Transcript Highlights:

• </c><00:56:18.720><c> but</c> create module for another disease but create module for another disease
• </c> still need to see what type of disease still need to see what type of disease will<00:57:07.359>
• , and also to add other rare diseases to be tracked because a lot of rare diseases are going off the
• It really is disease prevention.
• It really is disease prevention.

Keywords: 1189, house, all

Transcript Highlights:

• Rare disease does not discriminate, and neither should we.
• According to the National Organization for Rare Disease, there are well over 10,000 known rare diseases
• Rare disease does not discriminate, and neither should we.
• Vaccines are essential in preventing disease, the spread of disease, and promoting the health of individuals
• Medicaid census... ...and geriatric psychiatric diseases.

Keywords: 995, all

Summary: The Joint Committee on Health Care Financing held a public hearing on a large docket of bills focused on MassHealth benefits and reimbursement, health equity, behavioral health, public health, dental access, 340B drug pricing, tobacco cessation, and coverage for children. The chairs emphasized rising health care costs, provider shortages, administrative burdens, and persistent inequities by income, race, geography, and immigration status. Much of the testimony centered on H.1416/S.901, an act to advance health equity, with legislators and members of the Health Equity Compact arguing for statewide benchmarks, stronger health equity leadership, reimbursement for interpreter services, community health workers and patient navigation, Medicaid graduate medical education support, and a health equity zone trust fund. Witnesses described disparities in life expectancy, maternal mortality, access to primary care, and the impact of federal Medicaid and social service cuts, and urged the committee to report the bill favorably. The committee also heard strong support for H.1368/S.847 on rapid whole genome sequencing for critically ill MassHealth children. Testifiers from industry, academia, hospitals, and families said early sequencing can end long diagnostic odysseys, improve treatment decisions, shorten hospital stays, and save money, while also providing emotional relief and information for families. The hearing then moved to H.1407 on MassHealth rate parity for inpatient behavioral health providers, where Rep. Scanlan and the Massachusetts Association of Behavioral Health Systems said the bill would codify existing administrative parity so managed care plans cannot pay less than the MassHealth fee-for-service rate. On H.1392/S.853 to preserve and protect public health, witnesses supported higher vaccine administration fees to improve provider participation and immunization rates. The committee also heard testimony on H.770/845 to protect 340B providers in MassHealth, and on S.848 to require reporting and transparency around 340B revenues and outside administrative costs. Additional bills drew testimony on tobacco cessation coverage for MassHealth members, with advocates supporting broader access to counseling and medications through medical, behavioral health, and dental providers. On H.1409, a nursing home operator asked for more flexibility in a MassHealth staffing-related penalty tied to patient days per resident. On H.1401/S.888, supporters of the “Take 10” dental access proposal said adult MassHealth dental coverage is underused because too few dentists accept MassHealth, leading to long travel times and avoidable emergency room visits; they urged incentive payments for dentists serving new adult MassHealth patients. Finally, on H.1403/S.855, “Cover All Kids,” advocates and immigrant community members urged removal of immigration status as a barrier to full MassHealth coverage for children, while also backing a related bill to ensure 12 months of continuous coverage for children. No votes were taken during the hearing; the committee primarily received testimony and asked questions on costs, reimbursement levels, and implementation details.

Transcript Highlights:

• diseases, we've got to ask: what are we really trying to accomplish with this?
• The Centers for Disease Control is to stop the spread of disease, but alpha-gal is non-communicable from
• , but it is a disease of concern, very much so, and we use this data a lot.
• Diet-related diseases are among the leading causes of death in the United States.
• Her daughter actually passed away from this deadly disease, and it's a silent, deadly disease.

Summary: The House first established a quorum after introductions of the Freedom of the Road Riders and Warsaw High School students. Members then took up House Bill 1855, a reporting bill on alpha-gal syndrome. The sponsor described the bill as a public health surveillance measure to add alpha-gal to Missouri’s reportable conditions, require lab reporting to the Department of Health and Senior Services, and send aggregated data to the CDC. Supporters said the bill would help identify hotspots, guide education and funding, and address a serious tick-borne condition affecting rural and urban Missourians alike. Opponents raised concerns about cost, false positives/negatives, and privacy, but the sponsor and others said the system would be HIPAA-compliant and de-identified at the federal level. Two amendments to HB 1855 were debated. An amendment changing the department’s follow-up authority from “may” to “shall” was adopted, with supporters arguing that if the legislature funds follow-up, the department should be required to do it. A second amendment creating an opt-in/opt-out consent process for reporting was rejected 41-10 after extensive debate over privacy, data collection, and whether consent would undermine disease surveillance. The House then adopted the House committee substitute for HB 1855 as amended and ordered it perfected and printed. The chamber next considered House Bills 2230 and 2978, a revised education measure aimed at reducing screen time in K-5 classrooms and encouraging handwriting and cursive instruction. The sponsor said the bill was based on research linking heavy screen use to poorer educational and behavioral outcomes, and supporters emphasized local control, parent access to screen-time policies, and the need to bring experts together through a state-level focus group. An amendment to exclude virtual school programs was adopted. The House then adopted the committee substitute for HB 2230 and 2978 as amended and ordered it perfected and printed. Finally, the House began debate on House Bill 2355, the Food Is Medicine Initiative. The sponsor said the bill would let Missouri use federal funds through 1115 waivers to pilot medically tailored meals, produce prescriptions, nutrition counseling, and related interventions to improve health and lower Medicaid costs. Members generally supported the concept, citing food deserts and the benefits of better nutrition, but an amendment adding vitamin therapies and cleanup language prompted concern from one member about supplement quality and regulation; the transcript ends during that amendment discussion.

Transcript Highlights:

• where the disease is found. ...but certainly where the disease is found, to react quickly and begin
• And that's the surveil endemic areas where we know the disease exists.
• Do we need testing like in Orleans Parish for chronic wasting disease?
• It is a specified disease within its own, and the incident rate is moving slowly.
• And that's the closest disease we have to CWD.

Summary: The committee and invited witnesses discussed chronic wasting disease surveillance and response in Louisiana, focusing on both wild deer and captive deer facilities. LDWF staff said surveillance goals are being met in about 32 of 64 parishes, but there are gaps in low-sample areas, and they described current efforts using voluntary hunter-harvested deer sampling, targeted sampling in higher-risk animals, and coordination with D-MAP properties. Witnesses and members raised possible ways to improve detection, including incentives for testing, use of taxidermists and processors to collect samples from older bucks, possible mandatory testing tied to special doe days or special seasons, and better use of D-MAP or mobile sampling units. Several members also suggested environmental testing, better deer-density data, and clearer mapping of hotspots and source areas. A major portion of the discussion centered on how to respond when a positive CWD case is found. Members debated whether Louisiana should follow an Arkansas-style approach, including allowing baiting during hunting season while using other tools to manage disease, versus stricter no-bait or no-feeding rules. Some members argued that immediate restrictions after a positive discourage hunters from submitting samples and hurt landowners and feed businesses, and suggested delaying new restrictions until the end of the season while intensifying sampling. Others emphasized that any response should be science-based and should preserve hunter participation. There was also discussion of whether control areas should be parish-based or based on geographic distance, and whether the state should establish thresholds that would allow a control zone to be reduced or removed if enough negative samples are collected. For captive deer facilities, LDWF and LDAF staff reviewed the USDA herd certification program and current surveillance practices. They said Louisiana has about 350 licensed deer facilities, including breeder and hunting facilities, and that a 2024 positive in Jeff Davis Parish led to depopulation and 12 quarantine farms; follow-up testing in 2025 found no new positives in the traced facilities. Staff said the state has relied on USDA competitive grants for diagnostic testing in the last two years, covering roughly $100,000 to $150,000 annually, while department self-generated funds covered more than $800,000 over the last three years. Members and witnesses recommended mandatory enrollment in the USDA herd certification program, mandatory 24-hour reporting of positives to LDWF and USDA APHIS, and clearer, reciprocal communication between LDWF and LDAF when positives are found. No votes were taken; the chair said staff would compile the discussion and written recommendations for consideration at the April 9 commission meeting, with the understanding that the committee will later make formal recommendations to the Legislature.

Transcript Highlights:

• Members, sickle cell disease affects hemoglobin, which is the major protein that carries oxygen in red
• In sickle cell disease, red blood cells are misshaped, typically crescent or sickle-shaped, due to a
• Ninety percent of people who have sickle cell disease are non-Hispanic Black or African American, with
• While there are doctors who specialize in sickle cell disease, many health care professionals receive
• Periodic comprehensive evaluations and other disease-specific health maintenance services, psychosocial

Summary: The Senate convened with a quorum, opening prayer, Pledge of Allegiance, and a doctor of the day announcement. Members also observed a moment of silence for former Senator Charlie Dean, with tributes offered to his service and family. Several introductions were made, including guests in the gallery and visiting students. On the special order calendar, the Senate temporarily postponed bills on Citizens Property Insurance, artificial intelligence, public records, and data centers, then took up and passed several measures. SB 198/HB 505 on virtual currency kiosks was substituted to the House bill, amended to adopt the Senate language, and passed 37-0 to address fraud, registration, transaction limits, warnings, receipts, and refunds for scam victims. SB 382 on electric bicycles passed 37-0 after amendment to broaden the task force to micro-mobility devices and collect crash data. SB 844 on sickle cell disease continuing education passed 37-0, requiring one-time board-approved training for certain licensed health professionals. SB 1014 on municipal utility service outside city limits passed 37-0, prohibiting cities from denying water or wastewater service solely because an owner refuses annexation, subject to service and funding conditions. The Senate also passed SB 428 on the swimming lesson voucher program by 36-0 after amendments expanding eligibility to ages 1 through 7 and adding postpartum drowning-prevention education and safe bathing guidance. SB 540 on the Office of Financial Regulation passed 36-0, creating cybersecurity program and oversight requirements for certain financial licensees and clarifying anti-money-laundering enforcement. SB 1440 on public records passed 35-1 after technical amendments, extending cybersecurity-related public records exemptions and reporting provisions. SB 1594 on veteran benefit payments to minor clients passed 36-0, directing benefits received on behalf of foster youth toward post-secondary education or aftercare rather than agency reimbursement. At the end of the session, the Rules Chair moved to waive rules so all bills passed that day would be immediately certified to the House and the postponed bills would remain on the special order calendar; both motions were adopted. The Senate then adjourned until the next morning for committee meetings and other business.

Transcript Highlights:

• diseases collectively are not rare at all.
• Eight in 10 rare diseases are genetic.
• Three in 10 children with a rare disease will not live to see their fifth birthday.
• Eight and 10 rare diseases are genetic.
• and spread awareness for rare diseases in the Commonwealth.

Summary: The Senate considered and amended House 4769, a major higher education bond bill titled an act to build resilient infrastructure to generate higher education transformation (the BRIGHT Act). Members adopted a series of amendments funding deferred maintenance and capital projects at public colleges and universities, including MassBay Community College (HVAC and window replacement), Massachusetts Maritime Academy, Springfield Technical Community College, Cape Cod Community College, Worcester State University, Quinsigamond Community College, Roxbury Community College, UMass Boston, Middlesex Community College, Salem State University, Berkshire Community College, and MCLA. Several amendments were rejected, including proposals related to a sustainable hand hygiene program, board membership, and some other institutional or policy changes, while a number of amendments were held or withdrawn. The bill ultimately advanced through third reading and was passed to be engrossed by a unanimous roll call, with senators emphasizing the need to address deferred maintenance and modernize higher education facilities statewide. A major floor debate centered on an amendment by Senator Tarr to dedicate $300 million of Fair Share surtax revenue to K-12 education. Supporters argued that many school districts face rising costs, minimum aid, and an outdated Chapter 70 formula, and that the amendment would create a marker for future reform. Opponents said the Commonwealth already dedicates substantial surtax and other funding to K-12 education and that the amendment was not the right vehicle. After a roll call, the amendment was rejected. The Senate also rejected several Tarr amendments on fiscal safeguards, equity analysis, bond covenant requirements, and Chapter 62F taxpayer protections, while adopting others related to UMass Gloucester Marine Station housing and coastal erosion work, and to modernizing Massachusetts State College Building Authority bonding and office-location rules. The chamber also adopted a motion to adjourn in memory of Bolton Police Chief Luke Hamburger, who was remembered for his service, leadership, and community ties. Before adjournment, senators took brief statements on other issues, including a call for greater awareness of rare diseases and the need for improved access to diagnosis and treatment. The Senate also approved extension orders giving committees additional time to report on pending environmental and municipal bills, and it set its next meeting for Monday at 11:00 a.m.

Transcript Highlights:

• Biliary atresia, or BA, is not a genetic disease.
• It's a rapidly progressing disease. It's the fastest birth-to-death pediatric disease that exists.
• It's a rapidly progressing disease. It's the fastest birth-to-death pediatric disease that exists.
• It's a time-bomb disease.
• It's a time bomb disease.

Summary: The committee first heard Senate Bill 1414 by Sen. Polsky on congenital cytomegalovirus (CMV) education. The bill would require the Department of Health, working with medical experts, to create and distribute CMV educational materials to expectant and new parents or caregivers through hospitals, birth centers, and OB/GYN practices. An amendment removed a section that would have required instruction for medical professionals, and the amended bill was reported favorably as a committee substitute. The committee then took up a block of confirmations. Appointees on tabs 2 through 7 were recommended favorably in one vote, and Chavon Harris was separately confirmed as Secretary of the Agency for Health Care Administration after extensive questioning. Senators praised her leadership and experience, while others raised concerns about Medicaid redeterminations, the state’s CORE modernization project, Hope Florida, and a DCF anti-marijuana ad campaign; Harris said she would follow up on some issues and defended the agency’s work on transparency, managed care oversight, and access to care. Her confirmation was recommended favorably, with Sen. Berman noting opposition. Several health-related bills were then heard and advanced. SB 186 by Sen. Garcia expanded epilepsy training requirements for school personnel, including charter school bus drivers, and was reported favorably. SB 902 by Sen. Garcia, after amendments narrowing dental workforce provisions and allowing certain seizure rescue medication delegation to family home health aides, was reported favorably; testimony focused on medical marijuana regulation, practitioner accountability, and concerns about park and child-care proximity restrictions. SB 196 by Sen. Sharif created a uterine fibroid research database with privacy protections and was reported favorably after emotional testimony from a patient and supporters. SB 688 by Sen. Rodriguez would reestablish licensure of naturopathic doctors; it drew both support and skepticism about diagnosis and treatment boundaries, but was reported favorably. SB 1574, Maddie’s Law, would add biliary atresia screening to newborn screening and was strongly supported by parents describing a delayed diagnosis; it was reported favorably. SB 878 on clinical laboratory personnel, SB 1092 on podiatric medicine and certain cellular/tissue-based products, and SB 1032 on medical marijuana registry timelines and veteran fee waivers were also reported favorably, while SB 1032 drew debate over longer renewal/supply periods. The committee then began SB 1760 on Medicaid oversight and program transparency, with the sponsor describing the bill’s creation of a joint legislative oversight committee and a legislative actuary.

Transcript Highlights:

• The bill expands the Childhood Cancer and Rare Childhood Disease Research Fund.
• The bill expands the childhood cancer and rare childhood disease research fund. pediatric diseases.
• We already have a license plate fund for childhood and rare disease research that is underutilized.
• approved by the FDA that have clinically shown to slow the progression of the disease.
• Five years ago, at the age of 58, I was diagnosed with younger-onset Alzheimer's disease.

Summary: The committee approved minutes from February 18, February 19, and March 4, then took up several health-related bills. HB 2050, which updates radiologic technologist and radiologic assistant standards, school accreditation, clinical hours, supervision rules, fees, and telehealth definitions, received support from a radiologic technologist and a nurse practitioner and passed 7-0 with a do-pass recommendation. HB 2082, creating a Childhood Cancer and Rare Childhood Disease Research Commission and expanding the research fund, was amended to require at least $5 million in funding before commission allocations and to shift grant-awarding authority to the DHS director; it passed 7-0 as amended, though members raised concerns about oversight. HB 2176, which changes DHS licensing denial criteria and complaint-investigation procedures for health care institutions, also passed 7-0 after testimony from hospital and public health representatives supporting clearer timelines and transparency, with one member noting concerns about possible subjectivity in ownership-related denials. HB 2195, addressing DHS oversight of nursing care institutions, including personnel record access, deficiency timelines, and complaint-investigation deadlines, was amended to delay implementation until July 1, 2027 and allow off-site preliminary reviews; it passed 7-0 as amended, though one member said DHS should have been present to answer questions. HB 2202, appropriating $300,000 annually for a dementia care tele-mentoring program, drew support from the Alzheimer’s Association and a patient with younger-onset Alzheimer’s; it passed 6-1, with one no vote arguing medical schools should teach the material instead of the state funding it. HB 2307, an emergency measure to address placement of dangerous, incompetent, non-restorable defendants, was heavily debated and amended to use up to three beds at the Arizona State Hospital forensic campus temporarily, create a study committee, and sunset after five years; counties and DHS disagreed over whether counties should bear any costs, and the bill passed 4-3 as amended. Finally, HB 2584, which prohibits public funds from being used for genetic sequencing equipment or services tied to foreign adversaries, passed 4-3 after a sponsor and a national security witness argued it would protect genomic data from hostile foreign control. The committee then adjourned.

Transcript Highlights:

• This is a disease in which the bile ducts are blocked, preventing bile from leaving the liver.
• What makes the disease challenging is the outcomes are time dependent.
• This is a time bomb disease. Michael Beauchamp: You have 30 days to identify it and treat it.
• I had an autoimmune disease from the Eye Institute and I was negative.
• , vascular disease, degenerative disc disease, hypothyroidism and pulmonary emboli.

Keywords: 999, senate, all

Transcript Highlights:

• If you know anything about this disease of addiction, the withdrawal is the moment and the worst part
• If you know anything about this disease of addiction, the withdrawal is the moment and the worst part
• If you know anything about this disease of addiction, the withdrawal is the moment and the worst part
• If you know anything about this disease of addiction, the withdrawal is the moment and the worst part
• </c> If you know anything about this disease If you know anything about this disease of<00:01:59.760>

Keywords: 1183, house

Transcript Highlights:

• But major depressive disorder is a real clinical disease, or psychiatric disease, and it's the leading
• or neurodegenerative diseases, because they’re kind of all in that same realm.
• and Alzheimer’s disease before.
• In psychiatry, it’s a disease, and it’s something that needs to be treated with care.
• It cannot diagnose you as having any sort of disease or any sort of disorder.

Keywords: 1182, all

Transcript Highlights:

• Go, suffering from an inherited liver disease, faced a dire prognosis.
• Disease remain heart disease remains one of the greatest health challenges of our time and is the leading
• , and in 2022, 1 in every five deaths in the United States was caused by heart disease.
• Of kidney disease.
• The Texas Chronic Kidney Disease Task Force has developed a state plan to address chronic kidney disease

Transcript Highlights:

• Animal disease threats like avian influenza and New World screwworm have added tremendous uncertainty
• We must invest in our animal health programs to prevent and respond to disease outbreaks and we must
• researchers, frontline animal disease responders.
• Managing disease outbreaks, safety net programs, or partners with farmers.
• We have to control this disease.

Keywords: agriculture, avian flu, bipartisan farm bill, economic challenges, poultry, dairy, specialty crops

Summary: The committee meeting focused on crucial discussions surrounding the challenges faced by the agriculture sector, particularly concerning avian flu and its impact on poultry and dairy producers. Members provided insights into the economic struggles within the industry, emphasizing the need for a new bipartisan farm bill that addresses the diverse needs of specialty crop and livestock producers. Witnesses from various agricultural sectors spoke about their experiences, illustrating the high costs, regulatory burdens, and emerging diseases that threaten their operations. The meeting underscored a commitment to exploring solutions that will help maintain market stability and ensure food security.

Transcript Highlights:

• We're not taught to prevent disease. We're not taught to reverse disease.
• Gum disease is the main culprit.
• </c><01:17:06.000><c> Very</c> decay and gum disease. Very decay and gum disease.
• What's causing this disease?
• So disease.

Keywords: 958, all

Summary: The task force met for its third meeting, approved the minutes, and heard testimony from Dr. Jack on behalf of the American Beverage Association and Kentucky Beverage Association. Dr. Jack argued that the “totality of the science” supports low- and no-calorie sweeteners as safe and useful tools for reducing sugar and calories, citing FDA and other domestic and international reviews, clinical trials, and the FDA’s recent healthy-label rule. He also described the industry’s transparency efforts, including a “Good to Know” database compiling ingredient and safety information, and said the beverage industry has voluntarily worked to offer more choices with less sugar. Members questioned him about whether beverage ingredients are restricted in other countries, possible health effects beyond weight and cancer, concerns about metabolic issues and gut microbiome effects, whether sweeteners are addictive, and why companies do not simply remove sweeteners. Dr. Jack responded that most ingredients are permitted in many jurisdictions, that broad food-safety reviews have looked at multiple endpoints and found the ingredients safe, that the gut microbiome is still being studied, and that recent clinical evidence does not show increased sweetness preference. He also said business decisions about formulations are up to companies and noted that cane sugar and high-fructose corn syrup are metabolically similar. The committee also discussed consumer apps and ingredient-scoring tools; Dr. Jack said the industry’s website presents facts without interpretation and is based on food-safety agency assessments. At the end of his testimony, the chair accepted additional fact sheets for the committee. The meeting then moved on to introduce Dr. Gary Huber, who began testimony by emphasizing integrative medicine, metabolic syndrome, and the role of diet, exercise, sleep, and stress in health, but his full presentation was not included in the excerpt.

Transcript Highlights:

• This bill would add Parkinson's disease to the list of firefighters' occupational diseases.
• Parkinson's disease and occupational diseases<00:02:43.360><c> to</c><00:02:43.680><c> be</c><00:02:43.840
• </c><00:02:54.080><c> list</c><00:02:54.319><c> of</c> Parkinson disease to the list of Parkinson disease
• </c><00:02:56.879><c> They</c> firefighters occupational diseases.
• They firefighters occupational diseases.

Bills: HB431, HB466, HB523, HB521, SB182, SB300

Keywords: Monroe County, sheriff, sheriff compensation, county salary, expense allowance, local act, county general fund, retirement contributions, law enforcement pay, public official salary, county budget, Alabama local legislation, service contracts, consumer protection, advertising disclosure, insurance, contract cancellation, parole procedures, advocacy, parole board

Transcript Highlights:

• 200,000 people, but rare diseases collectively are not rare at all.
• diseases collectively are not rare at all.
• Eight and 10 rare diseases are genetic. It often... Ten people.
• Eight in 10 rare diseases are genetic.
• and spread awareness for rare diseases in the Commonwealth.

Keywords: 1212, all

Transcript Highlights:

• There was not agreement on that on the Rare Disease Advisory Council.
• We've been working closely, of course, on the Rare Disease Advisory Council.
• </c> get to that I think the rare disease get to that I think the rare disease council<00:27:36.440><
• It is not as rare as some of the rare diseases that they discuss there.
• It is not as rare as some of the rare diseases that they discuss there.

Keywords: 928, house, all

Summary: The Health and Human Services Oversight Committee met on February 2 and first approved the draft minutes from the prior meeting, with minor corrections to the meeting date and attendance notation. DHHS Associate Commissioner Patricia Tilly then gave a department update, describing the current uncertainty around federal priorities and funding, and provided two substantive reports: progress on the new Hampstead Youth Development Center and an update on the department’s review of an ALS registry proposal. She said the YDC project is underway with tree clearing, fencing, stormwater and site-prep work, and remains on track for completion by June 30, 2026 and operation by August 30, 2026. The center currently has 12 youth, and the new design is intended to provide flexibility for fluctuating census levels. On ALS, Tilly explained that HB 576 had prompted the department to examine whether a registry could be built, but the estimated cost of a HIPAA-compliant system was about $750,000. She said DHHS is reviewing whether existing data sources, such as hospital discharge data and CHIS claims data, could provide useful information, but noted both are incomplete for registry purposes. Committee members discussed whether the Rare Disease Advisory Council, Dartmouth, or existing cancer registry infrastructure could help reduce costs. DHHS said it is neutral and willing to continue exploring alternatives, while members emphasized the value of a registry and the need to consider shared infrastructure and funding. The committee also heard from Jenny Horan of the Alzheimer’s Association, who presented the subcommittee’s report on Alzheimer’s disease and related dementias. She said the subcommittee spent the past year gathering information on dementia care, abuse and exploitation issues, caregiver strain, and available services, and is now moving into a second phase focused on identifying gaps and developing a state plan. Members asked about geriatric psychiatric capacity and long-term care availability; Horan said the state has limited capacity and that the plan will help clarify where needs are greatest. She offered to return for follow-up questions at a later meeting. Finally, Olivia May of DHHS presented the quarterly report on the 12-month postpartum Medicaid coverage extension. She said New Hampshire implemented the extension after federal and state action, and the first claims data are still emerging because of reporting lags. In the initial cohort studied, 95% received some medical services during the extended period, 52.4% received mental health or substance use disorder treatment, 26.7% received preventive visits, and 3.2% received heart or hypertension services. Members asked about return on investment and whether higher federal matching rates are being used appropriately; DHHS said it claims the highest possible match based on eligibility group and will return with more data over time. The committee then heard the annual therapeutic cannabis program report from Michael Holt, who said the program had 1,475 registered patients as of June 30, 2024 and that growth has slowed, with New Hampshire having the lowest per-capita medical cannabis enrollment nationally.

Transcript Highlights:

• But it's a debilitating death sentence disease, like many rare diseases are.
• But it's a debilitating death sentence disease, like many rare diseases are.
• And sadly, there are so many rare diseases—so many.
• This disease affects many people, and most of us hear about others with this disease without necessarily
• In support of HR 105, this disease affects many people, and most of us hear about others with this disease

Keywords: 988, house, all

Transcript Highlights:

• Members, sickle cell disease affects hemoglobin, which is the major protein that carries oxygen in red
• In sickle cell disease, red blood cells are misshaped, typically crescent or sickle-shaped, due to a
• Ninety percent of people who have sickle cell disease are non-Hispanic Black or African American, with
• While there are doctors who specialize in sickle cell disease, many health care professionals receive
• SB 844 updates Florida law to ensure that education on sickle cell disease is included in both controlled

Summary: The Senate convened with a quorum, opened with prayer and the Pledge of Allegiance, and observed a moment of silence for former Senator Charlie Dean. The chamber also received several introductions, including guests from the Church of Jesus Christ of Latter-day Saints and visiting Polk County students. After routine business, the Senate took up a special order calendar, temporarily postponing several bills including measures on Citizens Property Insurance, artificial intelligence, public records, and data centers. The Senate then passed a series of bills, most by unanimous or near-unanimous votes. Approved measures included SB 198/HB 505 on virtual currency kiosks, which creates registration, disclosure, transaction-limit, warning, receipt, and fraud-refund requirements; SB 382 on electric bicycles, which adds pedestrian-yield rules, speed limits near pedestrians, and creates a micro-mobility safety task force; SB 844 on sickle cell disease continuing education for certain health professionals; and SB 1014 on municipal utility service, which bars cities from denying water or wastewater service outside city limits solely because the owner refuses annexation. Each of these bills was explained by the sponsoring senator, amended as needed, and passed on recorded votes. The Senate also passed SB 428, expanding the state swimming lesson voucher program from ages 0-4 to ages 1-7 and adding drowning-prevention education for new parents through a merged amendment with related language; senators from both parties spoke in support, emphasizing child safety and autism-related drowning risks. Additional bills passed included SB 540 on Office of Financial Regulation cybersecurity and oversight changes, SB 1440 on related public-records and cybersecurity exemptions, and SB 1594 to protect veterans’ benefits received on behalf of foster children by directing those funds toward post-secondary education or aftercare rather than agency reimbursement. Final votes were largely 36-0 or 37-0, with SB 1440 passing 35-1. At the end of the session, the Rules Chair moved to waive rules so all bills passed that day would be immediately certified to the House and all temporarily postponed bills would remain on the special order calendar. The Senate then adjourned until the next morning for committee meetings and other business.

Transcript Highlights:

• I'll crab a disease to the newborn screening program.
• Disease.
• My name is Kayla France and I live with sickle cell disease. I want to be honest with you.
• So they understand sickle cell disease and they know how to put the plans together.
• It's a terrible disease, and any awareness that we can bring is incredible. So thank you.