Video & Transcript : 'genetic viability' :

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MA

Massachusetts 2025-2026 Regular Session

Joint Committee on Health Care Financing Jun 21st, 2026 at 10:00 am

Joint Committee on Health Care Financing

Transcript Highlights:
  • He has a genetic disorder that causes profound autism and intellectual disability, and most...
  • He has a genetic disorder that causes profound autism and intellectual disability, and most recently,
  • Massachusetts Developmental Disabilities Council and a parent of a son who was born with a neurological genetic
Summary: The Joint Committee on Health Care Financing held a public hearing focused on two broad sets of issues: home- and community-based care, and school-based Medicaid reimbursement. In the morning session, legislators and advocates testified on bills affecting children and disabled enrollees, including proposals to clarify rate-setting for home health and home care services (H. 767/S. 870), allow family members and spouses to be paid caregivers under MassHealth (H. 1394/S. 886 and related bills), extend MassHealth coverage for applied behavior analysis and other therapies beyond age 21 for adults with autism and developmental disabilities (H. 1351/S. 871), and protect medically fragile children by improving access to continuous skilled nursing. In the later portion of the hearing, testimony shifted to a bill to improve MassHealth reimbursement for schools (S. 862), with speakers describing the school mental health crisis and the need to reinvest Medicaid funds directly into school health services. Witnesses on the home care rate-setting bill said current reimbursement methods are opaque and outdated, contributing to workforce shortages, unfilled shifts, long waitlists, and patients remaining in hospitals longer than necessary. Home care providers and trade groups argued the bill would not set rates directly but would require more transparent methodology and fuller consideration of real costs such as wages, benefits, taxes, training, and technology. On caregiver bills, many family members and provider organizations described the financial and emotional strain of caring for disabled or medically fragile relatives, especially when parents, spouses, or guardians are barred from being paid caregivers. They argued the bills would recognize existing unpaid care, help families remain at home, and reduce reliance on more expensive institutional care. Advocates for adult ABA coverage said services remain medically necessary after age 21 and that ending coverage at that age creates an inequitable “cliff” for MassHealth members compared with those with private insurance. For the PACE/community care bill, elder law attorneys and PACE advocates said current MassHealth income rules force some older adults with modestly higher incomes to spend down to $542 per month, making community living unrealistic and pushing people toward nursing homes. They supported changing the eligibility structure to a premium-based approach that would allow more people to remain in the community. On the school Medicaid bill, advocates said schools are providing effective, preventive mental health care, but reimbursement currently flows to municipalities rather than directly back to school health budgets, limiting districts’ ability to hire and retain staff. No votes were taken during the hearing; the committee heard testimony and several witnesses requested favorable reports on the bills.
CA
Transcript Highlights:
  • as well as the budget estimates for the program of WIC, or Women, Infants, and Children, and the Genetic
  • proposals as well as the budget estimates for the program of WIC or women infants and children and the genetic
  • Our genetic disease screening program is projecting no real major changes for the newborn screening or
Summary: The Assembly Subcommittee on Health heard an overview of the California Department of Public Health budget, including a $5.1 billion department budget and 19 non-IT budget change proposals spanning environmental health, healthcare quality, infectious disease, healthy communities, health statistics, preparedness, and laboratory sciences. CDPH also presented estimates for WIC and the Genetic Disease Screening Program, both of which were described as relatively stable, with WIC food costs rising mainly due to inflation and participation holding near 1 million monthly participants. Members and public commenters raised support for several proposals, including funding for the California Reducing Disparities Project, AB 1264 implementation on school food standards, childhood lead poisoning prevention, the hospital bed capacity registry, sickle cell care networks, and WIC protections amid federal policy changes and shutdown-related uncertainty. Dr. Erica Pond then presented the 2026 State of Public Health report, highlighting major gains such as record-low mortality rates, all-time high life expectancy, and the first decline in overdose deaths in 14 years, while warning about persistent disparities in maternal and infant outcomes, rising severe maternal morbidity, and worsening mental and behavioral health trends, especially among younger adults. She emphasized racial and geographic inequities, the role of social drivers like poverty and education, and the importance of prevention investments through the Behavioral Health Services Act. Members discussed the need for upstream public health spending, environmental health preparedness, and how to translate data into action, while public comment largely focused on sustaining community-based prevention and equity programs. In a separate update on federal actions and public health partnerships, Dr. Pond and CDPH staff described California’s response to federal funding threats, vaccine policy changes, and measles outbreaks. They outlined new collaborations such as the West Coast Health Alliance, the Governor’s Public Health Alliance, the WHO outbreak network, and the FACT Coalition, along with CDPH’s process for reviewing and updating immunization and preventive service recommendations under AB 144. Members questioned the rise in measles and declining vaccination coverage, and CDPH said it is using trusted messengers and tailored outreach while continuing to evaluate federal recommendations. The committee then heard an ADAP estimate showing lower projected budget authority needs due to reduced caseload and one-time funding expiring, followed by public support for using ADAP rebate funds to expand HIV prevention, PrEP, testing, and disease intervention staffing. The final issue focused on public health information technology systems, including Sapphire, CalReady, CalConnect, CARE, MyTurn, MyCAVAC, and the digital vaccine record. CDPH explained how these systems support disease reporting, contact tracing, immunization tracking, vaccine ordering, and outbreak response, while the Department of Finance said only Sapphire and CalReady are funded in the Governor’s budget and the rest are under review because of the state’s budget deficit and declining utilization. Local health department representatives strongly opposed losing the systems, arguing that lower usage reflects post-pandemic conditions and that the tools save staff time, improve outbreak response, and prevent a return to manual spreadsheets and phone calls. Members echoed concern that cutting the systems would undermine public health capacity and waste prior state investment, and urged the administration to present a funding plan that matches its stated commitment to public health.
CA
Transcript Highlights:
  • She was born with a spontaneous genetic disorder called Pfeiffer syndrome, so her lungs are totally fine
  • , but her... ...born with a spontaneous genetic disorder called Pfeiffer syndrome, so her lungs are totally
  • He has a tracheostomy and he uses a ventilator because he has a rare genetic syndrome.
WA

Washington 2025-2026 Regular Session

House Capital Budget Feb 4th, 2026 at 04:00 pm

Capital Budget

Transcript Highlights:
  • now under these circumstances could undermine confidence in the account and threaten its long-term viability
  • now under these circumstances could undermine confidence in the account and threaten its long-term viability
Bills: HB2273 , SB5188 , HB2353 , HB2420 , HB2470
WY

Wyoming 2026 Regular Session

Senate Travel, Recreation, Wildlife & Cultural Resources Committee, February 17, 2026 - PM

Travel, Recreation, Wildlife & Cultural Resources

Transcript Highlights:
  • It is how do we make this truly sustainable and how do we improve ranch and farm viability, keep folks
  • ><00:32:12.240><c> ranch</c><00:32:12.559><c> and</c><00:32:12.799><c> farm</c><00:32:13.120><c> viability
  • ,</c> do we improve ranch and farm viability, do we improve ranch and farm viability, &gt;&gt; economic
  • <00:32:15.120><c> viability,</c><00:32:15.919><c> keep</c><00:32:16.159><c> folks</c> &gt;&gt; economic
  • viability, keep folks &gt;&gt; economic viability, keep folks profitable<00:32:17.679><c> so</c><00:
Bills: SF0025 , SF0027 , SF0043 , SF0066
WA

Washington 2025-2026 Regular Session

House Appropriations Feb 7th, 2026 at 09:00 am

Appropriations

Transcript Highlights:
  • it imposes significant disparate requirements on data centers that will significantly impact the viability
  • Again, the bill will significantly impact the competitiveness and viability of the Washington data center
  • it imposes significant disparate requirements on data centers that will significantly impact the viability
  • Again, the bill will significantly impact the competitiveness and viability of the Washington data center
  • CRP funds are critical to small business viability, and I can attest that if it wasn't for CRP funding
HI

Hawaii 2025 Regular Session

EEP Public Hearing - Thu Mar 13, 2025 @ 9:45 AM HST

Energy & Environmental Protection

Transcript Highlights:
  • Yes, and that’s specifically what we’re aiming to do is get to commercial viability.
  • DBEDT has a four-phase roadmap we’re following to get to commercial viability.
  • get<01:29:37.159><c> to</c><01:29:37.320><c> commercial</c> get to commercial get to commercial viability
  • viability viability under<01:29:42.119><c> um</c><01:29:43.040><c> under</c><01:29:43.639><c> the</c
  • as far as the cost um that viability as far as the cost um that would<01:30:41.920><c> probably</c><
Summary: The committee on Energy and Environmental Protection heard several measures focused on water quality, waste management, aquifer protection, wastewater, and climate-related funding. SB 984 on water pollution drew opposition from DLNR and the Hawaii Cattlemen’s Council, with the latter arguing the bill could unfairly blame landowners for runoff caused by terrain and storm events; the chair noted there were also supporters and commenters submitted in writing. SB 639 on underground storage tanks received support from the Department of Health, the Board of Water Supply, and the Sierra Club, with testimony emphasizing environmental restoration standards after jet fuel releases; no opposition was noted in the live testimony. SB 946 on wastewater management was presented as clarifying that the ban on discharging wastewater or raw sewage into state waters applies to treatment plants, and it drew support from the County of Maui, DOH, and Hawaii Reef and Ocean Coalition, with no questions or opposition raised in the hearing. The committee also heard SB 438 on waste disposal facilities near significant aquifers. DOH and the Water Commission offered comments, while the City and County of Honolulu’s Department of Environmental Services opposed the bill because of a provision affecting ash recycling; the Board of Water Supply and Sierra Club supported the measure, and the Makakilo-Kapolei-Honokai Hale Neighborhood Board and Energy Justice Network raised concerns about fly ash and bottom ash recycling, landfill capacity, and potential contamination of aquifers. Testimony reflected a split between environmental protection concerns and arguments that the bill could block beneficial reuse of ash. The committee then took up HB 1395 on state funds, which would direct interest from the Emergency and Budget Reserve Fund to the general fund when the reserve exceeds the state’s target. The Governor’s office, emergency management, the State Energy Office, the Hawaiʻi Green Infrastructure Authority, the Nature Conservancy, and several other groups supported the bill’s climate-resilience intent, while the Tax Foundation and committee discussion raised concerns that the measure functioned mainly as a revenue transfer without a dedicated spending mechanism. Members discussed whether a special fund or legislative appropriation process would better ensure the money was used for climate mitigation and related projects.
MN

Minnesota 2025-2026 Regular Session

House Environment and Natural Resources Finance and Policy Committee 3/11/25

Environment and Natural Resources Finance and Policy

Transcript Highlights:
  • :53:00.200><c> uh</c><00:53:00.680><c> their</c><00:53:00.920><c> long-term</c><00:53:01.599><c> viability
  • </c> to ensure uh their long-term viability to ensure uh their long-term viability and<00:53:02.960><
  • 00:57:49.640><c> the</c> has a long-standing interest in the has a long-standing interest in the viability
  • and longevity of the wolf viability and longevity of the wolf population<00:57:52.280><c> in</c><00:
  • is</c><00:58:03.799><c> simple</c> The Trappers Association has a long-standing interest in the viability
OK

Oklahoma 2026 Regular Session

Joint Committee on Appropriations and Budget Apr 13th, 2026 at 04:30 pm

Joint Committee on Appropriations and Budget

Transcript Highlights:
  • It produces something like 75% of all the wheat genetics for the state of Oklahoma, produced there in
  • Controls or produces something like 75% of all the wheat genetics for the state of Oklahoma are produced
OK

Oklahoma 2026 Regular Session

Joint Committee on Appropriations and Budget Apr 13th, 2026

Joint Committee on Appropriations and Budget

Transcript Highlights:
  • It controls or produces something like 75% of all the wheat genetics for the state of Oklahoma are produced
  • It controls or produces something like 75% of all the wheat genetics for the state of Oklahoma are produced
Summary: The Joint Committee on Appropriations and Budget met to consider a long agenda of appropriations, retirement COLAs, revolving funds, and limits bills. Early actions included Senate Bill 1144 and Senate Bill 1145, which provided cost-of-living adjustments for retired teachers and OPRS retirees, respectively, and Senate Bill 1146, 1147, 1148, and 1149, which extended similar retirement benefit increases or a one-time stipend for law enforcement, firefighters, judges, and certain retired police and firefighters. The committee also advanced bills funding the Pardon and Parole Board, OSBI cybercrimes and fraud work, juvenile medication, and several agency limits bills for Health Care Authority, Health Department, Mental Health and Substance Abuse Services, and DHS. Members also heard and passed a series of education, public safety, and economic development measures, including funding for school security at the School for Science and Math and the Schools for the Blind and Deaf, support for National Board certified teachers, and appropriations for the Rural Health Transformation Program, the Decennial Census Revolving Fund, Task Force One, and the Oklahoma State Bureau of Investigation forensic center. Several bills created or expanded revolving funds and financing tools, including military readiness and aviation funds, a taxpayer endowment trust fund, water infrastructure loan and REAP-related measures, and a revised non-coal mining fee structure. The committee also approved a bill increasing court reporter pay and another reducing employer contributions to the retirement system after it reached over 100% funding. There was notable discussion on a $5 million film-related pilot program for sitcom production, with questions about the amount and certification requirements, and on a rural economic development package that included money for the state fairgrounds and a university energy plant, which drew objections over whether those projects fit the intended purpose of rural prep funds. Other debated items included a bill directing funds to the Oklahoma Dream Act/Trump accounts, a bill rejecting judicial pay increases recommended by the Board of Judicial Compensation, and a proposal to move $200 million from the stabilization fund into a new Taxpayer Endowment Trust Fund. Most measures were reported out with due pass votes, though several drew dissenting votes, including the film bill, the fairgrounds/economic development bill, the water projects bill, and the trust fund and judicial pay measures. The committee adjourned after completing the agenda.
AZ

Arizona 2026 Regular Session

03/16/2026 - Senate Floor Session

Arizona Senate Floor Meeting

Transcript Highlights:
  • HB 4010, Genetic Counselors Board Licensure. HB 4010, Genetic Counselors Board Licensure.
ID

Idaho 2026 Regular Session

Feb 2nd, 2026

Health and Welfare

Transcript Highlights:
  • could verify one example of a rejection: Senator Lenney may recall last year when DOPL presented the genetic
  • Senator Lenny, you may recall last year we had Dopple present the genetic counselors code and there was
CA

California 2025-2026 Regular Session

Assembly Business and Professions Committee Apr 1st, 2025

Business and Professions

Transcript Highlights:
  • I'm Tim Tubman, Licensed Genetic Molecular Biologist Scientist and the incoming President of the California
  • Missy Johnson here on behalf of myriad genetics in support. Thank you. Thank you.
MN
Transcript Highlights:
  • this crazy cutting-edge technology and giving real, tangible advice as I continue to work in the genetic
  • tangible advice as I continue to work in tangible advice as I continue to work in the<00:10:44.600><c> genetic
Summary: The committee heard House File 1501, which would fund the Minnesota Rare Disease Advisory Council and make the current fiscal year 2025 budget its permanent base. Representative Murphy said the bill would provide about $342,000 in general fund money for the 2026-27 cycle and argued that the council helps shorten diagnosis times, support research, and keep Minnesota a leader in rare disease work. Erica Barnes, the council’s executive director, testified in support and explained that the council was established in 2022 to improve care for the estimated one in 10 Minnesotans living with a rare disease. She said the council needs the full $668,000 level it operated with this year to maintain its statutory duties, noting that the current ongoing base is about $326,000 and that the extra funding was previously one-time money. Barnes described the barriers faced by rare disease patients, including long diagnostic delays, limited provider knowledge, and the fact that only a small share of rare diseases have FDA-approved treatments. She said rare disease care is costly to the health system and that the council has used prior funding to convene the community more regularly and carry out its work. Representative Leing questioned why the budget should be doubled and asked what additional work the council would do with the higher amount; Barnes responded that without the larger ongoing appropriation the council would fall back to 1.8 FTE and would have to stop some programs. Representative Hingson Jger spoke in support, saying the council’s collaboration has been valuable for policy work in the genetic and rare disease space. In closing, Murphy emphasized Minnesota’s leadership in rare disease and shared a personal story about how diagnosis and treatment changed his family’s life. No public testimony was offered. The chair then laid House File 1501 over for possible inclusion in the omnibus bill.
KY
Transcript Highlights:
  • They know that there are drugs that are used to treat that condition, but depending on genetics, those
  • Or, depending on genetics, they're going to metabolize drugs differently.
  • Or, depending on genetics, they're going to metabolize drugs differently.
  • The most common ones that actually have a genetic implication.
  • The most common ones actually have a genetic implication.
Summary: The Public Pension Oversight Board met with a quorum, approved the prior minutes, and heard updates from the Kentucky Public Employees Deferred Compensation Authority and the Teachers Retirement System. The deferred compensation update highlighted continued growth in assets to about $4.787 billion and roughly 88,000 participants, strong retention from auto-enrollment, a marketing campaign tied to pay raises that generated additional participation, and a new self-directed brokerage account expected to launch July 1 of the coming year for participants with at least a $40,000 balance, allowing up to 25% of their account to be moved into the brokerage window. The director also described the free financial planning service, which has been used by about 3,500 participants with a high return rate, and said the plan is currently in a fee holiday; if fees are charged, they are capped at $237 per year for most participants. Members asked questions about who provides the CFP service, the fee structure, and the brokerage eligibility threshold. The director said the CFP service is provided through the authority’s service bundle with Nationwide, not as a separate paid service, and explained that the fee cap and current fee holiday are intended to keep the program low-cost. Board members praised the deferred compensation program’s performance and asked for a copy of the legislation referenced in the presentation. TRS then presented on retired teachers’ health insurance. Barnes first clarified how declining federal contributions for federally funded school positions affect the retirement annuity trust, explaining that if those federal dollars fall, the amounts would need to be covered through the SEEK formula and that the projection for those contributions is about $80 million over the next three years. He then reviewed TRS retiree health coverage, distinguishing between KEHP for retirees under 65 or not Medicare-eligible and MEHP for Medicare-eligible retirees, and explained that TRS recently completed RFPs for both prescription drug and medical coverage. TRS will keep Express Scripts for prescription drugs, but will move the Medicare Advantage medical plan from UnitedHealthcare to Humana on January 1, 2026, while keeping the plan design, provider access, and out-of-pocket structure largely unchanged, with a new hearing-aid benefit of $500 per ear. Barnes also reported the 2026 premium and contribution changes: the maximum TRS contribution toward KEHP will rise to $1,144.96 from $930.76, an 18% increase that he said will require roughly $15 million to $16 million more in the state budget, while the MEHP premium will drop to $200 per month from $210. He said the TRS board has statutory authority to set these amounts and that the changes will have mixed actuarial effects, with the KEHP increase being negative overall and the MEHP decrease positive.
VA
Transcript Highlights:
  • Food security and food access, health, and farm viability can and will go hand in hand within our administration
  • either because maybe they dip below the eligibility threshold of 25%, Or they dip below the financial viability
  • either because maybe they dip below the eligibility threshold of 25% or they dip below the financial viability
MN

Minnesota 2025-2026 Regular Session

House Public Safety Finance and Policy Committee 4/8/25

Public Safety Finance and Policy

Transcript Highlights:
  • of Minnesotans and counties stand ready to partner with the legislature to ensure its long-term viability
  • ensure partner with the legislature to ensure its<00:36:02.880><c> long-term</c><00:36:03.280><c> viability
  • /c><00:36:04.160><c> We</c><00:36:04.320><c> look</c><00:36:04.480><c> forward</c> its long-term viability
  • We look forward its long-term viability.
NH

New Hampshire 2026 Regular Session

Senate Session (04/16/2026)

New Hampshire Senate Floor Meeting

Transcript Highlights:
  • The SRY gene, a piece of genetic coding that even its own discoverer, Andrew Sinclair, the scientist
  • The SRY gene, a<00:42:26.440><c> piece</c><00:42:26.800><c> of</c><00:42:26.920><c> genetic</c><00:42
  • coding</c><00:42:28.120><c> that</c><00:42:28.360><c> even</c><00:42:28.680><c> its</c> a piece of genetic
  • coding that even its a piece of genetic coding that even its own<00:42:29.560><c> discoverer,</c><00
AL

Alabama 2026 Regular Session

Alabama Senate Finance and Taxation General Fund Mar 18th, 2026

Finance and Taxation General Fund

Transcript Highlights:
  • And this individual that I know of has no genetic link whatsoever, but has a history of 18 years of working
  • ><00:50:09.599><c> no</c> individual uh that I know of has no individual uh that I know of has no genetic
  • 11.040><c> whatsoever,</c><00:50:11.920><c> but</c><00:50:12.240><c> has</c><00:50:12.480><c> a</c> genetic
  • link whatsoever, but has a genetic link whatsoever, but has a history<00:50:13.520><c> of</c><00:50:
Bills: SB176 , HB155 , HB247 , HB311 , HB312 , HB317 , HB466 , SB176 , HB155 , HB247 , HB311 , HB312 , HB317 , HB466