Video & Transcript Research : 'epilepsy'
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FL
Florida 2025 Regular Session
January 15, 2025 - 03:30 PM
Transcript Highlights:
- He has hydrocephalus and epilepsy, and as a result, he has developmental disabilities and is mostly nonverbal
Summary:
The subcommittee held its first meeting of the 2025-2026 term, took attendance, confirmed a quorum, and heard introductory remarks from members and staff. Chair Anderson outlined the subcommittee’s jurisdiction over access and affordability issues, including health facility regulation, insurance, Medicaid, CHIP, and state employee health coverage. The main agenda item was an update on implementation of HB 391, which created a family home health aide program for medically fragile children. Representative Tramont, the bill sponsor, explained that the law was intended to let trained family caregivers be paid through Medicaid to care for their children, reduce reliance on private duty nursing, and relieve families. He and several members expressed frustration that implementation had taken nearly two years and that families still faced barriers.
Deputy Secretary Brian Meyer of AHCA and Bridget Royce of DCF said the program was implemented October 1, 2024, with billing available, but no home health agencies had yet launched the required 80-hour training program and no claims had been paid. They described the program’s requirements, including agency employment, background screening, training, a $25-per-hour Medicaid rate paid to the agency, and an annual assessment report. A major issue discussed was that income earned by family caregivers counts toward Medicaid eligibility and could cause families to lose coverage. AHCA and DCF outlined two possible fixes that would require CMS approval: disregarding the income for eligibility purposes or treating the child as a family of one. Members and public witnesses strongly urged changes to avoid forcing families to choose between income and coverage. Several providers said they had begun preparing training programs, but asked for clearer approval processes and more patient-specific training requirements.
The committee then heard extensive public testimony from parents and caregivers of medically fragile children, who described the financial, emotional, and logistical strain of caring for children with severe disabilities and argued that the bill should be expanded to include Florida KidCare families and others in the coverage gap. They also raised concerns about the eight-hour-per-day limit, low pay, and the need for simpler rules and direct support. Home health providers and associations supported the concept but asked for modifications, including more targeted training and clearer implementation guidance. The meeting then shifted to a second agenda item on the Andrew John Anderson Rapid Whole Genome Sequencing Program, which was funded in the 2023 budget. Deputy Secretary Meyer said the program has been implemented since January 1, 2024, but utilization has been lower than expected, with only about 60 claims paid and many denials occurring through managed care. Public testimony from a lab, a hospital, and a pediatric rare disease expert said the program is clinically valuable and cost-saving, but managed care billing barriers, prior authorization issues, and DRG-related denials are limiting access; they urged direct billing to Medicaid and possible expansion to all newborns.
MN
MA
Massachusetts 2025-2026 Regular Session
Joint Committee on Transportation Jun 21st, 2026 at 11:00 am
Joint Committee on Transportation
Transcript Highlights:
- kind of flicker poses significant health and safety risks, including for those with photosensitive epilepsy
Summary:
The hearing focused on a broad package of traffic and roadway safety bills, with repeated emphasis on work zone safety, the Move Over law, automated enforcement, and protections for pedestrians, cyclists, and roadside workers. MassDOT Highway Administrator Jonathan Gulliver strongly supported a bill allowing MassDOT vehicles to use blue flashing lights in limited work-zone settings, arguing that blue lights reliably slow drivers and could help address a rise in work-zone crashes and fatalities. District Attorney Marion Ryan, State Police representatives, and police association leaders supported a separate Move Over bill that would raise penalties for repeat violations and add an education component, citing officers and workers killed or injured roadside and saying the goal is deterrence and safer driver behavior rather than revenue.
A major portion of the hearing was devoted to automated enforcement bills for speed and red-light violations, including proposals for school zones, work zones, and broader local options. Senator Brownsberger and Senator Jalen argued that automated enforcement is needed because speeding and red-light running remain common while police traffic enforcement has declined, and they described the bills as civil, opt-in tools that issue tickets to vehicles rather than drivers. Supporters from WalkMass, T4MA, Safe Roads Alliance, MassBike, Medford officials, and other advocates cited fatal pedestrian crashes, neighborhood speeding, and the need to protect vulnerable road users, while also pointing to privacy and equity safeguards in the bills such as limits on photographs, data retention rules, public reporting, and local approval processes.
Several local and advocacy witnesses backed targeted camera programs. Senator Lovely and Representative Cruz supported a Salem school-zone camera bill, describing repeated violations around schools and buses. Medford officials and school-safety advocates supported a similar statewide camera bill, citing recent pedestrian deaths and dangerous cut-through traffic. AAA Northeast and the Massachusetts Aggregate and Asphalt Pavement Association also supported targeted enforcement in work zones and school zones, while urging public education and warning periods. Some witnesses raised concerns about the color of lights for highway workers, with State Police representatives preferring green over blue to avoid confusion with law enforcement, and committee members asked about constitutional issues, surchargeability, and possible targeting concerns. No votes were taken during the hearing.
MA
Massachusetts 2025-2026 Regular Session
Joint Committee on Financial Services Jun 21st, 2026 at 10:30 am
Joint Committee on Financial Services
Transcript Highlights:
- We've even spoken to individuals with epilepsy who have gone several weeks without access to their seizure
Summary:
The committee held a lengthy hearing on a large docket of pharmacy and drug-pricing bills, with most testimony focused on PBM reform, 340B drug discount program protections, specialty medication access, and medication adherence. Chair James Murphy and Senator Paul Feeney opened the hearing and took testimony from legislators, patient advocates, pharmacists, health center leaders, industry representatives, and policy groups. Several speakers described delays, denials, high out-of-pocket costs, and pharmacy closures tied to PBM practices, while others emphasized the importance of community health centers and independent pharmacies in serving patients.
On the 340B program, supporters including Senator Eldridge, Senator Payano, Community Care Cooperative, Fenway Health, the Massachusetts League of Community Health Centers, and several community health center leaders argued that bills such as H. 1107 and S. 819 would stop discriminatory PBM and manufacturer practices, preserve contract pharmacy access, and protect safety-net providers that say they reinvest savings into care, pharmacy expansion, interpreter services, behavioral health, and other services. Opponents including PhRMA, the Community Liver Alliance, and a public policy analyst argued the program lacks transparency and accountability, has grown beyond its original purpose, and may benefit large hospitals and for-profit entities more than low-income patients. They urged more reporting and oversight rather than expanding protections.
On PBM reform, testimony supported bills including H. 1157, H. 1234, S. 724, S. 831, and related measures that would require rebate pass-through, ban spread pricing, limit steering to PBM-owned pharmacies, and improve reimbursement for community pharmacies. Independent pharmacists and patients said current PBM practices raise costs, create administrative burdens, and threaten access to local pharmacies. PCMA, representing PBMs, opposed the reforms, arguing PBMs lower costs, that plan sponsors choose to contract with them, and that the Health Policy Commission and CHIA should complete their ongoing study before new mandates are adopted. The committee also heard support for H. 1322 and S. 734 on specialty medications, and for H. 781 and H. 1305 on medication synchronization to improve adherence. No votes or formal actions were taken during the hearing.
MA
Massachusetts 2025-2026 Regular Session
Joint Committee on Labor and Workforce Development Jun 21st, 2026 at 10:00 am
Joint Committee on Labor and Workforce Development
Transcript Highlights:
- They manage his life-threatening epilepsy and his very dangerous behaviors, but most of all they give
Summary:
The Joint Committee on Labor and Workforce Development held a hybrid public hearing with testimony on a wide range of labor, workforce, unemployment insurance, apprenticeship, disability services, farm labor, hospital staffing, and workplace harassment bills. Chairs Jake Oliveira and Paul McMurtry outlined hearing procedures, limited testimony to two minutes, and noted written testimony would be accepted after the hearing. Committee members and staff were introduced throughout the session as witnesses arrived in person or remotely.
A major portion of the hearing focused on unemployment insurance legislation. Greater Boston Legal Services, the AFL-CIO, and Rep. Joan Meschino supported bills to adjust UI eligibility for workers with fluctuating schedules and to streamline waivers and write-offs for non-fault overpayments, arguing the current system unfairly denies benefits or burdens workers who were not at fault. They also backed bills calling for more oversight and resources for the Division of Unemployment Assistance, citing persistent delays in benefit payments. NFIB opposed the UI changes, warning that the trust fund is headed toward insolvency and arguing the bills would worsen the system’s finances. Rep. Meschino and committee members emphasized that the proposals were meant to protect good-faith claimants and did not apply to fraud.
Another large set of bills addressed wages, workforce development, and working conditions. Testimony supported raising and modernizing direct care wages to address severe staffing shortages in human services and disability services, with advocates from the Massachusetts Developmental Disability Council, The Arc of Massachusetts, parents of adults with disabilities, and a direct care worker describing how low pay and turnover harm people needing support. The committee also heard support for apprenticeship-related bills from the AFL-CIO and the Carpenters, while Associated Builders and Contractors opposed mandatory apprenticeship ratios and urged changes to align them with licensing laws. Farm worker advocates supported a bill to raise farm labor standards, including minimum wage, paid breaks, and paid time off, while the Farm Bureau opposed parts of it beyond the minimum wage increase.
The hearing also featured testimony on workplace harassment training, overtime protections, hospital mandatory overtime, suicide prevention signage on construction sites, and a proposal to update the Massachusetts Medical Society’s mission language from “citizens” to “people.” Labor groups, educators, and compliance trainers strongly supported mandatory annual sexual harassment training, saying it would improve workplace culture and reduce harm. SEIU 1199 supported extending the hospital nurse mandatory overtime ban to the broader hospital workforce. Witnesses on the suicide prevention bill described personal losses in construction and recovery work and urged posting 988 information on job sites. The committee took no votes during the hearing; witnesses repeatedly asked for favorable reports, and members asked follow-up questions on UI calculations, apprenticeship ratios, small-business impacts, and emergency exceptions for hospital staffing.
FL
Transcript Highlights:
- Born with epilepsy all my life, I was told that I could not or I should not have children.
Summary:
The committee first considered the confirmation of Dr. John Lattell to the Florida Board of Medicine. In questioning, senators focused heavily on his views on abortion, vaccines, ivermectin, hormonal birth control, and the role of CDC/FDA guidance in board discipline cases. Dr. Lattell said the board should apply Florida statutes, described himself as strongly pro-life and skeptical of some federal health guidance, and said he would be sympathetic when judging fellow physicians because of his own experience in practice. Supporters praised his medical background, military service, and family medicine experience, while opponents argued his stated views could affect his ability to fairly discipline other doctors. The committee voted 5-2 to recommend confirmation, with Senators Polsky and Rouson voting no.
The committee then took up the confirmation of Taylor Hatch as Secretary of the Florida Department of Children and Families. Hatch outlined her background at DCF and APD and described department priorities including streamlining services, improving child welfare and behavioral health systems, expanding peer support, and reducing SNAP error rates. Members asked detailed questions about Hope Florida, the number and role of Hope Navigators, agency responsiveness on bill analyses, and accountability for community-based care contractors. Hatch said Hope Florida is a partnership-based navigation effort aimed at self-sufficiency, that 143 Hope Navigators are in place, and that the department is working to improve transparency and oversight through contracts, audits, and a proposed funding model.
Senators also pressed Hatch on the Hope Florida Foundation’s compliance history and on forensic audits of community-based care agencies, especially Northwest Florida Health Network. Hatch said the foundation is now in compliance and under audit, and that the contractor had completed corrective actions and was operating within current accountability limits. She said DCF had not yet conducted new forensic audits under her tenure but was preparing another round and was considering using contracted-services dollars to support that work. The discussion ended with continued questioning on oversight, staffing, and whether the agency could provide more formal bill analyses going forward.
TX
Transcript Highlights:
- know someone personally that has mental illness, schizophrenic, rheumatoid. go to arthritis, lupus, epilepsy
Bills:
HB 3772, HB 1656, HB 4504, HB 1896, HB 4420, HB 4421, HB 4076, HB 3708, HB 2806, HB 3540, HB 1586, HB 5459, HB 4553, HB 4535, HB 3811, HB 3749, HB 4255, HB 4051, HB 5098, HB 3554, HB 4539, HB 5274
Keywords:
e-cigarettes, health and safety, regulations, directory, penalties, regulation, certification, compliance, manufacturers, FDA, nicotine, mental health, emergency detention, paramedic authority, mental illness, healthcare facility, public health, covenants not to compete, health care practitioners, physicians
MA
Massachusetts 2025-2026 Regular Session
Joint Committee on the Judiciary Jun 21st, 2026 at 01:00 pm
Joint Committee on the Judiciary
Transcript Highlights:
- disorder is a chronic relapsing brain disease, not a moral failure, like diabetes, hypertension, or epilepsy
- , not a moral failure, like diabetes, hypertension, or epilepsy.
Summary:
The Joint Committee on the Judiciary held a lengthy hearing on several juvenile justice and parole-related bills, with much of the testimony focused on H. 2051/S. 1087 to end lifetime parole for juveniles and emerging adults, and H. 1923 to raise the age of juvenile court jurisdiction to include 18-, 19-, and 20-year-olds. Chairs Brandy Fluker-Reid and Lydia Edwards opened the hearing by noting the large number of bills and witnesses, the need to keep testimony moving, and special procedures for incarcerated witnesses and sensitive testimony. They also acknowledged the historic nature of the hearing being chaired by two Black women attorneys. No votes were taken during the hearing itself.
Many incarcerated speakers and advocates supported ending lifetime parole, arguing that young people can change, that lifetime supervision creates constant fear of technical violations, and that it undermines rehabilitation, family stability, employment, and reintegration. Several testified about their own trauma, youth, and growth in prison programs, while others emphasized the costs of decades of supervision and the racial disparities in the system. Support also came from elected officials, UTEC, the Transformational Prison Project, United Way, CPCS’s Youth Advocacy Division, the Massachusetts Coalition to Prevent Gun Violence, and others, who said juvenile systems are better suited to developmentally appropriate treatment and that the bills would improve public safety and reduce recidivism.
There was also opposition, including testimony from family members of a murder victim who argued that lifetime parole should remain for serious violent crimes and that some offenders are not sufficiently rehabilitated. One virtual witness described a family tragedy involving the kidnapping and murder of her infant nephew and warned that ending lifetime parole could remove needed long-term supervision for dangerous offenders. In addition to the juvenile justice bills, the committee heard testimony on H. 1867, a bill related to continuing care for severe mental illness, and H. 2063, which would increase penalties for assaults on correction officers and other prison staff; the correction officers’ union supported H. 2063 and related safety bills. The hearing continued with many more witnesses and bill topics, but no final committee action was announced in the portion provided.
CA
California 2025-2026 Regular Session
Assembly Budget Subcommittee No. 2 on Human Services May 21st, 2025
Transcript Highlights:
- So I currently care for my uncle Ernie, who suffers from epilepsy. He requires 24-hour monitoring.
- So I currently care for my uncle Ernie, who suffers from epilepsy. He requires 24-hour monitoring.
Summary:
The hearing began with opening remarks on the Governor’s May Revision for child care and human services, with committee members and advocates stressing that the budget should not be balanced on the backs of low-income families, children, and providers. Legislative members and public witnesses strongly opposed the proposed suspension of the child care COLA, reductions to the Emergency Child Care Bridge Program, and the lack of codified rate reform tied to the alternative methodology. Several speakers also urged more support for providers affected by the Eaton fire and other disasters, and called for child care to be funded at the true cost of care and for additional slots to be restored.
Administration, LAO, and Department of Education staff described the child care proposal as maintaining existing funding levels while adding administrative resources to prepare for federally required prospective payment changes and single-rate reform. The administration said the May Revision would suspend the 2025–26 COLA and reduce Bridge Program funding to align with utilization, while the LAO raised questions about the size and purpose of the proposed rate-reform and prospective-payment funding and recommended rejecting a Department of Technology exemption. CDE supported continued early education investments but said it would need additional resources if prospective pay were extended to state preschool, and it objected to a proposed reallocation of preschool funds for inclusive education grants.
The committee then moved to the IHSS portion of the May Revision. DSS outlined five major proposals: capping provider work hours at 50 per week, eliminating IHSS for undocumented adults age 19 and older, shifting certain Community First Choice reassessment penalties to counties, reinstating the Medi-Cal asset test as a conforming IHSS reduction, and automating the termination of IHSS when Medi-Cal eligibility ends. DSS also discussed funding to implement a federal HCBS access rule and a separate reassessment of IHSS administrative methodology that found counties would need additional administrative funding. Finance said the proposals were intended to slow program growth and improve sustainability, while the LAO said it was still analyzing the package and raised concerns about implementation, county workload, and the potential loss of services.
Committee members and public commenters criticized the IHSS cuts, especially the overtime cap and the elimination of services for undocumented adults and people affected by the asset test. Advocates argued that IHSS workers and recipients depend on these services, that county administration is already underfunded, and that the proposals could destabilize vulnerable consumers. The chair closed by saying the committee would continue to fight for child care and would not pause on child care, and the meeting recessed before moving on to the remaining May Revision items.
TX
Transcript Highlights:
- In 2015, Texas passed the Compassionate Use Act to allow patients with epilepsy to access low THC cannabis
- When we went down this road, it was for children with severe epilepsy. And that's why the program.
Bills:
HB46, HB35, HB4490, HB4454, HB2188, HB3078, HB4743, HB2556, HB46, HB5342, HB4783, HB3785, HB5278, HB1639, HB2581, HB4224, HB4070, HB4099, HB4882, HB3794
Keywords:
local government spending cap, expenditure limit, political subdivision, property tax, ad valorem tax, budget cap, taxpayer protection, spending restraint, inflation adjustment, population growth, voter approval, supermajority vote, county budget, municipal budget, school district finance, junior college district, hospital district, special district, attorney general enforcement, local fiscal limits
DE
Delaware 2025-2026 Regular Session
Senate Legislative Session - Session 2 - 38th Legislative Day Jun 18th, 2026
Delaware Senate Floor Meeting
Transcript Highlights:
- However, the IDA estimates that 20% of all Americans live with invisible disabilities, such as epilepsy
Summary:
The Senate reconvened, read committee reports, and assigned House Bill 89 with House Amendment 1 and House Bill 393 with House Amendment 1 to the Senate Finance Committee. It then adopted Consent Calendar 64, which included resolutions recognizing Take Our Children to Work Day, Juneteenth, National Farmers Day, Invisible Disabilities Week, Stonewall Uprising Remembrance Day, National Nonprofit Day, and two property-assessment working group resolutions. The calendar passed by a unanimous roll call, and the chamber heard remarks supporting Juneteenth, Delaware agriculture, invisible disabilities awareness, and the nonprofit sector.
The Senate passed the fiscal year 2026 and 2027 revenue estimates in Senate Joint Resolution 16 and Senate Joint Resolution 17, and approved the fiscal year 2027 operating budget in Senate Bill 335 after extended debate on budget growth, recurring costs, health care, education, public safety, retiree obligations, and fiscal restraint. It also passed Senate Bill 336, the one-time supplemental appropriation bill, which includes one-time investments such as a $100 million transition toward a weighted education funding formula, election support, early childhood education, classroom projects, lead remediation, and campaign finance modernization. Several members praised the budget process and staff, while others cautioned against future spending growth.
Among policy bills, the Senate passed House Bill 369 to codify the Office of Gun Violence Prevention and Community Safety, House Bill 268 to increase penalties for assaulting postal workers, House Bill 374 to require workforce reporting on large public works projects, Senate Bill 253 with House Amendment 1 to standardize school bullying parental-notification procedures, Senate Substitute 1 for Senate Bill 342 to modernize the Delaware Motion Picture and Television Development Commission, House Bill 402 to extend Clean Air Act Title V permit fees, and Senate Bill 346 with Senate Amendment 1 to streamline Environmental Appeals Board timelines. The Senate also began consideration of House Bill 293, which would add hate crimes to the Victims’ Compensation Assistance Program, but the transcript cuts off before its vote is shown.
LA
Transcript Highlights:
- In the last five years, there was a report about 20-year-olds who have a decreased incidence of epilepsy
Summary:
The Senate Committee on Health and Welfare met on May 13 with a quorum present and approved the prior meeting minutes. The committee first heard HB 971, which would equalize Medicaid reimbursement rates between independent clinics and hospital-owned rural health clinics; supporters said independent clinics are disadvantaged by a large payment disparity, and the bill was reported favorable without objection. The committee also recognized visiting Alpha Phi Alpha members and other guests during personal privilege remarks.
Members then considered HB 414, which would bar hiring certain health care workers and direct support professionals with serious disqualifying convictions from other states and address background-check issues for therapeutic group homes. After adopting three amendment sets, the bill was reported as amended. HB 740, creating an independent review process for Medicaid behavioral health claim disputes in the coordinated system of care, was amended to clarify applicability and CSOC definitions and then reported as amended. HB 288, which would place the term “miscarriage” alongside “spontaneous abortion” in medical documentation, drew emotional testimony from affected parents and advocates; the committee reported it favorable.
The committee also advanced several more bills: HB 405, updating the name of the national acupuncture certifying body, was reported favorable; HB 786, prohibiting extrapolation in certain managed-care claims recoupments, was reported favorable; HB 1095, allowing alternative backup power sources for nursing homes, was reported favorable; HB 403, raising the cottage food gross-sales cap, was amended from $50,000 to $150,000 and then reported favorable; HB 930, modernizing cosmetic-product regulation and creating a small-producer exemption, was reported favorable; HB 557, defining long-term pharmacies for policy purposes, was reported favorable; HB 779, on expedited partner therapy for sexually transmitted diseases, was reported favorable; HB 915, setting utilization-management timelines and standards, was reported favorable; HB 546, expanding criteria for peace officers to take someone into protective custody during a mental health crisis, was reported favorable; HB 796, creating a chiropractic preceptorship program, was reported favorable; and HB 933, authorizing commemorative birth certificates, was reported favorable.
The final major item was HB 1041, a “no-mandate” bill barring discrimination based on medical intervention status. The sponsor and Surgeon General said it was aimed at healthy, asymptomatic individuals and not at public health quarantine powers, but Senator Boudreaux objected to exemptions for schools and hospitals and offered an amendment to restore broader coverage. That amendment failed on a roll-call vote, and the bill remained under discussion as the transcript ended, with no final committee disposition shown in the excerpt.
LA
Transcript Highlights:
- In the last five years, there was a report about 20-year-olds who have a decreased incidence of epilepsy
Summary:
The Senate Committee on Health and Welfare met on May 13 and approved the minutes from the prior week before taking up a series of House bills, many of them with testimony from sponsors, agency officials, and stakeholders. Early action included HB 971, which would direct LDH to equalize Medicaid reimbursement rates between independent rural health clinics and hospital-owned rural health clinics; the sponsor described a significant payment disparity and the committee reported the bill favorably. The committee also deferred HB 1030 and HB 796 until the following week before moving to other items on the agenda.
Several bills dealing with Medicaid and provider regulation were advanced. HB 414, as amended, closes a loophole so health care providers cannot hire unlicensed workers with certain serious out-of-state convictions; amendments addressed effective dates, FBI background-check issues for therapeutic group homes, and delays for direct support professional applicants caused by minor record issues. HB 740, as amended, creates an independent review process for Medicaid claims disputes in the coordinated system of care for behavioral health providers, with amendments clarifying applicability dates and program definitions. HB 786, which prohibits extrapolation in managed care claims recoupments and requires recovery to be based on actual overpayments or underpayments, was also reported favorably. HB 915 set timelines and accountability standards for prior authorization and utilization management in Medicaid managed care and was reported favorably after testimony about delays in care.
The committee also heard and passed several bills affecting health professions and facilities. HB 405 simply updates the name of the national acupuncture certification body. HB 1095 allows nursing homes to use alternative power sources while keeping existing generator and fuel requirements. HB 557 defines long-term care pharmacies for policy purposes. HB 779 authorizes expedited partner therapy prescriptions for certain sexually transmitted diseases. HB 933 creates an optional commemorative birth certificate, with part of the fee going to the Office of Women’s Health. HB 796, carried by another representative for the author, establishes a chiropractic preceptorship program with on-site supervision requirements and was reported favorably after questions about student training and patient safety.
The committee also heard emotionally charged testimony on HB 288, which would place the term “miscarriage” alongside “spontaneous abortion” in medical documentation and patient communication. Several witnesses described the distress caused by current coding language, and supporters said the change would make records more compassionate and understandable; the bill was reported favorably. HB 403 increased the cottage food gross-sales cap, and after testimony from small producers and the committee’s discussion of other states’ higher limits, an amendment raised the cap to $150,000 before the bill was reported favorably. HB 930 modernizes cosmetic-product regulation and creates a small home-based producer exemption under a wholesale-sales threshold; it was also reported favorably. Finally, HB 1041, a no-mandate bill restricting discrimination based on medical intervention status, prompted extended debate over exemptions for schools, hospitals, and other entities, with one amendment failing on a roll-call vote and the discussion continuing over the scope of the bill and federal funding concerns.
CO
Colorado 2026 Regular Session
Colorado Senate 2026 Legislative Day 083 Apr 7th, 2026
Colorado Senate Floor Meeting
Transcript Highlights:
- Senate Bill 77 by Senator Judah and Representatives Gilchrist and Stewart concerning epilepsy-related
Summary:
The Senate convened, established a quorum, approved the journal, and received several committee reports. Health and Human Services reported appointments to the Commission on Aging and the Solid and Hazardous Waste Commission for consent-calendar confirmation, and also advanced or killed several bills, including favorable recommendations on SB 140, HB 1229, and HB 1244, while postponing indefinitely HB 1096 and SB 8. Business, Labor, and Technology reported SB 114 with amendments and a favorable recommendation to Appropriations. The chamber also adopted a motion to proceed out of order for resolutions and later for selected bills.
The Senate adopted SJR 19, which celebrates Colorado’s sister-state relationship with Taiwan, supports stronger trade and academic ties, backs a double-taxation agreement, and urges Taiwan’s participation in international organizations. The resolution was adopted 35-0, and the current roll call was added as co-sponsors. The Senate also passed consent-calendar HB 1234 on access to child abuse or neglect records unanimously.
On third reading, HB 1186 on bail bonding agents passed 34-1, and HB 1044 on maternal health equity passed 30-5. In Committee of the Whole, the Senate advanced a large consent calendar of technical and policy bills, including HB 1303, 1297, 1296, 1295, 1294, 1293, 1220, 1219, 1218, 1217, 1216, 1215, 1135, 1238, and 1079, all of which were adopted and ordered to third reading. The committee report was adopted 35-0.
Later, the Senate took up several House-amended Senate bills and concurred or re-passed them, including SB 77 on epilepsy-related mortality awareness, SB 31 on lawful use of a prescription drug product containing a Schedule I substance, SB 9 on charitable organizations for sales and use tax, SB 126 on teacher licensure for out-of-state applicants, and SB 53 on eligible mortgage borrowers. The chamber also passed HB 1311 on using a bond in lieu of retainage in construction contracts, HB 1107 on standardized information for medical-care facilities, and HB 1101 on adding critical-infrastructure-related offenses to commodity-metals crimes. The remainder of the calendar was laid over to April 7, 2026, and the Committee of the Whole report reflecting those actions was adopted 35-0.
AZ
Arizona 2026 Regular Session
01/28/2026 - Senate Health and Human Services
Health and Human Services
Transcript Highlights:
- We placed all kinds of people locked in institutions with epilepsy, you know, women whose husbands were
Bills:
SB1051, SB1114, SB1115, SB1122, SB1132, SB1162, SB1169, SB1171, SB1172, SB1173, SB1174, SB1175, SB1179, SB1188, SB1233, SB1236, SB1242, SB1316, SB1368
Keywords:
SB1051, Arizona hospitals, immigration status, patient intake, admission forms, registration forms, health care reporting, uncompensated care, emergency department, lawfully present, undocumented immigrants, noncitizen patients, hospital funding, Arizona Department of Health Services, ADHS, border security, health care institutions, patient privacy, medical access, immigration policy
Summary:
The Health and Human Services Committee approved the January 21 minutes and then heard a series of bills focused on developmental disabilities oversight, behavioral health fraud, AHCCCS operations, child safety, and state hospital capacity. SB 1179 would make the Developmental Disabilities Group Home Monitoring Program permanent and remove the appropriations contingency; Disability Rights Arizona and program managers testified that Commit had identified systemic care problems, while the sponsor said the work should continue. The bill received a 6-1 do-pass recommendation. SB 1114 would appropriate $1 million to the Maricopa County Attorney’s Office for behavioral health patient brokering investigations; Native advocates described widespread recruitment and exploitation of vulnerable people, especially Native Americans, and the bill passed 8-0. SB 1115 would prohibit AHCCCS from allowing remote work for Access employees; the sponsor argued in-person oversight was needed, while AHCCCS warned of space and staffing problems. It passed 4-3. SB 1051 would require hospitals to collect and report patients’ citizenship or immigration status for cost accounting; supporters called it a data-collection measure, while nurses and physicians said it would create fear and deter care. It passed 4-3. SB 1122, as amended, would replace prior authorization with 100% prepayment review for certain behavioral health services under the American Indian Health Plan, and passed 7-0 after AHCCCS said it had worked on the amendment. SB 1132, to appropriate unspecified funds for a new Arizona State Hospital wing, drew testimony from families and advocates describing severe shortages of state hospital beds and the need for more long-term treatment capacity; it passed 7-0. SB 1169, to fund graduate medical education and a new residency program, passed 6-0. SB 1171, requiring AHCCCS to check for dual enrollment in exchange plans and AHCCCS, passed 4-2-1 after AHCCCS said implementation would require system changes and costs. SB 1172, requiring more experienced DCS investigators for repeated abuse/neglect reports and court notification of hotline calls in dependency cases, passed 7-0. SB 1173, requiring behavioral health facility applicants, owners, and licensees to be U.S. citizens or lawfully present permanent residents with fingerprint clearance cards, passed 4-3 after an amendment clarifying the lawful-presence requirement.
NH
New Hampshire 2026 Regular Session
Commission to Study Costs of Special Education (06/02/2026)
Transcript Highlights:
- . >> So, um, some of the things that were identified in the article were ADHD, diabetes, epilepsy, um
- identified in the article were ADHD, identified in the article were ADHD, diabetes,<01:30:05.520>
epilepsy - c> a<01:30:06.639>
whole <01:30:06.800>bunch <01:30:06.960>of diabetes, epilepsy - , um a whole bunch of diabetes, epilepsy, um a whole bunch of different<01:30:07.360>
things, <
Summary:
The commission met to approve the May 18, 2026 minutes and then focused on how SB 57’s special education cost study should inform HB 1099, which creates a separate study committee on residential placements and related education costs. Members discussed sending the commission’s minutes and findings to that new committee, noting the short timeline for its work and the need to be specific about unresolved issues so the new group does not duplicate the same questions.
A major topic was the cost and responsibility for students placed at Spalding and similar residential programs, especially transportation and whether costs are paid through the Department of Education’s episode-of-treatment (EOT) fund, local districts, DHS, or Medicaid. Staff explained that for students with disabilities, EOT funds cover special education and transportation costs tied to the placement, while students without disabilities are handled through DHS care-management and best-interest meetings. Members raised concerns about whether some students at Spalding are receiving no schooling, whether transportation costs are substantial, and whether Medicaid reimbursement could offset some expenses.
The commission also discussed confusion over district responsibility when students placed in residential programs attend school in another district, using Winnisquam as an example. Several members said the receiving district was not notified that DHHS-approved programs could bring in additional students and costs, and they suggested DHHS or its care-management entity should notify both the district of residence and the receiving district when a program is approved. The group agreed this notification issue, along with transportation funding, privacy concerns in Medicaid-to-schools billing, and the distinction between special education placements, EOT placements, and other voluntary residential placements, should be passed to the HB 1099 study committee for further work.
MA
Massachusetts 2025-2026 Regular Session
Joint Committee on Housing Jun 21st, 2026 at 01:00 pm
Joint Committee on Housing
Transcript Highlights:
- Ten years after my injury, I was diagnosed with epilepsy that was uncontrollable even with medication
Summary:
The Joint Committee on Housing opened a hybrid hearing focused on housing production bills, with Chairs Julian Cyr and Rich Haggerty emphasizing Massachusetts’ housing shortage and the need to produce more than 200,000 units over the next decade. The committee then heard testimony on a wide range of proposals, including social housing, starter homes and the “missing middle,” accessory dwelling units (ADUs), single-stair residential buildings, permanent affordability homeownership, and housing for people with disabilities. Several witnesses framed the bills as tools to expand supply, lower costs, and address racial and generational wealth gaps.
Representative Connolly testified for H. 1478 on the Massachusetts Social Housing Program, describing publicly owned, mixed-income housing financed through a revolving loan fund. Senator Feeney testified for S. 989 on missing middle starter homes, arguing for zoning changes, incentives, and affordability tools to support smaller starter homes and duplexes, triplexes, and fourplexes. Multiple witnesses, including housing advocates, real estate representatives, and local officials, supported the ADU trust fund bill and the single-stair study bill, saying they would reduce barriers, support homeowners, and enable more family-sized and infill housing. Some witnesses opposed bills they said would weaken ADU reforms or add new restrictions, while others urged broader deregulation to speed production.
A major portion of the hearing focused on H. 1576/S. 1010, the Homes for Lasting Affordability bill, which would create a permanent affordability homeownership program for low- and moderate-income buyers and support small developments with long-term affordability restrictions. Testimony from community land trust leaders, legislators, and housing advocates emphasized that permanent affordability can preserve public investment, stabilize neighborhoods, and help families build wealth over generations. Senator Miranda and Representative Worrell tied the bill to closing the racial wealth gap and expanding access to homeownership for Black and Latino residents. The committee also heard testimony on S. 971, which would reform the Housing Development and Incentive Program to require more affordability in Gateway City projects.
The committee additionally heard from Senator Kennedy and disability advocates on S. 1004, which would strengthen the Alternative Housing Voucher Program for people with disabilities by codifying project-based vouchers and aligning the program more closely with other voucher systems. Witnesses described long waitlists and the lack of accessible, affordable units as major barriers that can lead to homelessness or unnecessary institutionalization. No votes were taken during the hearing; the session was devoted to testimony and questions from committee members.
MN
Minnesota 2025-2026 Regular Session
From AI to autonomous vehicles: New technologies are changing Minnesota; how Senators are responding Apr 10th, 2026
Minnesota Senate Floor Meeting
NM
New Mexico 2026 Regular Session
House - Health and Human Services Jan 30th, 2026 at 08:34 am
House Health & Human Services
AZ
Transcript Highlights:
- I have an adult daughter, Tia, age 24, with severe nonverbal autism and epilepsy.
- severe nonverbal autism and I have an adult daughter Tia age 24 with severe nonverbal autism and epilepsy
Bills:
SB1052, SB1115, SB1118, SB1120, SB1121, SB1124, SB1171, SB1172, SB1174, SB1175, SB1214, SB1233, SB1235, SB1316, SB1345, SB1372, SB1399, SB1458, SB1494, SB1496, SB1564, SB1602, SB1621, SB1628, SB1630, SB1631, SB1668, SB1672, SB1814, SB1821
Keywords:
assisted living, health care, hyperbaric oxygen therapy, physician orders, informed consent, AHCCCS, remote work, state agency, employment, public health, housing, zoning, middle housing, urban development, duplexes, triplexes, fourplexes, townhomes, historic preservation, radiation protection
Summary:
The committee first heard Senate Bill 1121, which would prohibit hospitals from requiring lead aprons for cardiac catheterization staff when a radiation protection system is in place, while still allowing hospitals to require aprons outside the designated safety zone or when exposure levels warrant additional protection. An amendment added flexibility for radiation safety officers to require lead or other PPE if exposures approach occupational limits and removed expedited rulemaking language. Supporters, including the sponsor and interventional cardiologists, argued the devices reduce radiation and orthopedic injuries and improve recruitment and retention; hospital groups shifted to neutral after the amendment. The committee adopted the amendment and passed SB 1121 on a 9-2 vote.
The committee then considered Senate Bill 1120, which would require hospitals performing cardiac catheterization procedures to equip at least 50% of those rooms with radiation protection systems by 2027. Supporters said the systems protect clinicians from radiation and long-term injury, while opponents, including hospital and radiology groups, argued the bill was overly prescriptive, could create a captive market, and might not fit all rooms or procedures. After adopting a children’s hospital exemption amendment, the committee passed SB 1120 on a 6-6 vote, with the chair breaking the tie in favor of the bill.
Senate Bill 1118, an appropriation measure tied to the radiation protection system proposal, was also advanced after brief discussion, passing 6-5. The committee then took up Senate Bill 1214, which would create guardrails for non-FDA-approved stem cell and regenerative therapies, including provider standards, informed consent, advertising limits, reporting requirements, and a private right of action for violations. Supporters described it as a patient-protection and access bill, while testimony emphasized concerns about unregulated “bad actors” and patients traveling out of state for treatment. The committee adopted an amendment removing a reference to the National Law and passed SB 1214 on a 9-3 vote. The transcript then began discussion of SB 1630, which would create a Medicaid-funded home and community-based service benefit for adults with serious mental illness, with AHCCCS taking a neutral position and estimating a significant fiscal impact.