Video & Transcript Research : 'tracking'
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NM
New Mexico 2025 Regular Session
IC - Legislative Health and Human Services May 20th, 2025
Legislative Health & Human Services Committee
Transcript Highlights:
- So this, uh, basically is a way for us to keep track of whether or not you want us to loop your DLA into
- committee and their job is to oversight the, the department, oversee the departments and somebody to keep track
- And make sure that they're still on track, um, because this committee basically helped start that program
- And make sure that the, the school of medicine is still on track.
TX
Transcript Highlights:
- At multiple insurance companies, they have proposed resolutions to require the insurers to track greenhouse
- They require the insurance company to track greenhouse gas emissions of their insured clients, or prohibit
- They carefully track such costs each year, and their annual reports are the primary sources of the data
- It's tracking employees' commutes, even if they're home office or remote-based employees.
Keywords:
public school funding, education, budget allocation, financial transparency, state law, local control, fiduciary responsibility, public retirement systems, investment management, proxy voting, financial factors, insurance, political shareholder proposals, fossil fuels, greenhouse gas emissions, environmental regulation, discrimination, credit extension, social credit, value-based standards
TX
Transcript Highlights:
- additional resources for law enforcement, effective training techniques, related strategies, better tracking
- law enforcement to clarify that the bill does not limit their ability to use existing technology to track
- increasing penalties, empowering law enforcement with the tools they need to catch, prosecute, and track
- We conduct training and education programs for officers to help them track metal theft.
Bills:
SB552, SB1099, SB1124, SB1208, SB1372, SB1506, SB1667, SB1804, SB1806, SB1870, SB1936, SB1937, SB2180, SB2405, SB2569, SB2570, SB1646
Keywords:
community supervision, criminal justice, illegal alien, deferred adjudication, Texas Code of Criminal Procedure, SB 1099, undocumented immigrant, unauthorized immigrant, immigration status, felony sentencing enhancement, criminal penalty increase, Texas Penal Code, Code of Criminal Procedure, affirmative finding, judgment finding, deportation, public safety, immigration enforcement, sentencing reform, felony offense
Summary:
The Senate Committee on Criminal Justice heard testimony on several bills dealing with criminal discovery, crime lab access, controlled substances, community supervision, interference with officers, oilfield theft, and copper theft. On SB 1124, witnesses split over whether the bill clarified discovery law after the Heath decision or rolled back the Michael Morton Act; opponents argued it narrowed disclosure and shifted responsibility away from prosecutors, while supporters said it restored balance, limited harsh sanctions, and preserved exculpatory-disclosure duties. The committee later voted 4-0 to report SB 1124 favorably and place it on the local and uncontested calendar. The committee also heard and later reported favorably SB 1372, which resolves a statutory conflict over access to the DPS crime lab portal, and SB 1936, which changes how LSD “abuse units” are defined for testing and charging purposes; both were sent to the local and uncontested calendar. SB 1937, which would require a subject-matter expert from the testing lab to participate in pretrial meetings in capital cases involving biological evidence, was also reported favorably and placed on the local and uncontested calendar.
The committee then heard SB 552, which would make people defined in the bill as “illegal aliens” ineligible for judge-ordered or jury-recommended community supervision, including deferred adjudication. Supporters said the bill would prevent state-funded early release of people who entered or remained in the country unlawfully, while county officials and immigration advocates warned it would be overbroad, difficult to administer, and costly to local jails and taxpayers. Despite those concerns, the committee voted to report SB 552 favorably, and Senator Huffman requested it be taken to the floor. On SB 1208, which increases interference with a peace officer or public official from a Class B misdemeanor to a state jail felony, law enforcement witnesses said repeat “auditors” and similar actors were creating dangerous confrontations and needed stronger deterrence; opponents argued the bill would chill protected filming and protest activity. The committee voted to report SB 1208 favorably and place it on the local and uncontested calendar.
The committee also took testimony on SB 1806, a committee substitute addressing oilfield theft and related crimes. Supporters from law enforcement and the oil and gas industry said organized theft of crude, equipment, and related materials is a growing problem and that the bill would strengthen penalties, allow seizure and sale of stolen product, and improve inspection and forensic tools. The committee substitute was adopted and the bill was reported favorably, with placement on the local and uncontested calendar. Finally, the committee heard SB 1646, which targets copper theft and fiber vandalism by increasing penalties, requiring reporting and recordkeeping for certain purchases, and adding training and enforcement tools. Telecommunications, law enforcement, and emergency-network witnesses supported the bill as necessary to protect 9-1-1 and critical infrastructure, while metal recyclers warned the bill could overregulate legitimate businesses and sweep too broadly. The committee later voted to report the committee substitute for SB 1646 favorably as well.
CA
California 2025-2026 Regular Session
Assembly Budget Subcommittee No. 5 on State Administration Apr 1st, 2025
Transcript Highlights:
- This is something we track very closely.
- This position would be part of the department's cannabis track-and-trace field support unit.
- reported at the state level and we see what's produced through the Department of Cannabis Control's track-and-trace
- Let's fix the track structure, enforce the law, and restore integrity to the marketplace, and let's make
Summary:
The Assembly Budget Subcommittee 5 on State Administration held an informational hearing on budget issues for the Department of Veterans Affairs, the Department of Cannabis Control, the Department of Consumer Affairs, the Commission on the Status of Women and Girls, and the California Arts Council. The chair noted there would be no votes. CalVet gave an overview of its programs serving veterans and families, including transition assistance, county veterans service officers, education approvals, housing and homelessness programs, home loans, long-term care homes, and state veterans cemeteries. Members asked about future long-term care needs for aging veterans, staffing and recruitment challenges at veterans homes, and the Yountville steam infrastructure replacement project, for which CalVet sought a $38.8 million reappropriation and said federal reimbursement was expected. CalVet also discussed the role of county veterans service officers in helping veterans file claims and avoid predatory unaccredited representatives.
The Department of Cannabis Control described its regulatory role from seed to sale and requested one position to implement SB 1064’s combined activities license. Members and public witnesses focused heavily on the illicit cannabis market, enforcement staffing, and the impact of taxes and fees on the legal market. DCC said it had roughly 87 enforcement positions with about a 15% vacancy rate and more than 200 compliance staff. Its economist presented the 2024 cannabis market report, which found licensed production and retail quantity were up, but retail value and prices were down, with an estimated 11.4 million pounds of illicit production and about 60% of California consumption still coming from the illicit market. Industry witnesses argued the legal market is in crisis, urged repeal of the scheduled excise tax increase, stronger enforcement against illicit cannabis and hemp-derived intoxicants, and expanded retail access.
The Department of Consumer Affairs briefly presented nine budget proposals, including a $2.6 million ongoing request to maintain a business modernization system for several boards and bureaus. The Commission on the Status of Women and Girls described its work on economic and educational equity, health care, violence prevention, student rights, and archival and outreach projects, and said its budget request would convert limited-term positions to permanent. A member urged the commission to narrow its priorities toward current issues such as affordability, child care, and women’s health. The California Arts Council outlined its role as the state’s only statewide arts funder and requested restoration of $5 million in local assistance; supporters testified that the funding would leverage additional local investment and help sustain arts access, especially in rural communities. The hearing ended after the non-presentation items were noted and no further public comment was offered.
TX
Transcript Highlights:
- In 2011, the retail inventory tracking system... was revised by the legislature to require wholesalers
- Many businesses do not track using the UPC code.
- When completing the Retail Inventory Tracking System, or RITS report, it is a monthly report intended
- previous bill that was considered regarding utility codes, all of these representatives have to keep track
Bills:
HB511, HB972, HB 1035, HB2481, HB2723, HB2742, HB2894, HB2962, HB3077, HB3093, HB3307, HB3684, HJR67, HJR72
Keywords:
ad valorem taxation, caregiver exemption, Medicaid, long-term services, tax relief, assisted living, housing support, property tax exemption, caregiver support, residence homestead, tax exemption, unpaid caregiver, state tax code, property tax, caregiver, waiting list, intellectual disability, developmental disability, ad valorem tax, family support
MN
Minnesota 2025-2026 Regular Session
House lawmakers consider HF1007 3/25/25
Minnesota House Floor Meeting
Transcript Highlights:
- Our partner at Minnesota Sports and Events has an exceptional track record of planning and executing
- 00:09:47.360>
has <00:09:47.519>an <00:09:47.680>exceptional <00:09:48.160>track - and Events has an exceptional track and Events has an exceptional track record<00:09:48.720>
Summary:
The committee heard House File 107, a proposal by Representatives Norris and Witty to provide a $5 million grant through Explore Minnesota to help cover costs of hosting the 2026 World Junior Hockey Championship in St. Paul and Minneapolis. The authors and supporters described Minnesota’s hockey culture, the tournament’s international profile, and expected benefits, including about 250,000 spectators, a projected $75 million economic impact, and broader tourism and exposure for communities across the state.
Testimony in support came from hockey legend Lou Nanne, St. Paul Mayor Melvin Carter, and Wendy Blackshaw of Minnesota Sports and Events. Nanne called the tournament a major opportunity to showcase Minnesota and said it should be viewed as an income generator. Carter emphasized the event’s prestige and the chance to boost St. Paul’s economy and reputation as a hockey destination. Blackshaw said the funding would cover actual event expenses such as public safety, operations, venue costs, and transportation, and explained that without the grant, Minnesota Sports and Events would have to slow or pause bidding on future events such as gymnastics trials, NCAA wrestling, men’s basketball, the NFL draft, FIFA Women’s World Cup, and WWE events.
Members asked questions about how much of the economic benefit would come from out-of-state visitors, how the $5 million figure was chosen, and what would happen if the grant were not approved. Blackshaw said the organization uses University of Minnesota economic studies and ticket-sales analysis to estimate visitor spending, and said the $5 million would pay for World Juniors expenses while ticket revenue would support future events. The chair noted the bill would be held over for further consideration, and no vote was taken during the meeting.
FL
Transcript Highlights:
- This amendment tracks with the final version we saw in CJ last year under 1590.
- So that tracks with the current trespassing language.
- correctional probation officer, juvenile probation officer, do lawfully place, install, or use a tracking
- Additionally, this amendment allows that person to install place or use a tracking device pursuant to
Summary:
The committee took up a full agenda of criminal justice and related bills, beginning with SB 1180 on AI-generated sexual images. Senator Gates explained the bill was prompted by an Escambia County case involving deepfake pornography created from images of teenage girls, and a student victim testified in support. The committee adopted the amendment and reported the bill favorably. Members then approved SB 500, creating a Spectrum Alert system and related training for missing children with autism; SB 726, making swatting offenders liable for prosecution, investigation, and restitution costs; and SB 494, which would create a statewide animal abuse database, after extensive support testimony from shelters, law enforcement, and animal welfare advocates. SB 964, revising objective parole guidelines to account for rehabilitation and program participation, also passed after testimony from supporters of parole reform and compassionate release.
The committee next approved SB 1344, a juvenile justice cleanup bill with a delete-all amendment that updated truancy, CINS, detention risk assessment, and other juvenile justice provisions. SB 468, increasing penalties for fleeing or eluding and allowing impoundment of involved vehicles, was reported favorably after limited opposition and support from law enforcement-related groups. SB 1136, increasing penalties for offenses involving minors and clarifying that ignorance of a victim’s age is not a defense, also passed after testimony from law enforcement supporters and two speakers opposed. SB 1660, on prostitution, drew the most extensive public comment: the sponsor said it was intended to distinguish trafficking victims from willing participants and shift penalties toward buyers and facilitators, while survivors, prosecutors, and advocates debated whether the substitute amendment would improperly criminalize prostituted persons; the committee ultimately adopted the substitute and reported the bill favorably.
The committee then approved SB 1828, making trespass at large ticketed events and certain secured locations a felony, with discussion focused on crowd control and public safety at major events. SB 1386, increasing penalties for assault and battery on utility workers and adding propane workers through an amendment, passed with broad support. SB 612, closing a loophole so minors who distribute deadly drugs like fentanyl can be charged with murder in certain cases, was reported favorably after testimony from the Hillsborough County Sheriff’s Office and opposition from civil liberties groups. SB 814, which would allow firearms on college campuses and at school-sponsored events, drew strong opposition from students and faculty and was reported unfavorably. Finally, the committee began SB 1604 on corrections with a delete-all amendment that addressed filing deadlines for DOC-related claims, execution-method language, tracking devices, involuntary treatment, and parole-related statutory cleanup; the transcript cuts off before final action on that bill.
CA
California 2025-2026 Regular Session
Assembly Committee on Economic Development, Growth, and Household Impact Mar 24th, 2025
Economic Development, Growth, and Household Impact
Transcript Highlights:
- The way tariffs will filter into prices can be difficult to track directly and it can be a bit nuanced
- Again, tariffs are tricky to track because they're a hidden tax.
- for the expertise and I know it's a it's really hard to to maybe have exact figure, but we want to track
- In terms of actually tracking those costs.
MN
Minnesota 2025-2026 Regular Session
Committee on Rules and Administration followed by Rules Subcommittee on Committees - 03/24/25
Transcript Highlights:
- It would make sense for the state campaign finance board to do this to keep track of it.
- board to do this state campaign finance board to do this to<00:09:35.600>
keep <00:09:35.760>track - >
However, <00:09:36.720>it'd <00:09:37.040>be <00:09:37.120>a to keep track - However, it'd be a to keep track of it.
CA
California 2025-2026 Regular Session
Assembly Budget Subcommittee No. 3 on Education Finance Mar 11th, 2025
Transcript Highlights:
- latest data used to calculate the statutory cost of living adjustment, we think that the COLA was tracking
- There are some previous budget acts that have talked about new statutes requiring districts to track
- I don't know that Finance has much more to share in terms of stories, but the track of supplemental and
- As to whether the restoration of the $1.1 billion reduction should be fast-tracked, or is this just finance's
NM
Transcript Highlights:
- It's been one of those days where I can't keep track, you can't keep track. But we'll do our best.
- I can give you an example: we don't track these independently.
- To another county out of state, we wouldn't track obituary notices or things like that; it's just not
NH
Transcript Highlights:
- think the bill is really silent; it just sort of says Department go do this, but it doesn't say don't track
- think the bill is really silent; it just sort of says Department go do this, but it doesn't say don't track
- think the bill is really silent; it just sort of says Department go do this, but it doesn't say don't track
- all of the current states standing on privacy laws, as I said before, more skeptical than others. ...track
KY
Kentucky 2025 Regular Session
Administrative Regulation Review Subcommittee (2-10-25)
Transcript Highlights:
- I own pharmacies, and so I've been watching the implementation of this and tracking it very closely.
- implementation<00:25:10.120>
of <00:25:10.320>this <00:25:10.480>and <00:25:10.640>tracking - <00:25:11.039>
very implementation of this and tracking very implementation of this and tracking
Summary:
The Administrative Regulation Review Subcommittee met on February 10 with a quorum present, approved the minutes, and then reviewed a long agenda of agency regulations, most of which were accompanied by staff-suggested amendments for drafting conformity under KRS Chapter 13A. The Department of Financial Institutions’ 808 KAR 9:10, the Secretary of State’s 030 KAR 2:11, the Office of the Attorney General’s 04 KAR 5:10, the Board of Speech-Language Pathology and Audiology’s emergency 201 KAR 17:120, the Department of Fish and Wildlife Resources’ 301 KAR 2:41, the Department for Environmental Protection’s 401 KAR 47:110 and 48:320, the State Police regulations 502 KAR 1:012 and 1:121, the Department for Public Health’s 902 KAR 4:15, the Department for Medicaid Services’ 907 KAR 1:15, and the Department for Community Based Services’ 921 KAR 1:400 were all discussed and, where applicable, staff amendments were approved without objection. The Workplace Standards emergency regulation 803 KAR 2:320E was also presented without amendment, and the Department of Insurance’s 806 KAR 9:360 was taken up but ultimately deferred at the agency’s request.
Several regulations drew brief substantive discussion. The Fish and Wildlife rule on foxhound training enclosures was explained as expanding both commercial and non-commercial provisions for training with dogs involving red fox and coyotes, with enclosure standards intended to protect wildlife inside and outside the facilities. The environmental protection rules were tied to House Bill 478 and addressed permit-by-rule timelines, reporting, and operating standards for certain construction and demolition debris landfills, including sites up to two acres; members asked whether these facilities were private or municipal, and staff said they were a mix, often tied to private demolition contractors or single projects. The State Police fee increase for hazardous materials endorsements was described as reflecting a federal TSA fee change, and the witness estimated the new fee at about $23.
The most extended debate concerned the Board of Education’s 704 KAR 3:535 on full-time virtual and remote learning programs. The agency amendment would cap enrollment in such programs at 10% above a district’s prior-year in-person enrollment, while also clarifying accountability, staffing, and monitoring requirements. Education officials said the cap was intended to address concerns about district capacity and student performance, and they cited Cloverport as an example of a district with high virtual participation and participation-rate issues. Members expressed concern that the amendment was too open-ended for regulation and suggested the issue might be better addressed in statute; no motion was made to adopt the agency amendment, so the regulation was left to proceed to the committee of jurisdiction. The Department of Insurance also discussed implementation of Senate Bill 188, saying it had received more than 3,000 complaints since the law took effect and was still working through enforcement and complaint processing before asking to defer its PBM licensing regulation.
HI
Hawaii 2025 Regular Session
PSM, PSM Public Hearings 02-03-2025
Transcript Highlights:
- This bill improves transparency and allows law enforcement to track investigation of hate crimes effectively
- transparency and allows law enforcement transparency and allows law enforcement to<00:15:06.720>
track - investigation<00:15:08.279>
of <00:15:08.480>hate <00:15:08.680>crimes to track - investigation of hate crimes to track investigation of hate crimes effectively<00:15:10.120>
uh
Summary:
The Senate Committee on Public Safety and Military Affairs met on its 3:15 p.m. reconsideration and hearing agenda. The committee first reconsidered SB 1379 on emergency preparedness and voted to pass it with amendments. The amendments would require HEMA to submit a report to the Legislature on a community readiness centers plan, including public and private sites, funding sources, partnerships, stakeholder coordination, and projected annual funding, due 20 days before the 2026 Legislature convenes. The committee also made technical and fiscal-related changes, including blanking out certain amounts in the bill and committee report while retaining recommended amounts there, and changing the effective date language. The committee then voted unanimously to adopt the amended recommendation.
The committee heard SB 1364, which makes emergency appropriations for law enforcement personnel costs. The Department of Budget and Finance supported the bill but said the figures in oral testimony would be slightly higher than those in written testimony and that updated numbers would be emailed later in the week. Because the exact figures were not yet available, the chair deferred decision-making to February 7, 2025. The committee also heard SB 1451 on critical infrastructure, SB 1452 on the Uniform Controlled Substances Act, SB 1149 on hate crimes reporting, SB 1321 on the Hawaii Correctional System Oversight Commission, and SB 1341 on energy industry information reporting.
For SB 1451, testimony was split, with support from state law enforcement and opposition from the Public First Law Center, which argued the information was already protected under existing law; the committee later adopted a motion to pass the bill with amendments, including a narrower definition of critical infrastructure information and a revised effective date. SB 1452 received support from law enforcement and prosecutors, with a requested cleanup amendment to correct a federal drug-name spelling issue; decision-making was postponed to allow the department to provide language. SB 1149 drew substantial testimony both for and against; supporters emphasized better hate-crime data collection and transparency, while opponents raised concerns about definitions and free speech. The committee adopted amendments and passed the bill, with the chair summarizing the move from the older UCR system to NIBRS and noting a public dashboard expected by September 30, 2025. SB 1321 was passed with amendments shortening the oversight coordinator term from four years to three years, though one senator voted with reservations in favor of a longer term. SB 1341 was passed as is after brief support testimony, and the committee adjourned after completing the agenda.
MN
Minnesota 2025 1st Special Session
State government committee approves HF3 1/21/25
Transcript Highlights:
- And I think that something like this puts us on the right track as we begin moving forward uh to appropriate
- 30.799>
right something like this puts us on the right something like this puts us on the right track - 31.720>
begin <00:23:31.960>moving <00:23:32.360>forward <00:23:33.360>uh track - that as we begin moving forward uh track that as we begin moving forward uh to<00:23:33.679>
appropriate
Summary:
The committee heard House File 3, authored by Chair Nash, which would require the Office of the Legislative Auditor to produce an annual report for fiscal committees showing how well agencies have implemented prior audit recommendations, especially those related to financial practices, internal controls, and management. Nash said the bill is intended to give legislators a clearer, ongoing tool to evaluate agencies before making funding decisions and to help prevent waste, fraud, and abuse. He noted the bill would use existing audit information rather than create a new reporting burden, though he said it would deepen the review of implementation.
Legislative Auditor Judy Randall testified that the Office of the Legislative Auditor already tracks implementation to some extent through annual information collected by Minnesota Management and Budget, but that current reporting is based largely on agency self-reporting and is not always independently verified. She said the bill would expand that work and provide the legislature with more useful accountability information. A representative from Americans for Prosperity also supported the bill, calling it a transparency and stewardship measure that would help taxpayers and legislators see whether agencies are following through on recommendations.
Several members spoke in favor, describing the bill as a common-sense accountability measure and comparing it to audit practices in local government and private organizations. Nash and Randall also discussed Colorado’s similar process, where audit follow-up information is presented during budget hearings. Members raised concerns about fraud and inefficiency in state government, and Nash said the bill is meant to help lawmakers better protect taxpayer dollars. The committee voted to recommend House File 3 and re-refer it to the Committee on Ways and Means.
US
US Federal 2025-2026 Regular Session
US House Floor Proceedings (Tuesday, June 10, 2025)
US Federal House Floor Meeting
Transcript Highlights:
- And at this rate, Republicans are on track to issue over 200 closed rules this Congress.
- are are on track to issue over<02:46:08.560>
200 <02:46:08.960>closed <02:46:09.279> - Did he rush to stop Republicans from trying to cover their tracks, who had been lying for weeks about
- career, setting records and track career, setting records and winning<07:48:55.280>
several <07 - <07:49:27.760>
career accomplished high school track career accomplished high school track
MN
Minnesota 2025-2026 Regular Session
Committee on Judiciary and Public Safety - Part 2 - 03/21/25
Judiciary and Public Safety
Transcript Highlights:
- So as I’m reading it, it might not have any impact on tracking down a fleeing suspect. Is that, Mr.
- <00:10:09.040>
down <00:10:09.279>a not have any impact on tracking down a not have - any impact on tracking down a fleeing<00:10:10.399>
suspect. - <02:55:38.399>
this uh, dual track this uh, dual track this bill<02:55:40.479>or <02 - I will choose door number one, dual track, please. All right.
NH
New Hampshire 2025 Regular Session
House Commerce and Consumer Affairs (01/07/2025)
Transcript Highlights:
- He tracks all of our legislation for us.
- He tracks all of our legislation for us.
- He tracks all of our legislation for us.
- He tracks all of our legislation for us.
- <04:44:32.040>
is three-tier system product tracking is three-tier system product tracking
Summary:
The meeting began with introductory remarks for new and returning members of the House Commerce Committee, led by Chairman John Hunt. Members briefly introduced themselves and their backgrounds, and several noted the committee’s bipartisan, collegial tone. Hunt explained the committee’s structure and traditions, including the division into three subcommittees: banking and business, consumer protection, and liquor commission matters, with insurance now handled as a single area. He also reviewed basic hearing procedures, including decorum, questions for information only, and the committee’s practice of moving bills through subcommittees before full committee executive sessions.
The committee then heard an overview from the New Hampshire Insurance Department, led by Commissioner DJ Bettencourt and staff. The department described its mission as promoting a safe and competitive insurance marketplace and emphasized consumer protection, market competition, and affordability. Officials outlined the department’s responsibilities, including licensing insurers, producers, adjusters, and TPAs; reviewing insurance forms; regulating companies and market conduct; overseeing financial solvency; and investigating insurance fraud. They also noted that the department is self-funded through assessments on insurers, collects premium taxes and fees for the state, and returned more than $2.7 million to companies in fiscal year 2024 due to underspending.
The presentation also covered the broader regulatory framework for insurance, including the role of the National Association of Insurance Commissioners in promoting uniform standards across states and territories. Officials said New Hampshire licenses about 1,200 insurance companies and roughly 245,000 producers and adjusters, and that the department’s financial examinations are part of an accreditation system used nationwide. No votes or formal committee actions were taken in the portion provided; the session was primarily organizational and informational, with the insurance department presentation beginning the committee’s substantive work for the term.
FL
Florida 2025 Regular Session
November 5, 2025 - 10:30 AM
Transcript Highlights:
- to really understand how we're A review during our council meeting to really understand how we're tracking
- And so we're able to really track that return on investment.
Summary:
The Health Professions and Program Subcommittee met with a quorum present and received a briefing from Melissa Jordan, Assistant Deputy Secretary for Health and chair of the Florida Rare Disease Advisory Council (ARDAC). Jordan explained that rare diseases affect fewer than 200,000 people each individually, but together impact an estimated 2.3 million Floridians. She reviewed ARDAC’s structure, its three subcommittees, and its 2025 legislative report recommendations, which focused on expanding Florida-specific data, disaster preparedness, state agency coordination, insurance oversight, provider education, faster diagnostic tools, research collaboration, and establishing centers of excellence. She also highlighted ARDAC’s work with other states and its effort to build an online repository of resources for families and providers.
Jordan discussed the Andrew John Anderson Pediatric Rare Disease Grant Program, funded at $500,000 annually, which supported research awards at Florida State University and the University of Miami in 2024 and another University of Miami project in 2025. She also described House Bill 907 and the Sunshine Genetics Act pilot program, which created the Florida Institute for Pediatric Rare Diseases at FSU and a newborn whole-genome sequencing pilot to screen volunteer infants for hundreds of conditions beyond traditional newborn screening. The institute will include research, training, clinical care, a diagnostic lab, genome editing capacity, and a sequencing pilot overseen by a board, consortium, and steering committee.
Members asked about interstate collaboration, the scope of data collection beyond Medicaid, how the council reduces family financial burdens, how families and providers can learn about available resources, and how ARDAC measures effectiveness. Jordan said Florida has learned from other states’ survey-based approaches and instead is using administrative data sources such as Medicaid, hospitalizations, emergency department visits, birth and death certificates, with more clinical data to be added over time. She said success is tracked through annual reports, ongoing work plans, and quarterly research reports that measure progress, patient enrollment, treatment outcomes, and potential follow-on funding. The meeting concluded after the presentation and questions, and the subcommittee adjourned without further business.
TX
Texas 89th 2nd C.S.
Press Conference: High Speed Rail Apr 28th, 2025
Transcript Highlights:
- We're not just laying track, we're laying the foundation for a more connected, more prosperous Texas,
- It has to have its own completely independent uh track, um.