Transcript Highlights:

• Youth-centered programs are crucial to sustaining social and personal development in young people.
• Senate Bill 5992 helps move that work from pilot to long-term stability and sustainability, and we hope
• Senate Bill 5992 helps move that work from pilot to long-term stability, sustainability, and we hope
• It isn't sustainable and inequitable across the state.
• I want to assure the committee that should this occur, it is... ...our practice as nurses to not only

Summary: The committee first heard Senate Bill 5992, which would create a non-appropriated Youth Development Fund account to support grants for positive youth development programs serving ages 5 to 24. Staff explained that OSPI would administer grants to nonprofits, tribes, and local parks and recreation entities, with school districts and ESDs eligible mainly as partners; annual reporting would be required. The sponsor and many testifiers, including students, youth-serving nonprofits, tribal representatives, and agency partners, described after-school, mentoring, arts, sports, outdoor, and wraparound programs as important for mental health, belonging, safety, civic engagement, and prevention, especially for vulnerable and rural youth. The committee then moved to executive session and adopted a substitute and passed SB 5992 to the Rules Committee. The committee also took executive action on Senate Bill 5952, which would standardize the process for excusing high school students from physical education, and on Senate Bill 5961, which would transfer the Imagination Library of Washington from DCYF to OSPI. In both cases, the committee adopted proposed substitutes that narrowed or adjusted the bills, then voted them out of committee: SB 5952 was sent to Rules, and SB 5961 was sent to Ways and Means. The committee also heard Senate Bill 5969 on allowing an IEP transition plan to satisfy high school and beyond plan requirements; after discussion, a substitute was adopted that instead directs OSPI to reduce duplication in the statewide IEP system, and the bill was passed to Ways and Means. Later, the committee heard Senate Bill 5918, which would increase materials, supplies, and operating costs (MSOC) funding by $100 per student or $100,000 per district, whichever is greater, starting in the 2026-27 school year. Testimony from educators, administrators, school board members, PTA, and OSPI emphasized that districts are using local levy dollars to cover basic operating costs such as utilities, insurance, curriculum, and maintenance, leaving less for enrichment and forcing cuts or deferred purchases. One opponent argued against additional taxes and questioned the return on school spending. The sponsor framed the bill as necessary to meet the state’s paramount duty to fund basic education. The transcript then shifted to Senate Bill 5951 on school access to albuterol, which would allow schools to keep stock albuterol under a statewide standing order and let trained staff administer it under certain conditions; students, nurses, and advocates testified that stock albuterol could reduce absences and improve safety for students with asthma. Finally, the committee began hearing Senate Bill 6042 on school mapping, which would require school safety plans to include accurate, interoperable digital maps for first responders; the sponsor and emergency response witnesses said standardized maps are critical for coordinated, timely response in school emergencies.

Transcript Highlights:

• My name is Preston Peck, and I'm a senior sustainability analyst with the City of Tacoma's Environmental
• I believe that there's a more practical path forward.
• I'm here on behalf of the Association of Home Appliance Manufacturers and the Cookware Sustainability
• We now have a more practical law that still protects consumers from lead in cookware. Dr.
• Steve Burns, I'm with the Cookware Sustainability Alliance, which is a grouping...

Bills: SB5965 , SB6030 , SB5975 , SB5941

Committee: Senate Environment, Energy & Technology

Keywords: environment, retail bags, sustainability, pollution, customer impact, plastic bags, retail, waste reduction, cookware safety, lead regulation, consumer protection, interstate trade, health standards, SB 5941, Washington State Energy Code, State Building Code Council, renewable energy, solar panels, school district exemption, public school construction

Transcript Highlights:

• registration, specifying the scope of practice, and establishing prohibited practices.
• interior design unless registered and lists prohibited practices.
• But is this consistent with practices in other states as well?
• We will still be practicing as we are practicing... ...with our groups.
• We will still be practicing as we are practicing today.

Summary: The Consumer Protection & Business Committee held public hearings on two bills. House Bill 2616, described as an agriculturally resilient markets act, would create a broad package of agriculture-related policies and appropriations, including a strategy to expand state purchasing of Washington-grown food, temporary packaging and emissions exemptions for certain agricultural uses, changes to labor notice rules for agricultural and dairy layoffs, several grant and study programs, a transfer of cannabis production/processing/testing oversight to the Department of Agriculture, and an appropriation for the tree fruit leadership program. Representative Christine Reeves said the bill was intended as a state-level “farm bill” to address farm losses, food security, and regulatory burdens, and she emphasized stakeholder input and the need to support family farms and farmworker well-being. Testimony on HB 2616 was overwhelmingly supportive, with growers, commodity groups, dairy and potato representatives, and other agricultural stakeholders arguing that Washington farms face low margins, high regulatory and labor costs, refrigeration and processing challenges, and competition from foreign producers. Several speakers said the bill’s exemptions, grants, and studies would help keep farms viable and preserve local food production. Committee members asked about stakeholder outreach, the role of Washington State University and commodity commissions, the impact of federal versus state policy, and possible ways to reduce compliance burdens. The hearing ended without a vote, and the chair noted the bill was after cutoff and would not move this year, but that stakeholder meetings would continue over the summer. The committee then heard House Bill 2721, which would create a registration system for commercial interior designers, expand and rename the Board of Architects, set education, examination, and experience requirements, define the scope of practice, require seals and technical submission attestations, and establish penalties and a fee account. Supporters from interior design organizations said the bill would recognize a profession already performing code- and safety-related work in commercial spaces, align Washington with other states and national model law standards, and remove barriers to ownership and advancement, especially for women. Testifiers also said the bill would clarify responsibility for life safety, accessibility, and non-structural interior construction in schools, health care, and public buildings. The committee heard only supportive testimony, but members raised questions about how the profession compares with architecture, the impact of delaying the bill until 2027, and demographic diversity in the field. The chair closed the hearing noting the bill would not advance this session and that further interim work would be needed.

Transcript Highlights:

• While transparency and accountability are expected practices in schools, one of our key concerns with
• Earning that practice and gaining that practice through an entire year-long approach. mentor who is a
• Candidates receive. hands-on practice and real-time feedback.
• I'm kind of out of practice. Yeah, you're right. Which one is it, 17?
• Not just in theory, but in practice.

Bills: SB451 , SB762 , SB1490 , SB1262 , SB1459 , SB1750 , SB1962 , SB2252 , SB2253 , SB2365

Committee: Senate Education

Keywords: instructional materials, public schools, Education Code, adoption, rejected materials, local funds, open educational resources, Texas Education Code, school districts, open enrollment charter schools, funding restrictions, environmental regulation, business compliance, local authority, economic development, state preemption, local control, open education resources, SB 762, Texas public schools

Transcript Highlights:

• All of this is essential for our long-term sustainability for our state's health care system. to respond
• I believe in that because I think that that's a sole ability to sustain our delivery system for providers
• The implementation of science-based public health practice works best when it's practical, collaborative
• We all must operate in a way that earns and sustains public trust.
• The proposed substitute expands the practice of pharmacy to include limited diagnosing and prescribing

Summary: The Senate Health and Long-Term Care Committee held confirmation hearings for Ryan Moran to lead the Health Care Authority and Dennis Worsham to serve as Secretary of Health. Moran emphasized his personal background, experience in Maryland Medicaid, and priorities of protecting coverage amid federal changes, addressing health disparities, strengthening tribal partnerships, and improving agency operations. Worsham described his long public health career in Washington, his statewide listening tour, and his focus on collaboration, science-based decision-making, accountability, workforce support, and rebuilding public trust. Senators raised questions about behavioral health, social determinants of health, communication, misinformation, and the impact of federal policy changes; both nominees said Washington should continue leading on coverage, prevention, and public health resilience. In executive session, the committee advanced several bills. It passed SB 5899, allowing qualified chiropractors to perform chiropractic diagnosis and adjustments on animals; SB 6292, creating a joint legislative-executive committee on health care financing with a substitute; SB 6182, establishing an abortion savings program, after rejecting several Christian-sponsored amendments and adopting a Bateman amendment limiting eligible organizations to DOH-contracted abortion providers or funds; SB 5947, creating the Washington Health Care Board; SJR 8206, proposing a constitutional right to affordable health care; and SB 5933, on overdose mapping information sharing, with a substitute. The committee also recommended confirmation of both gubernatorial appointments. In a second group of bills, the committee passed SB 5823 on patient advocates with a substitute requiring at least one person physically present daily in acute care settings and expanding exemptions for certain hospitals; SB 6210 on the health plan certification process with a substitute; SB 5921 on psilocybin; SB 6226 protecting audiologists’ clinical autonomy with a substitute; and SB 5924 expanding pharmacists’ prescriptive authority with a substitute. Members discussed access, affordability, rural workforce shortages, and patient safety, and the committee adjourned after completing its agenda.

Transcript Highlights:

• </c><00:13:15.839><c> and</c> have access to financial practices and have access to financial practices
• </c><00:13:48.199><c> on</c> promote environmental sustainability on promote environmental sustainability
• </c><00:34:26.760><c> and</c> management company is sustainable and management company is sustainable
• Sustainable community.
• </c> help with creating those best practices help with creating those best practices and<01:18:11.760

Committee: House Housing Finance and Policy

Keywords: 1183, house

Transcript Highlights:

• According to the Brookings Institution, strong civic education is fundamental to sustaining democratic
• Fundamental to sustaining democratic participation.
• And then you said something about best practices in civic education? Schools.
• And then you said something about best practices in civic education.
• That’s what I meant by best practices in bringing those forward as... ...by best practices in, you know

Keywords: 987, senate, all

Transcript Highlights:

• And that sustainable limits of use.
• </c> to the groundwater sustainability to the groundwater sustainability statute.<00:13:11.440><c> And
• </c> that first part of the sustainability that first part of the sustainability standard<00:15:54.000
• </c> exceeding what is sustainable exceeding what is sustainable groundwater<00:37:43.599><c> usage.
• </c><01:03:52.400><c> on</c> sustainability efforts are focused on sustainability efforts are focused

Committee: House Environment and Natural Resources Finance and Policy

Keywords: 1183, house

Transcript Highlights:

• And doctors do practice.
• So Republicans are seeking to make the practice of medicine more difficult for people to practice the
• our sustainability in rural groundwater.
• And with that... ...to sustain our sustainability in rural groundwater. And with that, I vote aye.
• our sustainability in rural groundwater.

Keywords: 1182, all

Transcript Highlights:

• I'm the Chief Sustainability Officer. Good morning, Chair, members of the committee.
• I'm the Chief Sustainability Officer for Wynn Resorts.
• I'm the chief sustainability officer for wind resorts.
• For some of my small practices, that's just simply untenable.
• For some of my small practices, that's just simply untenable.

Committee: Senate Commerce and Labor

Keywords: 909, all

Transcript Highlights:

• </c><00:30:30.400><c> fisheries</c> advocate for sustainable fisheries advocate for sustainable fisheries
• , sustainability, sustainability, and<01:09:56.760><c> also</c><01:09:57.000><c> cultural</c><01:09:57.360
• </c> but there are other fact practical but there are other fact practical matters.<01:50:23.040><c>
• </c> want to continue to have sustainability want to continue to have sustainability in<02:04:30.240>
• We we practice mokupuni. We we live it. We we practice it. it. it.

Committee: Senate Water, Land, Culture and the Arts

Keywords: 912, senate, all

Summary: The committee took up several gubernatorial nominations, beginning with GM 640 for Juanita Rio Colón to the Commission on Water Resource Management. Public testimony and the nominee’s remarks strongly emphasized her water-system management background, Native Hawaiian stewardship values, and representation for Molokai. Committee members praised her qualifications and neighbor-island perspective, and also discussed broader concerns about reforming the Water Commission, including a separate bill to create a more independent authority and reduce politics in water decisions. Colón said she supported the restructuring effort and would serve with integrity and attention to constitutional water rights and climate resilience. The committee then heard GM 639 for Moses Haia III to the same commission. DLNR and OHA testified, and Haia described his long legal career, prior work on the Waihole contested case, and experience with Native Hawaiian rights and water law. Members asked about his ability to serve impartially given his advocacy background; Haia acknowledged that some may perceive a conflict from his prior work but said he did not believe it was a reasonable conflict and would follow the law and balance competing interests. The discussion again returned to the proposed Water Commission restructuring, which Haia said he supported as a way to provide independence and balance. Next, the committee considered GM 649 for Gilbert Coloma to the Pacific States Marine Fisheries Commission. DLNR and other testifiers explained that this was a new interstate commission created under the 2024 act, with Hawaii joining six U.S. states to address fisheries issues across state boundaries. Coloma, a commercial fisher from Hilo, said he brought more than 40 years of industry, cultural, and traditional experience and would represent Hawaii’s fishing communities. Members asked about the commission’s structure, meeting rotation, and funding, and were told the state covers dues through special funds. The committee also briefly took up GM 692 for Riley Smith’s reappointment to the Board of Land and Natural Resources. The Hawaii Cattlemen’s Council supported him, while Sierra Club Hui raised concerns about prior decisions affecting Native Hawaiian rights and public trust resources. Smith said he supported more residential uses in East Kapolei if the necessary planning and environmental review changes were made, and he began responding to questions about prior BLNR litigation before the transcript cut off.

Transcript Highlights:

• And even then, we didn't know if we were going to be sustainable.
• I think there's also a practical side to this. Thank you, Mr. Chairman.
• I think there's also a practical side to this.
• I am the director of the services practice area at the National Health Law Program.
• So how was it possible to make it sustainable?

Committee: Joint Tribal and State Relations Committee

Keywords: 908, all

Transcript Highlights:

• We need a lot more to even sustain the current amount of housing that this would create.
• This bill taxes the social media industry on its practices of selling our data.
• Expanding the sales tax base to common practices in these large industries, **HF 3117** will relatively
• Because we're taxing these harmful practices less, again, raising the burden on other industries.
• Simply put, no one likes having their data collected, and there's little evidence that these practices

Committee: House Taxes

Transcript Highlights:

• After my farm and many others sustained devastating loss, I'm back to share a story of resilience and
• Another opportunity I see with the sustainability of this industry is local accessibility to oyster seed
• I'm here today because oyster farming is the future of sustainable seafood here in Florida.
• I'm proud to continue to grow responsible, sustainable seafood while cleaning our water and restoring
• The watermelon example is sort of similar, except a whole different set of production practices.

Committee: Senate Agriculture

Summary: The Senate Committee on Agriculture met with a quorum present and heard three presentations focused on Florida aquaculture, agricultural nutrient reduction, and land preservation. First, clam farmer Tim Solano of Cedar Key described the economic and environmental importance of the state’s clam industry, noting Florida’s strong national production, the industry’s recovery role after the net ban, and the severe damage caused by recent hurricanes and red tide. He said the Dislocated Workers program helped farmers return to work and asked that existing state programs be written more broadly to include aquaculture. Oyster producer Canaan Greg of Pelican Oyster Company then discussed the growth of off-bottom oyster farming, the losses his industry suffered from Hurricane Michael and the pandemic, and the need for better access to recovery loans, student internships, local seed production, and waterfront protection. Members asked questions about leases, production, predators, and storm resilience, and the presenters emphasized that aquaculture is a sustainable, year-round industry that filters water and supports local economies. The committee next heard from UF/IFAS regional extension agent Dr. Bob Hockmouth on education, research, and extension efforts to reduce nitrogen in the Suwannee Valley Basin Management Action Plan area. He explained that the region’s agricultural load reduction target has increased from about 4.2 million to 5.8 million pounds of nitrogen, and that extension programs are helping farmers adopt practices such as precision fertilizer placement, soil moisture sensors, controlled-release fertilizer, petiole sap testing, and irrigation automation. He highlighted corn and watermelon as major examples, saying on-farm demonstrations and cost-share programs are essential because the equipment and technology are expensive. He reported substantial reductions from participating farms and said growers are generally cooperative when funding is available. Finally, the Department of Agriculture and Consumer Services presented an update on the Rural and Family Lands Protection Program. The program acquires development rights through voluntary conservation easements to keep working agricultural lands in production, protect water resources and wildlife habitat, and preserve taxable land without transferring ownership. The presenter said the program has expanded rapidly in the last two years, with more acreage acquired, faster application review, and more properties in the Florida wildlife corridor. He noted new online application and monitoring tools, a shortened review timeline, and stronger partnerships with federal and defense-related programs. Committee members asked about long-term maintenance responsibilities and the Board of Trustees approval process, and the presentation closed with support for continued funding and efficiency improvements before the committee adjourned without objection.

Transcript Highlights:

• A tree crop takes years to recover from the kind of impacts that are sustained during a major hurricane
• What's going to create the grove of the future, the production practices of the future that are going
• Our mission is to maximize consumer demand for Florida citrus products to ensure the sustainability and
• And if we can help our community and our ag implement these best management practices to the best of
• That puts our best management practices at risk.

Committee: Senate Agriculture

Summary: The Senate Committee on Agriculture heard an update on the Florida citrus industry from Matt Joyner of Florida Citrus Mutual and Shannon Shepp of the Department of Citrus. Both described the industry’s steep decline over the past two decades due to citrus greening (HLB), hurricanes, freezes, and aging groves, but emphasized ongoing recovery efforts through research, replanting, and new therapies. They highlighted promising tools such as plant growth regulators, protective screens and covers, direct oxytetracycline application, CRISPR-based breeding, and the CRAFT program, which has expanded to more than 10,000 acres of solid-set plantings and over 20,000 acres including resets. Members discussed disaster relief, property tax pressures, grower participation, and the need for assessment relief and other state support. No votes were taken on the citrus presentation. Shepp also outlined the Department of Citrus’s marketing and research role, noting strong consumer demand for Florida orange juice, global advertising efforts, and clinical research tied to health messaging. She said the industry remains a major economic contributor, with thousands of jobs and billions in economic impact, and that the department is working to maintain demand while growers replant and reset groves. Senators asked about the CRAFT program, new grower participation, and how advertising and state policy could help sustain the industry. The committee then received a performance review of the Opa-locka Soil and Water Conservation Districts from David Jahossky of Malden and Jenkins. The review found wide variation among the 49 districts studied, with many lacking recurring revenue, staffing, proper meeting notices, records retention, formal performance goals, and timely financial reports. The report identified nearly 400 recommendations and noted that some districts had already dissolved or were considering dissolution. Senators questioned whether the districts were duplicative of other agencies and whether they still served a useful purpose; the presenter said there was overlap and collaboration but no duplication. A public commenter from Jefferson County argued that local boards still provide trusted, community-based support for producers and help connect them to cost-share and best management practice programs. The chair indicated the review would inform possible legislation to improve or restructure the districts, and the committee adjourned without taking a vote.

Transcript Highlights:

• They say they leave here, and they go in, they practice, but evidently...
• Every block, practically, we were so saturated.
• and stably to sustain these interventions going forward.
• Wei's presentation because she talked about sustainable prevention.
• The uniqueness of our program is to keep our teaching relevant and our practice.

Committee: House House Government, Elections & Indian Affairs

Transcript Highlights:

• This has led to duplicative filings, delays, inconsistent practices, and operational challenges.
• AB 2198 codifies longstanding practice and clarifies who is responsible for filing which rates.
• AB 2198 codifies long-standing practice and clarifies who is responsible for filing which rates.
• The task force identified significant gaps in science, testing protocols, and claims practices.
• That suggests the problem is not simply insurer practices, but public misunderstanding.

Summary: The committee heard several insurance-related bills. AB 69, AB 1554, and AB 1680 all focused on California’s insurance market and the Fair Plan. AB 69 would require clearer notices to Fair Plan policyholders about coverage options, quarterly public reporting on clearinghouse programs, and additional broker/agent training to help depopulate the Fair Plan while preserving consumer choice. AB 1554 would require the California Earthquake Authority to post its annual report online and send it to relevant committees, and would direct the Insurance Commissioner to convene a working group on incorporating hazard mitigation into risk-transfer recommendations. AB 1680 would require the Fair Plan to comply with CDI examination findings, hire more staff, and improve clearinghouse operations; the Fair Plan moved from opposition to neutral after amendments, and the department said the bill would strengthen accountability and consumer protections. These bills were held pending quorum or taken up later, with authors requesting aye votes. AB 2198, by Assemblymember Rodriguez, would clarify title insurance rate-filing rules by specifying that title insurers file title rates and underwritten title companies file escrow rates, reducing duplicative filings and requiring rate schedules to be posted online. The California Land Title Association supported the bill, saying it codified longstanding practice and improved transparency, while the department continued discussions about possible revisions. The bill was left open for further questions and a later vote. AB 1795, by Assemblymember Gibson, would create statewide standards for inspecting, testing, and remediating smoke damage in wildfire-affected homes. The author and the Department of Insurance said the bill would establish science-based standards, protect survivors from unsafe reentry, require training and certification for relevant professionals, and improve claims handling; the department also described serious gaps found in its Fair Plan examination and recent wildfire claims. Insurers and some residents opposed or opposed unless amended, arguing the bill was still too broad, could raise costs, relied too much on industry standards, and left unresolved issues about legal standards, timing, and coverage. The bill remained under discussion, with the author saying negotiations would continue. AB 311, by Assemblymember McKinnor, would create an optional telematics-based auto insurance program to reward safer driving and improve road safety. Supporters, including road-safety advocates, victims’ families, and some insurance representatives, argued telematics could reduce speeding and distracted driving and save lives. Opponents, including privacy and consumer groups, argued the bill would create opaque surveillance pricing, undermine Prop. 103, and raise privacy and fairness concerns. After extensive debate, the committee passed the bill on a 3-0 vote and placed it on call. AB 1798, by Assemblymember Wilson, would bar life and disability insurers from using non-diagnostic genetic information from direct-to-consumer or other predictive genetic testing to deny coverage or raise premiums, while preserving use of medical history and family history and allowing consideration of certain high-value policies above $1.5 million. Supporters said the bill would reduce genetic discrimination and encourage testing; insurers argued genetic information is relevant to underwriting and warned the bill could raise costs and create inconsistencies. The committee chair and members noted the bill was close to agreement but still needed work, and the bill was moved with a 3-0 vote and placed on call.

Transcript Highlights:

• And I don't know how that, where, you know, I see the chart here, but maybe just in, from a practical
• All right, and this next slide talks a little bit to some of the best practices and there are some of
• All right, and this next slide talks a little bit to some of the best practices and there are some of
• But even that grant, it's for one year or maybe up to five years, but it's not sustainable.
• We need a sustainable income like 911 has. Representative Weisz had a question."

Summary: The committee approved the March 26 minutes and then received a quarterly update on major IT projects from NDIT. Staff reported the portfolio included 116 major projects totaling about $546 million, with the overall portfolio under budget but slightly behind schedule. They reviewed projects over the 20% variance threshold, including an Industrial Commission grants management system and DOT’s roadway pre-construction replacement, and then heard startup and closeout reports from HHS, OMB, DPI, and DOT. Several previously troubled projects were closed, including HHS bed management, vital records modernization, and DOT roadway capital planning; some projects finished under budget and ahead of schedule, while others were significantly behind schedule or over budget but were now closed or being remediated. The committee also reviewed NDIT’s annual report, including service-fund financials, peer-state rate comparisons, records management, and customer satisfaction efforts. Members asked about how service-fund revenue and grant administrative charges are accounted for, how chargebacks work, and whether NDIT tracks customer satisfaction scores. NDIT said it does track CSAT-type measures in some service areas and has survey data, but it is not planning another customer survey this summer. Members encouraged more regular reporting of customer satisfaction, service-level metrics, and performance data to help guide future improvements. A major portion of the meeting focused on the state’s mainframe modernization effort. NDIT said the overall effort is still targeting about 2030, with multiple HHS and DOT projects underway and a $15 million tech-debt appropriation already removing some components. Staff described the main obstacles as data cleanup, complex integrations, limited staff capacity, retirements, and vendor constraints, and said they are seeking a vendor with modernization support in the next contract cycle. Members pressed for clearer accountability and faster progress, and NDIT and HHS emphasized that they are working jointly but need continued support and better tools. The committee then heard a cybersecurity update on NDIT’s statewide services and maturity assessments. NDIT explained that it provides vulnerability scanning, endpoint protection, security awareness training, threat briefings, and penetration testing, and that these services are tied to a cybersecurity maturity assessment based on CIS controls. Members questioned the sharp drop in participation since 2020 and whether the self-assessment should be mandatory or tied more strongly to StageNet access or insurance incentives. NDIT said participation is voluntary, but Enderf is now requiring annual assessments to keep a 4% insurance discount, and members discussed whether stronger requirements or audit authority may be needed. The meeting ended as the committee began a follow-up discussion on BEAD broadband connection costs and why some locations are much more expensive to connect than others.

Transcript Highlights:

• AB 1812 provides a clear and practical solution by prohibiting plastics from being marketed as compostable
• These payments are so crucial to the sustained health of California's glass recycling program that in
• Many growers and ranchers in this region have already adopted climate-smart practices on their own.
• What they need is reliable funding to maintain those practices over time.
• It was carried out as a standard of care by lead agencies in their practice of CEQA compliance.

Committee: House Natural Resources

Keywords: 988, house, all

Transcript Highlights:

• families face in seeking a diagnosis for a condition that many health care providers have never seen in practice
• The next recommendation encourages collaborative approaches to strengthen research and identify sustainable
• The next recommendation encourages collaborative approaches to strengthen research and identify sustainable
• Sustainable funding for rare disease research.
• We've engaged with other ARDAX, including Minnesota, Pennsylvania, and Tennessee, to share best practices

Summary: The Health Professions and Program Subcommittee met with a quorum present and received a briefing from Melissa Jordan, Assistant Deputy Secretary for Health and chair of the Florida Rare Disease Advisory Council (ARDAC). Jordan explained that rare diseases affect fewer than 200,000 people each individually, but together impact an estimated 2.3 million Floridians. She reviewed ARDAC’s structure, its three subcommittees, and its 2025 legislative report recommendations, which focused on expanding Florida-specific data, disaster preparedness, state agency coordination, insurance oversight, provider education, faster diagnostic tools, research collaboration, and establishing centers of excellence. She also highlighted ARDAC’s work with other states and its effort to build an online repository of resources for families and providers. Jordan discussed the Andrew John Anderson Pediatric Rare Disease Grant Program, funded at $500,000 annually, which supported research awards at Florida State University and the University of Miami in 2024 and another University of Miami project in 2025. She also described House Bill 907 and the Sunshine Genetics Act pilot program, which created the Florida Institute for Pediatric Rare Diseases at FSU and a newborn whole-genome sequencing pilot to screen volunteer infants for hundreds of conditions beyond traditional newborn screening. The institute will include research, training, clinical care, a diagnostic lab, genome editing capacity, and a sequencing pilot overseen by a board, consortium, and steering committee. Members asked about interstate collaboration, the scope of data collection beyond Medicaid, how the council reduces family financial burdens, how families and providers can learn about available resources, and how ARDAC measures effectiveness. Jordan said Florida has learned from other states’ survey-based approaches and instead is using administrative data sources such as Medicaid, hospitalizations, emergency department visits, birth and death certificates, with more clinical data to be added over time. She said success is tracked through annual reports, ongoing work plans, and quarterly research reports that measure progress, patient enrollment, treatment outcomes, and potential follow-on funding. The meeting concluded after the presentation and questions, and the subcommittee adjourned without further business.