Transcript Highlights:

• We're also obtained a genetic test which was positive for potable disease.
• The CS still to this day, 614 days later has yet to seek out or obtain any genetic expert testing.
• I, myself requested a referral from our pediatrician and schedule an appointment with genetics.
• And from another genetics clinic ran by the former head of genetics at Mayo Clinic in Jacksonville, Dr
• We drove myself and son to his clinic in West Palm Beach where he did genetic testing.

Keywords: 999, senate, all

Transcript Highlights:

• For those of you who don't know, Duchenne is a severe and sadly progressive genetic disorder.
• Members, if you heard me talk about this topic before, you... ...with genetic disorders.
• And finally, through our universities, HB 907 establishes Florida as a leader in genetic medicine.
• It creates a National Sunshine Genetics Consortium, uniting our top universities, children's hospitals
• I'll be very brief and just close with a final statement that the Sunshine Genetics Program will save

Summary: The Health Care Budget Subcommittee met and took up four bills. First, CS/HB 633 by Rep. Koster on managing entity reporting and transparency for behavioral health services was amended to clarify reporting requirements and timing, and to address the bill’s fiscal implementation through conferencing. Members and one public speaker supported the measure, emphasizing accountability and better use of state funds. The bill was reported favorably. Next, CS/HB 531 by Rep. Hunschofsky on background screenings was amended with a strike-all that would require ACCA to create a public webpage with screening education, level-two screening standards, and a searchable catalog of positions requiring screening. Because the amendment changed the bill’s relating-to clause, the chair noted it would be temporarily postponed under House Rule 7.11D and returned to the committee later. The committee then heard HB 1089 by Rep. Booth, which adds Duchenne muscular dystrophy to the recommended newborn screening panel, subject to appropriation. A parent testified in strong support, describing the benefits of earlier diagnosis and treatment, and several members spoke in favor. The bill was reported favorably. Finally, CS/HB 907 by Rep. Anderson created the Sunshine Genetics Program, an opt-in newborn whole-genome sequencing program, and established the Florida Institute for Pediatric Rare Diseases at FSU and a Sunshine Genetics Consortium. An amendment made funding contingent on appropriations and added Nicholas Children’s Hospital and Florida International University to the consortium board. After supportive testimony and debate, the bill was also reported favorably. The meeting then adjourned.

Transcript Highlights:

• Next up, we have HB 1115, related to grants for genetic counseling.
• and training in the field of medical genetics.
• Clinically, genetic counselors are crucial educators and advocates, not just for patients, but also for
• physicians understand and navigate complex genetic conditions, coordinating care between specialists
• Today, Florida is considered a genetic counseling desert with just 179 licensed genetic counselors who

Transcript Highlights:

• Limiting the translocation of the genetically diverse wolf pups into the...
• We need to... ...genetic diversity, because they came from so few animals.
• We need to do everything we can to maximize the genetic diversity. Thank you. Thank you.
• The third location is that they want one on... ...necessarily the genetics of it.
• by wildlife managers to maintain genetic diversity and prevent dangerous genetic bottlenecking.

Bills: SB1075, SB1144, SB1280

Keywords: foreign ownership, land sales, review commission, national security, property rights, veterinary technicians, certification, education alternative, Arizona Revised Statutes, veterinary education, Mexican gray wolf, Mexican wolf, Mexican gray wolf puppies, Arizona Game and Fish Commission, Arizona Game and Fish Department, endangered species, wolf reintroduction, wolf translocation, cross-fostering, wildlife management

Summary: The Committee on Land and Agriculture heard two bills, SB 1075 and SB 1280, with public testimony limited and several speakers appearing on each measure. SB 1075 would create a Foreign Entity Review Commission and prohibit the conveyance, sale, lease, or sublease of state land to hostile foreign entities without commission approval. Supporters said it was needed to protect land near critical infrastructure and military sites, while opponents argued it created unnecessary bureaucracy and duplicated existing safeguards. The committee voted 5-4 to give SB 1075 a due pass recommendation. The committee then took up SB 1280, which would bar the Arizona Game and Fish Commission from transporting Mexican gray wolf pups into the state or using public funds or resources for that purpose. Supporters said the bill would stop state involvement in importing wolves and argued the population had already reached sufficient numbers. Opponents, including representatives from Sierra Club’s Grand Canyon Chapter and Humane World for Animals, said the measure would undermine science-based recovery efforts, reduce genetic diversity, and harm a still-endangered species. Members debated the wolf population, recovery goals, and whether the bill would affect federal conservation efforts. After testimony and member discussion, the committee voted 4-3, with one absent, to give SB 1280 a due pass recommendation. The meeting then adjourned.

Transcript Highlights:

• Members, genetic counselors are highly trained healthcare professionals who have very specialized education
• in the field of medical genetics.
• Clinically, these genetic counselors are crucial educators and advocates for the patients that they serve
• One is interpreting very complex genetic testing results, helping families and physicians understand
• Today, Florida is considered a genetic counseling desert, with just 179 licensed genetic counselors residing

Bills: HB1245, HB2588, HB3024, HB3172, HB3279, HB3919, HB3306, HB3383, HB3431, HB3435, HB4352, HB3883, HB3942, HB4193, HB4203, HB4303, HB4311, HB4484

Keywords: retirement, pension, public employees, Oklahoma Public Employees Retirement System, benefits, survivorship, contribution rates, disability retirement, owners associations, membership requirements, property ownership, board governance, residency requirements, salary increase, state employees, public finance, bonus limits, job performance, Fair Banking Act, financial institutions

Transcript Highlights:

• Mayo Clinic MLD is a rare genetic disorder with symptoms that include loss of motor skills like walking
• Genetic disorders have such a powerful impact on families, and now we know that technology is advancing
• Genetic testing was done on our entire family. Shana and I are both carriers, and so is Ally.
• Doctors knew to test for it in the younger child because MLD is a genetic disease.
• MLD is a genetic MLD is a genetic disease<00:34:16.960> so<00:34:17.960> that<00:34

Keywords: 1187, senate, all

Transcript Highlights:

• Today, more Californians than ever are turning to genetic testing to better understand their health and
• pursue preventative care. ...to genetic testing to better understand their health and pursue preventative
• But many are concerned that genetic information could be used against them when seeking insurance coverage
• why my bill, AB 1798, prohibits life and non-health disability insurers from using non-diagnostic genetic
• AB 1798 ensures that genetic testing leads to better health.

Keywords: 988, house, all

Summary: The Assembly convened, first dealing with quorum and routine procedural matters before moving through a series of third-reading bills, many focused on immigration enforcement, worker protections, child care, and school or voting-site safety. Early measures included AB 2393, AB 1994, AB 1929, AB 1633, AB 1650, AB 1655, AB 1851, AB 1896, and AB 2230, with authors and supporters arguing these bills would provide accountability, protect immigrant communities, preserve access to benefits and services, and limit intimidation by immigration enforcement. Opponents repeatedly argued the bills were anti-law-enforcement, unconstitutional, or based on exaggerated or nonexistent threats. Several bills passed by recorded vote, including AB 2393 (41-15), AB 1994 (58-0), AB 1929 (41-17), AB 1650 (44-19), AB 1655 (50-14), AB 1851 (56-0), AB 1896 (41-19), and AB 2230 (42-15). AB 1633, a 54-vote bill imposing a tax on for-profit detention facilities, was debated at length but the roll was not completed in the excerpt and the item was moved on from temporarily. After a caucus break, the House returned and took up additional bills. AB 2379 would require child care providers to be informed of constitutional protections and receive multilingual training regarding immigration enforcement; it passed 59-10 on both the urgency and the measure. AB 2460 would direct the education department to update referral protocols so schools can better respond to students affected by immigration enforcement trauma and family deportation; it passed 52-8. AB 2495 would expand prohibitions on unfair immigration-related practices by employers, making immigration-related threats unlawful in workplace disputes; it passed 50-15. Throughout the day, debate was highly partisan and often heated, with repeated exchanges over whether the bills addressed real harms or were political messaging, but the Assembly ultimately advanced the measures that came to a vote.

Transcript Highlights:

• a consumer's precise geolocation, immigration status, race or ethnic origin, religion, health and genetic
• Today, more Californians than ever are turning to genetic testing to better understand their health and
• pursue preventative care. ...to genetic testing to better understand their health and pursue preventative
• But many are concerned that genetic information could be used against them when seeking insurance coverage
• why my bill, AB 1798, prohibits life and non-health disability insurers from using non-diagnostic genetic

Summary: The Assembly met in session, established a quorum, approved dispensing with the previous day’s journal, and then took up a long third-reading file. Early procedural actions included moving AB 1589 to the inactive file and continuing reconsideration items. The chamber then considered a series of bills largely focused on immigration enforcement, detention, worker protections, child care, voting access, and related public services. Several immigration-related measures passed, including AB 2393 on damages for false imprisonment/arrest, AB 1994 on an immigrant victims’ rights and resources card, AB 1929 on health plan investment disclosures, AB 1633 imposing a tax on for-profit detention facilities, AB 1650 requiring decals on rental vehicles used for enforcement, AB 1655 protecting CalWORKs benefits when a child is detained, and AB 1896 disqualifying people who participated in immigration enforcement from certain public employment. AB 2230, which would bar immigration enforcement near polling places and child care facilities, also passed after extensive debate. Supporters framed these bills as accountability and protection for vulnerable communities; opponents argued they targeted federal law enforcement, were unnecessary, or raised constitutional concerns. AB 1851 on statewide school mental-health guidance also passed unanimously. After the midday recess, the Assembly returned and continued with more bills tied to immigration impacts and child welfare. AB 2379 passed with urgency, requiring child care providers to be informed of constitutional rights and trained on protections when confronted by immigration enforcement. AB 2460 passed to update school behavioral-health referral protocols for students affected by immigration enforcement trauma. AB 2495 passed to expand prohibitions on employer immigration-related threats, and AB 2662 was presented as a way for California to monitor and document federal enforcement actions and report on their community impacts. Throughout the day, the floor featured repeated exchanges over whether the bills addressed real problems or were political messaging, but the measures that came to a vote generally advanced with majority support.

Transcript Highlights:

• We have improved the productivity in genetics and genomics 40% using AI.
• We have improved the productivity in genetics and genomics 40% using AI.
• So with precision medicine and what he mentioned with genetics, genomics, looking at things like...
• Yeah, to that point about genetics, as a BRCA mutation carrier, it, you know, I've been told that you
• Where do you all see this going as far as involving rare genetic diseases?

Bills: SB1786

Keywords: artificial intelligence, content verification, provenance data, transparency, digital content, 1182, all

Summary: The committee first heard a presentation from Sonora Quest Laboratories on how the company is using artificial intelligence and innovation in clinical lab work. Testimony emphasized that AI is already being used in digital pathology, cytology, genetics, genomics, predictive analytics, and quality control, with a strong focus on human oversight, validation, and closed, secure systems that keep patient data in-house. Speakers said AI can improve accuracy, speed diagnosis, reduce repeat testing, support precision medicine and pharmacogenomics, and potentially help with rare disease management and drug selection, while also noting the need for governance and safeguards. Members asked questions about accuracy, safeguards, data security, whether AI could reduce repeat specimen collection, expand to other hospital labs, and how AI might affect treatment decisions such as step therapy and pharmacogenomics. The presenters said AI outputs are reviewed by specialists, that the systems are validated and monitored, and that the organization uses a closed ecosystem with no external data sharing. They also discussed future possibilities such as digital twins, earlier cancer detection, and more tailored medication choices, while acknowledging that AI is still developing and must be used carefully. The committee then took up Senate Bill 1786, as amended, which requires covered providers using generative AI to add provenance data to AI-created or significantly modified video, image, or audio content, using methods like watermarking or metadata, with exceptions for minor edits and certain interactive or non-user-generated content. The amendment clarified that identifiable individual information generally cannot be included unless the user opts in, protected trade secrets, and set an effective date of February 1, 2027. After discussion about consumer transparency, scope, and possible legal issues, the committee adopted the amendment and voted 4-2 with one absent to give SB 1786 as amended a do pass recommendation.

Transcript Highlights:

• We offer programs in neurosciences, medical physics, and genetic counseling, providing truly world-class
• In the context of genetically modified NK cells administered to the patient in an outpatient setting,
• Graft-versus-host disease is the situation where the genetically modified T-cells begin to attack normal
• Using a single sample of cord blood, we can genetically engineer 100 doses, freeze them, and then provide
• I'm thinking, just maybe, just maybe, with a slight modification, we may have a winner here.

Bills: SB1, SB 1

Keywords: appropriations, budget, state funding, education, healthcare, infrastructure, campground safety, youth camp regulations, flood safety, emergency evacuation, health and safety standards, 1185, senate, all

Transcript Highlights:

• Premium genetics on both the bull and cow side increase both the volume and value of all the products
• ,<00:02:12.400> especially improve their herd genetics, especially improve their herd genetics
• in each calf crop and plays the genetics in each calf crop and plays a<00:02:22.440> major<00
• Premium<00:02:40.720> genetics<00:02:41.240> on<00:02:41.400> both<00:02:41.680>
• the<00:02:41.800> bull<00:02:42.040> and Premium genetics on both the bull and

Keywords: 919, house, all

Summary: Representative Heintzeman presented House File 4508, which would allow the importation of elk from other states into Minnesota to help address challenges facing the state’s elk breeding industry and improve herd genetics. The Minnesota Elk Breeders Association supported the bill, arguing that recent CWD-related import restrictions have effectively cut off access to outside breeding stock, hurt breeder numbers, and limited options for maintaining healthy, profitable herds. The group said elk are relatively resistant to CWD and that importation could be allowed under Board of Animal Health oversight. The Minnesota DNR opposed the bill, saying there is no validated live test for CWD that can ensure incoming animals are disease-free and pointing to recent cases in other states where imported elk later tested positive. The DNR also said federal herd certification programs have not prevented spread of the disease and warned that responding to a new captive cervid detection can cost more than $500,000. Members then discussed broader issues around CWD testing, including frustration that a live test developed at the University of Minnesota has not been federally validated and whether Minnesota should pursue state or third-party validation. Representative Heintzeman said the bill was intended to start a broader conversation and noted that the current proposal does not address the testing issue directly. After testimony and discussion, no vote was taken and House File 4508 was laid over.

Transcript Highlights:

• briefing on the Florida Rare Disease Council, Pediatric Rare Disease Grant Program, and the Sunshine Genetics
• developing a new biodegradable nanoparticle therapy to help treat Barth syndrome, which is a rare genetic
• On July 1, House Bill 907, sponsored by Representative Adam Anderson, established the Sunshine Genetics
• The Sunshine Genetics Act supports newborn whole genome sequencing across Florida.
• , patient advocacy groups, and genetic researchers from Florida and beyond.

Summary: The Health Professions and Program Subcommittee met with a quorum present and received a briefing from Melissa Jordan, Assistant Deputy Secretary for Health and chair of the Florida Rare Disease Advisory Council (ARDAC). Jordan explained that rare diseases affect fewer than 200,000 people each individually, but together impact an estimated 2.3 million Floridians. She reviewed ARDAC’s structure, its three subcommittees, and its 2025 legislative report recommendations, which focused on expanding Florida-specific data, disaster preparedness, state agency coordination, insurance oversight, provider education, faster diagnostic tools, research collaboration, and establishing centers of excellence. She also highlighted ARDAC’s work with other states and its effort to build an online repository of resources for families and providers. Jordan discussed the Andrew John Anderson Pediatric Rare Disease Grant Program, funded at $500,000 annually, which supported research awards at Florida State University and the University of Miami in 2024 and another University of Miami project in 2025. She also described House Bill 907 and the Sunshine Genetics Act pilot program, which created the Florida Institute for Pediatric Rare Diseases at FSU and a newborn whole-genome sequencing pilot to screen volunteer infants for hundreds of conditions beyond traditional newborn screening. The institute will include research, training, clinical care, a diagnostic lab, genome editing capacity, and a sequencing pilot overseen by a board, consortium, and steering committee. Members asked about interstate collaboration, the scope of data collection beyond Medicaid, how the council reduces family financial burdens, how families and providers can learn about available resources, and how ARDAC measures effectiveness. Jordan said Florida has learned from other states’ survey-based approaches and instead is using administrative data sources such as Medicaid, hospitalizations, emergency department visits, birth and death certificates, with more clinical data to be added over time. She said success is tracked through annual reports, ongoing work plans, and quarterly research reports that measure progress, patient enrollment, treatment outcomes, and potential follow-on funding. The meeting concluded after the presentation and questions, and the subcommittee adjourned without further business.

Transcript Highlights:

• How am I due to genetics? How are you classifying a female via genetics? Chair: Thank you.
• the genetics of using to determine the genetics of someone<01:27:59.639> that<01:27:59.719>
• female how am I due to genetics female how am I due to genetics how<01:28:24.960> are<01:
• much genetic much genetic um<01:33:02.639> uh<01:33:02.880> testing<01:33:03.400><
• to run to the doctor and get um genetic to run to the doctor and get um genetic testing<01:35:36.080

Keywords: 1183, house

Transcript Highlights:

• But current technology will allow the Sunshine Genetics Program to screen for as many as 600 conditions
• The Sunshine Genetics Program is not only the right thing to do for families, it will also save money
• It creates a national Sunshine Genetics Consortium, uniting our top universities, children's hospitals
• Thank you for this opportunity to speak today in strong support of HB 907, the Sunshine Genetics Act.
• Florida with an unprecedented opportunity to become a national leader in newborn genetic screening and

Summary: The Education Administration Subcommittee heard and approved four bills focused on school safety, student health, and classroom environment. HB 1403, Safety of Students, would expand Guardian program participation to child care facilities, require substitute teachers to receive campus safety protocols, and allow limited exceptions for certain CTE classrooms; it drew supportive testimony from school safety and education groups and passed 16-0. PCS for HB 907, the Sunshine Genetics Act, would create the Florida Institute for Pediatric Rare Diseases at FSU and launch an opt-in newborn whole-genome screening program funded with $20 million; supporters said it could speed diagnosis, save lives, and reduce health care costs, and it passed 17-0. HB 949 would prohibit student use of wireless communication devices during the full school day, while allowing districts flexibility in implementation and medical exceptions; supporters cited distraction and bullying data, and the bill passed 17-0. The committee also approved HB 723, the Type 1 Diabetes Early Detection Program, which requires the Department of Health to provide school-based informational materials to parents and guardians about early warning signs, risk factors, and screening for type 1 diabetes. An amendment broadened the notification to include voluntary pre-K, kindergarten, and first grade and shifted the annual notice to September 30. Testimony in support came from diabetes advocates and pediatric groups, and members spoke about personal experiences with diabetes and the value of earlier education. The bill passed 17-0 after the amendment was adopted. Across the meeting, members from both parties generally praised the bills as bipartisan efforts to improve student safety, health, and learning conditions. Several members raised questions or concerns about implementation details, including school guardian tracking, cell phone pouches and emergency access, and how the diabetes notice would be distributed, but no bill faced opposition in committee. All four measures were reported favorably.

Transcript Highlights:

• My understanding is that these erroneous results were all analyzed by genetic assay or QPCR, as it's
• different species of compounds because it's all done by genetic sequencing.
• So, like I was saying, genetic assay attempts to quantify yeast and mold by genetic sequence and I got
• For genetic assay of this vast number of species that obviously don't have the same genetic sequence,
• My name's Nickerrano, I'm the owner of Southwest Genetics, a nursery here in Oklahoma City.

Keywords: 914, all

Transcript Highlights:

• And then really working on behavior modification and then families, how do you integrate these other
• so far have focused on colon cancer screening and prevention, exercise and nutrition, behavior modification
• food, plant-based, predominantly plant-based diet, the vast majority of children who do not have genetic
• <00:45:10.960> abnormalities<00:45:11.920> or<00:45:12.240> other have genetic
• abnormalities or other have genetic abnormalities or other deficiencies,<00:45:13.680> who<00

Keywords: 958, all

Summary: The task force opened with a moment of silence for the Louisville UPS plane tragedy, approved the October 15 minutes, and reminded members to submit policy recommendations before the December 16 meeting, when the group will discuss its report to LRC. The first informational presentation, from the Department for Public Health, focused on youth vaping. Elizabeth Good and Julie Brooks cited a recent Surgeon General report warning that youth vaping can harm brain development, mental health, lungs, asthma, and hormones, and noted Kentucky survey data showing 8.7% of students reported daily vaping and 19.7% used vaping products in the prior 30 days. They described prevention and cessation resources including Catch My Breath, I Can End the Trend, Not on Tobacco, My Life, My Quit, Quitline services, and the Kentucky TRUST retailer education program, which trained 3,371 individuals in 2024 and distributed 253 Tobacco 21 toolkits. The next presentation came from Kentucky ABC on implementation of SB 100, which created the division of tobacco, nicotine, and vapor product licensing. Commissioner Scotty Tracy and Jamar Carter said all retailers selling tobacco, nicotine, or vapor products must be licensed, regulations were filed October 31, 2025, and the online application portal is live. In response to questions about sales to minors, they said violations carry escalating fines for clerks and owners, with a fourth violation resulting in no license renewal for two years and unpaid fines also blocking renewal. They said complaints can be submitted through the portal, by phone, or on the ABC website, and enforcement investigates tips and may use underage compliance checks. The committee then heard from Kim McKenna Johnson of One Cross Community Health, who argued for a “deficiency-first” and holistic approach to care centered on nutrition, lifestyle, and targeted supplementation. She said her clinic serves more than 7,000 patients in Taylor and Marion counties and described a model that includes primary care, behavioral health, functional medicine, addiction recovery, and chronic care. She cited Kentucky health rankings, claimed nutritional deficiencies cost the state billions, and said many children are overprescribed while undernourished. She urged broader insurance coverage for nutritional testing and supplements, rural demonstration grants, and Medicaid pilots for clinically prescribed supplements. Members asked about testing costs, dietitian support, long-term cost savings, compliance, and whether medications are often used to prevent damage from noncompliance; the presenter said the lab tests are generally covered, supplements are the main cost barrier, and seeing lab results can improve family buy-in. No votes were taken during the meeting.

Transcript Highlights:

• Because John's child has a rare genetic form of autism called the SYT1 gene mutation, he, as a dad, came
• I think what we've had to learn through genetic disease and pediatric disease, and you heard Dr.
• And the more I've learned about genetics and how we're put together, it's really a wonder that any of
• These are genetic and pediatric diseases, and they occur so frequently that if we put any other type
• We are the beneficiary of the foundation called the Genetic Autism Alliance, which is the beneficiary

Keywords: 959, house, all

Transcript Highlights:

• This is a rare and inherited genetic disorder that primarily affects children.
• with ALS often require complex, multidisciplinary care, expensive durable medical equipment, home modifications

Keywords: 987, senate, all

Summary: The Senate met with a quorum, approved the journals, and took up several gubernatorial appointments. Senators confirmed Clint Kellum as Director of the Cannabis Control Department, Jennifer Osborne as Director of the Department of Industrial Relations, Dr. Trinidad Solis and Dr. Gerald Tolbrook to the Medical Board of California, with roll-call votes showing broad support. The chamber also adopted a request to remove SB 830 from the inactive file for return to the Assembly. A major portion of the session was devoted to Senate Resolution 97, recognizing May as Asian and Pacific Islander American Heritage Month. Senators from multiple caucuses spoke in support, highlighting AAPI contributions to California, histories of exclusion and discrimination, solidarity with other communities, and the importance of visibility and representation. The resolution was adopted 39-0. The Senate also recognized numerous AAPI community honorees and guests, including leaders in advocacy, education, business, and public service. Members then adopted several awareness resolutions: SCR 168 designating May as Motorcycle Safety Awareness Month, SCR 148 declaring May 23, 2026 as GM1 gangliosidosis awareness day, SR 95 proclaiming May as ALS Awareness Month, SCR 156 recognizing Stroke Awareness Month, and SR 110 marking National Hospital Week in California. Each measure was supported by personal testimony or remarks from members and guests, often tied to lived experience or advocacy work, and each passed unanimously or by unanimous consent. The Senate also honored retiring California Professional Firefighters president Brian Rice and heard additional floor recognitions before adjourning until May 14, 2026.

Transcript Highlights:

• Public Employees Retirement Association will have to make system modifications to its pension administration
• Comments from parents, well, I wasn't good at math, too, as if it's genetic.

Keywords: 996, all