Video & Transcript Research : 'genetic counseling'

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FL

Florida 2026 Regular Session

Appropriations Committee on Higher Education Feb 25th, 2026

Appropriations Committee on Higher Education

Transcript Highlights:
  • Next, we will come to tab 2, CS for SB 1376 on grants for genetic counseling education, by our own Senator
  • It specifies that graduate-level genetic counseling programs may be accredited, or will be accredited
  • , by the Accreditation Council for Genetic Counseling, and that is the bill.
  • It specifies that graduate level genetic counseling programs may be accredited or will be accredited
  • by the accreditation counsel for genetic counseling, and that is the bill.
Bills: S1570, S1376
Summary: The committee heard and approved two bills before moving to a long confirmation agenda. SB 1570, by Sen. Gates, would restore Project Leo, a previously sunset program that helps locate missing persons with special needs through voluntary tracking devices and coordination between CARD centers and local sheriffs; it was praised as a proven tool for families and first responders and was reported favorably. CS/SB 1376, by Sen. Burgess, would create grants to support genetic counseling education and help address Florida’s shortage of genetic counselors; testimony noted the state’s limited supply of licensed counselors and the need to expand clinical training, and the bill also passed favorably. The committee then considered a block of reappointments to university and college boards of trustees, including institutions such as UWF, Broward College, Chipola College, FIU, Pasco-Hernando, Polk State, St. Petersburg, Valencia, FAMU, FAU, UCF, FSU, New College, UNF, USF, and others. No one requested separate votes on the reappointments, and the block was confirmed unanimously for recommendation to the next committee. A series of new appointees then appeared and largely emphasized workforce training, nursing, military support, and local economic development at their institutions. Witnesses included appointees to Pensacola State, Polk State, St. Petersburg College, UNF, FIU, UWF, Valencia, the College of the Florida Keys, and others; several highlighted strong NCLEX pass rates, dual enrollment, and partnerships with employers or military communities. One nominee, Florida Poly reappointment Ilya Shapiro, faced pointed questioning from Sen. Bracey Davis about past comments regarding race and the Supreme Court; he said his remarks were about hiring criteria, not a specific justice, and reiterated opposition to race- or sex-based selection. The committee also briefly struggled to reach Sherry Young by phone before hearing her testimony for Chipola College, where she said she wanted to give back as an alumna and nurse practitioner. Most new appointees were recommended for confirmation in a block, while Thomas Zachary Smith of UWF was pulled for separate consideration.
FL

Florida 2026 Regular Session

Education Postsecondary Jan 28th, 2026

Education Postsecondary

Transcript Highlights:
  • Members, we're going to take up tab one, Senate Bill 1376, on grants for genetic counseling education
  • So SB 1376 is a bill seeking to address the shortage of genetic counselors in our state.
  • The amendment requires that graduate-level genetic counseling programs be accredited by the Accreditation
  • Council for Genetic Counseling.
  • We finally are realizing the importance of genetic counseling.
Bills: S1376, S1570
Summary: The committee met with a quorum present and first considered SB 1376, which would create an education grant program to help address Florida’s shortage of genetic counselors by supporting students in genetics programs at state universities. Senator Burgess described genetic counselors’ roles in oncology, prenatal care, rare diseases, and other clinical settings, and noted Florida’s limited number of licensed counselors. The committee adopted an amendment requiring graduate programs to be accredited by the Accreditation Council for Genetic Counseling and to show sufficient clinical training capacity. Members spoke in support, and CS/SB 1376 was reported favorably by roll call vote. After a brief recess, the committee took up SB 1570, which would revive Project Leo, a prior Florida program that helped locate missing persons with special needs who are at high risk of wandering or elopement. President Gates explained that the bill would allow participating CARD centers to work with local sheriff’s offices to provide voluntary tracking devices and included $1 million in nonrecurring funding. Senators Berman and Harrell supported the measure, citing the dangers of wandering, especially for individuals with developmental disabilities or autism, and the importance of preventing drownings and other tragedies. The bill was reported favorably by roll call vote. No other business was raised, no senators requested to be recorded on the bills, and the committee adjourned without objection.
TX

Texas 89th Regular

S/C on Disease Prevention & Women's & Children's Health Mar 27th, 2025

S/C on Disease Prevention & Women's & Children's Health

Transcript Highlights:
  • It allows for time Genetic testing, carrier assessment for the moms, initiation of multidisciplinary
  • As such, it's only fitting that we dedicate April as Counseling Awareness Month.
  • I'll show you as Noah Jones, Texas Counseling Association, for the bill. Is that correct?
  • I am Noah Jones, speaking on behalf of the Texas Counseling Association. ...Texas Counseling Association
  • The role of Counseling Awareness Month helps to de-stigmatize the need for counseling.
MA

Massachusetts 2025-2026 Regular Session

Joint Committee on Financial Services Feb 24th, 2026

Joint Committee on Financial Services

Transcript Highlights:
  • they may have based on genetic testing.
  • May have based on genetic testing.
  • And it forces people to delay or avoid genetic testing.
  • If we allow genetic information to be used to deny If we allow genetic information to be used to deny
  • Genetic testing is not a diagnosis. It identifies risk.
Bills: H5112, S2921, H4914
Summary: The Joint Committee on Financial Services held a fully virtual public hearing because the State House was closed due to a state of emergency and the prior day’s blizzard. Chairs Senator Paul Feeney and Representative James Murphy explained the decision to proceed virtually so the committee could meet bill-reporting deadlines, and they thanked first responders, DPW crews, plow operators, health care workers, and legislative staff for their efforts during the storm. Most of the testimony focused on H.5112, an act prohibiting genetic discrimination. Representative Dave Rogers and his constituent Robin Biggs testified in support, describing how federal law protects against genetic discrimination in health insurance and employment but not in life, long-term care, or disability insurance. Biggs shared her personal experience as a BRCA2 mutation carrier who was advised to secure life insurance before genetic testing, and she said the bill would let people seek testing and preventive care without fear of financial punishment. Lindsay Jack of the ALS Association and Lisa Schlager of FORCE also supported the bill, arguing that genetic testing helps people make informed medical decisions, participate in research, and pursue early intervention, while current insurance practices can discourage testing and lead to unfair underwriting based on genetic risk rather than actual illness. Committee members asked questions about whether insurers routinely ask about genetic testing and whether such information is already used in underwriting. The witness from the ALS Association said insurers commonly request this information and that the bill would bar its use in underwriting decisions. Representative Kerans asked Biggs about the cost of her screenings, and Biggs said some expensive tests still generate significant out-of-pocket bills. No votes were taken. In addition to H.5112, the chairs noted two other bills on the docket: H.4914, an act relative to the Massachusetts Uniform Commercial Code, and S.2921, an act relative to travel insurance. After testimony concluded and no additional witnesses came forward, the chairs thanked staff for making the hearing possible on short notice and adjourned the meeting by unanimous voice vote.
TX

Texas 89th Regular

Trade, Workforce & Economic Development May 14th, 2025

Trade, Workforce & Economic Development

Transcript Highlights:
  • I would like to make clear I am in support of genetic protection of our DNA.
  • ..and protecting our patients' data against foreign adversaries and their attempts to acquire our genetic
AL

Alabama 2025 Regular Session

Alabama Senate Judiciary Committee May 6th, 2025

Judiciary

Transcript Highlights:
  • It creates the crime of genetic theft.
  • If an individual accesses genetic data without permission and then uses that genetic data without permission
  • Your genetic material or genetic data, it's not protected by HIPAA.
  • So what I'm trying to say with this bill is that anything that is genetic data or genetic material is
  • But the problem is when someone has your genetic material or a genetic sample and they obtain that without
LA

Louisiana 2026 Regular Session

Insurance May 27th, 2026

Insurance

Bills: HB761, HB1199
Summary: The Senate Insurance Committee met on May 27, 2006, with five members present. The committee announced it had two bills on the agenda and began with House Bill 761, carried by Senator Wheat, which concerns the advisory board created to recommend new treatments for rare conditions. The opening remarks indicate the bill relates to the board’s role and recommendations, though the transcript cuts off before the full explanation or testimony. No testimony, debate, or vote on HB 761 is included in the excerpt provided. The record ends shortly after the bill is introduced, so no further committee action is shown.
AZ

Arizona 2026 Regular Session

03/25/2026 - Senate Regulatory Affairs and Government Efficiency

Regulatory Affairs and Government Efficiency

Transcript Highlights:
  • or provide any genetic counseling that violates the genetic counselor's conscience.
  • in or provide any genetic counseling that violates the genetic counselor's conscience.
  • Genetic counseling licensure matters because it protects patients.
  • Genetic counseling licensure matters because it protects patients.
  • I'm an Arizona resident, genetic counseling patient, and a cancer survivor.
AL

Alabama 2025 Regular Session

Alabama Senate Children and Youth Health Committee Feb 12th, 2025

Children and Youth Health

Transcript Highlights:
  • children as part of my job had that child not ensured their safety and well-being with the medical or counseling
  • Seeks mental health and the parents have access to the counseling records and they say, "Oh, you're telling
Bills: SB58, SB101, SB102
TX
Transcript Highlights:
  • material and their genetic information.
  • Second, I would expand the definition of genetic test and genetic care.
  • And third, I would expand the definition of genetic test and genetic care characteristic to cover DNA
  • Non-medical genetic information includes paternity tests and other measures of genetic relatedness. genealogy
  • , DNA ancestry, and forensic genetics.
OK

Oklahoma 2026 Regular Session

Agriculture and Wildlife Apr 20th, 2026

Agriculture and Wildlife

Transcript Highlights:
  • They're not genetically modified.
  • They're not genetically modified.
  • the genetic merit of these elk.
  • When I look at the genetics and compare the genetic response to CWD, when I look at that in light of
  • For me, the science is genetics and genetic markers.
Bills: HB3270, HB3145, HB3056
Summary: The committee heard a lengthy presentation from Texas A&M professor Chris Seaberry on chronic wasting disease (CWD) genetics in deer and elk. He argued that susceptibility to CWD is polygenic, that genomic prediction can identify more resistant animals with high accuracy, and that selecting for resistant breeding values plus the PRNP codon 96 S allele could reduce disease prevalence. He said his work has been used in USDA/APHIS programs, that some facilities have been cleaned up using these methods, and that concerns about inbreeding, increased shedding, or harm to hunting quality are overstated. Committee members questioned the science, the risk of releasing potentially infected animals, the financial incentives for breeders, and whether wildlife agencies were resisting the program for philosophical or institutional reasons. The witness and senators also discussed the Department of Wildlife’s role, the Attorney General’s opinion, and whether the state should act more quickly or wait for more data. The committee then took up House Bill 3270, which would shift rulemaking authority for the deer-release/CWD program from the Department of Wildlife to the Department of Agriculture after members said Wildlife had failed to promulgate rules for two years. The Department of Wildlife testified that it believed it had complied by collecting native deer samples and that it had been operating under a different understanding until the Attorney General’s March 5 opinion clarified the original law. After debate over agency inaction, the adequacy of the science, and the impact on deer breeders and hunters, the committee voted 3-9 against the bill, and HB 3270 failed. The committee also confirmed Jessica Wilcox to an executive nomination by a 12-0 vote. It then advanced House Bill 3145, which clarifies tagging rules for commercial hunts by making $10 tags apply only to male native wildlife and $0 tags apply to female, feral swine, and exotic wildlife; the bill passed 12-0. Finally, the committee heard House Bill 3056, which would allow unpasteurized cow, goat, and sheep milk to be sold at feed stores and farmers markets with labeling; members questioned gallon limits and whether the bill included adequate warning language, but no final action was taken in the portion provided.
OK

Oklahoma 2026 Regular Session

Agriculture and Wildlife Apr 20th, 2026 at 10:00 am

Agriculture and Wildlife

Transcript Highlights:
  • Explained by genetic differences, it's a fact, which means that we can predict the genetic merit of these
  • And they look at one genetic feature. That genetic feature is the equivalent of codon 96 in elk.
  • It looks like a metabolic syndrome to me when I look at the genetics and compare the genetic response
  • Kevines, and it's all on genetics.
  • For me, the science is genetics and genetic markers and If we can find a marker in a deer that is not
Bills: HB3270, HB3145, HB3056
TX

Texas 89th Regular

Health and Human Services May 20th, 2025

Health & Human Services

Transcript Highlights:
  • It's through options counseling, resources, and support.
  • It's through options counseling, resources, and support.
  • And I say repeatedly throughout, whether it's six months of counseling or eight months or one month,
  • I was offered counseling before I delivered and after.
  • They have gone through counseling and decision-making. They've created a hospital plan.
Summary: The committee met without a quorum at first, then established a quorum with five members present. Members heard and left pending several House bills, including HB 4743 on allowing hospitals to license mobile stroke units under a hospital license, HB 4129 on earlier DFPS enforcement tools for single-source continuum contractors in community-based foster care, HB 4903 creating a Quad Agency Child Care Initiative to coordinate child care regulations across state agencies, HB 3812 revising the gold card/prior authorization process for physicians, HB 4535 requiring written informed consent before COVID-19 vaccination and a standardized state information sheet, and HB 4666 reducing the frequency of some HHSC reports to the legislature. The chair also noted HB 35 would be voted on later after a subcommittee back was received, and that a large number of bills would be heard the next day. Most of the testimony focused on HB 4535 and HB 4730. On HB 4535, supporters argued the bill would strengthen informed consent for COVID vaccination by requiring written consent and clearer state-level information about risks, manufacturer liability protections, and adverse-event reporting; opponents, including a pediatrician and medical groups, said existing federal and state informed-consent materials already cover these topics and warned the bill could create duplicative paperwork and penalties. On HB 3812, the Texas Medical Association supported changes that would extend the gold-card evaluation period to one year, raise transparency, and make prior authorization exemptions easier to administer, while health plans said they were neutral and viewed the bill as a balance between reducing burden and preventing fraud or unsafe care. HB 4730 drew extensive testimony from adoption professionals, birth mothers, adoptive parents, and child welfare advocates. The bill would require DFPS to create a relinquishment form, train child-placing agency staff, and extend the minimum waiting period for voluntary relinquishment from 48 hours to seven days. Supporters of the current law argued the 48-hour period aligns with hospital discharge, allows informed decisions, and helps birth parents and adoptive families begin healing and bonding without pushing children into foster care or creating legal and Medicaid complications. The author said the bill would be revised and that the seven-day provision was a work in progress. No votes were taken on the bills during the meeting; each bill was left pending after public testimony closed.
AL

Alabama 2025 Regular Session

Alabama House Judiciary Committee Apr 16th, 2025

Judiciary

Transcript Highlights:
  • Both sides normally have counsel. Everyone can subpoena. There is a hearing and a process there.
  • I understand those concerns, especially from being counsel for various different agencies. counsel for
  • The superintendent, obviously with counsel from investigators and so forth, I'm not saying that he or
TX

Texas 89th 2nd C.S.

Human Services Apr 22nd, 2025

Human Services

Transcript Highlights:
  • There's no way for that genetic information to, I guess, like be in a criminal database to link up with
  • that had more than one. person claim to be the father that you've had to go back and look at those genetic
  • What I'm saying is this is a this is a genetic abnormality and it's recognized as by science, so we do
  • Uh, counsel someone who has been through, um. Conversion therapy.
  • I have not had to counsel someone who has been directly through conversion therapy.
TX
Transcript Highlights:
  • After hearing statements earlier, I believe that the bill could be better used to help fund counseling
  • I say repeatedly throughout, whether it's six months of counseling or eight months or one month, this
  • I was offered counseling before I delivered and after.
  • During those nine months, I met with an agency that provided resources, support, and counseling.
  • Counseling and decision-making have been crucial. They've created a hospital plan.
FL

Florida 2026 Regular Session

Fiscal Policy Mar 2nd, 2026

Fiscal Policy

Transcript Highlights:
  • Senators, we will now take up tab 17, CS for SB 1376 on grants for genetic counseling education by Senator
  • This bill seeks to address the shortage of genetic counselors in our state by establishing an education
  • grant program to support students pursuing a career in genetics and the state universities that are
  • regional council office in that jurisdiction, and if the regional council office has adequate qualified counsel
  • So right now, if somebody is charged with a crime and they can't afford private counsel, they're entitled
Summary: The committee first took up CS for SB 42 on specific medical diagnosis and child protective investigations. A late-file strike-all amendment was adopted that made only stylistic changes to align with the House version. Supporters said the bill would help DCF and child protective teams better identify rare medical conditions and give parents a chance to defend against mistaken abuse findings. The bill was then reported favorably. The committee also approved SB 1570, which restores a prior program to help locate missing persons with special needs through voluntary tracking devices and coordination with sheriff’s offices and CARD centers, with nonrecurring funding included. Members then advanced several education, disability, and public services measures. CS for CSSB 182 created a teacher training and mentoring program for high-performing current and retired teachers to mentor teachers in D- and F-rated schools, and CS for CSSB 794 required background screening for employees in residential and day training programs for people with developmental disabilities while directing APD to study support coordination quality, workforce issues, and service gaps. Testimony on SB 794 strongly supported better training, lower caseloads, and more consistent support coordination. The committee also favorably reported CS for CS SB 1168 on background screenings, CS for CS SB 214 to allow rural special districts to pay verified invoices directly, CS for SB 1376 to create grants for genetic counseling education, and SB 1574 (Maddie’s Law) to add newborn screening for biliary atresia; the latter drew emotional support and testimony that early screening could save lives and reduce transplant costs. The committee heard and passed a number of other policy bills, including CS for CS for SB 1510, the DEP agency package, after environmental groups warned that one provision could delay basin management protections and allow more septic systems in impaired watersheds; the bill still passed favorably. Members also approved CS for CS for SB 598 on funeral and cemetery regulation, SB 688 to license naturopathic doctors, SB 1318 on scholarship account reversion rules, CS for CS for SB 682 on domestic violence injunctions and penalties, SB 130 on workforce training for current and former inmates, and SB 1548, the latest Live Local affordable housing update. Several bills were briefly postponed or taken up later in the meeting. In the latter portion of the meeting, the committee approved CS for C.S. for SB 536 on criminal gang membership criteria, CS for C.S. SB 762 on assigning conflict capital cases across regional counsel offices, SB 1332 on career offender registration requirements, CS for CS for SB 1742 creating a new offense for indecent exposure of sexual organs to a child, and CS for SB 1750 increasing penalties for serious sex offenses and child sexual abuse material crimes. The committee also debated CS for SB 1226 on Public Employee Relations Commission procedures and union certification rules, including a late-file amendment setting a 60% threshold and 25% quorum for recertification; the discussion focused heavily on constitutional concerns, union rights, and differences between first responders and other public employees. The transcript ends while that bill’s debate is still underway, with the committee having already taken numerous favorable votes throughout the meeting.