Video & Transcript Research : 'Duchenne muscular dystrophy'
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TX
Keywords:
healthcare, training, abuse, neglect, penalties, chemical dependency, safety, regulation, newborn screening, Duchenne muscular dystrophy, heritable diseases, public health, early detection, mental health, telemedicine, physical examination, healthcare access, inpatient facility, pharmaceuticals, Texas Pharmaceutical Initiative
TX
Keywords:
healthcare, training, abuse, neglect, penalties, chemical dependency, safety, regulation, newborn screening, Duchenne muscular dystrophy, heritable diseases, public health, early detection, mental health, telemedicine, physical examination, healthcare access, inpatient facility, pharmaceuticals, Texas Pharmaceutical Initiative
TX
Texas 89th Regular
S/C on Disease Prevention & Women's & Children's Health Mar 27th, 2025
S/C on Disease Prevention & Women's & Children's Health
Transcript Highlights:
- I'm here today to present House Bill 2295, which would add screening for Duchenne muscular dystrophy
- Duchenne is the most common pediatric muscular dystrophy.
- House Bill 2295 aims to include Duchenne muscular dystrophy in our newborn screening program.
- My name is Rosalia Sandoval, and I'm a resident of Buda, Texas, living with Duchenne muscular dystrophy
- I am a resident of Buda, Texas, and I am a mother of a son living with Duchenne muscular dystrophy.
Keywords:
Medicaid, child health, express lane option, income verification, supplemental nutrition assistance, telepharmacy, healthcare access, remote dispensing, rural clinics, pharmacy regulations, health literacy, state health plan, health care, patient outcomes, public health, economic impact, healthcare, breast cancer, cervical cancer, insurance eligibility
TX
Texas 89th Regular
Senate Committee on Health and Human Services Apr 2nd, 2025
Health & Human Services
Transcript Highlights:
- Duchenne muscular dystrophy. is a universally fatal, rare pediatric disease resulting from an absence
- Um, so this bill, as Senator Parker stated, is to add Duchenne muscular dystrophy to our state's newborn
- muscular dystrophy and I'm here to advocate for the support.
- Senate bill 1044 adding Duchenne to the state's newborn screening program many Duchenne families like
- Early diagnosis in Duchenne would help ensure equal access to Duchenne screening. for all families and
Keywords:
healthcare, training, abuse, neglect, penalties, chemical dependency, safety, regulation, inpatient competency restoration, competency restoration, forensic mental health, mental health law, criminal competency, incompetent to stand trial, Chapter 46B, HHSC, Health and Human Services Commission, state hospital, behavioral health, local mental health authority
FL
Florida 2025 Regular Session
April 1, 2025 - 09:00 AM
Transcript Highlights:
- This bill adds Duchenne muscular dystrophy, or DMD, to the recommended uniform screening panel, or the
- I'm a parent to three kids, and my middle son, Brendan, is 14, and he lives with Duchenne muscular dystrophy
- muscular dystrophy.
- muscular dystrophy.
- And adding Duchenne muscular dystrophy to our newborn screening panel will do exactly that.
Summary:
The Health Care Budget Subcommittee met and took up four bills. First, CS/HB 633 by Rep. Koster on managing entity reporting and transparency for behavioral health services was amended to clarify reporting requirements and timing, and to address the bill’s fiscal implementation through conferencing. Members and one public speaker supported the measure, emphasizing accountability and better use of state funds. The bill was reported favorably.
Next, CS/HB 531 by Rep. Hunschofsky on background screenings was amended with a strike-all that would require ACCA to create a public webpage with screening education, level-two screening standards, and a searchable catalog of positions requiring screening. Because the amendment changed the bill’s relating-to clause, the chair noted it would be temporarily postponed under House Rule 7.11D and returned to the committee later.
The committee then heard HB 1089 by Rep. Booth, which adds Duchenne muscular dystrophy to the recommended newborn screening panel, subject to appropriation. A parent testified in strong support, describing the benefits of earlier diagnosis and treatment, and several members spoke in favor. The bill was reported favorably. Finally, CS/HB 907 by Rep. Anderson created the Sunshine Genetics Program, an opt-in newborn whole-genome sequencing program, and established the Florida Institute for Pediatric Rare Diseases at FSU and a Sunshine Genetics Consortium. An amendment made funding contingent on appropriations and added Nicholas Children’s Hospital and Florida International University to the consortium board. After supportive testimony and debate, the bill was also reported favorably. The meeting then adjourned.
FL
Florida 2025 Regular Session
March 20, 2025 - 02:00 PM
Transcript Highlights:
- House Bill 1089 adds Duchenne muscular dystrophy, or Duchenne, to the recommended uniform screening panel
- I stand here as a leading clinician and advocate for the Duchenne muscular dystrophy space.
- Duchenne muscular dystrophy is a severe, progressive, and fatal genetic disorder that affects primarily
- Several years ago, Nemours Children's Hospital became a treatment site for Duchenne muscular dystrophy
- muscular dystrophy.
Summary:
The subcommittee met with a quorum present and took up five health-related bills. HB 1089, which would add Duchenne muscular dystrophy to Florida’s newborn screening panel, was presented as a way to enable earlier diagnosis and treatment; a pediatric neurologist from Nemours testified in support, noting existing FDA-approved therapies and ongoing clinical trials. After supportive debate, the bill passed 17-0 and was reported favorably.
HB 1083 would standardize patient access to medical records by setting deadlines for providers to produce or allow inspection of records and requiring electronic delivery when available. Supporters said it would reduce delays in care and costs, while two industry groups appeared in opposition. Members from both parties spoke in favor, and the bill passed 17-0 and was reported favorably. HB 1297, which aligns Florida’s electronic prescribing rules more closely with federal law and removes some state exceptions, drew opposition from physicians who argued paper prescriptions are still needed for emergencies, shortages, and price shopping. The sponsor said the bill’s goals were patient safety, fraud prevention, and efficiency; despite concerns, it passed 18-0 and was reported favorably.
The committee then considered PCS for HB 1421, the Emily Adkins Family Protection Act, which would create a statewide blood clot and pulmonary embolism registry, require hospital reporting and risk-assessment policies, and expand training requirements in hospitals, nursing homes, and assisted living facilities. The bill was presented with emotional testimony from Emily Adkins’ parents, who urged support and co-sponsorship in her memory. Members from both parties praised the family’s advocacy, and the PCS passed 18-0 and was reported favorably.
Finally, HB 449 on optometry would expand optometrists’ authority to prescribe certain medications and perform specified laser and non-laser eye procedures after certification. The bill and amendment drew strong opposition from ophthalmologists and their association, who raised patient-safety, training, and delegation concerns, while optometrists argued the bill would improve access, especially in rural areas and counties without ophthalmologists. The amendment was adopted, and the bill as amended passed on a recorded vote and was reported favorably.
FL
Florida 2026 5th Special Session
Appropriations Committee on Health and Human Services Apr 10th, 2025
Transcript Highlights:
- And one of those is Duchenne muscular dystrophy.
- It's, Duchenne's is a type of muscular dystrophy.
- Duchenne's is a type of muscular dystrophy that is genetic, it is inherited, and so there are indications
- And what this bill does is simply add Duchenne muscular dystrophy to the list.
- What this bill does is simply add Duchenne muscular dystrophy to the list of conditions that we test
Summary:
The committee met to consider a large agenda of health and human services bills, moving quickly because of a two-hour time limit. Early measures reported favorably included SB 976 on challenges to court-appointed psychologists in family law cases, SB 306 on Medicaid provider network access and after-hours availability, and SB 584 on housing supports for college students and youth in extended foster care. SB 1412 on home health regulation modernization also passed, with one support appearance from the Home Care Association.
Members then approved several bills focused on research and care delivery, including SB 1800 creating a Parkinson’s disease research consortium at USF with an adopted amendment adding academic medical centers, SB 524 adding Duchenne muscular dystrophy to newborn screening, SB 1156 revising a Medicaid home health aide program for medically fragile children, and SB 1490 transferring and redesigning the managed care program for critically ill children. SB 1174 on foster home licensure transfers, SB 1620 implementing mental health and substance use commission recommendations, SB 1568 revising e-prescribing exemptions, and SB 788 on veterans nursing home beds were also reported favorably.
The committee had more extensive debate on SB 1270, the Department of Health agency package, which included provisions on vaccination status, medical marijuana background screening, licensing and compact issues, and sovereign immunity for volunteer dental workers; it passed after an amendment and several members voiced concerns about patient treatment and “voting power” language. SB 1606 on patient access to records drew strong opposition from providers and health information professionals over privacy, HIPAA, and administrative burdens; it was initially reported unfavorably, then reconsidered and ultimately passed after a motion to reconsider. Other bills reported favorably included SB 1736 on insulin administration by direct support professionals and relatives, SB 1808 on patient refunds from providers, SB 1842 on referral disclosure of network status, SB 1354 on behavioral health managing entity oversight, SB 1768 on stem cell therapies with informed consent requirements, and SPB 7032 on presumptive Medicaid eligibility for permanently disabled individuals, which was submitted and reported as a committee bill. The meeting ended after all agenda items were handled and the committee adjourned.
FL
Florida 2025 Regular Session
February 12, 2025 - 03:30 PM
Transcript Highlights:
- And that's not, like right now, it's gene therapy on muscular dystrophy, which is not necessarily curative
- And that's not, like right now, it's gene therapy on muscular dystrophy, which is not necessarily curative
- We talked about Duchenne muscular dystrophy a little bit.
- We talked about Duchenne muscular dystrophy a little bit.
Summary:
The committee held a panel discussion focused on how Florida health care organizations are working to improve access, quality, and affordability. Panelists from Florida Community Care/Independent Living Systems, Sunshine Health, AdventHealth, UF Health, and Nemours described their approaches, including Medicaid managed care, value-based contracting, community partnerships, mobile screening units, smart-room technology, telehealth, and specialized programs for maternal health, children, and complex chronic conditions. Several speakers emphasized that managed care and coordinated care can improve outcomes while reducing unnecessary utilization and costs.
Members asked about the impact of Medicare’s V28 changes, mobile cancer screening, urgent care versus emergency room billing, pediatric specialty access, complaint resolution, Black maternal mortality, provider shortages, network adequacy, and the use of AI in prior authorization. Witnesses said V28 has affected providers and revenue, UF Health’s mobile screening program is expanding beyond a few cancer types, and its urgent care model bills patients at the appropriate level rather than both urgent care and ER rates. Nemours said it reduced specialty wait times through scheduling changes, telemedicine, and registry tools, while AdventHealth described postpartum coordination and maternal heart programs to reduce maternal complications and mortality.
On complaints and access problems, panelists said their organizations use patient/member advocates, care managers, call centers, and escalation processes to resolve issues, and Sunshine Health specifically discussed a transportation complaint that was addressed with its vendor and the family. Sunshine Health also said it is not using AI for prior authorization, though it is exploring responsible uses elsewhere, and Florida Community Care said it is not using AI in utilization management. In closing, panelists identified workforce shortages, provider burnout, and high-cost drugs as the biggest ongoing challenges. The meeting ended with thanks to the panel and adjournment after Representative Brackett moved to rise, without objection.
FL
Transcript Highlights:
- And what this bill does, it provides that we will also test for Duchenne muscular dystrophy.
- And what this bill does, it provides that we will also test for Duchenne muscular dystrophy.
- And what this bill does is simply add Duchenne muscular dystrophy.
- And what this bill does is simply add Duchenne muscular dystrophy to the test that we will be looking
- This is a condition. also test for Duchenne's muscular dystrophy.
Summary:
The Senate convened with a quorum, prayer, the Pledge of Allegiance, and several member introductions recognizing interns, guests, and advocates. The Rules Chair added CS for CS for SB 622 to the special order calendar, and SB 80 on state land management was temporarily postponed. The chamber then moved through a series of bills, often substituting House companions for Senate bills when the measures were identical or nearly identical.
The Senate passed SB 200/HB 295 on a comprehensive waste reduction and recycling plan, requiring DEP to develop a recycling and waste diversion roadmap by 2026; SB 492 on land development and mitigation banking, after adopting amendments related to mitigation credit use and former phosphate mine lands; and SB 494/HB 255 on aggravated animal cruelty, which increases sentencing consequences and creates a searchable FDLE database of convicted animal abusers, with an amendment clarifying the database language. The Senate also passed SB 500/HB 711 establishing the Spectrum Alert for missing children with autism, SB 524/HB 1089 adding Duchenne muscular dystrophy to newborn screening, SB 592/HB 393 revising the My Safe Florida Condominium Pilot Program, SB 742/HB 1145 on workforce education, SB 936/HB 827 on a statewide study of automation and workforce impact, SB 964/HB 181 on parole guidelines, SB 976/HB 901 on court-appointed psychologists, SB 1084/HB 1451 on sexual cyber harassment, and SB 1156 on a home health aid program for medically fragile children. Most of these bills were adopted after brief sponsor explanations, questions, and in some cases amendments or House-substitute motions.
Debate centered on several policy issues. Senators raised concerns about the constitutional and environmental implications of mitigation banking credits in SB 492, the scope and privacy implications of the animal abuse database in SB 494, the funding and eligibility details of the condo resilience program in SB 592, and the public-school/charter-school balance in SB 822, which drew extensive questioning about enrollment, governance, discipline, accountability, and data sharing before being placed on the third-reading calendar after amendments. The Spectrum Alert bill drew support from members who compared it to the Purple Alert and emphasized the risks faced by children with ASD. The medically fragile children home health aid bill also drew strong support, with senators describing it as a long-needed fix to help families provide in-home care without losing Medicaid coverage. Votes on the measures reported in the transcript were overwhelmingly favorable, with bills passing by margins such as 38-0, 35-3, 37-0, 36-0, and 35-0.
FL
Florida 2026 Regular Session
FL House Floor Session - 2025-04-29 (10:00AM Session)
Florida House Floor Meeting
Transcript Highlights:
- She said the bill would also test for Duchenne muscular dystrophy.
- She explained that Duchenne muscular dystrophy affects mostly males, is X chromosome-linked, and is a
- The bill would simply add Duchenne muscular dystrophy to the newborn screening test.
- She said the bill would simply add Duchenne muscular dystrophy to the newborn screening test.
- This is a condition. also test for Duchenne's muscular dystrophy.
Summary:
The Senate convened with a quorum, opened with prayer and the Pledge, and heard several member introductions before moving to the special order calendar. The chamber first took up SB 200/HB 295 on a comprehensive waste reduction and recycling plan, which directs DEP to develop a statewide recycling strategy by 2026 with stakeholder input and a three-year implementation roadmap; the House bill was substituted and passed 38-0. Senators then approved CS/CS/SB 492 on mitigation banking and land development after adopting two McLean amendments, including one on out-of-service credits and another incorporating phosphate mining lands provisions; the bill passed 35-3 after debate over possible constitutional issues. CS/SB 494 on aggravated animal cruelty was also amended and substituted with the House companion to add a searchable FDLE database of convicted animal abusers and a sentencing multiplier, with an agriculture-related exemption; it passed 37-0.
The Senate next passed CS/CS/SB 500/HB 711 creating the Spectrum Alert for missing children with autism, including training and coordinated alert procedures, with a House amendment to align implementation timing and funding; it passed 37-0. CS/CS/SB 524/HB 1089 added Duchenne muscular dystrophy to newborn screening tests and passed 36-0. CS/CS/SB 592/HB 393 revised the My Safe Florida Condominium Pilot Program by lowering approval thresholds, clarifying eligibility and ownership issues, and adding sliding-door wind-driven rain mitigation devices; it passed 37-0 after discussion about funding and insurance premium credits. CS/SB 742/HB 1145 on workforce education allowed charter schools direct access to grant funding and expanded money-back guarantees for certain programs, and it passed 37-0. CS/CS/SB 822/HB 443 on charter schools generated extensive debate and multiple amendments, including a Jones amendment requiring parent acknowledgment of school rules; the bill would expand charter autonomy, reporting flexibility, enrollment capacity, and governance provisions, and it was placed on the calendar for third reading after the amendment process.
Later, the Senate passed HB 827 on a statewide study of automation and workforce impact, which would examine job displacement, wages, vulnerable regions, and training needs, by a 35-0 vote. It also passed CS/CS/SB 964/HB 181 on parole guidelines, CS/SB 976/HB 901 on court-appointed psychologists, and CS/SB 1084/HB 1451 on sexual cyber harassment and digitally forged intimate images, all unanimously. CS/CS/SB 1156 on a Home Health Aid for Medically Fragile Children Program was amended to clarify training requirements and passed 37-0 after supportive debate about helping parents care for medically fragile children. Finally, CS/CS/CS/SB 1240/HB 1091 on substance abuse and mental health care was amended to allow designated facilities to retain certain stabilized patients during the 72-hour involuntary examination period and passed 37-0. Several other bills were temporarily postponed, and the chamber also recognized guests and interns throughout the session.
CA
California 2025-2026 Regular Session
Assembly Appropriations Committee May 23rd, 2025
Transcript Highlights:
- AB 242, Burner, Duchenne muscular dystrophy: hold in committee.
- AB 333, Burner, Duchenne muscular dystrophy: hold in committee.
Summary:
The Assembly Appropriations Committee held its May 23, 2025 suspense hearing and opened by emphasizing the difficult budget environment, rising costs for constituents, and the need to make tough choices. The chair said many bills would be held, amended to reduce costs, or made two-year bills because the state could not afford broad program expansions this year. The committee also noted the agenda was organized alphabetically by author and that results would be posted later that day.
The committee then acted on a large suspense file, taking up hundreds of Assembly bills across topics including housing, health care, education, labor, public safety, climate, water, transportation, elections, and technology. Many bills were held in committee, while many others were approved with cost-saving, clarifying, or author’s amendments. Examples included measures on CalABLE, Covered California enrollment, wildfire and insurance issues, reproductive health, school and college programs, prison and juvenile justice matters, AI and data privacy, and local government and utility regulation. Several bills were converted to two-year bills to continue discussion.
Throughout the hearing, the committee repeatedly voted on bills by A roll call or B roll call, often with Republicans not voting on amended measures. Some bills were advanced with notable amendments, such as narrowing scope, removing appropriations, delaying implementation, or striking costly provisions. The committee also approved a number of committee bills and omnibus measures, including emergency management, judiciary, insurance, and water-related bills.
At the end of the hearing, the chair stated that the committee had moved 435 bills to the Assembly floor, either as do pass or do pass as amended, and adjourned the meeting.
FL
Transcript Highlights:
- And this bill simply adds Duchenne muscular dystrophy to the newborn screening panel that is done routinely
- Mainly, Duchenne muscular dystrophy. Okay, thank you for that.
Summary:
The committee took up a large health policy agenda. SB 1568 on electronic prescribing was explained as a federal conformity measure, but members raised concerns about preserving patients’ ability to obtain paper prescriptions and about exemptions for emergency, hospice, and other situations. Emergency physicians testified in support of e-prescribing but asked for flexibility, and the bill was reported favorably despite Senator Harrell’s opposition. SB 1606 on patient access to records sought to standardize record-production timelines and require electronic delivery when available; after an amendment correcting a drafting error, the bill drew concerns about HIPAA, behavioral health confidentiality, and the distinction between personal and legal representatives, and it was reported unfavorably as a committee substitute.
The committee then approved SB 1346 on fentanyl testing, with a technical amendment, to require hospitals and campus emergency departments to test for fentanyl in urine testing for suspected overdose or poisoning. SB 1224 on administration of controlled substances by paramedics was amended to clarify language and reported favorably. SB 656 on health care billing and collection activities was substantially revised by strike-all amendment to allow sale of medical debt to third parties under new limits, including no interest or fees and return of debt if charity care applies; it was reported favorably as a committee substitute. SB 68 expanded health facilities authority financing to include not-for-profit LLCs and parent companies, and SB 524 added Duchenne muscular dystrophy to the newborn screening panel; both were reported favorably.
Later, the committee approved SB 1842 on out-of-network referrals after multiple amendments, requiring providers to verify network participation at the point of service and notify patients in writing, though several members and physicians warned it could burden providers and increase workload. The committee also advanced proposed committee bill SB 7028, which revises the Casey DeSantis Cancer Research Program, adds oversight and reporting requirements, creates a pediatric cancer research incubator, and establishes the Bascom-Palmer VisionGen initiative; cancer center representatives testified in strong support, and the bill was reported favorably as a committee bill. SB 172 on specialty titles and designations was amended to clarify enforcement and was reported favorably after supporters said it would prevent misleading use of specialist titles, while opponents argued it could confuse practitioners’ titles. Finally, SB 1690 on surrendered infants was reported favorably after supporters said it would codify and expand safe-haven baby box procedures and opponents raised safety concerns about the devices. The committee also noted SB 1606 remained pending for reconsideration next week before adjourning.
AZ
Arizona 2026 Regular Session
02/18/2026 - Senate Health and Human Services
Health and Human Services
Transcript Highlights:
- All of the members, we have been working, Senator Shope has been working diligently with the Duchenne
- muscular dystrophy and making sure that we're doing the genetic testing so that we can get those kiddos
- They were going to get price gouged to the tune of $30,000 to try and save their son, who has Duchenne
- muscular dystrophy, which is...
- muscular dystrophy, which is egregious.
Bills:
SB1014, SB1094, SB1146, SB1177, SB1192, SB1194, SB1214, SB1372, SB1390, SB1398, SB1399, SB1494, SB1557, SB1561, SB1564, SB1602, SB1603, SB1621, SB1628, SB1629, SB1713, SB1752, SB1776, SB1813, SB1814, SB1821
Keywords:
gender transition, gender detransition, health insurance, medical procedures, insurance claims, official documents, Arizona law, gender reassignment, civil liability, minors, medical consent, detransition, dependent children, foster care, periodic review, court hearings, child welfare, public funds, prohibition, Arizona legislation
TX
Transcript Highlights:
- Friend, a nonprofit organization in Longview that brings awareness to families affected by Duchin muscular
- dystrophy.
- Finn's Friend was created in 2020 after Finn was diagnosed with Duchenne muscular dystrophy.
MO
Missouri 2026 Regular Session
Emerging Issues Mar 9th, 2026
Emerging Issues and Professional Registration
Transcript Highlights:
- He has Duchenne muscular dystrophy, is 24 years old, and knows that he could die at any moment.
- He was born with Duchenne.
- When he was diagnosed with Duchenne, there were no FDA-approved treatments.
Summary:
The committee first heard House Bill 3423 from Rep. Darren Chappell, which would require judges in Missouri courts of record to file annual financial disclosure statements, bar judges from hearing cases involving people who have given them money, and extend similar disclosure rules to members of judicial nominating commissions. Chappell framed the bill as a transparency and ethics measure. Business groups supported the proposal, but judges, bar groups, and trial and defense lawyers opposed it, arguing existing judicial ethics rules already address gifts and recusals, that the bill is overly broad in covering “anything of value,” and that it could create unintended consequences, including strategic donations to force recusal and reduced public access to judicial financial disclosures. The Supreme Court’s representative said the bill should be read alongside the full Code of Judicial Conduct and offered to provide the committee with that material. No vote was taken.
The committee then heard House Bill 2922 from Rep. Jeff Myers, which would align Missouri’s right-to-try law with federal law by extending access from terminal illness to debilitating conditions and by addressing the use of Schedule I drugs in that framework. Myers said the bill is intended to help ensure access to emerging treatments and has passed in various forms in prior sessions. There was no opposition testimony, and the hearing concluded without action.
Next, the committee heard House Bill 2643, also from Rep. Senate, the “Hope for Missouri Patients Act,” which would expand right-to-try access for individualized treatments such as gene therapies, enzyme replacement therapies, and substrate reduction therapies for patients with rare or debilitating diseases. Supporters, including the Goldwater Institute, a parent of a child with a rare disease, and Americans for Prosperity, said the bill could help patients access customized treatments sooner and reduce red tape. The sponsor and witnesses emphasized that the bill would not require insurance coverage and is meant to help patients who cannot wait for lengthy clinical trial or FDA pathways. No opposition testimony was offered.
Finally, the committee heard House Bill 3204 from Rep. Senate, which would create a tax credit to encourage private donations to prevention resource centers that work on substance misuse prevention. Supporters from prevention organizations and advocacy groups said the credit would strengthen local prevention coalitions, reduce future treatment and criminal justice costs, and stabilize funding for services such as school education, early intervention, and suicide prevention. One opponent warned that Planned Parenthood could qualify as a prevention resource center and receive tax credits, but supporters said they had no concern about that. The hearing ended with no vote or other committee action, and the committee adjourned.
TX
Transcript Highlights:
- SB 1044 by Parker, relating to newborn screening test for Duchenne muscular dystrophy. Mr.
- Senate Bill 1044 adds screening for Duchenne muscular dystrophy to the newborn screening program at the
- SB 1044 by Parker, relating to newborn screening test for Duchenne muscular dystrophy. Mr.
- Senate Bill 1044 adds screening for Duchenne muscular dystrophy to the newborn screening program at the
Summary:
The House convened with a quorum present, heard an invocation and pledges, received Senate messages, and adopted several procedural motions allowing committees to meet during the session and postponing or scheduling certain committee hearings. Members also observed a memorial recognition for Wood County Deputy Sheriff Melissa Pollard, who died in the line of duty, and adopted a resolution honoring her service. The chamber then adopted House Resolution 897 recognizing May 6, 2025 as Golf Day in Texas and House Resolution 1063 recognizing Dallas Housing Coalition Advocacy Day; additional recognitions highlighted Mental Health Awareness Month and tardive dyskinesia awareness, The Woodlands’ 50th anniversary, Alzheimer’s advocacy, student athlete Gator Young, an intern in Rep. Leo-Wilson’s office, and educator Jessica Lopez.
The House spent much of the day on third-reading consideration of a long calendar of bills. Among the measures passed were HB 24 on zoning protest procedures, HB 3800 creating a health care workforce advisory board, HB 42 on higher education appropriations, HB 129 restricting contracts with foreign adversary companies, HB 677 on county elections administrator political activity, HB 668 on license-to-carry renewal procedures, HB 2128 directing a rural firefighting study, HB 2038 expanding physician licensing options, HB 2316 on election result reporting, HB 3686 on retired peace officer ID cards, HB 2563 creating a prescribed burn manager self-insurance pool, HB 1160 increasing penalties for assaults on utility workers, HB 3883 on major events funding, HB 2788 protecting fraud-detection information, HB 2663 on inactive well plugging extensions, HB 3305 extending a county health provider participation program, HB 3474 on pension reporting, HB 1105 expanding tuition exemptions for certain paramedics, HB 3490 on closed meetings with internal auditors, HB 3597 on child care facility notice thresholds, HB 1295 on health literacy planning, HB 3512 on AI training for government employees, HB 3783 on court-ordered counseling, HB 2017 on intoxication manslaughter penalties, HB 3010 on rural disaster recovery, HB 3112 on cybersecurity-related public information and meetings, HB 4215 on delivery network companies, HB 3223 on construction claims limitation periods, HB 3464 on controlled substances in correctional facilities, HB 3120 on residential child detention facilities, HB 4214 on public information, HB 481 on trade secret sealing, HB 4783 on opioid antagonist program reporting, HB 4063 on unilateral memoranda of contract, HB 2783 on county employee deferred compensation, HB 5085 on seed banks, HB 2510 on assisted living facility operations, HB 3426 on digital driver’s licenses, HB 4361 on emergency notifications at higher education institutions, HB 1169 on oil and gas infrastructure protection, HB 2516 on Medicare supplement eligibility for Texans under 65, HB 3560 on hospital staff background checks, HB 3860 on occupational licenses for inmates, HB 3146 on SOAH hearings, HB 184 on loan repayment for border prosecution attorneys, HB 198 on firefighter cancer screenings, HB 247 on border security infrastructure taxation, HB 367 on excused absences for students with severe illnesses, HB 449 on deepfake sexually explicit images, HB 1778 on human trafficking and related offenses, HB 514 on maternal health workforce outreach, HB 632 on pharmacy regulation, HB 2582 on victim parole information, HB 766 on precinct chair ballot applications, HB 2715 on suspension/removal of officials, HB 2712 on water and sewer utility test years, HB 3069 on transmission projects, HB 3505 on health provider participation districts, HB 1269 on plant disease and pest prevention grants, HB 4224 on access to health care records, HB 5032 on historical documents in the Capitol complex, HB 2240 on void marriages, HB 5180 on diploma designation, HB 3348 on health provider participation programs, HB 4668 on PUC authority to retain assistance, HB 4665 on child care training providers, HB 3395 on beneficiary designation for manufactured homes, HB 3157 on interim electric utility rates, HB 4395 on electronic submission of public securities records, HB 4325 on bribery civil penalties, HB 4386 on annuity replacement transactions, HB 4273 on Medicaid fraud-related unlawful acts, HB 2760 on judicial review of unemployment decisions, HB 2820 on charitable bingo operating capital, HB 1828 on legislative leave for correctional officers, and a series of Senate bills including SB 2349, SB 1268, SB 610, SB 1577, SB 1369, SB 2032, SB 1057, SB 1044, SB 922, SB 1759, SB 1143, SB 1506, SB 1403, SB 2361, SB 870, SB 372, and SB 72. Several bills drew debate or amendments, including HB 24, where a germane point of order was sustained against an amendment, and HB 198, HB 3348, and SB 2361, which were amended before passage.
Most measures passed by wide margins, though some drew notable opposition, including HB 3883, HB 514, HB 1295, HB 184, SB 1143, and others. The House also postponed further consideration of HB 4700 until the end of the day and HB 24 until 1 p.m., and it granted permission for committees to meet during the House session and for the Calendars Committee to meet that morning.
AZ
Arizona 2026 Regular Session
02/18/2026 - Senate Health and Human Services
Senate Health and Human Services COR
Transcript Highlights:
- All of the members, we have been working, Senator Schope has been working diligently with the Duchenne
- muscular dystrophy and making sure that we're doing the genetic testing so that we can get those kiddos
- were going to get price gouged to the tune of $30,000 to try and save their son, who has Duchenne's muscular
- dystrophy, which is...
- To try and save their son, who has Duchenne's muscular dystrophy, which is egregious.
Summary:
The committee approved the minutes and then took up a large agenda of health-related bills. SB 1214, the Arizona Stem Cell Therapy Act, drew extensive testimony from supporters who said it would create guardrails for regenerative medicine, protect patients, and encourage biotech investment, while opponents argued it was tied to abortion politics and imposed harsh penalties. The bill passed on a 4-3 vote. SB 1194, which would prohibit health professionals and institutions from denying care based on vaccination status, also passed 4-3 after testimony from supporters framing it as an access-to-care and religious-freedom measure and opponents warning it would interfere with private practice policies and parental choice. SB 1814, creating a study committee on substance use disorder treatment standards and oversight, passed unanimously 7-0. SB 1602, increasing stipends for kinship foster parents, passed as amended 7-0, and SB 1603, expanding child-only cash assistance eligibility, also passed as amended 7-0.
The committee then considered several bills focused on gender-related care and public funding. SB 1177, which bars public monies from funding gender transition procedures and makes intentional violations a felony, passed 4-3 amid testimony that it protects taxpayers and counterarguments that it is discriminatory and unsupported by evidence. SB 1014, requiring insurance coverage for detransition procedures when transition care is covered and directing data reporting on transition and detransition, passed 4-3 after supporters said it would help detransitioners and collect needed data, while opponents argued it would chill providers and target transgender patients. SB 1094, creating civil liability for physicians who perform irreversible gender reassignment surgery on minors, was heard with testimony from supporters citing malpractice concerns and detransitioner harms and from opponents saying it would create a hostile environment for providers and treat trans patients differently; the transcript cuts off before the vote is shown. SB 1752, which classifies commercial harvesting or sale of mescaline as a felony while preserving bona fide religious use defenses, passed unanimously 7-0.
Later, SB 1628, requiring insurers to report claims-denial and prior-authorization data and DIFI to publish standardized reports, passed unanimously 7-0 after supporters emphasized transparency and opponents called it redundant to federal reporting. SB 1629, requiring AHCCCS managed care organizations to give advance notice and network-adequacy documentation before terminating high-volume providers without cause, also passed 7-0; supporters said it would prevent patients from losing access to behavioral health care, while health plans and Access said existing oversight already covers much of this and warned the bill could slow necessary network changes. Throughout the meeting, the committee repeatedly adopted motions for due-pass recommendations and, where applicable, amendments, with several bills passing on party-line or near-party-line votes.
MO
CA
California 2025-2026 Regular Session
Assembly Appropriations Committee May 23rd, 2025
Appropriations
FL
Transcript Highlights:
- What this bill does is provide that we will also test for Duchenne muscular dystrophy.
- What this bill does is simply add Duchenne muscular dystrophy.
- And what this bill does is simply add Duchenne muscular dystrophy to the test that we will be looking
Summary:
The Senate convened with a quorum, opened with prayer and the Pledge, and heard several member introductions and recognitions. The Rules Chair moved CS/CS/SB 622 to the end of the special order calendar, which was adopted without objection. SB 80 on state land management was temporarily postponed, as were later bills SB 716 and CS/CS/CS/SB 1348.
The chamber then took up a series of bills, often substituting House companions and adopting amendments before final passage. Measures approved included a comprehensive waste reduction and recycling plan (HB 295, 38-0), mitigation banking and land development changes with a phosphate mining lands amendment (CS/CS/SB 492, 35-3), aggravated animal cruelty with a searchable FDLE database and sentencing multiplier (HB 255, 37-0), the Spectrum Alert for missing children with autism and related training/funding (HB 711, 37-0), newborn screening for Duchenne muscular dystrophy (CS/CS/HB 1089, 36-0), and revisions to the My Safe Florida Condominium Pilot Program to expand eligible mitigation projects and adjust approval thresholds (CS/CS/HB 393, 37-0).
The Senate also passed workforce education legislation allowing charter schools access to grant funding and expanding money-back guarantees (HB 1145, 37-0), a statewide study on automation and workforce impact (HB 827, 35-0), parole guideline revisions (HB 181, 37-0), court-appointed psychologist procedures in family law cases (HB 901, 37-0), sexual cyber harassment protections covering digitally forged intimate images (HB 1451, 37-0), a home health aide program for medically fragile children with training and reimbursement provisions (CS/CS/SB 1156, 37-0), substance abuse and mental health care changes including 988 oversight and involuntary examination procedures (HB 1091, 37-0), a feasibility study for a statewide pond data database (HB 1359, 37-0), and Department of Law Enforcement housekeeping changes and retired police dog reimbursements (HB 1053, 37-0). The most extensive debate centered on the charter schools bill (HB 443), which expanded charter autonomy, reporting parity, enrollment flexibility, and governance rules; after a delete-all amendment and a friendly amendment, it was placed on the third-reading calendar rather than immediately voted on. Several bills were briefly discussed with concerns about transparency, accountability, funding, and constitutional issues, but all bills brought to a vote during this segment passed.