Video & Transcript Research : 'celiac disease'

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MA

Massachusetts 2025-2026 Regular Session

Joint Committee on Public Health Mar 23rd, 2026

Joint Committee on Public Health

Transcript Highlights:
  • I am 21 years old and I have celiac disease.
  • But celiac disease doesn't wait.
  • But no one ever tested me for celiac disease.
  • I am Jamie Stein, and I live with celiac disease.
  • She tested me for celiac disease, a disease that often gets overlooked.
Bills: H5013, H5087, H5115, S2928
Summary: The Joint Committee on Public Health heard testimony on two celiac disease screening bills, H. 5013 and S. 2928, which would create a three-year pilot program to add celiac screening to routine cholesterol/lipid testing for children around ages 8 to 12. Supporters included the bill sponsors, patients and family members, clinicians, researchers, and advocates, who described long delays in diagnosis, the wide range of symptoms, the risk of long-term complications, and the value of early detection. Several witnesses said the pilot would help determine feasibility, cost-effectiveness, and acceptability, and would pair screening with educational and support resources for families. No vote was taken during the hearing. The committee also heard testimony on H. 5087, a bill regulating the operation of medical spas. Witnesses from the aesthetic medicine field, including a lobbyist, a nurse practitioner, a physician assistant, and a plastic surgeon, generally opposed the bill as written. They argued it was outdated, redundant with existing Massachusetts licensing and board oversight, and too restrictive of nurse practitioners, physician assistants, and other licensed providers. They said the bill could reduce access, increase costs, and push care into less regulated settings, while also noting they support patient safety and would be willing to work on revised regulation. Committee members asked questions about how celiac screening would work in practice and about the medical spa bill’s relationship to current law. On the celiac proposal, witnesses explained that screening could begin with a simple blood test, with further testing if needed, and that the pilot would assess implementation in real-world pediatric care. On H. 5087, the chair noted the committee would review the testimony and written submissions carefully, and witnesses were encouraged to provide follow-up materials identifying specific redundancies or concerns.
MA

Massachusetts 2025-2026 Regular Session

Joint Committee on Higher Education Mar 19th, 2026

Joint Committee on Higher Education

Transcript Highlights:
  • Like Sama will testify today, I myself have celiac disease.
  • So there I see children and adolescents living with celiac disease. Celiac Center there.
  • I'm here today as the parent of a child with celiac disease.
  • When I was six, I was diagnosed with celiac disease.
  • I have celiac disease.
Bills: H5012, S2927
Summary: The Joint Committee on Higher Education held a hearing on two late-filed bills, H. 5012 and S. 2927, titled An Act Relative to Students Accessing Food and Nutritional Information, sometimes referred to by witnesses as the “Snack Act.” The bills would require schools to make clearer, centralized online information available about gluten-free and allergen-free meals, including menus, food safety protocols, ingredient information, and contact information, so students with celiac disease and other medically necessary dietary restrictions can safely participate in universal school meal programs. Representative Michelle Badger and Senator Joan Lovely both testified in support, describing the legislation as an equity measure that would help families trust school meals and reduce barriers to participation. A series of witnesses, including pediatric and adult gastroenterologists, a Harvard Medical School faculty member, a Celiac Disease Foundation representative, parents, and several children and college students with celiac disease, said that celiac disease requires a strict lifelong gluten-free diet and that lack of clear communication often leads families to avoid school meals. They emphasized risks from cross-contamination, the stress and social exclusion children experience, and the fact that many schools already have the underlying information but do not present it in an accessible way. Committee members responded positively, praising the young witnesses and noting that the bill could benefit students beyond the celiac community by improving transparency for all medically restricted diets. One member suggested the Department of Public Health might also address the issue through regulations, similar to a prior restaurant allergy protocol effort. No votes were taken at the hearing, and the chair closed the hearing after testimony concluded.
MN

Minnesota 2025-2026 Regular Session

Agriculture Committee Meeting - 2026-04-08

Agriculture Finance and Policy

Transcript Highlights:
  • committed to working with the board to control the spread of CWD with thoughtful policy that balances disease
  • At this time, there is no validated live test for CWD, or chronic wasting disease, that would allow us
  • At this time, there is no validated live test for CWD, or chronic wasting disease, that would allow us
  • There was a farm there that imported elk from Alberta that later tested positive for the disease.
  • There was a farm there that imported elk from Alberta that later tested positive for the disease.
Bills: HF2103, HF4508
AL

Alabama 2025 Regular Session

Alabama House Agriculture and Forestry Committee Apr 9th, 2025

Agriculture and Forestry

Transcript Highlights:
  • It is the cheap version of wasting disease—basically the same disease.
  • we spread the disease and all sorts of things.
  • Deer breeders will be the cure for the disease.
  • or other diseases.
  • animals like... or disease with other animals like cows.
Bills: HB509
MN

Minnesota 2025-2026 Regular Session

House Agriculture Finance and Policy Committee 3/18/26

Agriculture Finance and Policy

Transcript Highlights:
  • The Centers for Disease Control also does not advocate for declawing cats, even if they live with
  • , there's a specific allowance for this to be done to address an existing or recurring infection, disease
  • , injury or abnormal condition in disease, injury or abnormal condition in the<01:18:27.040> claws
  • Neither does the Infectious Disease Society of America.
  • There are more fish diseases now.
TX

Texas 89th Regular

Culture, Recreation & Tourism Apr 23rd, 2025

Culture, Recreation & Tourism

Transcript Highlights:
  • Safeguards to prevent the possible spread of chronic wasting disease.
  • With the advent of Chronic Wasting Disease, or CWD, all deer from breeder facilities are required to
  • Chronic wasting disease is a disease among white-tailed deer that we do not know a whole lot about.
  • And Canada are following standard disease protocols in dealing with chronic wasting disease (CWD).
  • In these areas, many have chronic wasting disease (CWD).
MN

Minnesota 2025-2026 Regular Session

House Agriculture Finance and Policy Committee 3/25/26

Agriculture Finance and Policy

Transcript Highlights:
  • Co-Chair Anderson and I had an agreement that one of the bills scheduled that day, which was that fish disease
  • Co-Chair Anderson and I had an agreement that one of the bills scheduled that day, which was that fish disease
OK
Transcript Highlights:
  • Asthma is the most common noncommunicable disease among children, leading cause of hospitalization and
Summary: The House reconvened after a quorum call and took up several Senate bills with joint committee reports, mostly involving health and human services funding. SB 1130, relating to University Hospitals authority, passed 74-12 and its emergency clause also passed. SB 1134, funding the Oklahoma State University Medical Authority, passed 75-14 with the emergency clause approved. SB 1131, appropriating ARP interest funds to address a Rogers County gap for the Office of Juvenile Affairs, passed 81-10 and the emergency clause passed. SB 1132, reappropriating ARPA funds for rural hospital rebuild programs under the State Department of Health to avoid federal clawback, passed 82-10 with emergency approval. SB 1133, involving the Department of Mental Health and Substance Abuse Services and repurposing interest funds for a Norman building project, passed 68-24 and its emergency clause also passed. SB 1142, appropriating ARPA funds to the Department of Human Services consistent with pandemic relief recommendations, passed 68-21 and the emergency clause was adopted. The House also considered H.R. 1049, a resolution designating May as Asthma and Allergy Awareness Month. Representative Newton summarized asthma’s impact in Oklahoma and nationally, including child health effects and recent deaths in the state, and moved adoption by unanimous consent. The transcript ends with announcements and adjournment until the next scheduled meeting.
OK
Transcript Highlights:
  • It's a muscle and joint disease that affects the use of his arms and legs.
Summary: The House convened, called the roll, and opened with prayer, the Pledge of Allegiance, and a series of recognitions and presentations. Members honored Vice Admiral Jeff Trusler as Veteran of the Week, recognized the Prague Kolache Festival royalty and candidates, unveiled an artwork for the Capitol’s Hall of Heroes, and introduced the Doctor, Psychologist, and Nurse of the Day, along with the OSBI cold case team. The House also adopted HCR 1026, a resolution tied to Earth Day and “Lights Out Day” in Oklahoma, aimed at reducing light pollution and protecting migrating birds. A major portion of the meeting consisted of farewell remarks from Representatives Mike Osborne and Kevin West. Both reflected on their years of service, thanked family, staff, colleagues, and constituents, and emphasized themes of public service, hard work, conviction, and working across differences. Osborne’s remarks focused on freedom, immigration, service, and doing good in public life, while West stressed standing on principle, listening to others, and choosing courage over convenience. After the presentations and personal privilege speeches, the House moved into consideration of legislation. Chairman Caldwell presented the joint committee report on Senate Bill 1130, relating to the University Hospitals Authority, saying it would help ensure Oklahoma and the University of Oklahoma have one of the world’s leading pediatric cardiology units. The transcript ends as members begin considering the bill, with no final vote shown in the excerpt.
MA

Massachusetts 2025-2026 Regular Session

Joint Committee on Public Health Mar 23rd, 2026

Joint Committee on Public Health

Transcript Highlights:
  • Celiac Disease Screening Pilot Program.
  • I am 21 years old and I have celiac disease.
  • But celiac disease doesn't wait.
  • But celiac disease doesn't wait.
  • Celiac disease can affect anyone, and most people with celiac disease don't even have a known family
Summary: The Joint Committee on Public Health heard testimony on four bills: H. 5013 and S. 2928, which would establish a three-year celiac disease screening pilot program for children during routine cholesterol/lipid screening around ages 8 to 12; H. 5087, regulating the operation of medical spas; and H. 5115, establishing statewide food truck regulations, though the hearing focused almost entirely on the celiac and medical spa bills. Committee chairs outlined three-minute testimony limits and noted members present in person and online. Supporters of the celiac screening bills, including Rep. Badger, Sen. Lovely, patients, clinicians, and researchers, described long delays in diagnosis, the lack of a cure beyond a gluten-free diet, and the potential for early screening to prevent years of damage, missed school and work, and long-term complications. Testifiers said celiac disease is common but frequently undiagnosed, that a simple blood test can identify many cases, and that a pilot would help assess feasibility, cost, accuracy, and family acceptance. Several witnesses emphasized that the proposal includes education and support for families after diagnosis, and some cited international screening efforts, especially in Italy, as evidence that population screening can work. Testimony on H. 5087 was largely opposed by medical spa owners, nurse practitioners, physician assistants, and a plastic surgeon. Witnesses argued the bill is outdated, duplicative of existing Massachusetts licensing and public health rules, and inconsistent with current scopes of practice and team-based care. They said the proposal could restrict access, burden small and women-owned practices, and fail to address the real issues of training, compliance, and patient safety. Some said they support regulation in principle but want the bill revised to reflect current law and modern practice. Committee members asked a few clarifying questions, including about celiac testing methods and the relationship between the medical spa bill and current state law, but no votes or formal actions were taken during the hearing.
MA

Massachusetts 2025-2026 Regular Session

Joint Committee on Public Health Jun 21st, 2026 at 10:00 am

Joint Committee on Public Health

Transcript Highlights:
  • Celiac Disease Screening Pilot Program.
  • I am 21 years old and I have celiac disease.
  • But celiac disease doesn't wait.
  • But celiac disease doesn't wait.
  • Celiac disease can affect anyone, and most people with celiac disease don't even have a known family
Keywords: 995, all
Summary: The Joint Committee on Public Health heard testimony on four bills: H. 5013 and S. 2928, which would establish a three-year celiac disease screening pilot program for children during routine cholesterol/lipid screening at ages 8 to 12; H. 5087, regulating medical spas; and H. 5115, establishing statewide food truck regulations, though the transcript focused almost entirely on the celiac and medical spa bills. For the celiac proposal, Rep. Badger and Sen. Lovely described long diagnostic delays, the lack of a cure, and the potential for a simple blood test to identify children earlier and reduce long-term harm. Multiple patients, clinicians, and researchers supported the pilot, saying celiac is frequently missed because symptoms vary widely or are absent, and that early detection could prevent malnutrition, growth problems, osteoporosis, and other complications. Testifiers also emphasized that the bill would study feasibility, accuracy, cost, and acceptability, and would include family education and support resources if diagnoses are made through the program. Several experts and advocates backed the celiac screening pilot, including a pediatric gastroenterologist from Italy who described successful national screening efforts there, a Celiac Disease Foundation representative, pediatric gastroenterologists from Massachusetts and Colorado, a pediatric dietitian, and a parent whose child was diagnosed after severe malnutrition. They argued that routine screening alongside existing pediatric bloodwork could identify many undiagnosed children and improve health equity, since celiac disease is often overlooked in people of color and lower-income patients. Committee members asked about how the screening would work, and witnesses explained it could begin with a blood test, followed by confirmatory endoscopy if needed. No vote was taken in the hearing. On H. 5087, witnesses from the medical aesthetics industry largely opposed the bill as written, saying it was outdated, redundant with existing Massachusetts licensing and board oversight, and too restrictive for nurse practitioners, physician assistants, and other licensed providers. Testifiers, including a retired lobbyist, a nurse practitioner, a PA, a plastic surgeon, and a clinic owner, said the bill could reduce access, raise costs, and push care into less regulated settings, while not addressing the real issues of training, compliance, and patient safety. Committee members pressed for more specific feedback on what provisions were unnecessary or duplicative, and witnesses said they had submitted position papers and written testimony identifying conflicts with current law. The hearing ended with the chair noting that all oral and written testimony would be reviewed before any decisions are made.
MN

Minnesota 2025-2026 Regular Session

House Agriculture Finance and Policy Committee 3/5/25

Agriculture Finance and Policy

Transcript Highlights:
  • Unfortunately, our current testing methods are a lagging indicator related to the disease.
  • live test that can confirm conclusively, by a validated test, that those animals do not have the disease
  • Unfortunately, our current testing methods are a lagging indicator related to the disease.
  • Unfortunately, our current testing methods are a lagging indicator related to the disease.
  • prevention program last year and disease prevention program last year and it<01:30:52.280> was
Bills: HF47, HF434, HF1503, HF1702
MA

Massachusetts 2025-2026 Regular Session

Joint Committee on Higher Education Mar 19th, 2026

Joint Committee on Higher Education

Transcript Highlights:
  • Like Sama will testify today, I myself have celiac disease.
  • So there I see children and adolescents living with celiac disease. Celiac Center there.
  • When I was six, I was diagnosed with celiac disease.
  • When I was six, I was diagnosed with celiac disease.
  • I have celiac disease.
Summary: The Joint Committee on Higher Education held a hearing on two late-filed bills, H. 5012 and S. 2927, titled An Act Relative to Student Access, Food, and Nutritional Information, also referred to by witnesses as the “Snack Act.” The bills would require schools to make gluten-free and allergen-related meal information easier to find online, including menus, ingredients, food safety procedures, and contact information, so students with celiac disease and other medically necessary dietary restrictions can safely participate in universal school meal programs. Committee leaders explained the hearing process and invited testimony from pre-registered and in-person witnesses. Most testimony came from parents, students, physicians, and advocates who described celiac disease as a serious autoimmune condition requiring a strict lifelong gluten-free diet. Witnesses said many families avoid school meals because information is hard to find or not clearly communicated, and they emphasized that the bill would not create a new system so much as make existing information accessible. Several speakers cited research showing that many children with celiac disease do not participate in school breakfast and lunch programs, and that communication gaps between school administrators, nurses, and food service staff are a major barrier. Witnesses also said the bill could help students with food allergies more broadly and would support equity in the state’s universal school meals program. A number of students with celiac disease gave personal testimony about feeling excluded, managing food anxiety, and relying on clear school communication to stay safe. One parent and clinician described a child’s severe malnutrition before diagnosis and shared a photo to illustrate the seriousness of gluten exposure, while other doctors discussed long-term health risks from uncontrolled celiac disease and the need for better access to safe meals. Committee members praised the witnesses, especially the young students, and asked questions about cross-contamination, school procedures, and whether regulations or agency action might also address the issue. Senator Joan Lovely, the Senate sponsor, briefly endorsed the bill and thanked the panel. No vote was taken during the hearing, and the committee closed the hearing after testimony concluded.
MA

Massachusetts 2025-2026 Regular Session

Joint Committee on Higher Education Jun 21st, 2026 at 12:00 pm

Joint Committee on Higher Education

Transcript Highlights:
  • Like Sama will testify today, I myself have celiac disease.
  • For students with celiac disease, this can be really stressful.
  • So there I see children and adolescents living with celiac disease. Celiac Center there.
  • When I was six, I was diagnosed with celiac disease.
  • I have celiac disease.
Keywords: 995, all
Summary: The Joint Committee on Higher Education held a hearing on two late-filed bills, S. 2927 and H. 5012, titled An Act Relative to Students Accessing Food and Nutritional Information, filed by Senator Joan Lovely and Representative Michelle Badger. The bills would require schools to make clear, centralized online information available about gluten-free and allergen-free meals, including menus, food safety procedures, and contact information, so students with celiac disease and other medically necessary dietary restrictions can safely participate in universal school meal programs. Committee members and the bill sponsors emphasized that the measure is intended to improve transparency, equity, and access within the Commonwealth’s universal free breakfast and lunch program. Testimony came from students, parents, physicians, and advocates, many of whom described celiac disease as a serious autoimmune condition requiring a strict lifelong gluten-free diet. Witnesses said families often struggle to find reliable school meal information, and that lack of communication between school administrators, nurses, and food service staff can lead families to opt out of school meals even when safe options exist. Medical witnesses from Boston Children’s, Mass General, and Beth Israel said the bill addresses a real barrier identified in research and could help prevent health problems, missed school, and long-term complications from gluten exposure. Several witnesses also noted that the bill’s approach could benefit students with food allergies more broadly. Committee members praised the testimony, especially from young student witnesses, and discussed practical issues such as cross-contamination, 504 plans, and whether schools already have the underlying information needed to comply. One member suggested the Department of Public Health might be able to address some of the issue through regulations, similar to a prior restaurant allergy-protocol change. No vote was taken during the hearing, and the committee closed after hearing from all panels and the bill sponsors, who asked for favorable consideration.
CA

California 2025-2026 Regular Session

Senate Floor Session Jun 1st, 2026

California Senate Floor Meeting

Transcript Highlights:
  • Senate Concurrent Resolution 179 by Senator Niello, relative to Celiac Disease Awareness Month.
  • It's a Celiac Disease Awareness Month. Senator Niello, you are recognized.
  • I rise today to present SCR 179, which recognizes May as Celiac Disease Awareness Month.
  • Celiac disease is not just a dietary preference.
  • Celiac disease is not just a dietary preference.
Summary: The Senate met with a quorum, opened with prayer and the Pledge of Allegiance, and then moved through several privileges-of-the-floor recognitions, including birthday wishes for Senator Archuleta and tributes to former Senator George Runner and visiting guests from Portugal in connection with Portuguese Heritage Month. The body then proceeded to governor appointments, beginning with multiple confirmations to the Board of Parole Hearings. Debate on the parole board nominees focused heavily on public safety, transparency, and recent high-profile parole decisions involving violent sexual offenders, with opponents arguing the board had been too lenient and lacked public accountability, while supporters said commissioners were applying the law as written and using structured risk assessments. William Muniz and Michael Ruff were both confirmed after roll-call votes, despite opposition centered on parole outcomes and board transparency. Rosalind Sargent Burns and Mary Thornton were also confirmed after similar debate. The final parole board confirmation, Jack Weiss, drew the most extended discussion, including a failed request to read material into the record and repeated disputes over whether comments were on topic; Weiss was ultimately confirmed as well. Throughout these confirmations, senators on both sides referenced elder parole, the unreasonable-risk standard, victim input, and the need for either reform or deference to existing law. After the appointments, the Senate took up SCR 179 by Senator Niello, designating May as Celiac Disease Awareness Month. Niello described celiac disease as a serious autoimmune disorder, emphasized the challenges of gluten exposure and cross-contamination, and called for greater awareness, labeling, and education. The resolution passed unanimously, 31-0. The session concluded with committee announcements and adjournment-in-memory tributes for Marty Arnold, Jim McAulian, and Pat Gagoscos, followed by remarks from the pro tem noting bipartisan legislation on parole transparency and announcing the next session for June 4, 2026.
CA

California 2025-2026 Regular Session

Senate Floor Session Jun 1st, 2026

California Senate Floor Meeting

Transcript Highlights:
  • I rise today to present SCR 179, which recognizes May as Celiac Disease Awareness Month.
  • Celiac disease is not just a dietary preference.
  • Recognizing May 2026, even though it was last month, as Celiac Disease Awareness Month, helps elevate
  • Recognizing May 2026, even though it was last month, as Celiac Disease Awareness Month, helps elevate
  • Recognizing May 2026, even though it was last month, as Celiac Disease Awareness Month, helps elevate
Keywords: 987, senate, all