Video & Transcript Research : 'developmental disability'
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CA
California 2025-2026 Regular Session
Assembly Human Services Committee May 1st, 2025
Transcript Highlights:
- AB 1335 is about equity and fairness for the disability community.
- We are a provider agency that supports over 350 adults with developmental and intellectual disabilities
- disabilities.
- disabilities within California.
- disabilities within California.
Summary:
The Assembly Human Services Committee met with quorum established after beginning as a subcommittee. The committee heard AB 790, which would require jurisdictions receiving state homelessness funds to develop systems specifically supporting women and children, especially single mothers and survivors of domestic violence. Supporters said current homelessness programs overlook this population; the bill was amended and passed unanimously on a 7-0 vote. The committee also heard ACA 4, the Housing Opportunities Made Equal Act, which would dedicate a minimum share of the state general fund to affordable housing and homelessness programs. Supporters argued more stable funding is needed to address the housing crisis, while opponents questioned whether more spending would help; the measure passed 5-2 to the Assembly Appropriations Committee.
Members then heard AB 349, which would index the infant supplement for parenting foster youth to inflation. The author and sponsor described the needs of pregnant and parenting teens in foster care and rising costs for diapers and formula; the bill passed 6-0 to Appropriations. AB 779, which expands a domestic violence consultant pilot in child welfare offices statewide, also passed 6-0 after testimony that it would help keep families together safely and improve trauma-informed responses. AB 1335, which would remove a private CARF accreditation requirement for regional center employment programs and rely on state oversight instead, drew support from disability service providers but opposition from the chair over concerns about weakening quality checks; it failed on a 2-2 vote and reconsideration was denied.
The committee also considered AB 1066, a bill to bar state-funded immigration legal services for people unlawfully present in the country who have certain serious felony convictions. Supporters framed it as a public-safety and fiscal-responsibility measure, while opponents said it would restrict due process and align California with mass-deportation policies. The bill failed on a 2-2 vote. Two bills, AB 277 and AB 318, were pulled by the author and not heard. After final roll calls on absent members, the committee adjourned.
KY
Kentucky 2025 Regular Session
Budget Review Subcommittee on Health and Family Service (8-20-25)
Transcript Highlights:
- But that is the case when it comes to intellectual and developmental disabilities.
- developmental disabilities. developmental disabilities.
- developmental mental disabilities. developmental mental disabilities.
- intellectual and developmental intellectual and developmental disabilities.<00:04:28.720>
Um, - disabilities, nobody gets developmental disabilities, nobody gets training training training in<00:04
Summary:
The Budget Review Subcommittee on Health and Family Services met in person, approved the July 15 minutes, and heard a presentation from Dr. Matthew Holder and Dr. Henry Hood of the Lee Specialty Clinic in Louisville. The clinic serves people with complex intellectual and developmental disabilities through a transdisciplinary model that combines medical, dental, behavioral, psychiatric, therapy, and other services under one roof. The presenters argued that this population is large-cost but small in number, often receives little provider training, and is vulnerable to diagnostic overshadowing, overmedication, and missed medical or dental problems.
The clinic reported that in Tennessee, payer data showed average costs of about $5,200 per member per month before clinic involvement, with a 44% reduction in overall health care spending after patients were seen, including lower emergency room use, inpatient admissions, and prescription use. They said those savings were measured by the payer, not the clinic, and that the savings accrued to Medicaid or managed care payers rather than the clinic itself. They also shared a case example of a patient who had been placed on hospice but improved after diagnosis and treatment at the clinic. Patient and parent satisfaction were described as very high, generally above 95%.
The clinic asked for roughly $5 million to expand into Northern Kentucky, estimating 500 to 700 patients would use the new site and projecting annual savings of about $13 million to $19 million once mature. Members asked about the budget, startup and operating costs, where the savings go, and whether the clinic had considered taking full risk or another value-based model. Senator Meredith and others encouraged the clinic to explore an accountable care or risk-based arrangement, while the presenters said they were open to that discussion but had not pursued it yet. The exchange ended with follow-up questions about the clinic’s overall budget structure and public-private funding mix.
MA
Massachusetts 2025-2026 Regular Session
Senate Session (Full Formal with Calendar) Jun 21st, 2026 at 12:00 pm
Massachusetts Senate Floor Meeting
Transcript Highlights:
- disabilities.
- An act dignifying individuals with intellectual and developmental disabilities replaces those terms with
- disabilities.
- disabilities.
- I rise in support of Senate 137, an act dignifying individuals with intellectual or developmental disabilities
Summary:
The Senate took up several committee reports, resolutions, and House messages, then moved through a series of bills on the calendar. Early action included adopting a Ways and Means order on Senate Bill 2549, which promotes student learning and mental health, by substituting a new draft and setting amendment deadlines and a second reading date. The chamber also adopted congratulatory resolutions for the Sport Fish Restoration Program’s 75th anniversary and the Hawthorn Hotel’s 100th anniversary, and suspended rules on a sick leave bank petition for a trial court employee and on a House bill validating a special election in Hardwick, which was ordered to a third reading. The Senate also adopted a motion to adjourn in memory of Peter Hayden Lapin of Springfield, a veteran and former public servant.
The Senate then considered Senate Bill 137, renaming and updating references in the General Laws to replace outdated and offensive terms regarding people with intellectual and developmental disabilities. Senators spoke at length in support of the bill, emphasizing respect, disability rights, and the work of advocates such as Melissa Riley and the Arc of Massachusetts. An amendment by Senator Creem replaced “hearing impaired” with “deaf or hard of hearing,” and a corrective amendment by Senator Lovely was also adopted. The bill was then passed to be engrossed by a unanimous 40-0 roll call.
Next, the Senate considered Senate Bill 1034, which repeals archaic laws including sodomy-related provisions, the common nightwalker law, and the blasphemy statute, and creates a commission to review archaic laws going forward. Senators described the measure as a civil liberties and dignity issue, with particular attention to the misuse of the common nightwalker law against women and trans people and the historical injustice of blasphemy laws. Amendments were adopted to add the Supreme Court as a recipient of commission reports and to remove the crime of petite treason. The bill was then passed to be engrossed unanimously, 40-0.
Finally, the Senate considered Senate Bill 2558, the “blue envelope” bill to improve interactions between police officers and people with autism spectrum disorder. Supporters said the voluntary program would help drivers and passengers with ASD during traffic stops and would be made permanent through the Registry of Motor Vehicles, with the State Police and advocacy groups involved. An amendment requiring in-service training by the Massachusetts Police Training Council was adopted, while a proposed yellow-dot amendment for older drivers with chronic illness was rejected 5-34. A Ways and Means amendment was then adopted, and the bill passed to be engrossed unanimously, 39-0. The Senate then adopted an order to meet again the following Monday at 11 a.m. and adjourned.
CA
California 2025-2026 Regular Session
Assembly Insurance Committee Apr 23rd, 2025
Transcript Highlights:
- California has committed itself to providing all people with developmental disabilities the services
- We're a nonprofit serving clients with intellectual and developmental disabilities.
- disabilities.
- disabilities.
- disabilities.
Summary:
The Assembly Committee on Insurance met as a subcommittee and heard several bills related to workers’ compensation, insurance access, climate resilience, and farmworker protections. AB 815 would prevent social service workers who use personal vehicles to transport clients from being misclassified as commercial or for-hire drivers under personal auto policies; supporters said the current practice leads to unaffordable premiums and denied claims, while no opposition testified. AB 1329 would revise the Subsequent Injury Benefit Trust Fund to reduce litigation and medical-legal costs and lower employer assessments; insurers and business groups opposed unless amended, citing concerns about eligibility standards and the QME process, but the bill advanced after amendments were discussed. AB 1048 would allow disputed unauthorized payment reductions for medical providers to be reviewed through independent bill review; supporters framed it as a transparency measure, while opposition argued IBR is the wrong forum and existing contract dispute processes should control, though the bill also passed. AB 1236 would create a Department of Insurance grant program for climate and sustainability risk-reduction projects, with broad support from the department, environmental groups, and insurers, and it passed unanimously.
The committee also heard AB 1336, the Farmworker Heat Illness Prevention Act, which would create a rebuttable presumption that a heat-related injury arose out of employment when an agricultural employer fails to comply with heat illness prevention standards. Supporters, including United Farm Workers, argued the bill would help protect farmworkers amid extreme heat and enforcement gaps; opponents from the workers’ compensation and agricultural sectors said the measure improperly uses the compensation system to enforce OSHA rules and could create unclear adjudication and delay issues. Members discussed Cal/OSHA enforcement limits, undocumented workers’ reluctance to report violations, and the relationship between the bill and existing workers’ compensation procedures. Despite opposition, AB 1336 passed on a divided vote.
The committee also took up a consent calendar including AB 1125, AB 1293, and AB 1398, which were approved together. Roll calls were held open and later completed, and the bills that advanced were sent to the Committee on Appropriations. The meeting concluded with the committee adjourning after final votes were recorded.
CA
California 2025-2026 Regular Session
Senate Budget and Fiscal Review Subcommittee No. 3 on Health and Human Services May 20th, 2026
Transcript Highlights:
- And that's the answer to the second question because it does not change what developmental disabilities
- Appreciate that there were no cuts in the developmental disabilities, but would just make note that the
- Appreciate that there were no cuts in the developmental disabilities, but would just make note that the
- Appreciate that there were no cuts in the developmental disabilities, but would just make note that the
- The asset limit change, which will impact individuals with developmental disabilities, as will lots of
Summary:
The hearing opened with Department of Finance and Legislative Analyst’s Office remarks on the May Revision, which both described efforts to reduce large out-year operating deficits through a mix of revenue increases, spending reductions, and reserve use. Finance said the May Revision more than halves projected deficits in later years, while LAO stressed that revenues are at unprecedented levels yet the state still faces a significant structural deficit and is drawing down reserves; LAO urged maintaining at least the administration’s level of budget solutions and adding to reserves rather than new ongoing commitments. The chair echoed concern about cuts to vulnerable populations and noted the tension between service reductions and requests for additional administrative positions.
The committee then heard a series of California Health and Human Services and HCAI proposals, including additional legal support for CalHHS to respond to federal HR1 changes; a net-zero transfer of positions for a centralized eligibility/data-sharing platform; 988 crisis line implementation funding and continued work with the Trevor Project to train crisis centers to better serve LGBTQ youth; EMS data system maintenance funding; HCAI implementation of AB 1312 hospital charity care screening; SB 660 data exchange framework funding; CalRx biosimilar insulin reappropriation; and a diaper access initiative that would provide free diapers to newborns in participating hospitals and support a future direct-to-consumer purchasing option. Members questioned the diaper program’s universal design, the use of a Public Contract Code exemption, and the selection of Baby2Baby, with the chair expressing concern about optics and the lack of an income threshold.
The committee also discussed distressed hospital funding, with HCAI requesting up to $50 million for another round of grants to hospitals in immediate financial distress. HCAI said it receives annual and quarterly financial reports but the data lag limits real-time monitoring, and the LAO recommended stronger program parameters and turnaround plans. Members argued the repeated need for distressed hospital aid reflects a structural problem, not a short-term gap, and raised broader concerns about hospital reimbursement and patient flow. Other items included reverting $19.6 million in unused opioid settlement funds from HCAI to DHCS for General Fund offset, and a Rural Health Transformation Program request to increase HCAI spending authority to cover the full federal award.
Later, DMHC presented funding requests to implement PBM licensing and financial review requirements under AB 116, modernize the managed care complaint system, and build an electronic claims settlement data system under AB 3275. The final major discussion focused on the Behavioral Health Services Oversight and Accountability Commission, which opposed the May Revision’s proposed reduction of its Innovation Partnership Fund from $20 million to $10 million and a $6.7 million cut to community advocacy grants. The Commission argued these programs are core to Proposition 1’s goals of statewide innovation and community accountability, while Finance said the proposal is consistent with Proposition 1’s maximum funding levels and reflects a broader effort to prioritize direct services and use unspent prior-year funds; members pressed for more information and questioned whether the cuts would undermine the new behavioral health framework.
FL
Florida 2026 Regular Session
Children, Families, and Elder Affairs Apr 1st, 2025
Children, Families, and Elder Affairs
Transcript Highlights:
- The bill expands the IDD pilot program to all individuals with developmental disabilities enrolled in
- It requires ACCA to have a call center for those with developmental disabilities and families to learn
- The bill requires APD to work with DCF to ensure that young adults with developmental disabilities transitioning
- out of foster care DCF to ensure that young adults with developmental disabilities transitioning out
- Raising someone with developmental disabilities is stressful enough without worrying about potential
Summary:
The committee heard and advanced several bills related to children, families, elder affairs, mental health, disability services, and child care. SB 1050 on the Agency for Persons with Disabilities was amended and reported favorably after discussion of expanding the voluntary IDD managed care pilot statewide, improving transparency on the APD wait list, creating a statewide family care council, addressing transition services for youth leaving foster care, and seeking federal approval for an adult pathways waiver. Testimony from providers and a parent emphasized workforce capacity, county-level identification of clients, Medicaid delays, and the importance of keeping the pilot voluntary; the bill passed with support and some discussion about possible future clarifications on services and Medicaid eligibility.
The committee also passed SB 1310, which directs OPPAGA to evaluate student mental health outcomes tied to school mental health assistance funding, and members discussed the need for better data, coordination with managing entities, and avoiding duplication of services. SB 976 on court-appointed social investigators was amended and approved, with the sponsor describing due process protections and fee-shifting provisions for parents challenging court-appointed psychologists. SB 886, creating a crisis care coordination team pilot in Volusia and Polk counties to reduce Baker Act recidivism and improve follow-up care, was reported favorably after the sponsor described its law enforcement and community provider partnerships and an independent evaluation requirement.
Later, SB 614 on child care facility and program background screening requirements was amended and passed; the bill requires a public educational webpage explaining Level 2 screening, the clearinghouse, disqualifying offenses, exemptions, and related job listings and timelines. Finally, SB 276 on sheltering or aiding unmarried minors was approved; it increases the offense from a first-degree misdemeanor to a third-degree felony, creates a presumption regarding knowledge of the minor’s age, and adds a defense when the conduct was necessary to protect the minor from danger. All bills considered were reported favorably, and the committee adjourned at the end of the meeting.
FL
Florida 2025 Regular Session
November 19, 2025 - 04:00 PM
Transcript Highlights:
- DISABILITIES.
- DISABILITIES THREE BUDGET WAIVER.
- DISABILITIES.
- DISABLED PEOPLE THAT MIGHT COME THEIR WAY.
- NOT ONLY INTELLECTUAL AND DEVELOPMENTAL DISABILITIES, BUT HAD SEVERE MENTAL ILLNESS AND SOME SUBSTANCE
WA
Washington 2025-2026 Regular Session
House Early Learning & Human Services Dec 5th, 2025
Transcript Highlights:
- So this is about, for example, individuals with developmental disabilities who are served by separate
- They provide care for people with intellectual and developmental disabilities.
- Outreach went to about 27,000 subscribers of the developmental disabilities community, including family
- A lot of folks who have co-diagnosis with developmental disabilities, mental health, substance use—I
- mean, do you provide substance... ...developmental disabilities, mental health, substance use.
Summary:
The committee heard a lengthy update on Washington child welfare from Casey Family Programs and DCYF. Dr. David Sanders said Washington has sharply reduced out-of-home care and increased kinship placements, but he flagged concerns about low screening-in rates, long stays in foster care for many children, and a recent rise in repeat maltreatment and child fatalities, especially among infants. He urged more focus on infants and young children, better coordination among child protection, health care, and law enforcement, and more proactive review and investigation practices. Members asked for disaggregated data on children lingering in care, fatalities, and causes such as fentanyl exposure. DCYF said it has increased relative placements and guardianships, but also reported a concerning rise in 2025 critical incidents, mostly near-fatalities involving children age three and under, many opioid-related. The department described responses including safe child consults for opioid cases, more training, hotspot analysis, and proposed investments in peer support, public health nurses, community referrals, and an updated safety framework. Members also discussed whether a broader commission on child abuse prevention would be useful, and DCYF said it was open to that idea.
The committee then received a DSHS reorganization update from Secretary Angela Ramirez, who described the “Reimagined” plan to consolidate four administrations into three new ones, with the stated goals of reducing silos, improving customer experience, and making transitions between services smoother. She said the agency is seeking statutory changes and CMS approval to align the new structure, and members asked about preparing for federal HR1 impacts, especially SNAP. Ramirez said DSHS is monitoring those impacts closely and emphasized the need for accurate data and cross-agency coordination.
Finally, DSHS’s Behavioral Health and Habilitation Administration updated the committee on residential habilitation centers and implementation of Substitute Senate Bill 5393, which phases out Rainier School by June 30, 2027 and limits new admissions. Officials reported current census and staffing levels at the state’s RHCs, said Rainier has had some residents transition to supported living or adult family homes, and explained that emergency and permanent rulemaking was needed to implement the law. They also said Rainier was recently cited by federal surveyors for not meeting the active treatment requirement for two residents, and that the facility has 90 days to return to compliance before possible payment penalties or further remedies. Members pressed for details on the citation, the meaning of active treatment, the assessment process for admissions, and whether Rainier could be repurposed for other services; DSHS said it is working on corrective action and will follow up in writing.
MS
Mississippi 2026 Regular Session
Appropriations - Room 210; 29 January, 2026: 8:00 AM
Appropriations
Transcript Highlights:
- Intellectual and developmental disabilities. Yes, sir.
- disabilities so they can developmental disabilities so they can live<00:04:03.280>
in <00:04:03.519 - Um, and that's behavioral health and intellectual and developmental disabilities.
- have intellectual and developmental have intellectual and developmental disabilities.<00:13:22.800
- disabilities and their developmental disabilities and their families.<00:27:04.240>
Um, <00:27:
Summary:
The Department of Mental Health presented its FY27 budget request and described its statewide responsibilities, including more than 600 grants totaling about $140 million, 11 community mental health centers, and state-operated programs for mental health, substance use, and intellectual/developmental disabilities. The request included $291.2 million in general funds, about $33.4 million above the current year, plus spending authority tied to ID regional programs and the IDD waiver. Major components included funding to enroll 250 additional people in the IDD home- and community-based waiver, a projected waiver rate increase, and added support for state-operated 24/7 programs facing staffing and operational shortfalls.
The agency also asked to continue selected ARPA-funded services before those dollars expire, including 988 call center support, peer respite sites, court liaison positions, intensive community services for children and youth, and adolescent offender programs. Other requests covered salary adjustments and longevity increases for hard-to-fill positions, electronic health record support, IT security upgrades, a Jackson County crisis stabilization unit expansion from 8 to 16 beds, capital needs such as generator and boiler/chiller replacements, inflation-related increases for community mental health center grants, and restoration of general funds under a Joint Legislative Budget Committee recommendation. Officials emphasized that community-based care now accounts for 58% of funding and that the goal is to keep people out of institutions unless they need the highest level of care.
Committee members asked about ARPA balances, forensic referrals, Jackson County’s request, and county support for community mental health centers. The department said about $25 million in ARPA funds remained and should be spent by September 30, with some delays due to reimbursement revisions. On forensic services, officials reported the new 81-bed maximum-security unit at State Hospital has cut the wait list roughly in half, but admission orders are up 51%, and some referrals may be unnecessary or used to delay proceedings. Members also discussed county contributions to community mental health centers, which the department said total about $9–10 million statewide, with most counties now meeting their obligations and only a few using small in-kind contributions.
ND
North Dakota 2025-2026 Regular Session
Human Services Committee May 27th, 2026
Transcript Highlights:
- So we've also had a high rate of children with developmental disabilities being difficult to place.
- And almost 25 or 30% of them have developmental disabilities. Please.
- Almost 25 or 30% of them have developmental disabilities. And that has been a surprise to us.
- And almost 25 or 30% of them have developmental disabilities.
- Please. almost 25 or 30% of them have developmental disabilities.
Summary:
The committee first heard an update on North Dakota’s Interagency Council on Homelessness and Continuum of Care funding. Jennifer Henderson of the North Dakota Housing Finance Agency reported that homelessness remains driven by tight housing markets, low incomes, rising rents, and barriers to rental assistance, public benefits, and disability determinations. She said the state’s one-time North Dakota Homeless Grant is serving all regions but reaches far fewer households than the former Rent Help program, and that aging homelessness, shelter staffing shortages, and limited affordable units are growing concerns. Members discussed the need for more housing supply, better coordination with Health and Human Services, landlord engagement, reentry housing, and possible continued one-time funding for the $10 million Homeless Grant and $25 million Housing Incentive Fund. Henderson also warned that federal Continuum of Care funding is uncertain, with HUD expected to issue a new notice June 1 and possible shifts away from permanent supportive housing toward transitional housing and other models.
The committee then took testimony on accessibility of government services for people who are blind, visually impaired, deaf, or hard of hearing. Paul Olson of North Dakota Vision Services School for the Blind described the school’s services for infants, children, and adults, including screenings, mobility training, assistive technology, and outreach across the state. He said the agency works closely with Vocational Rehabilitation and is also involved in improving website and document accessibility, especially for PDF materials. Public testimony highlighted barriers such as inaccessible CAPTCHA systems, online forms, driver’s license requirements on job applications, and limited transportation in rural areas. A deaf resident urged broader use of video remote interpreting and video relay services, along with training so people know how to use them effectively.
Finally, Kay Larson presented the final report on the child care provider licensing study. The report recommended streamlining North Dakota’s child care licensing structure into three provider types plus a preschool designation, while preserving health and safety standards and maintaining eligibility for child care assistance. The committee discussed simplifying training and qualification rules, revising ratio and group-size requirements, and adjusting age bands for infants and toddlers. The report also noted that some changes would require statutory amendments and later administrative rule changes, with a transition period likely extending through 2029. No formal votes were taken in the transcript, but the committee accepted the updates and scheduled follow-up presentations for a later meeting.
MN
Transcript Highlights:
- for Mental Health, Developmental Disabilities, and providers to testify about the impacts that the aggressive
- <00:44:54.600>
Disabilities, <00:44:55.360>Lisa and Developmental Disabilities, Lisa - I am the Ombudsman for Mental Health and Developmental Disabilities.
- mental health, developmental mental health, developmental disabilities,<00:48:19.160>
and - <00:51:11.520>
disabilities, <00:51:12.120>or health, developmental disabilities, or
CA
California 2025-2026 Regular Session
Assembly Budget Subcommittee No. 2 on Human Services May 21st, 2025
Transcript Highlights:
- State Council on Developmental Disabilities. Peace.
- Sharp Collins, Aaron Carruthers of the State Council on Developmental Disabilities.
- Veronica Bravo here for the State Council on Developmental Disabilities.
- Hello, Veronica Bravo here for the State Council on Developmental Disabilities.
- We're a provider in San Diego County for adults with intellectual developmental disabilities.
Summary:
The hearing began with opening remarks on the Governor’s May Revision for child care and human services, with committee members and advocates stressing that the budget should not be balanced on the backs of low-income families, children, and providers. Legislative members and public witnesses strongly opposed the proposed suspension of the child care COLA, reductions to the Emergency Child Care Bridge Program, and the lack of codified rate reform tied to the alternative methodology. Several speakers also urged more support for providers affected by the Eaton fire and other disasters, and called for child care to be funded at the true cost of care and for additional slots to be restored.
Administration, LAO, and Department of Education staff described the child care proposal as maintaining existing funding levels while adding administrative resources to prepare for federally required prospective payment changes and single-rate reform. The administration said the May Revision would suspend the 2025–26 COLA and reduce Bridge Program funding to align with utilization, while the LAO raised questions about the size and purpose of the proposed rate-reform and prospective-payment funding and recommended rejecting a Department of Technology exemption. CDE supported continued early education investments but said it would need additional resources if prospective pay were extended to state preschool, and it objected to a proposed reallocation of preschool funds for inclusive education grants.
The committee then moved to the IHSS portion of the May Revision. DSS outlined five major proposals: capping provider work hours at 50 per week, eliminating IHSS for undocumented adults age 19 and older, shifting certain Community First Choice reassessment penalties to counties, reinstating the Medi-Cal asset test as a conforming IHSS reduction, and automating the termination of IHSS when Medi-Cal eligibility ends. DSS also discussed funding to implement a federal HCBS access rule and a separate reassessment of IHSS administrative methodology that found counties would need additional administrative funding. Finance said the proposals were intended to slow program growth and improve sustainability, while the LAO said it was still analyzing the package and raised concerns about implementation, county workload, and the potential loss of services.
Committee members and public commenters criticized the IHSS cuts, especially the overtime cap and the elimination of services for undocumented adults and people affected by the asset test. Advocates argued that IHSS workers and recipients depend on these services, that county administration is already underfunded, and that the proposals could destabilize vulnerable consumers. The chair closed by saying the committee would continue to fight for child care and would not pause on child care, and the meeting recessed before moving on to the remaining May Revision items.
AZ
Transcript Highlights:
- Madam Chair, members, Senate Bill 1179 extends the delayed repeal date of the developmental disabilities
- Senate Bill 1179 extends the delayed repeal date of the developmental disabilities group home monitoring
- House Bill 2865 passed in 2022, creating the developmental disabilities group home monitoring pilot program
- My son Tyrak suffered from profound developmental disabilities as a result of umbilical strangulation
- Developmentally disabled individuals like my son Tyrak are extremely vulnerable and need vigilant oversight
Bills:
SB1095, SB1114, SB1116, SB1162, SB1164, SB1178, SB1179, SB1249, SB1253, SB1346, SB1347, SB1446, SB1561, SB1813
Keywords:
gender transition, minors, irreversible surgery, health professionals, puberty-blocking drugs, medical procedures, prohibition, Arizona Revised Statutes, behavioral health, patient brokering, appropriation, state funds, Maricopa County, claims review, medical necessity, American Indian health program, healthcare regulations, healthcare compliance, behavioral health technicians, licensing
Summary:
The committee first heard Senate Bill 1114, which would appropriate $1 million to the Maricopa County Attorney’s Office to investigate behavioral health patient brokering statewide. Sponsor Sen. Karen Werner described the bill as a response to fraud involving vulnerable Native Americans and said the county attorney would investigate the whole state. Some members questioned why the Attorney General was not handling the work and whether the funding should go to a county office, while others supported the effort. The committee voted 10-1 with one present to give SB 1114 a due pass recommendation.
The committee then considered Senate Bill 1116, which would require that denials or adverse appeal decisions on behavioral health claims for the American Indian Health Program be reviewed by someone with at least two years of relevant clinical experience. Access testified neutral but said the bill’s language was too broad and could increase appeals and staffing needs, estimating about $490,000 for eight FTEs. Sen. Werner said the bill was meant to prevent inappropriate denials by reviewers without relevant expertise. Members raised concerns about definitions and staffing, and the committee approved the bill 7-4 with one present.
Senate Bill 1346 would require Access to notify providers of claim deficiencies within 72 hours and decide corrected claims within 10 business days. Supporters said the measure would reduce long delays and help providers stay afloat; Access said it was working on process improvements but warned the bill would require more staff and system changes, estimating about $580,000. The committee passed SB 1346 7-5. Senate Bill 1347, requiring insurance coverage for fertility preservation services for cancer patients at risk of infertility, drew strong support from cancer survivors and advocates, with insurers neutral; the committee passed it unanimously 12-0.
The committee also heard Senate Bill 1813, which would require Arizona State Hospital admissions to be based on clinical need rather than county of residence. Supporters argued the Maricopa County cap unfairly delays treatment and is not required by the underlying court ruling, while ADHS warned the bill could conflict with the Arnold v. Sarn settlement and could shift access away from rural counties. After extensive discussion, the committee passed SB 1813 9-2 with one present. Finally, the committee began hearing Senate Bill 1178, which would allow naturopathic physicians to administer IV antibiotics, antivirals, and antifungals; the initial testimony was largely opposed by medical associations on patient-safety and training grounds, with supporters yet to testify in the excerpt provided.
NH
New Hampshire 2026 Regular Session
Health and Human Services Oversight Committee (02/20/2026)
Transcript Highlights:
- And this is, um, as it relates to funding for the developmental disabilities waiver, the in-home supports
- Bureau of Developmental Services. Bureau of Developmental Services.
- <00:54:33.680>
disabilities <00:54:34.400>waiver, <00:54:34.880>the developmental - disabilities waiver, the developmental disabilities waiver, the inhome<00:54:35.440>
supports - We'll start with the developmental disabilities waiver.
Summary:
The meeting opened without a quorum, so approval of the prior draft minutes was deferred until later. The committee then heard a DHS update from Commissioner Lori Weaver and COO David Weers, who described the recent flood at the Brown building and the relocation of nearly 400 DHS staff while operations are restored. They also outlined New Hampshire Care Connections, a privacy- and consent-focused closed-loop referral platform intended to improve referrals among providers, reduce duplication, and support continuity of care, with an Upper Valley implementation partnered with Dartmouth Health and an Epic integration already underway.
Members asked whether the system would merge medical records or simply track referrals. DHS said it is not intended to store or transmit full medical records, but to integrate with providers’ electronic health record systems so referrals can be sent, received, and tracked, with consent controls limiting what information can be shared. Officials said the project will be tested over the coming months, with metrics, governance, and advisory committee oversight, and that it is tied to broader rural health transformation efforts and statewide implementation after the regional pilot.
The committee also received the annual report from the Child Care Advisory Council. Maryanne Barter and Jessica Carver said the council worked with licensing to streamline the child care licensing rules, reducing the handbook by about 30%, and is now helping develop an informal dispute resolution process, revising the Granite Steps for Quality system, and creating a clearer handbook for providers handling state scholarship audits. They reported ongoing concern about child care closures and workforce shortages, said there is currently no wait list for child care assistance, and discussed questions about federal CCDF immunization requirements, which DHS said it would follow up on with federal technical assistance partners. After quorum was established, the committee moved to approve the minutes from the prior meeting.
MA
Massachusetts 2025-2026 Regular Session
Joint Committee on Education Jun 21st, 2026 at 01:00 pm
Joint Committee on Education
Transcript Highlights:
- I'm Liz Fancher, and I'm with the Massachusetts Developmental Disabilities Council.
- Raquel Keizada is the Massachusetts Developmental Disabilities Council's chairperson and a mom to a 20
- without disabilities.
- I'm very grateful to the Arc of Massachusetts and the Massachusetts Developmental Disabilities Council
- I'm very grateful to the arc of Massachusetts and the Massachusetts Developmental Disabilities Council
Summary:
The Joint Committee on Education held a hearing focused primarily on special education-related bills, with testimony centered on two major themes: transition planning for students aging out of school-based services at age 22, and the fiscal strain special education costs place on districts. Committee members explained hearing procedures, noted the House was in formal session, and periodically stepped out for votes while staff recorded testimony. A separate bill on special education due process was also taken up briefly, along with a bill on special education finance and another on equitable access/data reporting.
On House Bill 752 and Senate Bill 313, witnesses from the Arc of Massachusetts, the Massachusetts Down Syndrome Congress, the Developmental Disabilities Council, families, self-advocates, and Senator Comerford described the “Turning 22” transition as a crisis point that often leaves families without adult placements, services, or clear communication. Testimony emphasized earlier planning, more accountability, better data collection, and a commission to improve coordination and residential placement. Several parents and advocates shared personal accounts of traumatic transitions, delayed placements, and the need for plans to begin at least a year before age 22. The committee later closed testimony on these bills after hearing from all signed-up speakers.
House Bill 4217, on special education due process, drew support from Representative Sullivan-Almeida, parents, and advocates who argued that the burden of proof should shift from families to school districts. Testimony described costly legal battles, delays, and parents having to become experts in reading instruction or hire advocates and attorneys to secure services. Brody Dwyer, a 10-year-old student with dyslexia, and his mother described how evidence-based instruction helped him after years of struggle. The committee also heard testimony on House Bill 546/Senate Bill 317, which would require DESE to publish cross-tabulated data on race, disability, gender, income, and other factors; advocates said this would better expose disparities and help address the school-to-prison pipeline. Finally, on House Bill 691/Senate Bill 430, school leaders, educators, and union representatives testified that special education costs are outpacing district budgets and that increasing circuit breaker reimbursement and creating a commission to study long-term sustainability would help prevent staffing cuts and service reductions. No votes were taken during the hearing; the committee repeatedly closed testimony on individual bills as speakers finished and moved through the agenda.
MA
Massachusetts 2025-2026 Regular Session
Joint Committee on Public Safety and Homeland Security Jun 21st, 2026 at 01:00 pm
Joint Committee on Public Safety and Homeland Security
Transcript Highlights:
- Council, where our mission is to provide opportunities for individuals with developmental disabilities
- My name is Josh Gladstone, and I'm the Disability Policy Specialist at the Massachusetts Developmental
- Disabilities Council, where our mission is to provide opportunities for individuals with developmental
- This legislation is a priority to the MDDC and individuals with developmental and other disabilities
- The MDDC believes that this legislation would benefit people with developmental and other disabilities
Summary:
The Public Safety and Homeland Security Joint Committee heard testimony on several bills focused on accessibility, fire safety, and transportation safety. House 2569, expanding adaptable housing for people with disabilities and seniors, drew broad support from Rep. Christine Barber, disability advocates, and members of the Massachusetts Developmental Disabilities Council. Witnesses said the bill would close gaps in the Architectural Access Board’s authority, require more adaptable housing in rehabs and older conversions, and extend accessibility requirements to employee-only work areas. They emphasized the shortage and cost of accessible housing, the benefits for aging in place, and the risk of institutionalization when accessible units are unavailable.
The committee also heard strong support for House 2577, which would allow local fire departments to inspect and enforce fire code compliance in state-owned buildings. Rep. Robert Cataldo and Boston Fire Chief Pat Ellis described this as closing a long-standing loophole that leaves state properties outside local fire-code enforcement, despite the hazards posed by aging state buildings and life-safety systems. Fire service representatives also supported bills to create a statewide technical rescue system under the Department of Fire Services, standardizing training, equipment, funding, and coordination across regional rescue teams, and they backed related fire-safety measures including sprinkler-related legislation and professionalism measures.
Rep. James O’Day testified for House 2676, which would require window screens to prevent child falls, arguing it is a common-sense safety measure and noting recent fatal incidents. Ann Shuey and John Kalura testified for House 2601, which would require motor coach passengers to wear seat belts, citing a family tragedy, low seat-belt use, and research showing signage can improve compliance. Steven Poglisi of NAGE supported House 2568, requiring carbon monoxide alarms in public buildings, describing a past CO exposure incident involving a union member. The committee took no votes on the bills during the hearing and adjourned after testimony concluded.
MN
Transcript Highlights:
- . disabilities. disabilities.
- My sons, Aaron, 51, and Nathan, 46, have substantial intellectual and developmental disabilities, IDD
- c> in developmental disabilities IDD, live in developmental disabilities IDD, live in Shoreview,<
- folks with disabilities. folks with disabilities.
- and those that are severe disabilities and those that are severe disabilities. disabilities. disabilities
FL
Transcript Highlights:
- Young Developmental Research School at the University of Florida. We'll be starting with Dr.
- Young Developmental Research School at the University of Florida. Next, Dr.
- and looking at ways of identifying students early for reading disabilities.
- and looking at ways of identifying students early for reading disabilities.
- Young Developmental Lab School. You're recognized, ma'am. Thank you.
Summary:
The Senate Committee on Education Postsecondary met to receive an update from Florida developmental research lab schools on articulated health care programs created under the Live Healthy initiative and Senate Bill 76. Chair Calatayud opened the meeting, confirmed a quorum, and heard presentations from P.K. Young/University of Florida, Florida State University Schools, FAMU Developmental Research School, and Florida Atlantic University Laboratory School. Each school described efforts to build K-12-to-postsecondary health care pathways, expand dual enrollment and industry certifications, and share replicable curriculum models with other districts.
FSU Schools highlighted its HERO program, including CNA and food manager certifications, dual enrollment growth, reserve seating at colleges, and a paid internship with the Department of Health tied to emergency shelter operations. P.K. Young described its Healthy Lives Blueprint, which combines K-8 wellness experiences, a new high school health and human performance pathway, AP and science course expansion, a planned gymnasium redesign, and partnerships with Santa Fe College and UF. FAMU DRS reported growing dual enrollment, partnerships with FAMU, Tallahassee State, and Lively, and a goal of serving at least 100 students and 40 staff through health career exposure, certifications, and AA/AS pathways.
FAU Lab School described a more advanced model that integrates elementary through high school research and health science experiences, including biotechnology, bioengineering, and partnerships with health and research institutions. The school reported 87 peer-reviewed student publications, more than $350,000 in student grants, six patents, and pipelines into FAU’s medical and nursing programs, including a Med Direct pathway and a National Merit Scholar pipeline. Committee members asked about student readiness for nursing programs, dual enrollment, articulation with state colleges, and how the lab school models could be disseminated statewide. The meeting concluded with praise for the programs and a motion by Senator Fine to adjourn, which was adopted without objection.
HI
Hawaii 2025 Regular Session
HSH Public Hearing - Thu Apr 10, 2025 @ 11:30 AM HST
Human Services & Homelessness
Transcript Highlights:
- Okay, next up we have the Hawaii State Council on Developmental Disabilities uh in person in support.
- Developmental Disabilities uh in person Developmental Disabilities uh in person in<00:15:06.480>
- I am an intern at the Hawaii Council on Developmental Disabilities.
- , when you're disabled, Unfortunately, when you're disabled, you're<00:23:18.000>
you're <00:23 - our disabled but our aging population. our disabled but our aging population.
Summary:
The committee heard STR 73 SD1, which requests the Office of Wellness and Resilience to develop a report on the developmental needs of children born during the COVID-19 pandemic. The Office of Wellness and Resilience testified in support, saying it was eager to work with local researchers on evidence-based, community-informed recommendations. Support also came from a Zoom testifier, the Department of Education, and the Hawaii Community Foundation. The testifier emphasized the need for trauma-informed supports for children who were ages zero to five during COVID, especially in communities also affected by the Kilauea eruption and the Maui wildfires. Members discussed the long-term impacts of the pandemic and natural disasters on children, and one member said they would support the measure but vote with reservations because they wanted the phrase “climate crisis” changed to “natural disasters.” The committee adopted the chair’s recommendation to pass the resolution as is, with some members noting reservations.
The committee then took up SCR 239 SD1, which asks DAGS, DLNR, and the City and County of Honolulu Department of Parks and Recreation to provide universal changing accommodations in state and county facilities and parks. DAGS submitted comments, DLNR State Parks testified that it supported the intent but raised concerns about the cost and feasibility of retrofitting existing facilities, noting it has 73 comfort stations statewide, ongoing vandalism and maintenance issues, and possible ADA space conflicts. The Hawaii State Council on Developmental Disabilities and the Hawaii Disability Rights Center supported the measure, with testimony stressing that accessible changing facilities are important for independence and equity for people with disabilities. In response to questions, DLNR said it had not received complaints about the lack of such infrastructure and that any future installations should be considered in new designs rather than existing facilities. After discussion, the chair moved to defer the resolution, citing budget and implementation concerns and suggesting the issue be revisited in the future with a revised approach and possible needs assessment. The committee agreed to defer SCR 239 SD1 and then adjourned.
FL
Florida 2026 5th Special Session
Appropriations Committee on Health and Human Services Apr 15th, 2025
Transcript Highlights:
- disability Services and address the persistent backlog by expanding the intellectual and developmental
- Sydney has developmental disabilities, and she's currently on the waiver.
- We couldn't find a dentist that was willing to accept people with developmental disabilities then, and
- Developmentally disabled individuals have enough stress in their lives without worrying about receiving
- I implore you to protect developmentally disabled people like Sydney by never mandating them into managed
Summary:
The committee met with a quorum and took up a series of health and human services bills, beginning with CS/SB 1602, which would require hospital emergency departments to have evidence-based pediatric care protocols, staff training, child-sized equipment and medications, a pediatric care coordinator, and participation in a national pediatric readiness assessment. The bill was reported favorably after no public opposition. CS/SB 1224, aligning Florida law with federal requirements for paramedics to administer controlled substances under physician or nurse practitioner direction, also drew supportive testimony from the Florida Fire Chiefs Association and was reported favorably. CS/SB 1182, requiring coverage of continuous glucose monitors under both pharmacy and durable medical equipment benefits, was likewise reported favorably after brief support from AARP.
The committee then considered CS/SB 890, the Emily Adkins Family Protection Act, which addresses venous thromboembolism by defining certain conditions as chronic diseases, creating a statewide registry, and requiring screening and training in hospitals, surgical centers, nursing homes, and assisted living facilities. Family members and blood clot advocates strongly supported the bill, but assisted living representatives objected to being included, arguing the bill would impose unrealistic medical expectations and liability on residential care facilities. Senators also raised concerns about the assisted living provisions, but the bill was reported favorably after the sponsor said more changes were likely later. CS/CS/SB 954, dealing with recovery residences and treatment centers, was amended to reduce the number of active patients from 500 to 300 and then reported favorably after extensive debate over zoning, clustering, neighborhood impacts, and access to recovery housing.
CS/SB 1050, which expands the developmental disabilities pilot program and creates an adult pathways waiver option, generated the most extensive testimony. Supporters said it would help reduce the long APD waitlist and expand services, while many families and advocates warned against managed care, citing provider shortages, weak oversight, and the importance of consumer-directed care. Committee members emphasized that participation is voluntary and that people can disenroll, and the bill was reported favorably. CS/SB 614, requiring a public educational webpage about background screening and level-two screening requirements, and CS/SB 1578, expanding breast cancer screening coverage, were both reported favorably with little opposition. CS/SB 1060 created a joint legislative oversight committee for Medicaid financing and operations; after an amendment expanding the committee from three to five members, it was reported favorably. CS/CS/SB 1240, updating DCF substance abuse and mental health procedures including 988, methadone assessment, forensic evaluators, and Baker Act transfer timing, was amended and reported favorably after debate over transfer deadlines and facility responsibilities.
Finally, the committee began hearing CS/SB 526, a major nursing education bill aimed at improving Florida’s low NCLEX passage rates by tightening program standards, requiring exit exams and remediation, mandating reporting and inspections, and limiting accreditation extensions. A strike-all amendment was introduced that would also require certain low-performing programs to offer a three-month graduate preceptorship. The transcript cuts off before the bill’s full debate and final action are completed.