Video & Transcript Research : 'disease testing'
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MN
Minnesota 2025-2026 Regular Session
Committee on Human Services - 02/12/25
Health and Human Services
Transcript Highlights:
- and I'm the Minnesota rare disease and I'm the Minnesota rare disease advisory<01:12:36.360>
- the criteria a disease must meet the Minnesota<01:14:38.760>
rare <01:14:38.960>disease - are devastating complex diseases.
- eventually yes remember these diseases eventually yes remember these diseases that<01:24:38.080>
- <01:24:44.400>
that are devastating complex diseases that are devastating complex diseases
ND
North Dakota 2025-2026 Regular Session
House Energy and Natural Resources Apr 3rd, 2025 at 09:00 am
Energy and Natural Resources
Transcript Highlights:
- and the procedures for chronic wasting disease in the state and where we're at with the disease. ...
- and the procedures for chronic wasting disease in the state and where we're at with the disease.
- As far as the surveillance and testing, isn't that happening right now?
- As far as the surveillance and testing, isn't that happening right now?
- I think we're codifying their authority inside of the disease.
Summary:
The Natural Resources Committee reconsidered Senate Bill 2159, which concerns a study related to nuclear energy and waste. Members discussed a proposed amendment to clarify that the study would address above-ground storage of nuclear waste, not underground storage, reflecting concerns raised by constituents about earlier nuclear-related proposals. The committee adopted the amendment and then gave SB 2159 a unanimous 13-0 do pass recommendation.
The committee then took up Senate Bill 2245, described as a hunting-related bill, and recommended it do pass on a 13-0 vote after brief discussion with Game and Fish support noted. Senate Bill 2216, the duck stamp bill, was also advanced 13-0. Testimony on SB 2216 explained that it would help Game and Fish better track resident duck hunting participation and generate revenue for waterfowl habitat, PLOTS access, and possible federal matching funds.
The most extensive debate centered on Senate Bill 2137, which addresses baiting rules and chronic wasting disease surveillance. An amendment was proposed to set a 50-gallon limit at a hunting location, require a 50-foot setback from property used for animal agriculture, and direct continued disease surveillance with a report due before December 31, 2028. After discussion about fence setbacks, livestock concerns, and the department’s authority to manage disease, the committee adopted the amendment by a 7-6 vote and then passed the bill as amended on an 8-4 vote. The committee also noted several remaining bills would be taken up the following week and adjourned, with no meeting the next day.
AZ
Transcript Highlights:
- disease is actually diagnosed.
- We know that certain medications, for instance, can make the disease worse, can speed up the disease
- disease is actually diagnosed.
- We know that certain medications, for instance, can make the disease worse, can speed up the disease
- With the family history of Alzheimer's disease, I knew I needed to get tested.
Keywords:
physician assistants, licensure compact, medical services, multistate practice, patient care access, healthcare workforce, military families, adverse actions, dementia care, telementoring, healthcare education, rural communities, grant funding, HB 2233, rural health transformation, rural health transformation program, AHCCCS, Arizona Health Care Cost Containment System, Joint Legislative Budget Committee, JLBC
Summary:
The committee began with a presentation from the Alzheimer’s Association Desert Southwest Chapter and Dr. Anna Burke of Barrow Neurological Institute on the scope of Alzheimer’s disease, the shortage of specialists, low rates of timely diagnosis, and the need for caregiver support and early intervention. Speakers emphasized that Arizona is a leader in Alzheimer’s research and that lifestyle changes, new therapies, and research funding offer hope, but only if patients are diagnosed earlier and providers are better trained.
The committee then heard House Bill 2202, which would appropriate $300,000 over three years for a dementia care telemonitoring/telementoring grant program through the Department of Health Services to help providers statewide learn best practices in dementia care. Supporters, including the Alzheimer’s Association, Dr. Danny Cabral, and a patient advocate, said the bill would address major gaps in provider training and improve early diagnosis and treatment. There was no opposition, and the committee voted 11-0 to give HB 2202 a do pass recommendation.
The committee next took up House Bill 2251, the “Jordan and MacTerry Act,” which would expand licensed midwives’ authority to administer certain medications, require liability insurance disclosure and reporting, and create an Arizona Midwifery Advisory Committee. Supporters said the bill would improve safety, oversight, and access to emergency medications in home births, while opponents from ACOG and the Arizona Osteopathic Medical Association raised concerns about the adequacy of oversight, the medication list, and whether eight hours of pharmacology training is sufficient. After testimony from midwives, physicians, and stakeholders, the bill was held for further stakeholder work and anticipated floor amendments. House Bill 2252, which would allow certified nurse midwives, certified professional midwives, or licensed midwives to accompany a patient in a ground ambulance during transport if approved by medical direction, also drew support and opposition. Supporters argued it would preserve continuity of care in emergencies, while firefighters and EMS representatives objected to ambiguity and scene control concerns. That bill was likewise held for further stakeholder meetings. The committee then recessed and reconvened for later presentations on federal budget and health-related topics.
TX
Transcript Highlights:
- What gets tested gets taught and what we're doing with the classic learning test is we're putting the
- test with a background in education publishing that includes constructing practice standardized tests
- trust that the test is secure?
- So this is a really good test.
- I've mentioned that, the ability to prevent disease or reverse the effects of chronic disease. based
TX
Texas 89th Regular
Senate Committee on Health and Human Services (Part II) May 7th, 2025
Health & Human Services
Transcript Highlights:
- You would have to have something almost like a pregnancy or a sexually transmitted disease.
- Do you know what the troponin blood test is for? Thank you for asking the questions.
- Troponin is the test that if it's elevated, you're not going home.
- But different disease areas. Okay, and we meet every two years, right?
- They were told they were thoroughly tested. They were told they were absolutely necessary.
Bills:
HB18, HB37, HB116, HB18, HB37, HB116, HB388, HB879, HB913, HB1151, HB2216, HB2358, HB2809, SB577, SB1590, SB1782, SB1887, SB2744
Keywords:
HB 18, Texas Legislature, quorum break, quorum-busting, legislative walkout, absent legislators, political contributions, campaign finance, political expenditures, legislative caucus, specific-purpose committee, Texas Ethics Commission, civil penalty, show cause order, district court, Fifteenth Court of Appeals, session fundraising, travel lodging food expenses, legislative session, compelled attendance
NH
New Hampshire 2025 Regular Session
House Health, Human Services and Elderly Affairs (03/19/2025)
Health, Human Services & Elderly Affairs
Transcript Highlights:
- uh some other vaccine for disease uh some other vaccine for similar<01:22:10.159>
disease <01: - <01:23:22.480>
and vaccines are developed and tested and vaccines are developed and tested - The idea of a disease being transmitted, um, if I'm vaccinated, uh, I can no longer get the disease,
- The idea of a disease being transmitted, um, if I'm vaccinated, uh, I can no longer get the disease,
- The idea of a disease being transmitted, um, if I'm vaccinated, uh, I can no longer get the disease,
LA
Louisiana 2026 Regular Session
Natural Resources and Environment May 6th, 2026
Natural Resources & Environment
Transcript Highlights:
- "How do you get people to have their deer tested?
- So this is to create an incentive for testing.
- disease is present or not."
- Are you testing you here? Absolutely, yes, sir.
- in the beginning, we used to have to send our tests over to Texas.
Summary:
The committee heard a series of natural resources and environmental measures, mostly local property transfers and Wildlife and Fisheries bills. It reported favorable on Senate Bills 229 and 71, which authorize property transfers in Bossier and Lafayette parishes, and on several department bills dealing with fishing and boating rules: SB 203 on possession of catch during multi-day trips, SB 429 on registration of lapsed or “orphan” boats, SB 204 on commercial fishing gear licenses for nonresidents, SB 205 reducing duplicate registration for federally documented boats, SB 213 on titling certain vessels and outboard motors, SB 257 removing Social Security number requirements from certain tags, and HB 662, a substitute bill setting a hierarchy for handling seized sick, injured, or orphan wildlife. The committee also adopted amendments and reported favorable SB 379, a technical cleanup bill tied to the Department of Conservation and Energy reorganization, though an opposition witness warned it could reduce minimum oil and gas royalties and asked for a fiscal note.
Members also advanced several measures aimed at coastal and flood-related concerns. HCR 62, by Rep. Domangue, urges FEMA to review flood maps every five years instead of every ten and to better account for local flood-protection projects; members broadly supported it and discussed the burden of flood insurance in coastal parishes. SB 214 would give the Teche-Vermilion Fresh Water District authority to stop pumping during immediate flood risk events identified by the National Weather Service or GOSEP, and it was reported favorable. SB 274, as amended, requires lead hazard risk assessments and remediation for certain child care and pre-kindergarten facilities, with DEQ and LDH testimony supporting the update. HCR 78 memorializes Congress to pass the American Seafood Competitiveness Act of 2026, which supporters said would help Louisiana’s seafood industry and access federal loans and grants.
The committee also debated broader policy resolutions. HCR 216, by Rep. Owen, sought to repudiate the Louisiana Climate Action Plan of 2022, but after extensive discussion about its purpose, possible effects on existing projects, and whether the legislature should instead hold a hearing, the resolution was voluntarily deferred. Finally, the committee took up SCR 24 on chronic wasting disease rules, adopted amendments raising the prevalence threshold from 1.5% to 2.5% and adjusting zone and baiting provisions, and continued discussion of the bill’s reset of management rules for deer disease control.
TX
Transcript Highlights:
- Bartlett, I've read through a number of pieces of literature that there are about 1,200 diseases now
- The disease of COVID has become less virulent over time. You're probably aware of that.
- Do you know what a troponin blood test is for? Doctor, I am asking the questions.
- Troponin is the test that if it's elevated, you're not going home.
- They were told they were thoroughly tested. They were told they were absolutely necessary.
Bills:
HB18, HB37, HB 116, HB388, HB879, HB913, HB 1151, HB2216, HB2358, HB2809, SB577, SB1590, SB1782, SB1887, SB2744
Keywords:
rural health, hospital funding, healthcare access, mental health services, financial stability, perinatal bereavement, healthcare, hospital training, bereavement support, maternal care, fetal demise, stillbirth, neonatal death, parent-child relationship, involuntary termination, family law, child welfare, child protection, HB 388, HB388
Summary:
The committee first reopened testimony on House Bill 2216, which would strengthen child welfare requirements by expanding “active efforts” to help families avoid removal and support reunification, while also raising standards related to removals and terminations. Supporters from child welfare and family defense groups said the bill would better protect families and align Texas more closely with ICWA-style principles, but several warned it would require significant new funding, staffing, and community services such as mental health care, housing, child care, and substance use treatment. The committee then left HB 2216 pending.
The committee next heard Senate Bill 1782, aimed at boarding and group homes. Senator Miles said the bill closes enforcement gaps left by prior law by requiring retention of background-check records and creating misdemeanor penalties for failing to conduct or keep them, or for knowingly hiring people with serious convictions. Harris County sheriff’s investigators testified in support, describing illegal boarding homes, operators who evade permits and background checks, and exploitation of vulnerable residents; the bill was left pending. The committee also took up Senate Bill 481 on emergency preparedness for nursing facilities and assisted living facilities, adopted a new committee substitute that softened some requirements and removed the fiscal note, and left the bill pending.
The committee then heard House Bill 388, which would require the Texas Department of Insurance to create a single standardized coordination-of-benefits form for dual health plans to reduce errors and surprise bills; it was left pending. Senate Bill 1590 would move paternity registry searches for adoptions to an electronic process with a 10-day target, and House Bill 2809 would track child suicide attempts in managing conservatorship and require related reporting and parental notice; both were left pending. The committee also heard Senate Bill 1887, which would prohibit administering mRNA-containing products for immunization for 10 years, with exceptions for cancer and genetic disorders. Supporters argued the bill was needed for safety, informed consent, and medical freedom, while opponents from the medical, research, and public health communities said mRNA vaccines are well-studied, save lives, and that the bill would harm access, research, and Texas’s biotech economy. The bill remained under discussion as testimony concluded.
TX
Texas 89th Regular
S/C on Disease Prevention & Women's & Children's Health Mar 27th, 2025
S/C on Disease Prevention & Women's & Children's Health
Transcript Highlights:
- Trials, and avoidance of unnecessary tests.
- It would be the same test that's already done, not an additional blood test; it would be included on
- So both are tested for all the tests.
- So we do test everyone regardless of gender.
- And while the disease primarily afflicts boys, females who are carriers are also at risk for other diseases
Keywords:
Medicaid, child health, express lane option, income verification, supplemental nutrition assistance, telepharmacy, healthcare access, remote dispensing, rural clinics, pharmacy regulations, health literacy, state health plan, health care, patient outcomes, public health, economic impact, healthcare, breast cancer, cervical cancer, insurance eligibility
AZ
Arizona 2026 Regular Session
03/26/2026 - House Artificial Intelligence & Innovation
Artificial Intelligence & Innovation
Transcript Highlights:
- And it's just because all we need to do is get those people tested.
- But we also have tests like minimal residual disease so that if you have breast cancer, they will genetically
- So we're talking something analogous to the GeneSight test. Yes? The GeneSight test.
- have the opportunity to test and do the different things in testing that you need to find a cure.
- have the opportunity to test and do the different things in testing that you need to find a cure.
Bills:
SB1786
Keywords:
artificial intelligence, content verification, provenance data, transparency, digital content, 1182, all
Summary:
The committee first heard a presentation from Sonora Quest Laboratories on how the company is using artificial intelligence and innovation in clinical lab work. Testimony emphasized that AI is already being used in digital pathology, cytology, genetics, genomics, predictive analytics, and quality control, with a strong focus on human oversight, validation, and closed, secure systems that keep patient data in-house. Speakers said AI can improve accuracy, speed diagnosis, reduce repeat testing, support precision medicine and pharmacogenomics, and potentially help with rare disease management and drug selection, while also noting the need for governance and safeguards.
Members asked questions about accuracy, safeguards, data security, whether AI could reduce repeat specimen collection, expand to other hospital labs, and how AI might affect treatment decisions such as step therapy and pharmacogenomics. The presenters said AI outputs are reviewed by specialists, that the systems are validated and monitored, and that the organization uses a closed ecosystem with no external data sharing. They also discussed future possibilities such as digital twins, earlier cancer detection, and more tailored medication choices, while acknowledging that AI is still developing and must be used carefully.
The committee then took up Senate Bill 1786, as amended, which requires covered providers using generative AI to add provenance data to AI-created or significantly modified video, image, or audio content, using methods like watermarking or metadata, with exceptions for minor edits and certain interactive or non-user-generated content. The amendment clarified that identifiable individual information generally cannot be included unless the user opts in, protected trade secrets, and set an effective date of February 1, 2027. After discussion about consumer transparency, scope, and possible legal issues, the committee adopted the amendment and voted 4-2 with one absent to give SB 1786 as amended a do pass recommendation.
MN
Minnesota 2025 1st Special Session
Committee on Health and Human Services - 03/04/25
Health and Human Services
Transcript Highlights:
- pace, allowing us to add more rare diseases to our newborn screening panel, and these new diseases are
- new diseases are going to be complex<00:31:25.039>
medical <00:31:25.679>diseases complex - medical diseases complex medical diseases um<00:31:29.159>
researchers <00:31:29.799>right - the criteria a disease must meet the Minnesota<00:32:20.279>
rare <00:32:20.480>disease - have Celiac in our home celiac disease have Celiac in our home celiac disease is<01:10:01.840>
CA
Transcript Highlights:
- This bill requires manufacturers to test for and disclose testing results for heavy metals, including
- Recent testing of 312 infant formula samples covering 16 brands, with multiple lots tested per brand,
- So the lawsuit didn't—it just included annual testing, annual reporting, but no testing.
- If at any point any of the batches that are tested, because there is routine testing that happens, if
- , where QR code that's going to link to the testing—where is that testing information coming from?
MN
Transcript Highlights:
- Um, it passes my test, and that's why I gave them the gold star.
- Um, it passes my test, and that's why I gave them the gold star.
- Um, it passes my test, and that's why I gave them the gold star.
- Um, it passes my test, and that's why I gave them the gold star.
- We nation and the world in rare disease.
MN
Minnesota 2025-2026 Regular Session
Human Committee Meeting - 2025-04-02
Human Services Finance and Policy
Transcript Highlights:
- So that's my story about rare disease.
- I also have the privilege of serving on the Rare Disease Advisory Council.
- Little girls, older sisters who are now devastated by their disease.
- The Minnesota Rare Disease Advisory Council is a state agency.
- criteria that a disease has to meet, the RDAC (Rare Disease Advisory Council) believes that a positive
CA
California 2025-2026 Regular Session
Assembly Floor Session Mar 9th, 2026
California House Floor Meeting
Transcript Highlights:
- Please... ...diagnosed, and more than 50,000 lose their lives to this disease.
- In 2024, the FDA approved the first blood tests for people at average risk for colon cancer.
- It's actually surprising to me how many people in their 20s and 30s are getting this disease.
- With treatment, with testing, and being proactive, those numbers are going down.
- Think to get a disease like this, but it is killing people under 50.
Summary:
The Assembly met after a quorum call and brief procedural business, including approval of the prior day’s journal, suspension of certain rules for guest introductions, and moving AB 568 to the inactive file. The chamber then recognized several visiting groups, including a fourth-grade class from Marigold Elementary School, representatives of the Pasadena Tournament of Roses and its Royal Court, and students from the University of California Students Association on lobby day.
The main floor actions centered on two resolutions. ACR 147 by Assembly Member Lackey designated March 9, 2026 as California Special Olympics Day. Members from both parties spoke in strong support, sharing personal connections to Special Olympics and praising its impact on athletes, families, and volunteers. The resolution received 70 co-authors and was adopted by voice vote. H.R. 89 by Assembly Member Patterson declared March as Colorectal Cancer Awareness Month. Speakers emphasized rising colorectal cancer rates among younger adults, the importance of screening, and new testing options including blood tests. The resolution also received 70 co-authors and was adopted by voice vote.
After the resolutions, Assembly Member Rodriguez offered an adjournment in memory of Bob Yuloa of Chino, a Navy veteran and longtime community servant. The Assembly then announced upcoming committee and floor session dates and adjourned until Thursday, March 12 at 9 a.m.
FL
Florida 2025 Regular Session
March 11, 2025 - 08:00 AM
Transcript Highlights:
- But the overwhelming majority of that will go into the actual testing and screening.
- disease.
- In fact, today we are investigating 10 novel candidate therapeutics for rare diseases.
- The disease is unknown to parents of young children.
- One is an autoimmune disease. The other one is a lot due to lifestyle choices.
Summary:
The Education Administration Subcommittee heard and approved four bills focused on school safety, student health, and classroom environment. HB 1403, Safety of Students, would expand Guardian program participation to child care facilities, require substitute teachers to receive campus safety protocols, and allow limited exceptions for certain CTE classrooms; it drew supportive testimony from school safety and education groups and passed 16-0. PCS for HB 907, the Sunshine Genetics Act, would create the Florida Institute for Pediatric Rare Diseases at FSU and launch an opt-in newborn whole-genome screening program funded with $20 million; supporters said it could speed diagnosis, save lives, and reduce health care costs, and it passed 17-0. HB 949 would prohibit student use of wireless communication devices during the full school day, while allowing districts flexibility in implementation and medical exceptions; supporters cited distraction and bullying data, and the bill passed 17-0.
The committee also approved HB 723, the Type 1 Diabetes Early Detection Program, which requires the Department of Health to provide school-based informational materials to parents and guardians about early warning signs, risk factors, and screening for type 1 diabetes. An amendment broadened the notification to include voluntary pre-K, kindergarten, and first grade and shifted the annual notice to September 30. Testimony in support came from diabetes advocates and pediatric groups, and members spoke about personal experiences with diabetes and the value of earlier education. The bill passed 17-0 after the amendment was adopted.
Across the meeting, members from both parties generally praised the bills as bipartisan efforts to improve student safety, health, and learning conditions. Several members raised questions or concerns about implementation details, including school guardian tracking, cell phone pouches and emergency access, and how the diabetes notice would be distributed, but no bill faced opposition in committee. All four measures were reported favorably.
NH
New Hampshire 2025 Regular Session
Senate Education Exec Session (02/18/2025)
Transcript Highlights:
- , and the school districts must do this just for this one disease.
- must do this just for this one disease must do this just for this one disease and<00:03:46.239><
- <00:05:02.240>
it's I think adding every single disease it's I think adding every single disease - It is such a sneaky disease, right?
- It is such a sneaky disease, right?
Summary:
The committee discussed a bill directing the Department of Education to develop or identify informational materials about type 1 diabetes and make them available to school districts and on school websites. One member objected that the bill was too narrow and effectively created a policy focused on one disease, arguing that other illnesses also deserve attention and that parents can obtain such information from physicians and health centers. Others responded that type 1 diabetes was chosen because it can be hard to detect, can progress quickly, and early warning signs in children may be missed by school staff and parents.
Supporters emphasized testimony from young people and families about the importance of early detection, noting that type 1 diabetes is different from type 2 and can lead to serious complications if not recognized quickly. Several members said the bill would help teachers, nurses, and parents identify symptoms and seek prompt medical care, and that adding every disease would overcrowd the materials. One senator said the bill was a prevention measure and that similar treatment could be considered for other illnesses in the future if they met the same criteria.
The committee then voted on the bill and advanced it on a 4-1 vote. Afterward, there was brief procedural discussion about whether to place another item on consent and whether to move out of executive session, but no additional substantive action was taken.
FL
Florida 2025 Regular Session
Health Policy Feb 4th, 2025
Transcript Highlights:
- THE ANDREW JOHN ANDERSON PEDIATRIC RARE DISEASE GRANT PROGRAM.
- SICKLE CELL DISEASE WORKFORCE DEVELOPMENT AND EDUCATION AS WELL A SICKLE CELL DISEASE TREATMENT CENTERS
- LABORATORIES TEST AND WE COME BEHIND AND WE ARE RESPONSIBLE FOR THIS.
- FOR THE CONSTANT FUNDING WHAT WE SING PHYSICALLY BEFORE YOU GET A LAB TEST?
- AND THE QUESTION COMES TO HOW WELL THE TESTING IS WORKING.
FL
Florida 2025 Regular Session
November 5, 2025 - 10:30 AM
Transcript Highlights:
- So, while the individual diseases may be rare, the total number of people impacted by rare disease is
- Council, provide us a briefing on the Florida Rare Disease Council, Pediatric Rare Disease Grant Program
- Individuals have a rare disease.
- Of rare diseases in the state.
- Sustainable funding for rare disease research.
Summary:
The Health Professions and Program Subcommittee met with a quorum present and received a briefing from Melissa Jordan, Assistant Deputy Secretary for Health and chair of the Florida Rare Disease Advisory Council (ARDAC). Jordan explained that rare diseases affect fewer than 200,000 people each individually, but together impact an estimated 2.3 million Floridians. She reviewed ARDAC’s structure, its three subcommittees, and its 2025 legislative report recommendations, which focused on expanding Florida-specific data, disaster preparedness, state agency coordination, insurance oversight, provider education, faster diagnostic tools, research collaboration, and establishing centers of excellence. She also highlighted ARDAC’s work with other states and its effort to build an online repository of resources for families and providers.
Jordan discussed the Andrew John Anderson Pediatric Rare Disease Grant Program, funded at $500,000 annually, which supported research awards at Florida State University and the University of Miami in 2024 and another University of Miami project in 2025. She also described House Bill 907 and the Sunshine Genetics Act pilot program, which created the Florida Institute for Pediatric Rare Diseases at FSU and a newborn whole-genome sequencing pilot to screen volunteer infants for hundreds of conditions beyond traditional newborn screening. The institute will include research, training, clinical care, a diagnostic lab, genome editing capacity, and a sequencing pilot overseen by a board, consortium, and steering committee.
Members asked about interstate collaboration, the scope of data collection beyond Medicaid, how the council reduces family financial burdens, how families and providers can learn about available resources, and how ARDAC measures effectiveness. Jordan said Florida has learned from other states’ survey-based approaches and instead is using administrative data sources such as Medicaid, hospitalizations, emergency department visits, birth and death certificates, with more clinical data to be added over time. She said success is tracked through annual reports, ongoing work plans, and quarterly research reports that measure progress, patient enrollment, treatment outcomes, and potential follow-on funding. The meeting concluded after the presentation and questions, and the subcommittee adjourned without further business.
NH
Transcript Highlights:
- , radon test to test our homes, a real concern here in the Granite State, chronic disease programs, arthritis
- We also do infectious disease testing: tuberculosis, arboviral diseases, tickborne diseases, influenza
- Uh we also do in infectious<03:07:13.680>
disease <03:07:14.080>testing, infectious disease - testing, infectious disease testing, tuberculosis,<03:07:16.000>
arboiral <03:07:16.800>diseases - , tuberculosis, arboiral diseases, tuberculosis, arboiral diseases, tickborne<03:07:17.840>
diseases