quad Agency Child Care Initiative to coordinate child care regulations across state agencies, HB 3812 revising the gold card/prior authorization process for physicians, HB 4535 requiring written informed consent before COVID-19 vaccination and a standardized state information sheet, and HB 4666 reducing the frequency of some HHSC reports to the legislature. The chair also noted HB 35 would be voted on later after a subcommittee back was received, and that a large number of bills would be heard the next day. Most of the testimony focused on HB 4535 and HB 4730. On HB 4535, supporters argued the bill would strengthen informed consent for COVID vaccination by requiring written consent and clearer state-level information about risks, manufacturer liability protections, and adverse-event reporting; opponents, including a pediatrician and medical groups, said existing federal and state informed-consent materials already cover these topics and warned the bill could create duplicative paperwork and penalties. On HB 3812, the Texas Medical Association supported changes that would extend the gold-card evaluation period to one year, raise transparency, and make prior authorization exemptions easier to administer, while health plans said they were neutral and viewed the bill as a balance between reducing burden and preventing fraud or unsafe care. HB 4730 drew extensive testimony from adoption professionals, birth mothers, adoptive parents, and child welfare advocates. The bill would require DFPS to create a relinquishment form, train child-placing agency staff, and extend the minimum waiting period for voluntary relinquishment from 48 hours to seven days. Supporters of the current law argued the 48-hour period aligns with hospital discharge, allows informed decisions, and helps birth parents and adoptive families begin healing and bonding without pushing children into foster care or creating legal and Medicaid complications. The author said the bill would be revised and that the seven-day provision was a work in progress. No votes were taken on the bills during the meeting; each bill was left pending after public testimony closed.
OK

Oklahoma 2026 Regular Session

Agriculture and Wildlife Apr 20th, 2026 at 10:00 am

Agriculture and Wildlife

Transcript Highlights:
  • Explained by genetic differences, it's a fact, which means that we can predict the genetic merit of these
  • And they look at one genetic feature. That genetic feature is the equivalent of codon 96 in elk.
  • It looks like a metabolic syndrome to me when I look at the genetics and compare the genetic response
  • Kevines, and it's all on genetics.
  • For me, the science is genetics and genetic markers and If we can find a marker in a deer that is not
Bills: HB3270, HB3145, HB3056
TX
Transcript Highlights:
  • Our mission at TFEC is to protect and advance informed consent and medical privacy in vaccine choice,
  • There are times when the Department of Family and Protective Services (DFPS) collects sensitive genetic
  • This bill establishes that DFPS and any contracted laboratory must destroy the genetic material once
  • There are times when the Department of Family and Protective Services (DFPS) collects sensitive genetic
  • storing patient data of Texans in hostile countries to secure sensitive patient data and protect privacy
AL

Alabama 2025 Regular Session

Alabama House Judiciary Committee Apr 16th, 2025

Judiciary

Transcript Highlights:
  • The effects of this bill would lead to both physical safety risks and threats to the security and privacy
  • House Bill 476 would prevent manufacturers from ensuring that the privacy, safety, and security of their
  • privacy, safety, and security of their customers is protected at all times.
MN

Minnesota 2025-2026 Regular Session

House Commerce Finance and Policy Committee 3/4/26

Commerce Finance and Policy

Transcript Highlights:
  • And I would like to Data Privacy Act.
  • So, in May of 2024, the Minnesota Consumer Data Privacy Act was signed into law.
  • was signed Consumer Data Privacy Act was signed into<00:01:42.400> law.
  • And we prepared a privacy-specific And we prepared a privacy-specific complaint<00:07:23.200>
  • And then lastly, their privacy rights.
Bills: HF3794, HF3408
Summary: The committee first approved the minutes from March 3, 2026, and then received a presentation from the Minnesota Office of the Attorney General on the Minnesota Consumer Data Privacy Act. Assistant Attorney General Caitlin Miko and Deputy Attorney General Jessica Whitney reviewed the law’s scope, consumer rights, business obligations, and enforcement history. They said the law took effect July 31, 2025, gives Minnesotans rights to access, delete, and opt out of sale, profiling, and targeted advertising, and is enforced by the Attorney General with penalties up to $7,500 per violation. They reported more than 200 complaints in the first six months, many warning letters, and a shift from education to active enforcement now that the initial warning-letter period has expired. Committee members asked about how the universal opt-out works, what happens when companies deny deletion or editing requests, how the office determines willful noncompliance, and whether the law could burden small businesses. The AG’s office said the opt-out can be set through privacy-protective browsers or extensions, companies must respond to consumer requests within 45 days, small businesses are exempt as defined by the SBA, and investigations look for patterns and evidence of willful conduct rather than minor technical violations. The office also said it needs additional funding to fully staff enforcement efforts and noted that it has already issued subpoenas and civil investigative demands. The committee then took up House File 3408, the Stop Grocery Surveillance Price Gouging Act. The author explained that the bill would prohibit retail grocers, physical and online, from setting individualized prices based on consumer information, would limit certain uses of facial recognition and electronic shelf labels, and would preserve narrow exceptions for discounts and loyalty programs. Public testimony followed from the Minnesota Farmers Union in support, arguing that grocery consolidation and surveillance pricing could worsen already high food costs and harm fair competition. The Minnesota Grocers Association opposed the premise that grocery stores use surveillance pricing, said shelf prices are generally uniform and set from a single storewide database, and argued electronic shelf labels are efficient and not nefarious. A technology company representative similarly said ESLs do not use personal data or facial recognition, prices are uniform, and a 2025 study found no meaningful price increases after ESL adoption. The bill was laid over for possible further discussion after the testimony.
TX

Texas 89th 2nd C.S.

Human Services May 13th, 2025

Human Services

Transcript Highlights:
  • care system by establishing timelines for producing reports on the health, social, educational, and genetic
Summary: The Committee on Human Services met with a quorum and first voted out Senate Bill 1589, relating to contract requirements between a single-source continuum contractor and DFPS. The motion to report the bill favorably to the full House with a recommendation that it do pass and be printed prevailed on a 7-0 vote. The committee then heard Senate Bill 500, which would set deadlines for providing foster care adoption records, including health, social, educational, and genetic history reports, to speed adoptions. The bill’s author and witnesses from Addie’s Hope Social Services supported it, saying delays in redacted files can take months, slow permanency for children, and increase costs to the state. Members asked about redactions and sibling/family information, and witnesses explained the bill would mainly speed the preliminary file used to decide whether to proceed with placement. SB 500 was left pending. Members also heard Senate Bill 1266, which would require regular reevaluation of the Medicaid provider support team and add written notice of provider disenrollment at least 30 days in advance. There were no witnesses, no questions, and the bill was left pending. Senate Bill 1522, concerning continuing care retirement communities, was then laid out and supported by LeadingAge Texas and counsel, who said it updates outdated definitions, clarifies licensing and disclosure rules, and strengthens consumer protections for seniors. It was also left pending. After a brief recess, the committee heard Senate Bill 1137, which would prohibit group home consultants from referring people to unlicensed or unpermitted group homes except in limited circumstances, require disclosure of complaints, and create a Class B misdemeanor for violations. Members discussed whether consultants are regulated and noted concerns about unlicensed referral practices. The bill was left pending, and the committee adjourned after completing its agenda.
TX

Texas 89th 2nd C.S.

Human Services Apr 22nd, 2025

Human Services

Transcript Highlights:
  • There's no way for that genetic information to, I guess, like be in a criminal database to link up with
  • because we really don't, I mean, we're not geneticists, we really don't need to know the particular genetic
  • that had more than one. person claim to be the father that you've had to go back and look at those genetic
  • And so just putting regulation on them to ensure the security and privacy of people that are in the foster
  • What I'm saying is this is a this is a genetic abnormality and it's recognized as by science, so we do
MN

Minnesota 2025-2026 Regular Session

Commerce Committee Meeting - 2026-04-07

Commerce Finance and Policy

Transcript Highlights:
  • changes that come from the Attorney General's office, and I have Sarah Doctori from the AG's data privacy
  • Madam Chair, members, this bill adds a section to the end of the Minnesota Consumer Data Privacy Rights
  • There we go. >> [laughter] Okay, it adds a section to the back end of the Minnesota Consumer Data Privacy
  • And I was lucky enough to attend the annual International Association of Privacy Professionals in DC
  • Professionals in DC last week Privacy Professionals in DC last week where<00:03:03.160> this<
Bills: HF4456, HF4544, HF3698