Transcript Highlights:

• These tests detect over 60 genetic, metabolic, and congenital conditions that, if left untreated, could
• These tests detect over 60 genetic, metabolic, and congenital conditions that, if left untreated, could
• Within 18 months of a new test being added to our requirements, the department must be able to incorporate
• This means not only additional tests but also supplies, equipment, and contracted services necessary

Summary: The Legislative Budget Commission met with a quorum present to hear the constitutionally required Long-Range Financial Outlook and consider a series of budget amendments. Amy Baker of the Office of Economic and Demographic Research presented the outlook, describing Florida’s continued population growth, strong wage growth, an aging population, housing-market softening, and low consumer sentiment. She said the general revenue forecast was largely unchanged from March, but the state’s funds available had improved because of legislative actions in 2025 that increased the balance forward. She also noted strong reserves, a projected current-year Medicaid deficit of about $125 million, and a three-year outlook that remains positive in the first year but turns negative in years two and three. She highlighted the risk of co-occurring catastrophic events, using a normalized Great Miami Hurricane scenario to illustrate potential state losses. The outlook was adopted after brief comments from House and Senate members emphasizing fiscal restraint and efficiency. The commission then approved multiple budget amendments, mostly without objection. The Agency for Health Care Administration received amendments to realign funding for Florida KidCare based on estimating conference results, to provide $85 million in budget authority for disproportionate share hospital payments, and to adjust Medicaid and long-term care appropriations, including placing surplus funds into reserve. The Department of Health received $6.3 million in additional authority for newborn screening. The Department of Corrections and the Department of Management Services each received $2.2 million in Private Inmate Welfare Trust Fund authority for repair invoices and pending projects. The Department of State was authorized to release $2.5 million in nonrecurring general revenue for cultural and museum grants and America 250 commemorative grants. The Department of Transportation received approval for a project roll-forward and for work program changes, including advancing I-95 widening in Duval County and the I-4 corridor in Polk and Osceola counties. The meeting ended with a motion to adjourn.

Transcript Highlights:

• And that embryo is implanted into the surrogate.
• And that embryo is implanted into the surrogate.
• As advanced air mobility moves from research and testing to real-world deployment, this legislation will
• They arrive quietly to weaken our resolve, to test whether we still believe in constitutional supremacy
• You also heard... ...test for this, but no further investigation was done.

Transcript Highlights:

• as well as the budget estimates for the program of WIC, or Women, Infants, and Children, and the Genetic
• proposals as well as the budget estimates for the program of WIC or women infants and children and the genetic
• Our genetic disease screening program is projecting no real major changes for the newborn screening or
• the American College of OBGYN, District 9, in support of SB 646 implementation, which deals with testing
• So the patient may be diagnosed based on a laboratory test or a provider evaluation, and data about the

Summary: The Assembly Subcommittee on Health heard an overview of the California Department of Public Health budget, including a $5.1 billion department budget and 19 non-IT budget change proposals spanning environmental health, healthcare quality, infectious disease, healthy communities, health statistics, preparedness, and laboratory sciences. CDPH also presented estimates for WIC and the Genetic Disease Screening Program, both of which were described as relatively stable, with WIC food costs rising mainly due to inflation and participation holding near 1 million monthly participants. Members and public commenters raised support for several proposals, including funding for the California Reducing Disparities Project, AB 1264 implementation on school food standards, childhood lead poisoning prevention, the hospital bed capacity registry, sickle cell care networks, and WIC protections amid federal policy changes and shutdown-related uncertainty. Dr. Erica Pond then presented the 2026 State of Public Health report, highlighting major gains such as record-low mortality rates, all-time high life expectancy, and the first decline in overdose deaths in 14 years, while warning about persistent disparities in maternal and infant outcomes, rising severe maternal morbidity, and worsening mental and behavioral health trends, especially among younger adults. She emphasized racial and geographic inequities, the role of social drivers like poverty and education, and the importance of prevention investments through the Behavioral Health Services Act. Members discussed the need for upstream public health spending, environmental health preparedness, and how to translate data into action, while public comment largely focused on sustaining community-based prevention and equity programs. In a separate update on federal actions and public health partnerships, Dr. Pond and CDPH staff described California’s response to federal funding threats, vaccine policy changes, and measles outbreaks. They outlined new collaborations such as the West Coast Health Alliance, the Governor’s Public Health Alliance, the WHO outbreak network, and the FACT Coalition, along with CDPH’s process for reviewing and updating immunization and preventive service recommendations under AB 144. Members questioned the rise in measles and declining vaccination coverage, and CDPH said it is using trusted messengers and tailored outreach while continuing to evaluate federal recommendations. The committee then heard an ADAP estimate showing lower projected budget authority needs due to reduced caseload and one-time funding expiring, followed by public support for using ADAP rebate funds to expand HIV prevention, PrEP, testing, and disease intervention staffing. The final issue focused on public health information technology systems, including Sapphire, CalReady, CalConnect, CARE, MyTurn, MyCAVAC, and the digital vaccine record. CDPH explained how these systems support disease reporting, contact tracing, immunization tracking, vaccine ordering, and outbreak response, while the Department of Finance said only Sapphire and CalReady are funded in the Governor’s budget and the rest are under review because of the state’s budget deficit and declining utilization. Local health department representatives strongly opposed losing the systems, arguing that lower usage reflects post-pandemic conditions and that the tools save staff time, improve outbreak response, and prevent a return to manual spreadsheets and phone calls. Members echoed concern that cutting the systems would undermine public health capacity and waste prior state investment, and urged the administration to present a funding plan that matches its stated commitment to public health.

Transcript Highlights:

• We're seeing more people wanting to test it in the experimental fishing space.
• We are starting to test for domoic acid right around now.
• And preserve the genetics. We look forward to supporting that moving forward.
• testing, and, of course, everyone's least favorite issue, and that is RAMP.
• testing, and, of course, everyone's least favorite issue, and that is RAMP.

Committee: Senate Joint Committee on Fisheries and Aquaculture

Summary: The committee held its annual Zeke Grader Fisheries Forum to review the state of California fisheries and aquaculture, with panels planned on salmon, Dungeness crab, kelp, and ocean conditions. Chair McGuire opened by emphasizing the severe challenges facing West Coast fisheries, the importance of Proposition 4 funding for coastal resilience and habitat restoration, and the need to protect rural coastal economies and tribal fishing traditions. He also noted recent positives such as the first recreational salmon season in three years, the removal of four Klamath River dams, and a strong but shortened Dungeness crab season. Secretary of Natural Resources Wade Crowfoot and CDFW Director Charlton Bonham described the state’s salmon strategy, habitat restoration work, and efforts to reduce permitting delays and improve fishery management. They highlighted Klamath dam removal, Delta wetland restoration, floodplain and stream restoration, and use of Prop. 4 funds to support salmon recovery. Bonham reported limited but encouraging salmon openings in 2025, stronger returns in some runs, and ongoing concerns about federal funding cuts, reduced hatchery production at Nimbus, and the need for more monitoring and enforcement resources. He also said illegal cannabis cultivation is causing serious environmental damage through water diversion and toxic chemicals, and described increased enforcement through a unified state task force. Testimony from tribal, commercial, and conservation witnesses focused on salmon recovery needs. Yurok Tribe fisheries director McCovey said the Klamath run remains extremely weak, with the tribe still unable to sustain a commercial fishery, but praised dam removal and new state legislation to secure minimum flows. PCFFA president George Bradshaw called for major investment in aging hatchery infrastructure, especially in the Central Valley, and said three consecutive salmon closures have devastated coastal communities. CalTrout’s Schneider stressed that salmon remain at risk statewide, urged more monitoring, habitat reconnection, water management improvements, and flexible restoration funding, and said the state must accelerate work to keep pace with climate change. On Dungeness crab, CDFW’s Dr. Schumann reviewed the 2024-25 season, noting record prices per pound, about 8.5 million pounds landed, and roughly $55 million in ex-vessel value despite delays and trap reductions. He outlined new RAMP 2.0 rules, phased-in gear marking requirements, updated electronic monitoring, and alternative gear authorization, while warning that whale entanglements, warm water, and domoic acid remain major risks and could delay the 2025-26 opener. Committee members and witnesses discussed the need for certainty for the fleet, the growing use of ropeless or alternative gear, and the importance of continued monitoring and testing as the season approaches.

Transcript Highlights:

• We're seeing more people wanting to test it in the experimental fishing space.
• testing, and, of course, everyone's least favorite issue, and that is ramp.
• testing, and, of course, everyone's least favorite issue, and that is ramp.
• So it's early, so we've got several more weeks or months of testing ahead of us.
• It's early, so we've got several more weeks or months of testing ahead of us.

Committee: House Joint Committee on Fisheries and Aquaculture

Summary: The Joint Committee on Fisheries and Aquaculture held its annual State of the Fishery forum, focusing on salmon, Dungeness crab, kelp, ocean conditions, and related aquaculture and committee reports. Opening remarks from committee leadership emphasized climate impacts, reduced federal NOAA support, state investments through Proposition 4, coastal resilience funding, and the importance of fisheries to rural economies and tribal communities. Secretary of Natural Resources Wade Crowfoot described a decade of drought and climate stress, highlighted progress such as Klamath River dam removal, wetland restoration, and the state’s salmon strategy, and warned that federal funding uncertainty and staffing cuts could undermine restoration and fishery recovery efforts. Senator Cortese raised concerns about illegal cannabis cultivation damaging riparian habitat and water flows, and both Crowfoot and Fish and Wildlife Director Bonham said enforcement against illicit grows remains a major environmental priority but is constrained by resources. Director Bonham provided a broad update on California fisheries, reporting encouraging signs for salmon after several difficult years, including improved ocean conditions, stronger returns in some runs, and successful short recreational openings in 2025. He also noted major challenges, including reduced federal hatchery production at Nimbus, ongoing uncertainty around winter-run and spring-run recovery, and the need for continued habitat restoration, monitoring, and hatchery investment. On Dungeness crab, Bonham said the fishery remained valuable but constrained by whale entanglement risk, warming ocean conditions, and domoic acid concerns; he described new marked-line distribution, ropeless and alternative gear trials, and ongoing aerial and vessel monitoring. He also said the department’s unified cannabis enforcement task force had served numerous warrants and seized large amounts of illegal cannabis, but more funding is needed for sustained operations. In the salmon panel, Yurok Tribe fisheries director McCovey said the Klamath still faces low run sizes, climate-driven warming, wildfire impacts, and federal uncertainty, but he pointed to dam removal, restoration work, and AB 263’s river-flow protections as major advances. PCFFA president Bradshaw stressed that the three consecutive salmon closures have devastated coastal communities and argued for major reinvestment in aging Central Valley hatchery infrastructure and better broodstock management at Fall Creek. CalTrout’s Schneider said salmon remain at risk statewide, but cited Prop 4, habitat reconnection, floodplain restoration, improved water management, and monitoring as the main tools for recovery. In the crab panel, CDFW’s Schumann reported that the 2024–25 season produced record prices per pound and about $55 million in value despite delays and trap reductions, but he warned that three confirmed whale entanglements and elevated whale presence could force a conservative opener for 2025–26. PCFFA’s Domrash supported marked line, alternative gear, and a new gear-recovery network, while also criticizing the current ramp system as a response to a problem not fully grounded in science.

Transcript Highlights:

• This isn't that are genetically related.
• genetic illnesses.
• Nearly 80% of rare diseases are estimated to be genetic in nature.
• </c><02:07:52.480><c> to</c> diseases are estimated to be a genet to diseases are estimated to be a genet
• Yet fewer than 5% be genetic in nature.

Committee: Senate Health and Human Services

Transcript Highlights:

• There are probably not many BSL-2 labs, and none that do this particular testing in addition to genetic
• There are probably not many BSL-2 labs, and none that do this particular testing in addition to genetic
• There are probably not many BSL-2 labs, and none that do this particular testing in addition to genetic
• There are probably not many BSL-2 labs, and none that do this particular testing in addition to genetic
• There are probably not many BSL-2 labs, and none that do this particular testing in addition to genetic

Summary: The Capital Planning Advisory Board met for its first meeting of the year, confirmed a quorum, approved the prior year’s minutes, and welcomed new co-chairs and members. The board reviewed the capital planning timeline and a list of agencies that submitted plans but would not testify. Members were reminded to keep presentations brief because of a packed agenda. The Cabinet for Health and Family Services presented first, outlining priorities centered on public safety, infrastructure preservation, and preventive maintenance. Its requests included a $21 million maintenance pool, phase two funding for a new state public health laboratory, construction of an 18-bed children’s psychiatric hospital, and several projects at Western State Hospital and Western State Nursing Facility, including HVAC work, cooling tower repair or replacement, and chiller plant repiping. Additional projects covered elevator upgrades at Hazlewood and phased cottage renovations at Oakwood. Board members asked about vacant buildings, the cost per bed for the youth psychiatric facility, and the relationship between the CHFS youth facility and a separate DJJ facility; CHFS said the youth facility would serve DCBS-involved youth and be separate from the DJJ project. The Kentucky Department of Education then described its state-operated facilities, including the Kentucky School for the Deaf, the Kentucky School for the Blind, and the FFA leadership training center. Its priorities included additional funding for the FFA classroom and activity building, a rewrite of the SEEK education finance application system, renovation and repair of the FFA swimming pool, electrical upgrades, campus education enhancements, safety and security work, door and window replacements, and HVAC maintenance. Members asked about student outcomes, the size and cost of the swimming pool project, and construction cost assumptions; KDE said it tracks student outcomes through special education staff and that current estimates reflect higher post-COVID construction costs. The Education and Labor Cabinet began its presentation with 12 priority projects, including a state labor exchange system, renovation of the McDow Vocational Rehabilitation Center, and a new adult education and family literacy management information system. The cabinet said the labor exchange would connect job seekers and employers at no cost, while the McDow renovation was needed because the 30-year-old facility faces safety and code concerns. The cabinet planned to continue through the remaining priorities and answer questions at the end of its presentation.

Transcript Highlights:

• We mentioned genetics.
• Parkinson's, only about 22% of a Parkinson's diagnosis can be correlated to your genetics.
• She does not have any genetic predisposition to Parkinson's.
• But it's certainly an example of somebody who doesn't have the genetics for Parkinson's disease.
• So you said 22% of the cause of Parkinson's is genetics.

Committee: House General Laws

Summary: The Committee on General Laws met with a quorum and first went into executive session on House Bill 3088, where members discussed concerns raised by hospitals about proposed language changes. The bill sponsor said he was still working with hospitals and would continue to refine the measure, but several members objected to voting before seeing the revised language. HB 3088 was nevertheless voted do pass by an 8-4 vote. The committee then approved House Bill 2749 by an 8-4-1 vote, after which it moved into public hearing. The committee heard House Bill 2844, which would prohibit paraquat use in Missouri and require reporting related to its use. Representative Gallick said the bill was intended to be narrow and focused on paraquat’s toxicity and possible links to Parkinson’s disease. Supporters, including the Michael J. Fox Foundation, Missouri Coalition for the Environment, Sierra Club, and others, argued that paraquat is highly toxic, that research links exposure to increased Parkinson’s risk, and that many countries have banned it. Opponents from the Missouri Soybean Association, Missouri AgriBusiness Association, Missouri Farm Bureau, Missouri Corn Growers, and Missouri Pork Association said paraquat is a restricted-use pesticide already regulated under federal law, is important for weed control and crop production, and that a state ban would set a dangerous precedent and harm farmers. The committee took no final action on HB 2844 during the hearing. The committee also heard House Bill 1880, which would bar school districts and charter schools from selling beverages with more than 100 milligrams of caffeine per container to students. Representative Reuter said the bill was inspired by students from Seckman High School and cited concerns about adolescent caffeine consumption. Student witnesses described energy drink use at school, health effects such as anxiety, heart racing, dehydration, and sleep disruption, and said the bill would help reduce harmful habits. Several members supported the goal but suggested the threshold might be too high, that private schools receiving state scholarship funds should be included, and that school boards might be a better place to address the issue; others noted the bill lacked an enforcement provision. No vote was taken on HB 1880.

Transcript Highlights:

• Mic test, check 1-2. Mic test, check 1-2. Thank you. Thank you. Thank you. Thank you. Thank you.
• It focuses on treatments that utilize genetic, chromosomal DNA, genetic products, and metabolites for

Bills: SB1328 , SB1380 , SB1436 , SB1558 , SB1572 , SB1651 , SB1805 , SB1831 , SB1836 , SB2014 , SB2023 , SB2044 , SB2179 , SB933

Committee: Senate Health and Human Services

Summary: The Health and Human Services Committee met to consider a series of Senate bills, beginning with SB 2014, which would allow ivermectin to be sold over the counter with FDA approval. After questions about whether a prescription would still be required and how FDA guidance would affect the law, the bill passed 9-3. SB 1805, as amended, barred detention and youth facilities from using temporary agencies or contracting organizations for staffing; the author said the change was intended to address transparency and records issues in a related lawsuit. That bill passed 12-0. SB 2044, also amended, clarified chiropractic-related language regarding serum and multiple vitamins; members discussed whether the bill changed scope of practice, and it passed 10-2. The committee then approved SB 1836, which requires a board-approved mental health screener during routine annual primary care visits. The author said it was meant to normalize mental health screening and noted an updated fiscal impact estimate of $284,000 to $560,000; some members raised concerns about mandates and cost, but the bill passed 8-4. SB 1380 would require the Oklahoma Health Care Authority to verify Medicaid eligibility against death records and conduct monthly death-record checks for enrollees; after questions about current practice, costs, and recoupment from deceased enrollees, the author requested title be stricken, and the bill passed 10-2. SB 2179, dealing with not-guilty-by-reason-of-mental-illness cases, adds staff accompaniment for therapeutic visits, requires structured violence-risk assessments before discharge or conditional release, and adds drug screening when substance-use monitoring is ordered; Department of Mental Health staff testified about treatment planning and monitoring, and the bill passed 11-1. Later, the committee passed SB 1436, which requires families to be informed of their right to certification after fetal death or miscarriage, and SB 1558, which clarifies that older youth in OJA custody may be placed in Level E group homes. SB 933, the “Right to Try for Individualized Treatment Act,” passed 11-0 and would allow certain terminally ill patients to seek individualized investigational treatments after informed consent. SB 1651, an Oklahoma Medical Board cleanup bill covering several licensed professions, also passed 11-0. Finally, SB 1328 modernizes parental access to minor medical records with safeguards for abuse situations, and SB 1572 removes the DHS and OJA directors from the OCCY board; both passed 11-0. The committee adjourned after noting a possible interim meeting for a Tier 1 nomination.

Transcript Highlights:

• fertility preservation services be provided if deemed medically necessary, including the diagnosis, testing
• , and medication related to fertility preservation, as well as the storage of embryos through cryopreservation

Committee: Joint Employee Benefits Programs Committee

Transcript Highlights:

• This has withstood the test of time. Thank you.
• We found out later in life that she has a genetic disorder that we don't test for, so there's...
• No. ...saying your child has a genetic disorder. She had a genetic disorder. She has.
• All vaccines undergo safety tests.
• It is test and treat.

Bills: HB3772 , HB1656 , HB4504 , HB1896 , HB4420 , HB4421 , HB4076 , HB3708 , HB2806 , HB3540 , HB1586 , HB5459 , HB4553 , HB4535 , HB3811 , HB3749 , HB4255 , HB4051 , HB5098 , HB3554 , HB4539 , HB5274

Committee: House Public Health

Keywords: e-cigarettes, health and safety, regulations, directory, penalties, regulation, certification, compliance, manufacturers, FDA, nicotine, mental health, emergency detention, paramedic authority, mental illness, healthcare facility, public health, covenants not to compete, health care practitioners, physicians

Transcript Highlights:

• Those genetic markers are unique to every individual in human history.
• They never tested his DNA. Eighteen and a half years.
• And they did what's called touch DNA testing.
• And they did what's called touch DNA testing.
• Before my conviction, the FBI conducted the DNA tests and excluded me.

Committee: House Crime and Public Safety

Summary: The committee first met in executive session and adopted a House committee substitute for House Bill 2587, then voted the substitute do pass on an 18-0 roll call. The sponsor said the bill was updated to mirror federal law and included an emergency clause, with supporters noting it was intended to align Missouri law ahead of the FIFA World Cup and related public safety concerns. The committee also briefly took up House Bill 2055 and voted it do pass 18-0 before moving on to public hearings. The main public hearing was on House Bill 2868, which would expand Missouri DNA collection to all felony arrests rather than the current narrower list of qualifying offenses. Representative Parker argued the change would help solve crimes and exonerate the innocent, citing Maryland v. King and examples from other states. Committee members raised concerns about juvenile language, privacy, the presumption of innocence, retention and destruction of samples, access to CODIS, and whether the bill should be limited to violent or higher-level felonies. Supporters, including victim Ashley Spence and other advocates, described how arrest-stage DNA collection helped identify a serial rapist and solve cold cases, while opponents Joshua Kieser and others argued the bill was overbroad, could be used as a fishing expedition, and should not apply before conviction. Missouri State Highway Patrol staff testified that the bill would add nearly 14,000 arrestees annually, could aid about 731 investigations each year, and would reduce confusion in current collection practices. The hearing also included detailed testimony about wrongful convictions, expungement safeguards, identical twins, and the difference between arrest, charge, and conviction. Several members said they supported the goal of helping victims but wanted narrower language or stronger guardrails, especially for nonviolent felonies. The hearing on HB 2868 was then closed, and the committee began hearing House Bills 3012, 2997, and 3058, with the bill sponsors introducing themselves as the next items up.

Transcript Highlights:

• That's the legal test. So they are actually in the process of getting that certification.
• We can test. And that's very good. That's part of it. But we have to market.
• Marketing and good taste testing. Thank you.
• Taste testing. Thank you. We are going to, I'm going to take up HR 188 here. And Mr. Dr.
• Bagley is using as far as genetics for the son. Okay. ...is using as far as genetics for the son.

Committees: House Agriculture, Forestry, Aquaculture & Rural Development , House Agriculture, Forestry, Aquaculture, and Rural Development

Summary: The House Committee on Agriculture, Forestry, Aquaculture, and Rural Development met to approve the October 3, 2024 interim minutes and then took up two resolutions. HCR 205, by Representative Kerner, urged USDA to use its Commodity Procurement Program to purchase domestic Louisiana shrimp. Supporters said shrimpers are facing very low prices, full cold storage, and an urgent need for federal purchases to stabilize the market and help local processors and fishermen. Commissioner Mike Strain explained that USDA commodity purchases can support schools, nursing homes, and food banks, and members discussed the need for cold storage, marketing, and better promotion of local seafood. The resolution was reported favorably without objection. The committee also considered HCR 188, which memorializes Congress to oppose any federal farm bill language that could negatively affect the use of hunting dogs; members said the provision had raised concerns about field trials, scent hounds, and hunting practices, and the resolution was also reported favorably without objection. The committee then received a presentation from Southern University Ag Center and College of Agriculture leadership, led by interim president and chancellor Orlando McMeans and Executive Vice Chancellor Calvin Walker. They outlined the center’s research, teaching, and extension work, including medicinal cannabis research, beef cattle and smart ranching, viticulture, aquaculture, precision agriculture, food and nutrition, and support for small farmers and K-12 dual enrollment. They highlighted scholarship and enrollment programs, including USDA-supported 1890 scholars and JAG Stars, as well as partnerships with LSU and USDA. They also described major facility projects, including a high-tech meat processing facility, research labs, a vineyard, and a proposed 1,300-bed disaster shelter/mega shelter at the experiment station. Members asked questions about meat-cutting and processing training, cattle genetics, and the shelter’s use when not needed for disasters. Southern officials said the new processing facility is intended to support training and workforce development, and that the shelter could also be used for events such as weddings, graduations, and agricultural activities. The committee expressed appreciation for the presentation and the work of the Ag Center. Representative Broussard then moved to adjourn, and the committee adjourned.

Transcript Highlights:

• One thing that strikes me the most is those patients who identify with rare genetic disease in their
• disease in their with rare genetic disease in their family<01:04:17.680><c> is</c><01:04:17.920><c>
• </c><01:04:25.839><c> few</c><01:04:26.079><c> of</c><01:04:26.319><c> them</c> genetic diseases and
• But for some reason interns right now they have to go through their schooling and take their test um
• But for some reason interns right now they have to go through their schooling and take their test um

Bills: HF4438 , HF4467 , HF4379 , SF3402 , HF4349 , HF4064 , HF84 , HF85 , HF3804

Committee: House Health Finance and Policy

Keywords: healthcare, WIC, community health, licensing, speech-language pathology, audiology, contract term limits, healthcare services, provider enrollment, disenrollment, premium payments, medical assistance, substance use disorders, mental health, children's mental health, early childhood, early intervention, consultation grants, Head Start, child care

Transcript Highlights:

• Prader-Willi is a really rare, complex, and incurable genetic disorder, and I'm here today to ask for
• tailored to a patient's unique genetic profile.
• When your child has a rare genetic condition, hope is not abstract; it's practical. Hope is access.
• Be some genetically directed therapy that might be working.
• Someone's genetic composition.

Bills: SB41 , SB33 , SB32 , SB30

Committee: Senate Senate Health & Public Affairs

Keywords: sexual crimes, statute of limitations, criminal justice, victim rights, child abuse, individualized treatment, investigational treatment, health care, life-threatening illness, patient rights, physician recommendation, informed consent, human trafficking, sexual exploitation, child protection, prosecution, crime amendments, SB30, induced abortion, abortion reporting

Transcript Highlights:

• According to the Mayo Clinic, MLDD is a rare genetic disorder with symptoms that include loss of motor
• MLDD is a genetic disease.
• A genetic disease.
• As Julie mentioned, MLDD is a rare recessively inherited genetic disorder.
• </c><01:09:57.440><c> in</c> middle ground approach first tested in middle ground approach first tested

Committee: Senate Health and Human Services

Transcript Highlights:

• That test is known as the dequanolavine field test.
• He got a genetic test that revealed that the only medication that could help him would be Clozapine.
• The testing is already required. We do full testing. Panel testing on every single product.
• The testing, I want to get to the testing real quick.
• That means he tested it. He tested that product.

Bills: HB5

Committee: House Public Health

Transcript Highlights:

• He became homeless and he died. test without family. How does someone test without family.
• With this, we expend costs for genetic and health testing, large veterinary costs for health maintenance
• With this, we expend costs for genetic and health testing, large veterinary costs for health maintenance
• With this, we expend costs for genetic and health testing, large veterinary costs for health maintenance
• With this, we expend costs for genetic and health testing, large veterinary costs for health maintenance

Committee: House Judiciary & Hawaiian Affairs

Summary: The committee heard testimony on House Bill 1552, which would make the attorney general the interim chief election officer if that office becomes vacant until the Elections Commission appoints a replacement. The Department of the Attorney General opposed the bill, saying it could create a conflict of interest if the attorney general were both the state’s lawyer and the chief elections officer in any related litigation. The League of Women Voters supported having some interim backup for the office, but said it was not necessarily advocating that the attorney general fill the role. Several other testifiers, including the Hawaiian Islands Republican Women, opposed the bill, arguing the current law already provides for a prompt commission appointment and warning about partisan bias and concentration of power. Supporters, including Indivisible Hawaii, said an interim mechanism is needed to ensure election certification in a crisis. The chair also asked whether any statutory acting capacity already exists, and the attorney general said none was known. The committee then took up House Bill 2125, which would bar corporations operating under state law from engaging in election activity. The attorney general opposed the bill, citing Citizens United and arguing that corporations have First Amendment-protected political speech rights and that the bill would likely be unconstitutional. Indivisible Hawaii supported the measure, saying it would keep elections focused on the will of the people rather than corporate influence. Libertarian Party testimony was mixed: one witness supported the goal of reducing corruption but warned the bill could suppress organized dissent and sweep too broadly by treating many associations as corporations. The bill’s introducer asked whether the legislature could still enact it as a policy matter, but the attorney general maintained federal constitutional law would control. No vote was taken on either bill during the portion of the hearing provided. The committee also heard House Bill 2493 on wrongful imprisonment, which would set procedures and compensation for people whose convictions are reversed or vacated on grounds consistent with innocence and whose charges are dismissed. The Department of Corrections and Rehabilitation supported the bill’s intent but objected to language assigning it responsibility for helping released individuals secure housing, identification, health coverage, and other reentry needs, saying it no longer has jurisdiction after release and suggesting the courts or a community-based contractor handle that role. The Office of the Public Defender strongly supported the bill, emphasizing the harm of wrongful conviction and the need for compensation, case management, and medical coverage after release. No action or vote was reported on this measure in the excerpt.

Transcript Highlights:

• She was born with a spontaneous genetic disorder called Pfeiffer syndrome, so her lungs are totally fine
• He has a tracheostomy and he uses a ventilator because he has a rare genetic syndrome.
• He couldn't be here today because he has a trigonometry test.
• She had a stamp that said, I'm an engineer, I have the training, I've taken the proper tests, I know
• Our field maintains its own national testing agency with a psychometrically valid examination, along

Transcript Highlights:

• And genetically, they're not necessarily purely male or female, but that's a long conversation.
• And I apologize if it's beyond you, but the genetics are real. Yes, the genetics are real.
• It's maybe why I understand that there's six genetic sexes, because I invested some time reading and
• That's a thing too, especially when it comes to children who have the genetics and have just been blessed
• saying that the children look a little too masculine and they're subjecting our kids to these invasive tests