Transcript Highlights:

• But we have a great program in San Diego State. It’s a unique program. It’s a life skills program.
• But we have a great program in San Diego State. It's a unique program. It's a life skills program.
• So, really great program.
• And like I said, it's a really great program.
• That program affects campus relationships, right?

Summary: The committee held an informational hearing on name, image, and likeness (NIL) and financial literacy for student athletes, with members framing California as a national leader on NIL but emphasizing the need for stronger protections and more consistent education. The chair and witnesses discussed how NIL opportunities now include both third-party endorsement deals and school revenue-sharing arrangements, and how the current landscape varies widely by institution, leaving athletes with a patchwork of rules and support. Several witnesses argued that student athletes, especially younger ones and those from low-income or first-generation backgrounds, are vulnerable to predatory contracts, tax problems, and pressure from family, agents, or lenders. The first panel featured Tyree Dillingham and Brandon Copeland, who called for standardized financial literacy, better guardrails against predatory NIL advances, and a player-led association or similar collective voice for athletes. They described examples of athletes not understanding paychecks, taxes, or contract terms, and warned that some schools and collectives blur the line between education and marketing. Copeland also argued that college athletics now functions like a professional business and that athletes need representation and a standard contract structure to protect them. The second panel focused on lived experience, including testimony from attorney Anthony Coronae and student athlete Mikey Williams. Coronae described reviewing a contract that he said functioned like a predatory loan disguised as marketing support, with the company taking exclusive rights to Williams’ NIL and requiring repayment far beyond the advance. Williams testified that he signed without a lawyer, later lost endorsements, scholarship, and housing stability, and only later learned the contract’s consequences. He said a required financial literacy course at Sacramento State helped him begin to understand budgeting, taxes, and contracts, and he urged the legislature to require legal review or stronger safeguards for athletes. The third panel, from San Diego State University, highlighted a more structured institutional model. Athletic director Brendan Hill described a mandatory four-year life-skills program that includes financial literacy, resume workshops, internships, and branding education, while student athlete Sloan Benchoff said the program helped her manage money and prepare for post-college life. Witnesses agreed that support is uneven across schools, that some agents and lenders are exploiting athletes, and that California should consider standardized financial education and agent regulation while also being careful not to create rules that unintentionally restrict athlete rights. No formal vote or bill action was taken at the hearing.

Transcript Highlights:

• Um, programs that are state funded only.
• Feeding our which is a food program.
• ,</c><00:08:01.280><c> we're</c> says, "Yeah, these 14 programs, we're says, "Yeah, these 14 programs
• </c> from the dozens of programs that exist. from the dozens of programs that exist.
• They with they created these programs.

Keywords: 1187, senate, all

Transcript Highlights:

• This was Norm Major's program.
• We had a computer science program and then the computer science credentialing program.
• We had a computer science program and then the computer science credentialing program.
• We had a computer science program and then the computer science credentialing program.
• We had a computer science program and then the computer science credentialing program.

Committee: Senate Finance

Keywords: 1191, senate, all

Transcript Highlights:

• out of the program.
• out of the program.
• </c> 529 savings program through Fidelity. 529 savings program through Fidelity.
• And these are incentive program.
• </c> program. Yeah. program. Yeah.

Keywords: 928, house, all

Summary: The committee first revisited HB 781, the cell phone bill, after previously retaining it. On reconsideration, members moved to OTP the bill, and it passed unanimously. The committee then moved into the budget tracking packet and adopted an amendment to HB 2 to add the same cell phone policy language, also unanimously, and separately reduced HB 1 by $1 million to match the policy change. Members noted the cell phone language had already been stripped of grant funding language in the House version and that the policy and funding pieces were being aligned across the budget bills. The committee then took up a Department of Education technical amendment to HB 2 on charter school grants, which made timing and administrative changes without altering grant amounts, and adopted it unanimously. Members also discussed but held other education-related items, including adequacy grants, pending broader decisions on overall education funding. Another HB 2 item concerning E-911/state police radio communications prompted a longer discussion about whether E-911 surcharge funds were being used for purposes that should instead be general-funded. After debate over whether to leave the current practice in place or split the funding 50/50 between E-911 and general funds, the committee adopted a joint HB 1/HB 2 change to shift the funding source to a 50/50 split and delete the HB 2 language authorizing the prior use; the motion passed 7-0. The committee also discussed but did not act on several lottery-related provisions, including the video lottery terminal amendment, the increase in maximum ticket price from $30 to $50, and related tax split changes, with members planning to hear from the Lottery Commission on Monday. The meeting ended with the committee beginning review of new amendments in the tracking packet, including a Department of Education request related to Public School Infrastructure Commission grant administration, but no action was taken on that item in the portion provided.

Transcript Highlights:

• called the Read Vermont program.
• called the Read Vermont program.
• </c><00:28:25.440><c> We</c> called the Read Vermont program. We called the Read Vermont program.
• </c> for the bridges to health program. for the bridges to health program.
• </c> program. We just released the the RFP. program. We just released the the RFP.

Keywords: 927, senate, all

Transcript Highlights:

• systems program.
• the school safety pilot program and the rural county interoperability communication systems program.
• So now we're talking about $26 million for this program, where... ...for this program where ADE got $82
• of the program that was bid on.
• It's a pilot program.'

Committee: Joint Joint Legislative Audit Committee

Summary: The committee began with opening remarks about moving to a monthly, two-hour schedule for more timely and focused oversight of Auditor General findings. Members also recognized Melanie Chesney for 32 years of service to the Office of the Auditor General, with several speakers praising her work and her role in strengthening the relationship between the Auditor General’s office and J-LAC. The main agenda item was the Auditor General’s December 2025 special audit on the school safety interoperability fund and interoperable communication systems. Staff reported that about $26 million had been allocated to 14 law enforcement agencies for systems intended to improve real-time communication between schools and first responders. The audit found that all 14 agencies used the money for interoperable systems, but four agencies allowed private or tribal schools to participate contrary to statute, and several agencies failed to submit required annual expenditure reports. It also found that none of the three systems reviewed met every statutory requirement as written, in part because some requirements were vague or interpreted differently by vendors and agencies. The audit recommended that agencies recover and report any improper benefit to non-public schools, avoid using fund money for ongoing costs tied to non-public school participation, submit missing reports, and improve cost planning and contract monitoring; it also recommended that the legislature clarify eligibility for private and tribal schools and revisit unclear system requirements. The audit further found procurement and contracting problems at nine of 14 agencies, including weak or missing sole-source justifications, contracts that lacked accountability and termination provisions, and poor documentation of pricing and deliverables. Several agencies had not planned for ongoing annual costs, which the audit estimated could range from about $16,000 to $382,000 per rural county depending on the system. In the discussion, members expressed frustration with sole-source contracting and lack of documentation, and some said they would oppose future vendor bills without competitive bidding and stronger payment controls. The auditor also described mixed system performance: some agencies reported useful features such as panic alerts, camera access, and map sharing, but other systems were not fully functional or had never been implemented. The committee then heard from the Arizona Sheriffs’ Association, whose president said sheriffs support the goal of improving school safety, described county implementation challenges, and defended the use of local staff to manage the projects, while acknowledging that smaller counties face staffing and connectivity limits.

Transcript Highlights:

• Has the program, Mr. Eloff, over the last couple of years, changed much?
• </c><00:21:54.320><c> representative</c> of the uh of the program representative of the uh of the program
• </c> that they've uh the the program that they've uh the the program originally<00:26:15.240><c> was<
• And so, you know, whether, obviously, whenever you start a state program or a government program... that
• </c> A state program or a government program, um, it's kind of a cat of nine lives, really.

Committee: House Energy Finance and Policy

Keywords: 1183, house

Transcript Highlights:

• As you may recall, the Landowner's Compensation Program was established by Senate Bill 1133 last session
• As you may recall, the Landowner's Compensation Program was established by Senate Bill 1133 last session
• brought invaluable stakeholder feedback, which helped identify meaningful ways to strengthen the program
• Obviously, there's always a little bit of a runway to try to get a program up and off the ground, and
• damage program, that I felt like we could define real property.

Bills: SB2601

Committee: Senate Border Security

Keywords: landowner compensation, border crime, agriculture damage, law enforcement, crop loss, 1185, senate, all

Summary: The Senate Committee on Border Security met with a quorum and heard one bill, Senate Bill 2601 by Senator Blanco, laid out by Senator Hinojosa of Hidalgo. The bill amends the Landowner’s Compensation Program, which was created last session and is administered by the Office of the Attorney General, to expand eligibility to land lessees, cover damage to the land itself as well as structures and real property, add continuous smuggling of persons as a covered border crime, prohibit insurers from using claims under the program in rate calculations, and require law enforcement to provide border crime reports to the Attorney General within 14 days. The committee substitute also makes the bill a legislative council draft. Public testimony was unanimously supportive. Representatives of the South Texans Property Rights Association and the Texas and Southwestern Cattle Raisers Association said the program has helped landowners but needed cleanup and broader access, especially for lessees who manage property day to day and may otherwise not receive compensation. Testimony also emphasized ongoing problems with fence damage, debris, pollutants, and other border-related property damage. Members asked about implementation, including how conflicts between landowners and lessees would be handled; the response was that documentation of authority and lease responsibilities would be required. After public testimony closed, the committee adopted the committee substitute without objection. Senator Hinojosa then moved that SB 2601 be reported favorably to the full Senate with the committee substitute, and the motion passed on a 5-0 vote. The bill was also recommended for the local and uncontested calendar, with no objection.

Transcript Highlights:

• First item on the agenda is HB 2270 HD1 SD1, relating to the down payment loan assistance program.
• of DERF for pilot programs subject to an annual cap.
• Okay, our next bill is Senate Bill 2552, relating to the individual housing down program.
• So, the bill is just clarifying the 99-year leasehold program under ATDA.
• a program.

Bills: SB2057 , SB2109 , SB2400 , HB1752 , SB2599 , SB2930

Keywords: immigration enforcement, sanctuary policy, detainer, ICE, federal immigration authorities, 8 U.S.C. 1357(g), 8 U.S.C. 1373, 8 U.S.C. 1644, deportation, undocumented immigrants, noncitizen, migrant rights, local police cooperation, law enforcement cooperation, hold request, judicial warrant, probable cause, civil immigration enforcement, county police, state police

Transcript Highlights:

• So thank you for letting me talk about the STARS program.
• , and those are the only payees into the program.
• is an EMS program, not a hospital program.
• Her bill does not ask for an expansion of the STARS program.
• For adult daycare programs, we don't know if our customers are a participant in the adult daycare program

Committee: House Health and Mental Health

Keywords: 959, house, all

Transcript Highlights:

• The program was established in 1982.
• The panel has served as California's premier workforce training program.
• SB 1059 will strengthen ETP and position the program for the future.
• sure that the program runs right, efficiently, and progressively.
• sure that the program runs right, efficiently, and progressively.

Committee: Senate Labor, Public Employment and Retirement

Summary: The committee heard several labor and workforce bills. SB 1059 would modernize the Employment Training Panel by allowing electronic record-keeping, digital attendance documentation, and updated training terminology; supporters said it would reduce paperwork and better match current training systems, while no opposition appeared. SB 966 would codify refinery process safety protections adopted in 2017 after the 2012 Chevron Richmond fire, including worker participation in safety proceedings, anonymous hazard reporting, access to safety information, and stop-work authority; labor supported it, while the Western States Petroleum Association opposed it as conflicting with a 2024 settlement and potentially preempted by federal labor law. SB 1024 would provide 26 weeks of paid postpartum and recovery leave for firefighters who give birth, with job restoration and no requirement to use sick or vacation time first; firefighters and labor groups strongly supported it, and the committee discussed staffing and operational coverage concerns, but no opposition testified. The committee also heard SB 1316, which would strengthen wage theft enforcement by allowing Labor Commissioner liens to be renewed, limiting employers’ late use of records, and requiring Cal/OSHA to report complaints and citations data annually. Supporters said the bill would help workers actually collect wages after long delays and prevent employers from hiding records; it passed the committee on a 5-0 vote. SB 1185 would apply skilled and trained workforce requirements to pharmaceutical facility construction and maintenance, with supporters arguing these facilities require high precision to protect public health and supply chains; construction industry opponents said the bill was an unnecessary expansion of state mandates into private projects. SB 1227 would create apprenticeship pathways into DIR enforcement jobs, including Cal/OSHA and Labor Commissioner roles, to address staffing shortages and improve labor law enforcement; supporters emphasized vacancies and backlogs, and the bill was framed as a way to build a merit-based pipeline into state service. After hearing testimony, the committee took final votes on all six bills once the full membership returned. SB 966, SB 1024, SB 1059, SB 1185, and SB 1227 were all reported out of committee, and SB 1316 was also passed and sent to the Senate Judiciary Committee. The recorded final votes were unanimous or near-unanimous in favor, with the bills advancing on 4-1 or 5-0 votes depending on the measure.

Transcript Highlights:

• It opens Minnesota into a federal tax credit program that would ensure Minnesota dollars can be used
• It does not create a credit program. That program has already been created by federal law.
• It does not create a credit program. That program has already been created by federal law.
• It does not create a credit program. That program has already been created by federal law.
• </c><00:03:45.000><c> to</c> to send their money, use this program to to send their money, use this program

Keywords: 1183, house

Summary: House Republican leaders and Speaker Melissa Hortman held a press event promoting House File 3490, which would opt Minnesota into a federal education tax credit program. They argued the bill has no state cost and would keep donations made by Minnesotans benefiting Minnesota students and schools rather than out-of-state scholarship organizations. Supporters said the funds could help with tutoring, extracurriculars, school supplies, special education-related services, learning loss, and other school needs, and they repeatedly urged Governor Tim Walz to opt in or publicly explain why he would not. Rep. Andrew Myers, the bill’s chief author, said the proposal is personal to him as a parent and legislator and described recent school budget pressures, including staff and resource cuts and larger class sizes. Rep. Ben Bakeberg, a middle school principal, said the bill could generate significant funding if many taxpayers participate and argued it could help offset school district shortfalls and the Blue Ribbon Commission. Rep. Griesbach also backed the bill, calling it a “no-brainer” and saying he would not work with the governor on other budget items unless the governor opted in. In response to questions, supporters said scholarship-granting organizations could be created by a variety of entities, including education foundations, and could support both private-school tuition and public-school-related costs such as extracurricular fees, field trips, and transportation for summer learning. They rejected the idea that the bill pits public and nonpublic schools against each other, saying it is meant to expand educational opportunity for all students. No vote or formal committee action was taken during the event; it ended with questions from reporters on the bill and other Republican priorities such as rental assistance, gas taxes, and energy costs.

Transcript Highlights:

• This is an extremely successful program.
• So we're very close on that program.
• This program we.
• money from that program to their livestock inspection program.
• Do you have a program like that?

Committee: House House Appropriations & Finance

Keywords: 996, all

Transcript Highlights:

• c> cost</c> in the program cost total program cost in the program cost total program cost about<03:41
• </c> EFA program. EFA program.
• . program. program.
• program? program?
• </c> effectively administer that program. effectively administer that program.

Committee: House Education Policy and Administration

Keywords: 1189, house, all

Transcript Highlights:

• </c> this program succeed. this program succeed. &gt;&gt; Thank<00:04:07.120><c> you.
• </c><00:32:37.200><c> within</c> Hawaii builds pilot program within Hawaii builds pilot program within
• programs. >> Okay.
• </c> own programs own programs &gt;&gt; because<01:08:01.200><c> I</c><01:08:01.359><c> think</c><01:
• versus the county state programs versus the county programs. programs. programs.

Keywords: 912, senate, all

Summary: The committees heard testimony on five housing-related measures. SB 2232 would create a three-year tiny home grant pilot program within HHFDC, with annual reporting to HHFDC and the Legislature; testimony was mixed, and the bill was later recommended for passage with amendments, including a full-time housing development specialist, a residential-use-only restriction for the tiny homes, and a blanked appropriation. SB 2192 would bar county down-zoning that reduces housing capacity unless equivalent capacity is added elsewhere in the county; it drew support from housing advocates and comments from planning officials, and was also recommended for passage with amendments. SB 2378 would clarify insurance requirements for single- and multifamily projects seeking expedited county permitting; engineers and housing groups supported it, while one testifier opposed it, and it was recommended for passage with a technical amendment. SB 2524 would appropriate funds to the City and County of Honolulu for housing-related departments to comply with prior acts; the Honolulu department supported it, and members asked about prior spending and funding sources. SB 2398 would require residential housing utility availability maps; the Honolulu Board of Water Supply opposed the bill as written, citing infrastructure security, accuracy, liability, and administrative burden concerns, while supporters said it would improve transparency for developers. The chair proposed amendments to make the maps broad and geographic rather than parcel-specific, remove contested-case and reliance provisions, allow disclaimer language, and change the date; the bill was then recommended for passage with amendments, with one member noting reservations. All five measures were ultimately passed out of committee with amendments, with votes recorded and some members excused.

Transcript Highlights:

• successfully</c> The program has been successfully The program has been successfully running<00:04:06.080
• ><c> is</c><00:04:50.960><c> administered</c> this way, the program is administered this way, the program
• </c> the Education of Freedom Account Program the Education of Freedom Account Program or<00:47:22.560
• </c> attend graduate library programs. attend graduate library programs.
• </c> ready to go and a shovel ready program. ready to go and a shovel ready program.

Committee: House Education Policy and Administration

Keywords: 928, house, all

Summary: The committee first heard HB 1334, which would remove the Education Freedom Account scholarship organization’s authority to approve “any other educational expense” under the EFA statute. The prime sponsor, Representative Porchelli, said the bill would narrow the law to the specifically listed qualifying expenses, avoid broad interpretation, and shift any questions to the Department of Education or the legislative oversight committee. In response to questions, she said she did not think the open-ended category had been needed and that the statute already clearly lists allowable expenses. A representative of the Children’s Scholarship Fund testified in opposition, saying the category is used rarely but is important for unusual cases, especially students with special needs, and that removing it could create unintended consequences. After testimony, the chair closed the hearing on HB 1334. The committee then heard HB 1513, which would move several EFA reporting and oversight requirements from administrative rules and the contract with the Children’s Scholarship Fund into statute. Representative Porchelli said the bill would consolidate existing requirements on timely responses to oversight requests, publication of expense reports by category and provider, and transmission of eligibility and enrollment data to the Department of Education. She described the bill as mostly a clarification and transparency measure rather than a substantive policy change. Members asked about the meaning of “timely access,” the 45-day deadline, whether the contract already covered these duties, and whether the scholarship organization had ever failed to comply. The Children’s Scholarship Fund said it had generally met the 45-day deadline, had not knowingly refused information requests, and that the quarterly reporting requirement could add cost; the sponsor said the DOE had provided guidance and was neutral. The hearing on HB 1513 was then closed. Finally, the committee heard HB 1256, which would repeal the state librarian’s authority to award scholarships for graduate library school attendance at American Library Association-accredited schools. Representative Drago said the law was unnecessary because the state does not currently have a state librarian, scholarships are not typically granted by statute, and he objected to the ALA accreditation requirement and what he described as the association’s political advocacy. In questions, he clarified that the bill targets the accreditation requirement rather than a specific school and said he did not think the state should direct taxpayer-funded scholarships toward ALA-accredited programs. A member raised First Amendment concerns, but the sponsor said the issue was not speech itself, only the use of taxpayer dollars and state law to support that direction. The transcript cuts off before any vote or final action on HB 1256.

Transcript Highlights:

• successfully</c> The program has been successfully The program has been successfully running<00:04:06.080
• ><c> is</c><00:04:50.960><c> administered</c> this way, the program is administered this way, the program
• </c> the Education of Freedom Account Program the Education of Freedom Account Program or<00:47:22.560
• </c> attend graduate library programs. attend graduate library programs.
• </c> ready to go and a shovel ready program. ready to go and a shovel ready program.

Committee: House Education Policy and Administration

Keywords: 1189, house, all

Transcript Highlights:

• So, please it's a wonderful program.
• </c><00:27:54.320><c> I'm</c> Doctor of Pharmacy program. I'm Doctor of Pharmacy program.
• </c><00:33:56.000><c> The</c> um through the Medicare program. The um through the Medicare program.
• In the past, it was a two-year program. Of those going through the program, how many have stayed?
• </c> four-year program, would more stay put? four-year program, would more stay put?

Keywords: 910, house, all

Summary: The joint hearing opened with SB 1442, which would update the statute governing the Child and Adolescent Mental Health Division and clarify its role as the state Medicaid provider of intensive mental health services for children and adolescents with serious emotional disturbance. The Department of Health testified in strong support, saying the current statute is outdated and warning against any unfunded mandate because the division relies on federal funding and faces uncertainty about future resources. Written testimony from several organizations also supported the bill. The committees took no immediate action and said they would hold decision-making until later. The hearing then moved to SB 479 on ABLE savings accounts. The Hawaii State Council on Developmental Disabilities and the Hawaii Disability Rights Center supported the measure, arguing that ABLE accounts help people with disabilities save money without losing benefits and that the state needs more outreach and staffing to expand participation. A testifier with a disability said the bill would help people keep Social Security and housing stability. The chair indicated an intention to move the bill forward, and asked about funding; the discussion settled on a requested appropriation of about $75,000 for incentives. Next, SB 1245 on reimbursement of pharmacists drew broad support from the Hawaii Pharmacists Association, rural pharmacies, the Hawaii Primary Care Association, and others, who said the bill would improve access to care, especially on neighbor islands and in rural communities, and help pharmacies participate in 340B-related services. The Insurance Division and HMSA raised concerns about bill language, saying it could be read to cover pharmacists outside an insurer’s network and that the scope of reimbursable services needed clarification; the pharmacists’ association said the bill is intended to apply only to in-network pharmacists and should continue to reference existing scope-of-practice law. The hearing also took up SB 1279, which would allow pharmacists to authorize medications via telehealth under certain circumstances. The State Board of Pharmacy opposed the bill, citing patient safety, a pilot project with reported errors, concerns about controlled substances and unregulated technicians, and the view that in-person pharmacist services are safer and already available on the affected islands. Several pharmacies and health care groups supported the measure as a way to preserve 340B access and improve service on Lānaʻi and Molokaʻi, while some local pharmacies said they already provide in-person service and opposed remote dispensing. No votes were taken in the portion of the hearing provided.

Transcript Highlights:

• Senators, this bill establishes the Dula Support for Healthy Birth Pilot Program, program.
• , and implement a new Medicaid work requirement program?
• But these safety net programs are really a lifeline.
• But these safety net programs are really a lifeline.
• The SNAP program, we're looking at it federally.

Bills: S0036 , S0864 , S0268 , S0844 , S0514 , S1404 , S0914 , S1758

Committee: Senate Health Policy

Keywords: nursing title, advanced practice registered nurse, advertising, professional standards, disciplinary action, uterine fibroids, public records, health privacy, epidemiology, medical information, emergency department, physicians, privacy, personal information, sickle cell disease, sickle cell anemia, pain management, controlled substances, prescribing education, continuing medical education

Summary: The committee first considered SB 268, a public records exemption for emergency physicians. Senator Rodriguez’s strike-all amendment narrowed and clarified the exemption, and testimony from an emergency physician described threats, harassment, and safety concerns tied to mandatory reporting and patient encounters. The committee adopted the amendment and reported the bill favorably as a committee substitute. Members then heard SB 514, creating the Dula Support for Healthy Births Pilot Program in Broward, Miami-Dade, and Palm Beach counties for pregnant and postpartum women affected by substance use disorder. Senator Osgood explained the pilot would provide non-medical doula support and data collection, and an amendment changed the funding source to specific appropriations in the General Appropriations Act. Supporters said doula care can improve maternal and infant outcomes and complement medical providers. The committee adopted the amendment and reported the bill favorably as a committee substitute. The committee also approved SB 36 on use of professional nursing titles after extensive debate over whether nurses with doctoral degrees should be allowed to use “doctor” in clinical settings, with concerns raised about patient confusion and the need for clearer identification. The bill was amended to align with the House version and then reported favorably as a committee substitute. The committee next approved SB 864, a public records exemption for uterine fibroid research data, after a technical amendment setting a July 1, 2026 effective date; Senator Sharif said the exemption is needed so the Department of Health can collect sensitive data for the related research bill. SB 844, requiring continuing education on sickle cell disease care management for certain licensed physicians and nurses, was also reported favorably after emotional testimony from patients and advocates describing delayed care and bias. Later, the committee approved SB 1404 on memory care, after a strike-all amendment creating a new memory care specialty license for assisted living facilities that advertise or provide specialized memory care services, while allowing optional supportive services without the new license. Supporters from the senior living industry backed the clarification. The committee then passed SB 914, which clarifies that licensed occupational therapists may perform dry needling, after an amendment adjusting supervision and continuing education language. Finally, the committee took up SB 1758, a broad Medicaid and SNAP reform bill that would strengthen fraud enforcement, impose Medicaid work requirements for certain able-bodied adults, expand behavioral health services, modernize drug purchasing and prior authorization, and require SNAP fraud-reduction measures. Several amendments were adopted, and members questioned the work requirement, implementation costs, EBT card photo identification, and due process concerns; debate continued as the transcript ended.

Transcript Highlights:

• The Health Professions and Program Subcommittee will come to order, and Nola, please call the roll.
• Council, provide us a briefing on the Florida Rare Disease Council, Pediatric Rare Disease Grant Program
• , and the Sunshine Genetics Act Pilot Program.
• , and finally, the Sunshine Genetics newborn whole genome sequencing pilot program.
• That group is charged with executing the pilot program and fostering collaboration.

Summary: The Health Professions and Program Subcommittee met with a quorum present and received a briefing from Melissa Jordan, Assistant Deputy Secretary for Health and chair of the Florida Rare Disease Advisory Council (ARDAC). Jordan explained that rare diseases affect fewer than 200,000 people each individually, but together impact an estimated 2.3 million Floridians. She reviewed ARDAC’s structure, its three subcommittees, and its 2025 legislative report recommendations, which focused on expanding Florida-specific data, disaster preparedness, state agency coordination, insurance oversight, provider education, faster diagnostic tools, research collaboration, and establishing centers of excellence. She also highlighted ARDAC’s work with other states and its effort to build an online repository of resources for families and providers. Jordan discussed the Andrew John Anderson Pediatric Rare Disease Grant Program, funded at $500,000 annually, which supported research awards at Florida State University and the University of Miami in 2024 and another University of Miami project in 2025. She also described House Bill 907 and the Sunshine Genetics Act pilot program, which created the Florida Institute for Pediatric Rare Diseases at FSU and a newborn whole-genome sequencing pilot to screen volunteer infants for hundreds of conditions beyond traditional newborn screening. The institute will include research, training, clinical care, a diagnostic lab, genome editing capacity, and a sequencing pilot overseen by a board, consortium, and steering committee. Members asked about interstate collaboration, the scope of data collection beyond Medicaid, how the council reduces family financial burdens, how families and providers can learn about available resources, and how ARDAC measures effectiveness. Jordan said Florida has learned from other states’ survey-based approaches and instead is using administrative data sources such as Medicaid, hospitalizations, emergency department visits, birth and death certificates, with more clinical data to be added over time. She said success is tracked through annual reports, ongoing work plans, and quarterly research reports that measure progress, patient enrollment, treatment outcomes, and potential follow-on funding. The meeting concluded after the presentation and questions, and the subcommittee adjourned without further business.