Video & Transcript Research : 'genetic data'
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TX
Texas 89th Regular
Trade, Workforce & Economic Development May 14th, 2025
Trade, Workforce & Economic Development
Transcript Highlights:
- The intent of the bill is absolutely the protection of DNA data.
- I would like to make clear I am in support of genetic protection of our DNA.
- against foreign adversaries and their attempts to acquire our genetic information.
- That's an intellectual property—the ownership of the DNA data.
- Johnson relating to the regulation of certain business entities that act as data brokers.
Keywords:
DNA privacy, genetic privacy, genetic testing, genetic material, DNA ownership, property right in DNA, genetic consent, biological sample, genomics, genetic data, HIPAA, health information privacy, health care provider, research ethics, human subjects research, law enforcement DNA, forensic DNA, paternity testing, medical examiner, genetic discrimination
MN
Minnesota 2025-2026 Regular Session
House Commerce Finance and Policy Committee 2/26/26
Commerce Finance and Policy
Transcript Highlights:
- Um, of the few dozen cases that data.
- sensitive data under the Minnesota Consumer Data Privacy Act.
- The primary effect of classifying data as sensitive data is that it changes that data from being data
- The primary effect of classifying data as sensitive data is that it changes that data from being data
- about data practices and data privacy. about data practices and data privacy.
Keywords:
virtual currency, kiosks, prohibition, customer payouts, cryptocurrency regulation, consumer privacy, data privacy, health data, sensitive data, Minnesota Consumer Data Privacy Act, personal data, data broker, targeted advertising, geofencing, location tracking, health care privacy, patient privacy, consent, minor privacy, children's privacy
Summary:
The Commerce Finance and Policy Committee met on House File 3642, which would prohibit virtual currency kiosks in Minnesota. The bill was laid over, and the committee adopted a DE1 author’s amendment. Chair Kaggel and Representative Perryman described the measure as a response to widespread scams using crypto kiosks, especially against older adults and other vulnerable people, and said they would continue working with the Department of Commerce and other stakeholders.
Testimony from law enforcement and advocates strongly supported the ban. A St. Cloud police sergeant and a Woodbury detective described cases in which victims lost large sums, said the current safeguards and refund rules are being bypassed, and argued that the kiosks are difficult to investigate because funds move quickly and often overseas. An AARP Minnesota volunteer also supported the bill, saying kiosks are a preferred tool for scammers and that existing protections have not kept pace with the problem. The Department of Commerce said it strongly supports the bill and reported that it has received 120 complaints over three years involving nearly $1 million in reported losses, with 2025 the worst year so far.
The main opposition came from CoinFlip’s general counsel, who argued that the problem is fraud generally, not kiosks themselves, and said Minnesota already has consumer protections, including refunds for eligible victims. He urged stronger regulation rather than a ban, citing blockchain analytics, hold periods, and 24-hour customer service as alternatives. Committee members then asked questions about how long kiosks have operated in Minnesota, how many there are, who owns them, and the scale of losses; Commerce said there are hundreds statewide, operated by a variety of companies, and that reported losses are likely undercounts.
LA
Keywords:
rare cancers, advisory board, medical recommendations, oncologists, Louisiana cancer treatment, genetic testing, SCN2A, medical necessity, health insurance, rehabilitative services, neurological disorders
Summary:
The Senate Insurance Committee met on May 27, 2006, with five members present. The committee announced it had two bills on the agenda and began with House Bill 761, carried by Senator Wheat, which concerns the advisory board created to recommend new treatments for rare conditions. The opening remarks indicate the bill relates to the board’s role and recommendations, though the transcript cuts off before the full explanation or testimony.
No testimony, debate, or vote on HB 761 is included in the excerpt provided. The record ends shortly after the bill is introduced, so no further committee action is shown.
AL
Transcript Highlights:
- If an individual accesses genetic data without permission and then uses that genetic data without permission
- Well, there could be, let's use the 23andMe example where you've given your genetic data.
- Your genetic material or genetic data, it's not protected by HIPAA.
- So what I'm trying to say with this bill is that anything that is genetic data or genetic material is
- They could just say we're going to sell your genetic data to every insurance company we want to.
Keywords:
preliminary hearing, criminal procedure, Aniah's Law, pretrial detention, defendant rights, property rights, law enforcement, removal procedures, unauthorized occupancy, trespassing, liability, off-roading, parks, participant safety, risk management, DNA, genetic testing, privacy, consent, criminal penalties
FL
Florida 2026 Regular Session
Appropriations Committee on Higher Education Feb 25th, 2026
Appropriations Committee on Higher Education
Transcript Highlights:
- It specifies that graduate-level genetic counseling programs may be accredited, or will be accredited
- , by the Accreditation Council for Genetic Counseling, and that is the bill.
- It specifies that graduate level genetic counseling programs may be accredited or will be accredited
- by the accreditation counsel for genetic counseling, and that is the bill.
- I have to say something about this one too, because I remember way back when genetic counselors were
Keywords:
missing persons, special needs, autism, search-and-rescue, Florida, voluntary program, funding, genetic counseling, education grants, state universities, faculty recruitment, student financial assistance
Summary:
The committee heard and approved two bills before moving to a long confirmation agenda. SB 1570, by Sen. Gates, would restore Project Leo, a previously sunset program that helps locate missing persons with special needs through voluntary tracking devices and coordination between CARD centers and local sheriffs; it was praised as a proven tool for families and first responders and was reported favorably. CS/SB 1376, by Sen. Burgess, would create grants to support genetic counseling education and help address Florida’s shortage of genetic counselors; testimony noted the state’s limited supply of licensed counselors and the need to expand clinical training, and the bill also passed favorably.
The committee then considered a block of reappointments to university and college boards of trustees, including institutions such as UWF, Broward College, Chipola College, FIU, Pasco-Hernando, Polk State, St. Petersburg, Valencia, FAMU, FAU, UCF, FSU, New College, UNF, USF, and others. No one requested separate votes on the reappointments, and the block was confirmed unanimously for recommendation to the next committee.
A series of new appointees then appeared and largely emphasized workforce training, nursing, military support, and local economic development at their institutions. Witnesses included appointees to Pensacola State, Polk State, St. Petersburg College, UNF, FIU, UWF, Valencia, the College of the Florida Keys, and others; several highlighted strong NCLEX pass rates, dual enrollment, and partnerships with employers or military communities. One nominee, Florida Poly reappointment Ilya Shapiro, faced pointed questioning from Sen. Bracey Davis about past comments regarding race and the Supreme Court; he said his remarks were about hiring criteria, not a specific justice, and reiterated opposition to race- or sex-based selection. The committee also briefly struggled to reach Sherry Young by phone before hearing her testimony for Chipola College, where she said she wanted to give back as an alumna and nurse practitioner. Most new appointees were recommended for confirmation in a block, while Thomas Zachary Smith of UWF was pulled for separate consideration.
FL
Transcript Highlights:
- So SB 1376 is a bill seeking to address the shortage of genetic counselors in our state.
- So SB 1376 is a bill seeking to address the shortage of genetic counselors in our state.
- Council for Genetic Counseling.
- We finally are realizing the importance of genetic counseling.
- And I think I actually had a genetic counselor down here also with my second child.
Keywords:
genetic counseling, education grants, state universities, faculty recruitment, student financial assistance, missing persons, special needs, autism, search-and-rescue, Florida, voluntary program, funding
Summary:
The committee met with a quorum present and first considered SB 1376, which would create an education grant program to help address Florida’s shortage of genetic counselors by supporting students in genetics programs at state universities. Senator Burgess described genetic counselors’ roles in oncology, prenatal care, rare diseases, and other clinical settings, and noted Florida’s limited number of licensed counselors. The committee adopted an amendment requiring graduate programs to be accredited by the Accreditation Council for Genetic Counseling and to show sufficient clinical training capacity. Members spoke in support, and CS/SB 1376 was reported favorably by roll call vote.
After a brief recess, the committee took up SB 1570, which would revive Project Leo, a prior Florida program that helped locate missing persons with special needs who are at high risk of wandering or elopement. President Gates explained that the bill would allow participating CARD centers to work with local sheriff’s offices to provide voluntary tracking devices and included $1 million in nonrecurring funding. Senators Berman and Harrell supported the measure, citing the dangers of wandering, especially for individuals with developmental disabilities or autism, and the importance of preventing drownings and other tragedies. The bill was reported favorably by roll call vote.
No other business was raised, no senators requested to be recorded on the bills, and the committee adjourned without objection.
LA
TX
Texas 89th Regular
Senate Committee on Health and Human Services Mar 12th, 2025
Health & Human Services
Transcript Highlights:
- material and their genetic information.
- Second, I would expand the definition of genetic test and genetic care.
- And third, I would expand the definition of genetic test and genetic care characteristic to cover DNA
- Non-medical genetic information includes paternity tests and other measures of genetic relatedness. genealogy
- , DNA ancestry, and forensic genetics.
Bills:
SB 53, SB53, SB125, SB315, SB379, SB457, SB541, SB599, SB896, SB921, SB963, SB1038, SB1084, SB1330, SB1461
Keywords:
voter registration, election procedures, provisional ballot, change of address, residence requirements, mental health, court proceedings, notice requirements, legal filings, electronic documents, autologous blood donation, direct blood donation, blood bank, hospital, Health and Safety Code, physician order, preoperative blood donation, patient blood reserve, transfusion, surgery
OK
Oklahoma 2026 Regular Session
Agriculture and Wildlife Apr 20th, 2026 at 10:00 am
Agriculture and Wildlife
Transcript Highlights:
- And they look at one genetic feature. That genetic feature is the equivalent of codon 96 in elk.
- But they have no data to support. In fact, their own data do not support that.
- It looks like a metabolic syndrome to me when I look at the genetics and compare the genetic response
- Kevines, and it's all on genetics.
- For me, the science is genetics and genetic markers and If we can find a marker in a deer that is not
Keywords:
farmed cervidae, chronic wasting disease, genetic resistance, wildlife management, agriculture, wildlife tagging, hunting regulations, Cervidae family, feral swine, exotic wildlife, conservation, commercial hunting, raw milk, unpasteurized, farm sales, Oklahoma Milk and Milk Products Act, local producers, advertising, 914, all
OK
Keywords:
wildlife conservation, hunting regulations, mountain lions, black bears, archery season, senior citizens, licensing fees, waterfowl, nonresidents, public lands, farmed cervidae, chronic wasting disease, genetic resistance, wildlife management, agriculture, wildlife tagging, Cervidae family, feral swine, exotic wildlife, conservation
AL
Transcript Highlights:
- A 2021 study done by researchers at the University of GE in Ontario, Canada, found that personal data
- Concerningly, in some cases, the consumer's data was not only accessed but copied onto another device
- phone for every phone... ...obviously one phone for every phone, but you would have some sense of a data
Keywords:
Morgan County, judge of probate, legal qualifications, equity jurisdiction, constitutional amendment, campaign finance, electronic notifications, civil penalties, Fair Campaign Practices Act, Secretary of State, sex offenders, treatment programs, electronic media, post office box restrictions, Class C felony, parole, probation, human cloning, criminal penalties, embryo
AZ
Transcript Highlights:
- Chair, members, House Bill 2584 prohibits the use of public monies to pay for genetic sequencing procedures
- I've run a couple of years, and it has to do with the genetic sequencing equipment.
- So the main thing we're trying to do with this bill is making sure that our genetic sequencing, or data
- Data centers have obviously been a huge new sector that's grown very fast in Arizona.
- Are there any results or data tracking college entrances?
Keywords:
funding, auditor general, county treasurer, procedural reviews, state appropriations, HB2388, Arizona Commerce Authority, ACA, small modular reactor, SMR, nuclear energy, advanced nuclear, data center, data centers, economic development, study, appropriation, general fund, jobs, wages
Summary:
The committee first heard HB 2584, which would prohibit public funds from being used for genetic sequencing equipment made by companies owned or controlled by entities domiciled in a foreign adversary. The sponsor said the bill is intended to prevent sensitive genetic data from being sold or used against the United States. There was little public testimony, and the committee approved the bill on a 13-5 vote for a do pass recommendation.
Members then considered HB 2804, a rural development and housing tax credit bill that would let the Department of Housing allocate up to $2 million per year in credits for qualifying rural affordable housing projects, with the program set to expire in 2037. Supporters, including the sponsor, the mayor of Flagstaff, and housing investors and developers, said the credit would leverage federal LIHTC dollars, attract private capital, and help finance affordable housing for seniors, veterans, and low-income residents in rural Arizona. Opponents from the Arizona Free Enterprise Club argued state LIHTC programs are inefficient, costly, and hard to oversee. The committee passed the bill 13-4.
The committee also heard HB 2388, as amended, which appropriates $100,000 to the Arizona Commerce Authority to study the economic benefits of small modular reactors and data centers, with a report due by June 30, 2027. Supporters said the study could help Arizona plan for future energy and data-center growth, while opponents argued the agency already has other funding sources and should not receive additional money for the study. The amended bill passed 10-7.
After a presentation from Auditor General Lindsay Perry on county treasurer procedural reviews and the Santa Cruz County embezzlement case, the committee approved HB 2352, which provides $2,385,900 in FY 2029 for the Auditor General to continue county treasurer reviews, on an 11-7 vote. The committee then unanimously approved HB 2418, as amended, which directs $600,000 to be evenly distributed among five major incident task force counties and codifies the longstanding distribution practice. Finally, the committee took up HB 2499, the first of two ESA administration bills, which would appropriate $2.6 million and 12 FTEs to the Department of Education for ESA administration and oversight beginning in FY 2027; the bill drew extended debate about ESA growth, accountability, testing, and spending oversight, but the transcript cuts off before the final vote.
AL
Alabama 2026 1st Special Session
Alabama Senate Banking and Insurance Committee Jan 14th, 2026
Banking and Insurance
Bills:
SB19
Keywords:
SB19, prostate cancer, prostate cancer screening, PSA test, digital rectal exam, preventive screening, health insurance mandate, no cost sharing, copay, deductible, coinsurance, high-risk men, African American men, men over 50, men over 40, family history, genetic marker, health benefit plan, insurer coverage, Alabama insurance code
TX
Transcript Highlights:
- HHSC data from 2023 shows that nearly 1 in 5 newborns were not automatically enrolled in Medicaid in
- uh, with that genetic information is completely deleted from, uh, the third party databases.
- I thank you for for that data.
- So the answer, I don't know if that answers your question, but the data represents the data is very clear
- It's more than just a data point.
Bills:
HB 2646, HB 3941, HB 5153, HB 5155, HB 5394, HB 1106, HB 426, HB 4529, HB 3984, HB 4273, HB 1097, HB 3940, HB 1941, HB 4377, HB 3153
Keywords:
child care, task force, high-quality care, affordability, prekindergarten partnerships, foster care, transitional living, Medicaid reform, youth assistance, independent living, services for youth, employment training, educational support, mental health services, health care, public health, child health program, reimbursement, local health entities, maternal health
TX
Transcript Highlights:
- And it collects data and our only quick comment is while we're collecting data we ask you to collect
- data about do the child care places accept children with disabilities we would like to know what that
- I can clinically tell you without backing up. data that the vast majority of these children are either
- You mentioned, though, that you submitted data showing 6,888 complaints. broken down by the district.
- What's what's the data? If you could sum it up. up, what's it what's it telling us that we need?
Bills:
HB2646, HB3941, HB5153, HB5155, HB5394, HB 1106, HB426, HB4529, HB3984, HB4273, HB 1097, HB3940, HB1941, HB4377, HB3153
Keywords:
child care, task force, high-quality care, affordability, prekindergarten partnerships, foster care, transitional living, Medicaid reform, youth assistance, independent living, services for youth, employment training, educational support, mental health services, health care, public health, child health program, reimbursement, local health entities, maternal health
TX
Transcript Highlights:
- HHSC data from 2023 shows that nearly one in five newborns were not enrolled. not automatically enrolled
- And with that, My intention is to ensure that DNA collection and the data associated with that genetic
- There's no way for that genetic information to be retained, I guess.
- I'm concerned about the physical data that can be linked.
- But you don't keep. on file the genetic makeup of each child?
Bills:
HB2646, HB3941, HB5153, HB5155, HB5394, HB 1106, HB426, HB4529, HB3984, HB4273, HB 1097, HB3940, HB1941, HB4377, HB3153
Keywords:
child care, task force, high-quality care, affordability, prekindergarten partnerships, foster care, transitional living, Medicaid reform, youth assistance, independent living, services for youth, employment training, educational support, mental health services, health care, public health, child health program, reimbursement, local health entities, maternal health
TX
Texas 89th Regular
S/C on Disease Prevention & Women's & Children's Health Mar 27th, 2025
S/C on Disease Prevention & Women's & Children's Health
Transcript Highlights:
- It allows for time Genetic testing, carrier assessment for the moms, initiation of multidisciplinary
- A need for health literacy data specific to Texas is definitely lacking.
- Any data on where most of the kids that are uninsured are getting access to care or not?
- I know you have the same data here that shows having coverage leads to better outcomes for kids.
- What we're doing by using SNAP data is that we are already getting this information through SNAP.
Keywords:
Medicaid, child health, express lane option, income verification, supplemental nutrition assistance, telepharmacy, healthcare access, remote dispensing, rural clinics, pharmacy regulations, health literacy, state health plan, health care, patient outcomes, public health, economic impact, healthcare, breast cancer, cervical cancer, insurance eligibility
AL
Keywords:
SB190, prostate cancer, prostate screening, PSA test, digital rectal exam, preventive screening, health insurance mandate, cost-sharing, copay, deductible, coinsurance, high-risk men, African American men, family history, genetic marker, men over 50, men over 40, health benefit plan, insurance coverage, mandated benefits
TX
Transcript Highlights:
- This isn't just a data problem. It's a trust problem. Informed consent is not a political issue.
- This isn't just a data problem. It's a trust problem. Informed consent is not a political issue.
- In pro-life states, this is national data, but we don't have data broken out by state.
- Yeah, it's amazing how little data there is in this area. That's one of the big problems. Yeah.
- Which allows data to be stored in U.S. territory.
Bills:
HB163, HB216, HB721, HB2035, HB2038, HB3057, HB3153, HB3233, HB3595, HB3801, HB3812, HB4076, HB4129, HB4377, HB4535, HB4666, HB4730, HB4743, HB4903, HB5149, HB5155, HB1534
Keywords:
epinephrine, healthcare, emergency response, administration, medical policy, health care, itemized billing, patient rights, provider regulations, Texas Health and Safety Code, cost disclosure, insurance, benefit plan, administrators, chemical dependency, treatment facilities, minor admissions, parental notice, mental health, medical licensing
Summary:
The committee met without a quorum at first, then established a quorum with five members present. Members heard and left pending several House bills, including HB 4743 on allowing hospitals to license mobile stroke units under a hospital license, HB 4129 on earlier DFPS enforcement tools for single-source continuum contractors in community-based foster care, HB 4903 creating a Quad Agency Child Care Initiative to coordinate child care regulations across state agencies, HB 3812 revising the gold card/prior authorization process for physicians, HB 4535 requiring written informed consent before COVID-19 vaccination and a standardized state information sheet, and HB 4666 reducing the frequency of some HHSC reports to the legislature. The chair also noted HB 35 would be voted on later after a subcommittee back was received, and that a large number of bills would be heard the next day.
Most of the testimony focused on HB 4535 and HB 4730. On HB 4535, supporters argued the bill would strengthen informed consent for COVID vaccination by requiring written consent and clearer state-level information about risks, manufacturer liability protections, and adverse-event reporting; opponents, including a pediatrician and medical groups, said existing federal and state informed-consent materials already cover these topics and warned the bill could create duplicative paperwork and penalties. On HB 3812, the Texas Medical Association supported changes that would extend the gold-card evaluation period to one year, raise transparency, and make prior authorization exemptions easier to administer, while health plans said they were neutral and viewed the bill as a balance between reducing burden and preventing fraud or unsafe care.
HB 4730 drew extensive testimony from adoption professionals, birth mothers, adoptive parents, and child welfare advocates. The bill would require DFPS to create a relinquishment form, train child-placing agency staff, and extend the minimum waiting period for voluntary relinquishment from 48 hours to seven days. Supporters of the current law argued the 48-hour period aligns with hospital discharge, allows informed decisions, and helps birth parents and adoptive families begin healing and bonding without pushing children into foster care or creating legal and Medicaid complications. The author said the bill would be revised and that the seven-day provision was a work in progress. No votes were taken on the bills during the meeting; each bill was left pending after public testimony closed.
AL
Alabama 2026 1st Special Session
Alabama Senate Education Policy Committee Apr 1st, 2026
Education Policy
Transcript Highlights:
- But what it would let is we have about, um, used to have that data right in front of me, but about 10
- used<00:05:02.080>
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but <00:05:04.000
Keywords:
tobacco regulation, vaping, sales restrictions, youth protection, tobacco compliance, public health, education programs, electronic nicotine delivery systems, human cloning, criminal penalties, embryo, genetic modification, bioethics, campus chaplain, chaplain, school chaplain, volunteer, public K-12 schools, public schools, public charter schools